Re: Hello, I'm new...

[Guest guest]

Hi Michele, I want to welcome you to the group. I live in Oklahoma,

40 years old, I have been married 11 years, and have 2 daughters,

ages 21, and 9. I have RA,OP, fibro, and a number of other problems,

don't we all. I just recently started on disability. It took about

a year, but got it the first go around. I know sometimes people get

denied, and you just appeal, and don't give up. I also like to chat,

so I would enjoy getting to know you. Take care Tawny

--- In , " elvenstar76 " <elven_star@e...>

wrote:

> I just wanted to introduce myself to this group I'm new but not to

> RA! I have RA, Osteo, and Fibro, etc... I just cut my work hours

> back after coming off of a month and a half of short- term

> disability. I'm a talker and I now have time to chat, so, if anyone

> wants to talk...

> If anyone has any helpful tips about getting on SS Disability I

would

> appreciate ANY advice.

> Talk to ya' soon, Michele

[Guest guest]

Welcome, Michele!

I'm hoping that members who have tips on Social Security Disability will

share them with you.

In the meanwhile, a's Web site has a lot of information that may

help you:

http://rheumatoid.arthritis.freehosting.net/help.html#ss

[ ] Hello, I'm new...

> I just wanted to introduce myself to this group I'm new but not to

> RA! I have RA, Osteo, and Fibro, etc... I just cut my work hours

> back after coming off of a month and a half of short- term

> disability. I'm a talker and I now have time to chat, so, if anyone

> wants to talk...

> If anyone has any helpful tips about getting on SS Disability I would

> appreciate ANY advice.

> Talk to ya' soon, Michele

[Guest guest]

Hi Michele

--- In , " elvenstar76 " <elven_star@e...>

wrote:

> I just wanted to introduce myself to this group I'm new but not to

> RA! I have RA, Osteo, and Fibro, etc... I just cut my work hours

> back after coming off of a month and a half of short- term

> disability. I'm a talker and I now have time to chat, so, if anyone

> wants to talk...

> If anyone has any helpful tips about getting on SS Disability I

would

> appreciate ANY advice.

> Talk to ya' soon, Michele

[Guest guest]

Hi Michele,

I just joined the board as well. I went on short term/ long term

disability from work the last week of Dec. I too am going to have to

embark on the ss disability application process. Now that my 5yr old

is back in school I have extra time to chat as well.

Ronny

--- In , " elvenstar76 " <elven_star@e...>

wrote:

> I just wanted to introduce myself to this group I'm new but not to

> RA! I have RA, Osteo, and Fibro, etc... I just cut my work hours

> back after coming off of a month and a half of short- term

> disability. I'm a talker and I now have time to chat, so, if anyone

> wants to talk...

> If anyone has any helpful tips about getting on SS Disability I

would

> appreciate ANY advice.

> Talk to ya' soon, Michele

[Guest guest]

Hi Michele,

Welcome to the group-I live in NY and have RA, OA and fibro. One of my NY

resolutions was to post more as I have been a lurker here. I am currently on SS

disability since around 1998. I was turned down the first time I applied and

then I hired a disability lawyer for the appeal-the lawyer was a godsend. They

told me what to do and not to do- little things like having someone drive you to

the hearing because evidently in my case the judge would watch out his window

and question the fact that you could drive! I won my appeal and have been

through one reevaluation which I handled without my lawyer and had no problem.

If you have any specific questions, please ask. It is no fun having these

diseases and money worries can compound things when you can't work. Talk to you

soon.

--- In , " elvenstar76 " <elven_star@e...>

wrote:

> I just wanted to introduce myself to this group I'm new but not to

> RA! I have RA, Osteo, and Fibro, etc... I just cut my work hours

> back after coming off of a month and a half of short- term

> disability. I'm a talker and I now have time to chat, so, if anyone

> wants to talk...

> If anyone has any helpful tips about getting on SS Disability I

would

> appreciate ANY advice.

