Guest guest Posted August 11, 1999 Report Share Posted August 11, 1999 <7oo9j0$rv9-egroups> wrote: original article:/group/chiari/?start=21760 > Hi guys, > Been kinda quite lately but I have not forgotten about ya'll. Does > anyone have any advise on getting on disability? Also, has anyone gone > through the research at land to recieve care. > Talk to ya'll soon, > Connie in TX. > Connie - If you will contact me at 225@... I may be able to help with info. & Libby Palm Bay Fla. PS Had to post I view on web and don't have your e-mail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2001 Report Share Posted July 10, 2001 , we live in Canada, so it may be different here...Mike had to fight a bit harder because he hadn't worked for two years and didn't have contributions to the pension plan, therefore they had to prove his illness was there in 1997, otherwise he would have gotten it right away. Patti > >Reply-To: >To: >Subject: disability >Date: Tue, 10 Jul 2001 19:58:08 -0000 > >Hi, > >I don't expect to have to go this route soon... but I have seen >people talk about it taking years to get SSA Disability??? Is that >true? > >I looked on the SSA.GOV website and it looks to me like 'our' illness >is in the 'Listing of Impairments' that they have, which appears to >be a list of things automatically covered..... > >5.05 Chronic liver disease (e.g., portal, postnecrotic, or biliary >cirrhosis; chronic active hepatitis; 's disease). With: > >A. Esophageal varices (demonstrated by X-ray or endoscopy) with a >documented history of massive hemorrhage attributable to these >varices. Consider under a disability for 3 years following the last >massive hemorrhage; thereafter, evaluate the residual impairment; or > >B. Performance of a shunt operation for esophageal varices. Consider >under a disability for 3 years following surgery; thereafter, >evaluate the residual impairment; or > >C. Serum bilirubin of 2.5 mg. per deciliter (100 ml.) or greater >persisting on repeated examinations for at least 5 months; or > >D. Ascites, not attributable to other causes, recurrent or persisting >for at least 5 months, demonstrated by abdominal paracentesis or >associated with persistent hypoalbuminemia of 3.0 gm. per deciliter >(100 ml.) or less; or > >E. Hepatic encephalopathy. Evaluate under the criteria in listing >12.02; or > >F. Confirmation of chronic liver disease by liver biopsy (obtained >independent of Social Security disability evaluation) and one of the >following: > >1. Ascites not attributable to other causes, recurrent or persisting >for at least 3 months, demonstrated by abdominal paracentesis or >associated with persistent hypoalbuminemia of 3.0 gm. per deciliter >(100 ml.) or less; or > >2. Serum bilirubin of 2.5 mg. per deciliter (100 ml) or greater on >repeated examinations for at least 3 months; or > >3. Hepatic cell necrosis or inflammation, persisting for at least 3 >months, documented by repeated abnormalities of prothrombin time and >enzymes indicative of hepatic dysfunction. > > >and.... > >5.06 Chronic ulcerative or granulomatous colitis (demonstrated by >endoscopy, barium enema, biopsy, or operative findings). With: > >A. Recurrent bloody stools documented on repeated examinations and >anemia manifested by hematocrit of 30 percent or less on repeated >examinations; or > >B. Persistent or recurrent systemic manifestations, such as >arthritis, iritis, fever, or liver dysfunction, not attributable to >other causes; or > >C. Intermittent obstruction due to intractable abscess, fistula >formation, or stenosis; or > >D. Recurrence of findings of A, B, or C above after total colectomy; >or > >E. Weight loss as described under §5.08. > > > >For those who want to read more on this.... > >http://www.ssa.gov/OP_Home/cfr20/404/404-ap09.htm >Appendix 1 to Subpart P of Part 404--Listing of Impairments > >So... does disability take forever to get if I/we should be unable to >work? My energy level is almost at that point now! > > > 42 Maine UC73 PSC91 > _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2001 Report Share Posted July 10, 2001 , we live in Canada, so it may be different here...Mike had to fight a bit harder because he hadn't worked for two years and didn't have contributions to the pension plan, therefore they had to prove his illness was there in 1997, otherwise he would have gotten it right away. Patti > >Reply-To: >To: >Subject: disability >Date: Tue, 10 Jul 2001 19:58:08 -0000 > >Hi, > >I don't expect to have to go this route soon... but I have seen >people talk about it taking years to get SSA Disability??? Is that >true? > >I looked on the SSA.GOV website and it looks to me like 'our' illness >is in the 'Listing of Impairments' that they have, which appears to >be a