Letter, Re: ME survivor to talk on BBC (The Scotsman, 21 January 2012)

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The Scotsman Letters.

In the documentary, ME: An Sgìths Nimheil/The Toxic Tiredness, Part 1

(BBC Alba TV, 23 January 2012 --

http://www.bbc.co.uk/programmes/b019p6gp), after listing symptoms,

" which lead to a lifestyle that is awful, " Dr Marr says that,

although for a few patients it may run its natural course, M.E. (Myalgic

Encephalomyelitis) is, for the majority, a lifetime illness, " though, "

she concludes, " it is not fatal. " Tell that to the surviving families

and loved ones of Lynn Gilderdale, Sophia Mirza, amongst others around

the world and then wonder how many more have never been tested in life

or post mortem.

It would seem most intelligent to follow up what they had in common

after death - basal ganglionitis - for frequency, cause and any

inflammatory similarities of sufferers still living with M.E. Yet we

continue to squander precious funding on management techniques which

have so clearly failed for at least 25 years, or why do so many people

remain ill for decades.

Yours sincerely

drjohngreensmith@...

Dr H Greensmith

ME Community Trust.org