Re: OT: I need to share

[Guest guest]

Sorry to hear you life has become so rough lately . I don 't

undeestand why anyone would with-hold that kind of information from anyone,

but he is going to do what he wants, regardless of anyone else's feelings.

Add to that he is probably very nervous.

I hope your life changes for the better sooner rather than later. Kirk.

> **

>

>

> Hello,

>

> I need to share some of my sadness of the past few weeks. It’s off topic

> and not about my still’s. It’s about what I’m dealing with in my life

but

> bringing me great sadness and besides just a couple people, you here are my

> family and a place I can share in confidence.

>

> My youngest granddaughter is just turning 11 in September. She was born

> with a genetic condition and has now been diagnosed with a severe onset of

> Graves disease. The doctor says it’s not related to her genetic condition

> just a separate auto-immune disease she has gotten. She has to undergo the

> radioactive iodine treatment and be in isolation for a week with

> restrictions I don’t know if she will fully understand. I’m grateful that

> she has wonderful care and is being seen at the children’s hospital in

> Houston, TX. My daughter assures me he is highly respected in his field.

> Another situation I’m going through is that , my partner, and I split

> up over a year ago and he was just diagnosed with a large facial tumor.

> Because he is very emotionally hurt, recently he has chosen to keep from me

> and my family how the biopsy went and perhaps the results he will get this

> week? He will have to have the tumor removed either way and it will be a

> risky seven hour surgery compromising his main facial, ear and neck nerves

> and he has a pulmonary condition as well. In all the 18 years of our

> relationship he has never been an unkind man but pain can change a person

> greatly and because of his choices I am devastated. Some of our closest

> friends do not understand why we cannot work things out and that has made

> things especially difficult.

> I am trying so hard to be strong but am on the verge of tears almost

> daily. There has been so many years of grief inside me. I have had council

> for many years and that has helped me so much but it can only do so much

> and we must live through what life hands us.

> Thank you for letting me get this out in a safe place. This is a huge

> reason for my distraction lately.

> Forgive me if I have repeated myself from recent postings about this.

> May you all have love to comfort you through your struggles,

>

>

[Guest guest]

Hi ,

Your story really touched my heart.  It's unthinkable to know a grandchild is

going through something so devastating.  I'm truly sorry for your losses of the

health of two people close to you.  Thank you for letting it out and feeling

safe enough to do so.  Now I can lift you and your loved ones and you up in

healing thought and send good vibes your way.  You won't and don't have to go

through any of this alone.

Now I have heard that for Graves disease that they do not zap the thyroid any

more, that there are newer procedures. Am I thinking of the right thing?  I

would think though at a children's hospital they know best. But one thing we

have all learned along the way is to question our doctors and our medical care

we received.

if the Ex wants to have his day with a little bit of control over who he

talks to about the biopsies, then he must feel very out of control on the inside

and need to assert his control by withholding the results and information.  He

will come around when he is ready.  The only person we can chance is ourselves,

and he is going to be and do what he thinks he wants. Yes pain gets in the way

sometimes of us knowing what the right thing to do is.

So you have a multiple set of tough issues you are dealing with. I'm concerned

for you. You mentioned that this is off topic and not related to Still's, but

ALL stress can have an affect on Still's. So just remember to take good care of

yourself. Keep eating a good diet and don't let stress ruin lots of relaxing

time of peace and meditation for you to just receive healing. Try not to let

your mind wonder too much on the negative parts of the situation if you can, but

focus on some good that may come out of any of this.  There has to be something

there that you will walk away with as a stronger person at least and better at

handling hard tough life changing situations.  I know easier said.

For right now I just want to give you gentle sincere hugs <<<<<<>>>>>>

, you can count on me any time. Try not to loose that precious smile we all

love so much. : )

It's still ok to be down though and let it all out. No pretending to be

strong.  If you aren't then CRY and CRY.  Let the cleansing tears come and let

it out when it wants to come, then the sunshine will come back again with a

rainbow.