list of things automatically covered..... > >5.05 Chronic liver disease (e.g., portal, postnecrotic, or biliary >cirrhosis; chronic active hepatitis; 's disease). With: > >A. Esophageal varices (demonstrated by X-ray or endoscopy) with a >documented history of massive hemorrhage attributable to these >varices. Consider under a disability for 3 years following the last >massive hemorrhage; thereafter, evaluate the residual impairment; or > >B. Performance of a shunt operation for esophageal varices. Consider >under a disability for 3 years following surgery; thereafter, >evaluate the residual impairment; or > >C. Serum bilirubin of 2.5 mg. per deciliter (100 ml.) or greater >persisting on repeated examinations for at least 5 months; or > >D. Ascites, not attributable to other causes, recurrent or persisting >for at least 5 months, demonstrated by abdominal paracentesis or >associated with persistent hypoalbuminemia of 3.0 gm. per deciliter >(100 ml.) or less; or > >E. Hepatic encephalopathy. Evaluate under the criteria in listing >12.02; or > >F. Confirmation of chronic liver disease by liver biopsy (obtained >independent of Social Security disability evaluation) and one of the >following: > >1. Ascites not attributable to other causes, recurrent or persisting >for at least 3 months, demonstrated by abdominal paracentesis or >associated with persistent hypoalbuminemia of 3.0 gm. per deciliter >(100 ml.) or less; or > >2. Serum bilirubin of 2.5 mg. per deciliter (100 ml) or greater on >repeated examinations for at least 3 months; or > >3. Hepatic cell necrosis or inflammation, persisting for at least 3 >months, documented by repeated abnormalities of prothrombin time and >enzymes indicative of hepatic dysfunction. > > >and.... > >5.06 Chronic ulcerative or granulomatous colitis (demonstrated by >endoscopy, barium enema, biopsy, or operative findings). With: > >A. Recurrent bloody stools documented on repeated examinations and >anemia manifested by hematocrit of 30 percent or less on repeated >examinations; or > >B. Persistent or recurrent systemic manifestations, such as >arthritis, iritis, fever, or liver dysfunction, not attributable to >other causes; or > >C. Intermittent obstruction due to intractable abscess, fistula >formation, or stenosis; or > >D. Recurrence of findings of A, B, or C above after total colectomy; >or > >E. Weight loss as described under §5.08. > > > >For those who want to read more on this.... > >http://www.ssa.gov/OP_Home/cfr20/404/404-ap09.htm >Appendix 1 to Subpart P of Part 404--Listing of Impairments > >So... does disability take forever to get if I/we should be unable to >work? My energy level is almost at that point now! > > > 42 Maine UC73 PSC91 > _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2001 Report Share Posted July 10, 2001 Thats interesting. I cant figure out why they would wait until absolute end stage like that. I was given SSI right away, but then I had to go through 3 months of arduous psychiatric testing(rorshach etc..)to get to that point. The fact that I was diagnosed may mean my downfall. They dont like to transplant those with anxiety disorders. However the VA will. Thank God for that. Has anyone heard anything about Stanfords Transplant program. Word is going around that they no longer accept insured people on the list only those paying cash. So if your thinking about seeing a psychiatrist for anything, better hold off. It could really hurt you in the long run. Had I only known... Andi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2001 Report Share Posted July 10, 2001 When I first learned of all of this... '91 ish I looked into transplant programs. At the time I spoke with an intake nurse in the transplant center at Pittsburg. She sent me LOTs of info and one thing I noticed is that they wanted a huge cash deposit... like 100K! Who has that? And isn't that why I pay an insurance premium? Not sure is that is still the case in Pittsburg but it was 10 years ago. I also was faced with a decision on insurance... HMO or 'standard'. The HMO covered liver tx but I hated ALL the other rules. The 'standard' plan didn't cover them but was more relaxed... a tough choice. I have a serious issue when someone askes me to spell my illness, then says... " you don't need a referral to a specialist... we can treat this here " . After 4 primary care doctors told me that... I chose 'standard' policy where *I* make some of the choices too. Oh well... just my 2 cents! 42 Maine UC73 PSC91 >Has anyone heard anything about Stanfords Transplant >program. Word is going around that they no longer accept insured >people on the list only those paying cash. