Re: [CRPS]rsd To Everyone here at CRPS@egroups

May 28, 2000

Dear

I also have RSD and Fibromyalgia you can write me personally anytime

you wish if you wish to holler at me go ahead i am us to it. I have a

fibromyalgia information page on my website and also a relaxation page.

the addy is

http://members.tripod.com/~c.hammonds/carolynsworld.html

May 28, 2000

Hi ,

Well, I for one LOVE to get emails private or not. Please feel free to email

me anytime.

I would like to know your opinion on this pot issue also. It has taken the

form of a poll, so I am keeping track.

, I don't want to get you all in an uproar but you have a huge case of

malpractice here, but so do I. I called my P. I. A. (personal Injury

Attorney) and he said 85 percent of these types of cases are lost.

You know what I am still going ahead with it. If we all did maybe it would

draw more attention to this insidious disease.

I was seen by the Head of Neurology at Beth Israel Deaconess in Boston. He

said I did not have RSD but neuromas in my right foot, and ulnar nerve damage

and tennis elbow in my right arm.

I was so ecstatic! My husband and I were doing a jig in the office!

I, foolishly, allowed the Chief of neurology to inject all five metatarsal

heads on my right foot and left in the most pain I have experienced except

for the nerve test. I wanted him to be right! I was given the name of a hand

surgeon to follow up with the ulnar nerve and tennis elbow.

I was literally in bed for a week after this procedure.

Needless to say I never had the surgery on my right ulnar nerve.

I never should have allowed him to inject my toes either.

I will look into malpractice, once I am done with the accident insurance and

that fight.

I am happily married with the most unbelievable husband. He is truly a saint.

I have enclosed a link for you about the malpractice.

As far as chat goes, sign onto your regular server. Then sign onto instant

messenger. I have the same name as do most of us, but once you get there,

Felice is the chat hostess. If you don't get invited IM someone you know and

ask if the chat is going on yet.

Felice is Felicet867 felicet8678, Jo is JoMal1, I am Debgena and so on.

Load your buddy list from the list set up option at the instant messenger

list. It will tell you if anyone from the list is on line, once it is loaded.

Tell us what your screen name is, if it different.

Hugs to you all,

Deb

listowner

CRPS

egroups

May 28, 2000

,

Hi, this is Tracey. I have RSD in my total left side after knee surgery

in 1997. I am engaged to a wonderful man and have 3 beautiful children. I

live in upstate New York. I, too, love learning about new places. I write

to a woman in Australia and love the pictures she sends me. About the

month of May, I can't say I'm thrilled with it either as my birthday is May

1st and I just turned another year older!!! Please feel free to email me

anytime. My email addy is tnhkrieg@....

Hugs, Tracey

> [Original Message]

>

> To: <CRPSegroups>

> Date: 5/28/00 12:55:14 PM

> Subject: rsd To Everyone here at CRPS@egroups

>

> To all members of the CRPSegroups:

>

> Please read this as if I were writing it just for you in a personal

> email.

>

> I am still a relatively new member as we all are basically. I have been

> reading the posts quietly to myself here lately without responding

> because I do not know who likes to be emailed directly and who does not.

> There are times when emailing the group is not appropriate. I will never

> mail anyone a nasty (bad) email or put anyone down for their beliefs,

> ideas, or even their thoughts. We all have the given right to our own

> opinions, and I believe that we can learn from each other by expressing

> ourselves. My email address set up just for RSD is raj@... I

> would appreciate knowing if you would or would not like to be emailed

> personally from time-to-time?

>

> About Myself:

>

> I am male, 35, extremely happily married, have two boys ages 10 and 12,

> overweight (225), 6 foot 1 inches tall, and I have a million questions

> about RSD and Fibromialgia. I also love to know about other places,

> countries, states, it’s scenery, etc. I live in Texas in-between Fort

> Worth, Dallas, and Waco.

>

> I started having problems with my left hand, arm, and shoulder in 1995.

> They were turning blue, swelling, and had a hot stinging pain that just

> would not go away. This interfered with my profession of over 15 years

> as a brick and stone mason to a point that I had to quit altogether.

>

> In May of 1996, I had my first ulnar nerve surgery. Soon afterwards the

> rsd spread to my right arm and shoulder. My surgeon died a couple of

> months later, so I had no doctor to explain why my right arm was acting

> just like my left one. The same surgery was done in May of 97 by the

> tallest doctor I have ever seen! The surgery spread the rsd to my hips

> and both legs and feet. This doctor had no idea why I was not getting

> better?

>

> Finally, in " MAY " of 98, I was diagnosed with rsd by a surgeon and

> another pain specialist. I’m not a big fan of the month of May anymore!

> I’m probably just like 99% of the rest of you out there, I had no idea

> what RSD was, but I have been learning ever sense I found out that I

> have it. In 99, my doctor suggested that I probably have Fibromialgia

> too, and when she did the pressure point test I almost fell down when

> she touched the one under my shoulder blades. Again, I was diagnosed

> with another disease that I had never heard of.

>

> About Chat:

>

> I downloaded AOL instant messenger and also have Yahoo instant

> messenger. I don’t know how to use them right though. I can’t chat on

> Mondays and Wednesdays because my wife gets off work during the time the

> chat is online, and I won’t tie up our phone lines just in case she

> needs to call home during this time. All the other nights are perfectly

> all right to go to the chat, but I don’t know how. (Oh yeah, my memory

> is horrible, so if you have explained how to do this before – I don’t

> remember.)

>

> You curious new rsd member at CRPSegroups:

>

> ------------------------------------------------------------------------

> Buy Long Distance with your GROUP and SAVE!!!

> http://click./1/4123/0/_/706883/_/959532913/

> ------------------------------------------------------------------------

>

May 28, 2000