Much Love,

>________________________________

>

>To: stillsdisease

>Sent: Monday, July 23, 2012 11:10 PM

>Subject: OT: I need to share

>

>

> 

>Hello,

>

>I need to share some of my sadness of the past few weeks. It’s off topic and

not about my still’s. It’s about what I’m dealing with in my life but

bringing me great sadness and besides just a couple people, you here are my

family and a place I can share in confidence.

>

>My youngest granddaughter is just turning 11 in September. She was born with a

genetic condition and has now been diagnosed with a severe onset of Graves

disease. The doctor says it’s not related to her genetic condition just a

separate auto-immune disease she has gotten. She has to undergo the radioactive

iodine treatment and be in isolation for a week with restrictions I don’t know

if she will fully understand. I’m grateful that she has wonderful care and is

being seen at the children’s hospital in Houston, TX. My daughter assures me

he is highly respected in his field.

>Another situation I’m going through is that , my partner, and I split up

over a year ago and he was just diagnosed with a large facial tumor. Because he

is very emotionally hurt, recently he has chosen to keep from me and my family

how the biopsy went and perhaps the results he will get this week? He will have

to have the tumor removed either way and it will be a risky seven hour surgery

compromising his main facial, ear and neck nerves and he has a pulmonary

condition as well. In all the 18 years of our relationship he has never been an

unkind man but pain can change a person greatly and because of his choices I am

devastated. Some of our closest friends do not understand why we cannot work

things out and that has made things especially difficult.

>I am trying so hard to be strong but am on the verge of tears almost daily.

There has been so many years of grief inside me. I have had council for many

years and that has helped me so much but it can only do so much and we must live

through what life hands us.

>Thank you for letting me get this out in a safe place. This is a huge reason

for my distraction lately.

>Forgive me if I have repeated myself from recent postings about this.

>May you all have love to comfort you through your struggles,

>

>

[Guest guest]

it is a wonder you've not gone crazy with all that going my prayers go wwith you

i will light a candle for her and you and james 

________________________________

To: stillsdisease

Sent: Tuesday, July 24, 2012 2:10 AM

Subject: OT: I need to share

 

Hello,

I need to share some of my sadness of the past few weeks. It’s off topic and

not about my still’s. It’s about what I’m dealing with in my life but

bringing me great sadness and besides just a couple people, you here are my

family and a place I can share in confidence.

My youngest granddaughter is just turning 11 in September. She was born with a

genetic condition and has now been diagnosed with a severe onset of Graves

disease. The doctor says it’s not related to her genetic condition just a

separate auto-immune disease she has gotten. She has to undergo the radioactive

iodine treatment and be in isolation for a week with restrictions I don’t know

if she will fully understand. I’m grateful that she has wonderful care and is

being seen at the children’s hospital in Houston, TX. My daughter assures me

he is highly respected in his field.

Another situation I’m going through is that , my partner, and I split up

over a year ago and he was just diagnosed with a large facial tumor. Because he

is very emotionally hurt, recently he has chosen to keep from me and my family

how the biopsy went and perhaps the results he will get this week? He will have

to have the tumor removed either way and it will be a risky seven hour surgery

compromising his main facial, ear and neck nerves and he has a pulmonary

condition as well. In all the 18 years of our relationship he has never been an

unkind man but pain can change a person greatly and because of his choices I am

devastated. Some of our closest friends do not understand why we cannot work

things out and that has made things especially difficult.

I am trying so hard to be strong but am on the verge of tears almost daily.

There has been so many years of grief inside me. I have had council for many

years and that has helped me so much but it can only do so much and we must live

through what life hands us.

Thank you for letting me get this out in a safe place. This is a huge reason for

my distraction lately.

Forgive me if I have repeated myself from recent postings about this.

May you all have love to comfort you through your struggles,

[Guest guest]

Hi ,

So sorry to hear about all that you are going through. It seems as though we

hurt the most when something happens to those we love the most. Your

granddaughter is going through a rough time now, but she is young and she can

get through this probably better than you can. You hurt for her because you know

more medically than she can understand at this age of her life, and naturally

because you love her.

We all know what pain can do to us emotionally. It is difficult to try and deal

with others emotions when we can't even deal with our own. So that is what is

most likely happening with . When he actually has to go through the surgery

he may change his mind. We will have to pray for the best.