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2001 Report Share Posted July 10, 2001 When I first learned of all of this... '91 ish I looked into transplant programs. At the time I spoke with an intake nurse in the transplant center at Pittsburg. She sent me LOTs of info and one thing I noticed is that they wanted a huge cash deposit... like 100K! Who has that? And isn't that why I pay an insurance premium? Not sure is that is still the case in Pittsburg but it was 10 years ago. I also was faced with a decision on insurance... HMO or 'standard'. The HMO covered liver tx but I hated ALL the other rules. The 'standard' plan didn't cover them but was more relaxed... a tough choice. I have a serious issue when someone askes me to spell my illness, then says... " you don't need a referral to a specialist... we can treat this here " . After 4 primary care doctors told me that... I chose 'standard' policy where *I* make some of the choices too. Oh well... just my 2 cents! 42 Maine UC73 PSC91 >Has anyone heard anything about Stanfords Transplant >program. Word is going around that they no longer accept insured >people on the list only those paying cash. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2001 Report Share Posted July 10, 2001 Phil applied and got on within months. They even overlapped the state ss. The key is to get the paperwork right and have your doctors support. Kaiser's insurance department helped him. Two years after he qualified for Medicare and they sent the necessary paperwork before we even thought to request it. I have heard that sometimes they turn you down but that wasn't the case for Phil. He is on the transplant list but only because of his reoccurring infections that have gone from several in a few months to one a year to 2 in 3 months to none for 3 months now. Peg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2001 Report Share Posted July 11, 2001 , India was OKed for SSI right away. We too had our paper work in order and the Dr. backed it. Because I needed to be home with her all the time, We lost a income. Plus we didn't have insurance (we're self employed) they knew we needed her to have her medical covered. It took about 3 months for everything to go thru. It's been a blessing not to worry about the medical bills for her. We still have the rest of the families medical to deal with but after India's bill thats a breeze. Lori E Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2008 Report Share Posted February 9, 2008 Hi Janine I applied for Social Security Disability in the summer of ' 99. I was awarded 6 mos after application. I didn't need to see one of their doctors for evaluation. I didn't need to hire an attorney to appeal. I was told my ' numbers' were that bad and my doctor's report was that good that I got my award right away. I'm not quite sure what you're asking, and I don't know much about what CIGNAS is..but I stopped working about 6 mos prior to applying for disability, I applied and was that sick I was awarded with not confrontation. Any questions feel free to contact me Sandie in MD USA Never Look Down on SomeoneUnless You're Willing to Help Them UpWho's never won? Biggest Grammy Award surprises of all time on AOL Music. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2008 Report Share Posted February 9, 2008 That is a bad situation. I was an insurance underwriter (not for healthcare) and I know some companies just deny every claim initially. Fortunately, I didn't get too sick to work until about two years ago and I was fully retired, but working for a temp agency when I wanted to. However, I can't work now and it has really changed my life a lot. I do have long term care insurance and wonder if they will deny coverage when I get to the point where I can't take care of myself. I have arthritis and some kind of neurological problem too. I would call your insurer and get someone high on the food chain to accept the claim. MarilynWho's never won? Biggest Grammy Award surprises of all time on AOL Music. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2008 Report Share Posted February 9, 2008 Hello all,I know this questions has been posed to the group before, but I am going to ask again...Is anyone out on long term, short term, or social security due to bronchiectasis? I have had bronchiectasis for 30 some years, and recently diagnosed with PCD and MAC. I worked for 18 years, until December 2006 at which time I was hospitalized and reached a point that working was not an option. I have short and long term disability with CIGNA --I assumed that when CIGNA received my medical records and reviewed them, I would get approved and that would be it. However, when they received my records, supposedly they did not know how to handle this type of claim, and it has been going in circles for about a year. I recently