Missing in action and question

[Guest guest]

" Hello, we are hanging in there, we are ok". Head count: , Adam, Mike Z, , Ezra, Dianne A, Luanne and to the rest of our once a month posters and lurkers. Just to let you know we care:)

I am so hurt.....why you ask? look at that list.....uh huh my name is not there I am a forgotten soul...... boo hoo !

Update:

I had my last appointment with the GI doc for the year.

My blood test came back ... OK, so I won't go back unless there is a problem. I saw some where in the posts somebody being concerned about that. Don't be concerned be happy. I am at a stand still I have not progressed thru this last year. My liver is still inflamed as well as my spleen but that is normal. ( well not normal but that is expected) I have scar tissue, etc., etc., not a concern right now. I dodged my colonscopy. (really I actually hid out for awhile) This is also something I saw here maybe this is the answer...I received a letter from the DR's office lecturing me how 30% of the PSC patients develop colitis.( a ploy to get me in there for that nasty test) I have no discomfort or abnormalities that concern me and what's that saying? if ain't broke don't fix it.

I also wanted to comment on that theory of PSC being hormone related. I would not be surprised! I have the worst out of whack hormones I have ever heard about.

I have always had a weak immune system and it has gotten worse even more so now. I have heard a theory about it maybe related to a virus or something.

I had German Measles when I was born or shortly after.

I had a blood disease when I was about 12 yo, chicken pox at 13 or 14yo. I had a weird flu called the Taiwan flu at 16 but going back I was sick the first two years of my life. Geez look at all these ages the list would be shorter if we talked about how long I have felt well. Well, I was just sharing a piece of info maybe one day we or one of us will say HEY by I think I got it...and then we have a cure. Question: you hear about the live donor tx why can't they cut the "bad" out of our liver so we don't get cirrhosis? I hope that sounds right : )

Tricia dx 08/99 PSC and the results are in ....

dx'd insane 01/01