> Talk to ya' soon, Michele

[Guest guest]

Thanks so much for the welcome!!! It's nice to meedt and have others

to talk to who understand what you're going through! I have no one

around me with this or any other long term illness. People don't

understand how you can look so healthy and be so ill (it's called

make- up HAHA). Well I hope to get to know you all better, Michele

> > I just wanted to introduce myself to this group I'm new but not

to

> > RA! I have RA, Osteo, and Fibro, etc... I just cut my work

hours

> > back after coming off of a month and a half of short- term

> > disability. I'm a talker and I now have time to chat, so, if

anyone

> > wants to talk...

> > If anyone has any helpful tips about getting on SS Disability I

> would

> > appreciate ANY advice.

> > Talk to ya' soon, Michele

[Guest guest]

HI Michele:

First may I say welcome to the group. I am Kathi in OK, and I

recieved my SSDI last year. It seems it varies from state to state.

What I would tell you is make sure you keep copies of everything any

doctors has done, Tests, MRI,CAT,Ect. Keep a set of Your copies,as at

times they seem to get displaced. Dont give up when you get the first

denial letter as they seem to always deny the first go around, also

the second. They are hoping you give up. It is free to consult a

disability lawyer,and usually they will tell you if they think it is

possible,as they make their money on your backpay...that is SSDI, SSI

works differently. Lani in Vegas wrote a really good post last year

about how she recieved hers, I am sure it is in the archives, it was

very informative. It took mine 4 years from start to resolution as

Oklahoma had a shortage of ADJ's at the time. I was also lucky as my

rheumy wrote an outstanding letter on my behalf.It was something I

felt like such a loser to be doing, but 3 different docs said it is

time to get this going. I wish you swift resolution and if you have

any specific questions, I will try to answer any I can. Also and

a both have posted some great sites about the process that I

believe are also in the archives......Good luck Kathi in OK

> > I just wanted to introduce myself to this group I'm new but not

to

> > RA! I have RA, Osteo, and Fibro, etc... I just cut my work

hours

> > back after coming off of a month and a half of short- term

> > disability. I'm a talker and I now have time to chat, so, if

anyone

> > wants to talk...

> > If anyone has any helpful tips about getting on SS Disability I

> would

> > appreciate ANY advice.

> > Talk to ya' soon, Michele

[Guest guest]

,

I'm right there with you. We're looking at relocation to the

ville area (from TX) and are also investigating schools for our

6.5 yr old first grader. He's also mainstreamed and doing well, thus far.

After a horrific kinder experience in another school I'm wary of

moving schools again. His current school has been a God-send and a

world of difference from last year.

Anyway, just wanted to let you know we're in the same boat! I'm also

interested in public schools in the area, so here's hoping we'll each

find a good fit for our boys.

~

>

> Hi Everybody,

> I wanted to take a moment to introduce myself. My name is and my

> husband, Mike, and I have 2 children. Elise is our 4 year old

neurotypical

> daughter. is our 6 ½ year old son with autism. We currently

live in

> Arizona, however my husband has recently taken a job in Norcross.

His new

> employer is currently permitting him to commute to Georgia each week

however

> they do have the expectation that we will be relocating there as soon as

> possible up to one year.

>

> Since we will have the freedom to move anywhere within a 60 minute

commute

> time in any direction of Norcross, I wondered if anyone could

suggest some

> great schools. Here is a little more information about and what I

> would hope to find…

>

> is mainstreamed in 1st grade at a school with an accelerated

> curriculum, no aide. He is doing well academically in a very structured

> learning environment. However, he is completely unable to interact

with his

> peers socially. This highly structured environment also works for him

> because there are few social opportunities for him to deal with. He

is able

> to communicate reasonably well with his teacher/other school staff

as long

> as they have built a rapport with him. He does not have severe

behaviors.

> His behaviors might include some minor noise making/humming, wiggling in

> seat type stuff. His current school also upholds a certain behavioral

> expectation from all students; be courteous, respectful… I feel this is

> important because he tends to be very quickly targeted and rejected.

>

> To sum it up, I would greatly appreciate any suggestions for a

school with

> an advanced curriculum, strict behavioral expectation and strong

positive

> leadership. While I am interested in moving to the Atlanta area,

our move

> is dependent on being able to find a good school/s. The hardest part is

> that we are very happy with our current school, but it took a good

bit of

> trial and error to find and I don't want to put my son through that

again.