spoke with a consultant and was told that where UNUM was the "bad disability insurance company" 10 years ago, there was a mass exodus at UNUM and many went to CIGNA. NOw CIGNA is the new "bad guys" and the policy at CIGNA is to "litigate, litigate, litigate" (in other words, they will deny coverage, and wait to see which policy holders will sue). CIGNA was just in the press recently with Mark Geragos ( 's attorney) suing for a woman that had been denied coverage and died while waiting. I am in the position that I was told to stop working and start an intense pulmonary rehabilitation program, and to focus on my health for about 18 -24 months. Then, re-evaluate at the end of the period and see if I am well enough to return to work....That sounds like a good plan, but when you are dependent on your salary, and have responsibilities...I purchased what I thought was a good policy 8 + years ago for the very reason, that I didn't want to have any issues if I became disabled. I am in the position now that I never wanted to be in. I am wondering if anyone has any experience or thoughts about this?Thanks,Janine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2008 Report Share Posted February 9, 2008 HI ,Do you by any chance have a copy of your pulmonary test? I want to compare mine with someone who already has the benefit in place. I will keep in completely confidential if you are able to locate it.Thank so much for responding!JanineJanine Pendley H) To: bronchiectasis From: dianaleacook@...Date: Sat, 9 Feb 2008 14:29:32 -0800Subject: Re: Disability I have been off work since last summer. They based mine on my pulmonary function test. I was approved through my work and a prudential insurance that I have. It only took about 60 days for a decision to be made. JMP pendley <Janinependleyhotmail> wrote: Hello all,I know this questions has been posed to the group before, but I am going to ask again...Is anyone out on long term, short term, or social security due to bronchiectasis? I have had bronchiectasis for 30 some years, and recently diagnosed with PCD and MAC. I worked for 18 years, until December 2006 at which time I was hospitalized and reached a point that working was not an option. I have short and long term disability with CIGNA --I assumed that when CIGNA received my medical records and reviewed them, I would get approved and that would be it. However, when they received my records, supposedly they did not know how to handle this type of claim, and it has been going in circles for about a year. I recently spoke with a consultant and was told that where UNUM was the "bad disability insurance company" 10 years ago, there was a mass exodus at UNUM and many went to CIGNA. NOw CIGNA is the new "bad guys" and the policy at CIGNA is to "litigate, litigate, litigate" (in other words, they will deny coverage, and wait to see which policy holders will sue). CIGNA was just in the press recently with Mark Geragos ( 's attorney) suing for a woman that had been denied coverage and died while waiting. I am in the position that I was told to stop working and start an intense pulmonary rehabilitation program, and to focus on my health for about 18 -24 months. Then, re-evaluate at the end of the period and see if I am well enough to return to work....That sounds like a good plan, but when you are dependent on your salary, and have responsibilities...I purchased what I thought was a good policy 8 + years ago for the very reason, that I didn't want to have any issues if I became disabled. I am in the position now that I never wanted to be in. I am wondering if anyone has any experience or thoughts about this?Thanks,Janine Never miss a thing. Make Yahoo your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2008 Report Share Posted February 9, 2008 Thank you. I think that is what I am going to have to do, take it up the chain..Thanks!JanineJanine Pendley H) To: bronchiectasis From: Mmanow1@...Date: Sat, 9 Feb 2008 18:05:19 -0500Subject: Re: Disability That is a bad situation. I was an insurance underwriter (not for healthcare) and I know some companies just deny every claim initially. Fortunately, I didn't get too sick to work until about two years ago and I was fully retired, but working for a temp agency when I wanted to. However, I can't work now and it has really changed my life a lot. I do have long term care insurance and wonder if they will deny coverage when I get to the point where I can't take care of myself. I have arthritis and some kind of neurological problem too. I would call your insurer and get someone high on the food chain to accept the claim. MarilynWho's never won? Biggest Grammy Award surprises of all time on AOL Music. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.