I wish you have some peace and comfort with this situation. Please know that you

have many people that care about you.

a

________________________________

To: stillsdisease

Sent: Tuesday, July 24, 2012 2:10 AM

Subject: OT: I need to share

 

Hello,

I need to share some of my sadness of the past few weeks. It’s off topic and

not about my still’s. It’s about what I’m dealing with in my life but

bringing me great sadness and besides just a couple people, you here are my

family and a place I can share in confidence.

My youngest granddaughter is just turning 11 in September. She was born with a

genetic condition and has now been diagnosed with a severe onset of Graves

disease. The doctor says it’s not related to her genetic condition just a

separate auto-immune disease she has gotten. She has to undergo the radioactive

iodine treatment and be in isolation for a week with restrictions I don’t know

if she will fully understand. I’m grateful that she has wonderful care and is

being seen at the children’s hospital in Houston, TX. My daughter assures me

he is highly respected in his field.

Another situation I’m going through is that , my partner, and I split up

over a year ago and he was just diagnosed with a large facial tumor. Because he

is very emotionally hurt, recently he has chosen to keep from me and my family

how the biopsy went and perhaps the results he will get this week? He will have

to have the tumor removed either way and it will be a risky seven hour surgery

compromising his main facial, ear and neck nerves and he has a pulmonary

condition as well. In all the 18 years of our relationship he has never been an

unkind man but pain can change a person greatly and because of his choices I am

devastated. Some of our closest friends do not understand why we cannot work

things out and that has made things especially difficult.

I am trying so hard to be strong but am on the verge of tears almost daily.

There has been so many years of grief inside me. I have had council for many

years and that has helped me so much but it can only do so much and we must live

through what life hands us.

Thank you for letting me get this out in a safe place. This is a huge reason for

my distraction lately.

Forgive me if I have repeated myself from recent postings about this.

May you all have love to comfort you through your struggles,

[Guest guest]

, my goodness, I'm SO deeply sorry and reading your post,brought me to

tears. My heartfelt thoughts and prayers are with you and your family during

this difficult time.

________________________________

To: " Stillsdisease " <Stillsdisease >

Sent: Tuesday, July 24, 2012 2:51 PM

Subject: Re: OT: I need to share

 

it is a wonder you've not gone crazy with all that going my prayers go wwith you

i will light a candle for her and you and james 

________________________________

To: stillsdisease

Sent: Tuesday, July 24, 2012 2:10 AM

Subject: OT: I need to share

 

Hello,

I need to share some of my sadness of the past few weeks. It’s off topic and

not about my still’s. It’s about what I’m dealing with in my life but

bringing me great sadness and besides just a couple people, you here are my

family and a place I can share in confidence.

My youngest granddaughter is just turning 11 in September. She was born with a

genetic condition and has now been diagnosed with a severe onset of Graves

disease. The doctor says it’s not related to her genetic condition just a

separate auto-immune disease she has gotten. She has to undergo the radioactive

iodine treatment and be in isolation for a week with restrictions I don’t know

if she will fully understand. I’m grateful that she has wonderful care and is

being seen at the children’s hospital in Houston, TX. My daughter assures me

he is highly respected in his field.

Another situation I’m going through is that , my partner, and I split up

over a year ago and he was just diagnosed with a large facial tumor. Because he

is very emotionally hurt, recently he has chosen to keep from me and my family

how the biopsy went and perhaps the results he will get this week? He will have

to have the tumor removed either way and it will be a risky seven hour surgery

compromising his main facial, ear and neck nerves and he has a pulmonary

condition as well. In all the 18 years of our relationship he has never been an

unkind man but pain can change a person greatly and because of his choices I am

devastated. Some of our closest friends do not understand why we cannot work

things out and that has made things especially difficult.

I am trying so hard to be strong but am on the verge of tears almost daily.

There has been so many years of grief inside me. I have had council for many

years and that has helped me so much but it can only do so much and we must live

through what life hands us.

Thank you for letting me get this out in a safe place. This is a huge reason for

my distraction lately.

Forgive me if I have repeated myself from recent postings about this.

May you all have love to comfort you through your struggles,