>

> Thank you,

>

>

[Guest guest]

I can definitely relate, Tina.

Max is 6.5 and his first appointment isn't until JUNE! But at least

it's an appointment! He's a carbon copy of my cousin who is adiagnosed

Asperger's and my friend's son, also Asperger's.

It's kind of scary and sad because we know our kids are different and

being neuro-typical, we can see the challenges they'll face because

what's funny as a 6 yr old first grader will be seen as weird by a 10

yr old 4th grader.

My son is in a class w/ another autistic boy (my son is mainstreamed,

the other boy sees other teachers sometimes) and I saw that J's

behavior was funny to some of the kids. But being a neuro-typical

adult, I knew it was unusual and I know that when my son and J get

older, their quirks won't always be funny.

Max loves spiderman, is obsessed w/ Spidey & NYC, laughs, runs, and

plays just like any other kid, is OBSSESSED with video game,s the

expert on all video games even if he's only played it once, and to

most ppl he seems completely normal. I have a hard time explaining to

a very dear friend of mine that YES, his behavior IS on the autism

spectrum. She always says, " I don't see it. " I just try not to discuss

it because it's draining to try and explain it.

That roller coaster you're on is definitely overwhelming at times. I

hold on tight and wait for the straight shots mostly so I can prepare

for the hills.

It's not the end of the world. And he's still the same boy you had a

week ago. Only now there's a name for his quirks and behaviors and

speech delay.

~

>

> I have a three-year old son who is still only speaking in one-two word

> sentences. He's had his hearing tested, all but an ABR, and it seems

> normal. His speech was evaluated about a month ago at Children's

> HealthCare and he was diagnosed with a severe expressive and receptive

> speech delay. They recommended speech therapy and then told us it was a

> 2-6 month wait.

>

> One of the speech-language pathologists' recommendations was to take him

> to a developmental pediatrician. The earliest anyone was able to

see him

> was October, so my son's pediatrician referred us to a pediatric

> neurologist. We saw her last Monday, and after spending less than five

> minutes in the room, told us that she suspected pervasive developmental

> delay/autism.

>

> We have an EEG scheduled for Thursday. We were also referred to

> PediaSpeech, and I called them Friday...and 10 minutes later got a phone

> call back scheduling an appointment for speech therapy on June 4th. One

> hour later, I got a call from Gwinnett County schools. I had turned in

> paperwork at the beginning of April for him to be evaluated by the

school

> system. That test will take place June 6th. We will have to do a

> sedated ABR, as my son wouldn't cooperate with a regular one. That will

> happen on July 11th. (All of those appointments were scheduled on

> Friday...it was like an avalanche of phone calls came all at once.)

>

> I have done a little bit of reading both about PDD and late talking

> children. I would like to think that is just a late talker and

> he'll talk when he's good and ready to...but I am concerned that it

might

> be something more serious than just not talking.

>

> He doesn't really exhibit the more bizarre behaviors of an autistic

> child. He enjoys being chased, loves toys that he can push buttons on,

> and (unfortunately) loves TV a little too much. He's hooked on Blue's

> Clues right now. He will sit in my lap and last night actually gave

me a

> kiss.

>

> Right now, I feel like I'm riding a bit of a roller coaster. Can anyone

> relate?

>

> Tina

>

[Guest guest]

Tina I can also relate. My son Caleb, who is now 6.5 yrs old, was first

diagnosed as having a speech delay. He was and still is a loving child,

enjoyed watching his favorite shows, but at that time only spoke in two-three

word sentences. Our pediatrician was in denial about the possibilty of Autism,

but I always felt there was more to it than just the speech delay. There were

quirky behaviors like hand flapping,toe walking, and repeating phrases from T.V.

He finally received his diagnosis by the age of 4.5. Since then, his speech has

come a long way with the assistance of speech therapy through the public school

system. He is doing well with beginner reading, sight word recognition, and

addition. There are still behavior issues and impulsivity, but you have to

learn to celebrate the small milestones.

>

> From: " " <carriebeary77@...>

> Date: 2006/11/17 Fri PM 07:39:16 EST

> autism

> Subject: Re: Hello, I'm new...

>

> I can definitely relate, Tina.

>

> Max is 6.5 and his first appointment isn't until JUNE! But at least

> it's an appointment! He's a carbon copy of my cousin who is adiagnosed

> Asperger's and my friend's son, also Asperger's.

>

> It's kind of scary and sad because we know our kids are different and

> being neuro-typical, we can see the challenges they'll face because

> what's funny as a 6 yr old first grader will be seen as weird by a 10

> yr old 4th grader.

>

> My son is in a class w/ another autistic boy (my son is mainstreamed,

> the other boy sees other teachers sometimes) and I saw that J's

> behavior was funny to some of the kids. But being a neuro-typical

> adult, I knew it was unusual and I know that when my son and J get

> older, their quirks won't always be funny.

>

> Max loves spiderman, is obsessed w/ Spidey & NYC, laughs, runs, and

> plays just like any other kid, is OBSSESSED with video game,s the

> expert on all video games even if he's only played it once, and to

> most ppl he seems completely normal. I have a hard time explaining to

> a very dear friend of mine that YES, his behavior IS on the autism

> spectrum. She always says, " I don't see it. " I just try not to discuss

> it because it's draining to try and explain it.

>

> That roller coaster you're on is definitely overwhelming at times. I

> hold on tight and wait for the straight shots mostly so I can prepare

> for the hills.

>

> It's not the end of the world. And he's still the same boy you had a

> week ago. Only now there's a name for his quirks and behaviors and

> speech delay.

>

> ~

>

>

>

>

>

> >

> > I have a three-year old son who is still only speaking in one-two word

> > sentences. He's had his hearing tested, all but an ABR, and it seems

> > normal. His speech was evaluated about a month ago at Children's

> > HealthCare and he was diagnosed with a severe expressive and receptive

> > speech delay. They recommended speech therapy and then told us it was a

> > 2-6 month wait.

> >

> > One of the speech-language pathologists' recommendations was to take him

> > to a developmental pediatrician. The earliest anyone was able to

> see him

> > was October, so my son's pediatrician referred us to a pediatric

> > neurologist. We saw her last Monday, and after spending less than five

> > minutes in the room, told us that she suspected pervasive developmental

> > delay/autism.

> >

> > We have an EEG scheduled for Thursday. We were also referred to

> > PediaSpeech, and I called them Friday...and 10 minutes later got a phone

> > call back scheduling an appointment for speech therapy on June 4th. One

> > hour later, I got a call from Gwinnett County schools. I had turned in

> > paperwork at the beginning of April for him to be evaluated by the

> school

> > system. That test will take place June 6th. We will have to do a

> > sedated ABR, as my son wouldn't cooperate with a regular one. That will

> > happen on July 11th. (All of those appointments were scheduled on

> > Friday...it was like an avalanche of phone calls came all at once.)

> >

> > I have done a little bit of reading both about PDD and late talking

> > children. I would like to think that is just a late talker and

> > he'll talk when he's good and ready to...but I am concerned that it

> might

> > be something more serious than just not talking.

> >

> > He doesn't really exhibit the more bizarre behaviors of an autistic

> > child. He enjoys being chased, loves toys that he can push buttons on,

> > and (unfortunately) loves TV a little too much. He's hooked on Blue's

> > Clues right now. He will sit in my lap and last night actually gave

> me a

> > kiss.

> >

> > Right now, I feel like I'm riding a bit of a roller coaster. Can anyone

> > relate?

> >

> > Tina

> >

>

>

>

>

>

[Guest guest]

I understand how you feel. A wise friend of mine, who also has a son with Autism, reminded me that I can not shield my son from change and the upheaval that it causes him. Nothing in life stays the same forever and it will always be more difficult for someone with Autism to adjust to change. My two cents is that change will happen at times for your son and I believe that being with his father is probably more important to him than what class he is in. Marilyn Pyles Lilburn, GA <sandrag@...> wrote: Hi Everybody, I wanted to take a moment to introduce myself. My name is and my husband, Mike, and I have 2 children. Elise is our 4 year old neurotypical daughter. is our 6 ½ year old son with autism. We currently live in Arizona, however my husband has recently taken a job in Norcross. His new employer is currently permitting him to commute to Georgia each week however they do have the expectation that we will be

relocating there as soon as possible up to one year. Since we will have the freedom to move anywhere within a 60 minute commute time in any direction of Norcross, I wondered if anyone could suggest some great schools. Here is a little more information about and what I would hope to find… is mainstreamed in 1st grade at a school with an accelerated curriculum, no aide. He is doing well academically in a very

structured learning environment. However, he is completely unable to interact with his peers socially. This highly structured environment also works for him because there are few social opportunities for him to deal with. He is able to communicate reasonably well with his teacher/other school staff as long as they have built a rapport with him. He does not have severe behaviors. His behaviors might include some minor noise making/humming, wiggling in seat type stuff. His current school also upholds a certain behavioral expectation from all students; be courteous, respectful… I feel this is important because he tends to be very quickly targeted and rejected. To sum it up, I would greatly appreciate any suggestions for a school with an advanced curriculum, strict behavioral expectation and strong positive leadership. While I am interested in moving to the Atlanta area, our move is dependent on being able to find a good school/s. The hardest part is that we are very happy with our current school, but it took a good bit of trial and error to find and I don’t want to put my son through that again. Thank you,

Sponsored LinkMortgage rates near 39yr lows. $310,000 Mortgage for $999/mo - Calculate new house payment

[Guest guest]

Thanks Marilyn,

You are so right and it is a needed

reminder for me!  It has taken me some

time to embrace the idea of the move.  I

am now excited about all the new things and I really think that overall, it

will be a nice change for the kids.  I am

also confident that we will find the school we are looking for.  However, I would like to do my due diligence

and research what I can in advance to prevent the trial and error previously

experienced.  I have never been there and

am looking forward to my visit in about 2 months. 

Thank so much for your reply,

 

From:

autism [mailto:autism ] On Behalf Of Marilyn Pyles

Sent: Saturday, November 18, 2006

11:16 AM

autism

Subject: Re:

Hello, I'm new...

I understand how you feel. A wise friend of mine, who also has a

son with Autism, reminded me that I can not shield my son from change and the

upheaval that it causes him. Nothing in life stays the same forever and

it will always be more difficult for someone with Autism to adjust to change.

My two cents is that change will happen at times for your son and I believe

that being with his father is probably more important to him than what class he

is in.

Marilyn Pyles

Lilburn,

GA

<sandrag>

wrote:

Hi Everybody,

I wanted to take a moment to introduce myself. My

name is and my husband, Mike, and I have 2 children. Elise is our

4 year old neurotypical daughter. is our 6

½ year old son with autism. We currently live in

Arizona, however my husband has recently taken a job in

Norcross. His new employer is currently permitting him to commute to Georgia

each week however they do have the expectation that we will be relocating there

as soon as possible up to one year.

Since we will have the freedom to move anywhere

within a 60 minute commute time in any direction of Norcross, I wondered if

anyone could suggest some great schools. Here is a little more

information about and what I would hope to find…

is mainstreamed in 1st grade at a

school with an accelerated curriculum, no aide. He is doing well

academically in a very structured learning environment. However, he is

completely unable to interact with his peers socially. This highly

structured environment also works for him because there are few social

opportunities for him to deal with. He is able to communicate reasonably

well with his teacher/other school staff as long as they have built a rapport

with him. He does not have severe behaviors. His behaviors might

include some minor noise making/humming, wiggling in seat type stuff. His

current school also upholds a certain behavioral expectation from all students;

be courteous, respectful… I feel this is important because he tends

to be very quickly targeted and rejected.

To sum it up, I would greatly appreciate any

suggestions for a school with an advanced curriculum, strict behavioral

expectation and strong positive leadership. While I am interested in

moving to the Atlanta

area, our move is dependent on being able to find a good school/s. The

hardest part is that we are very happy with our current school, but it took a

good bit of trial and error to find and I don’t want to put my son

through that again.

Thank you,

 

Sponsored Link

Mortgage rates near 39yr lows. $310,000 Mortgage for $999/mo - Calculate

new house payment