Re: [Liver Cirrhosis Support]

[Guest guest]

What is this?  Did anyone else get this?

 

Subject:

To: livercirrhosissupport

Date: Monday, July 5, 2010, 7:28 PM

 

http://ceomotylind1975.yourpillsworld.net

[Guest guest]

I hate these types of emails.

Thank you God for this day and for my tomorrows .

 

Love, Lyncia 

 

 

Subject:

To: Frencharoo@..., BTX@...,

livercirrhosissupport , lodon30@..., loracura@...,

lori.wiecking@..., lori_kai@..., homeplate@...,

marciaedenfield@..., mdsilva@...

Date: Tuesday, July 6, 2010, 1:43 PM

 

http://psvzcfimpps.ru.gg

[Guest guest]

More SPAM. Do NOT click on the links when you get emails with no subject title

to them.

Please.

--Diane

>

> Subject:

> To: Frencharoo@..., BTX@...,

livercirrhosissupport , lodon30@..., loracura@...,

lori.wiecking@..., lori_kai@..., homeplate@...,

marciaedenfield@..., mdsilva@...

> Date: Tuesday, July 6, 2010, 11:43 AM

> http://psvzcfimpps.ru.gg

>

>

>

> ------------------------------------

>

> Group Email:    livercirrhosissupport

>

> web address:

> http://groups.yahoo.com/group/livercirrhosissupport/

>

[Guest guest]

Please follow the link http://groups.yahoo.com/group/livercirrhosissupport/,

click on edit membership, scroll to the bottom of the page and select, leave

group.

Subject:

To: " livercirrhosissupport "

<livercirrhosissupport >

Date: Friday, April 8, 2011, 2:08 PM

 

Please unsubscribe me. Thanks Ed

--

Ed

[Guest guest]

jan,

i am so sorry about your mom ,and you not taking it well.it is sad when family

can't put there problems aside to go thru bad times  together.everyone needs to

put your moms health and feelings 1st.i will pray for your family.i am here if

ya need to talk.

 

god bless

bev,tx

Subject:

To: CABGHeartBypassSupport , " livercirrhosissupport "

<livercirrhosissupport >

Date: Saturday, May 7, 2011, 7:18 AM

 

I just wanted to let you all know what has been going on in my life

this week. I may not be available much for the next 2 to 3 weeks if I

am able to go home to see my mother, if I can even make it in time.

On Tuesday afternoon I was told by my sister in law that my mother was

being treated for Alzheimers. She had been treated for two months and

I had not been told. That was upsetting as well as shocking since

there is no history of alzheimers in our family and with all the other

diseases we are passing on, that was one we felt pretty confident

wasn't on the list. Wednesday afternoon I found out that my mother

had been taken by ambulance to the local hospital after being found by

her sister incoherent rocking on her bed in extreme pain in her back.

The local hospital could find no cause for her problems except that

she was severely dehydrated, had a kidney infection, and pneumonia

with fluid in her lungs, and an enlarged spleen. Her kidney function

went down to a gfr of 20 her heart beat was 140, very dangerous for a

women with a damaged heart from a previous heart attack. Yesterday

morning they sent her to a larger regional hospital. She was

increasingly less coherent, declined to go on analysis and the heart

dr. said then there really wasn't anything they could do for her. She

is being moved out of the cardiac unit into a more general unit for

the weekend, and as soon as my brother can find a hospice facility

which will take her that he would want her in, she will be going to

hospice. So over the last four days I have pretty much lost my

mother, just basically waiting for her heart to quit beating. It was

so quick, shocking, I am having a terrible time dealing with it. So,

if I seem distracted and mixed up, excuse me. Please pray for my

mother and my two brothers and myself. My brother who is in charge of

her care will not communicate regularly with me, so I talk to the

nurses and doctors directly. He is a supposedly recovering alcoholic,

has stopped drinking but is still the bully, controlling person he has

been most of my life. I was hoping we could work together especially

at a time like this but he is only open to informing us of the

decisions he has made. Jan

[Guest guest]

Jan, I understand full well what you are going thru.  I have been thinking of

you ever since seeing your message yesterday and I will continue to keep you in

prayer.  Stay in touch as often as you can.  Talk to you soon, I hope. 

Jackie

To: CABGHeartBypassSupport ; livercirrhosissupport

<livercirrhosissupport >

Sent: Saturday, May 7, 2011 3:18 AM

Subject:

 

I just wanted to let you all know what has been going on in my life

this week. I may not be available much for the next 2 to 3 weeks if I

am able to go home to see my mother, if I can even make it in time.

On Tuesday afternoon I was told by my sister in law that my mother was

being treated for Alzheimers. She had been treated for two months and

I had not been told. That was upsetting as well as shocking since

there is no history of alzheimers in our family and with all the other

diseases we are passing on, that was one we felt pretty confident

wasn't on the list. Wednesday afternoon I found out that my mother

had been taken by ambulance to the local hospital after being found by

her sister incoherent rocking on her bed in extreme pain in her back.

The local hospital could find no cause for her problems except that

she was severely dehydrated, had a kidney infection, and pneumonia

with fluid in her lungs, and an enlarged spleen. Her kidney function

went down to a gfr of 20 her heart beat was 140, very dangerous for a

women with a damaged heart from a previous heart attack. Yesterday

morning they sent her to a larger regional hospital. She was

increasingly less coherent, declined to go on analysis and the heart

dr. said then there really wasn't anything they could do for her. She

is being moved out of the cardiac unit into a more general unit for

the weekend, and as soon as my brother can find a hospice facility

which will take her that he would want her in, she will be going to

hospice. So over the last four days I have pretty much lost my

mother, just basically waiting for her heart to quit beating. It was

so quick, shocking, I am having a terrible time dealing with it. So,

if I seem distracted and mixed up, excuse me. Please pray for my

mother and my two brothers and myself. My brother who is in charge of

her care will not communicate regularly with me, so I talk to the

nurses and doctors directly. He is a supposedly recovering alcoholic,

has stopped drinking but is still the bully, controlling person he has

been most of my life. I was hoping we could work together especially

at a time like this but he is only open to informing us of the

decisions he has made. Jan

[Guest guest]

You and your mom are in our thought and prayers. Remember to check on yahoo chat

if you need to vent, and you have my number. Love, Bobby

________________________________

To: CABGHeartBypassSupport ; livercirrhosissupport

<livercirrhosissupport >

Sent: Sat, May 7, 2011 1:18:56 AM

Subject:

I just wanted to let you all know what has been going on in my life

this week. I may not be available much for the next 2 to 3 weeks if I

am able to go home to see my mother, if I can even make it in time.

On Tuesday afternoon I was told by my sister in law that my mother was

being treated for Alzheimers. She had been treated for two months and

I had not been told. That was upsetting as well as shocking since

there is no history of alzheimers in our family and with all the other

diseases we are passing on, that was one we felt pretty confident

wasn't on the list. Wednesday afternoon I found out that my mother

had been taken by ambulance to the local hospital after being found by

her sister incoherent rocking on her bed in extreme pain in her back.

The local hospital could find no cause for her problems except that

she was severely dehydrated, had a kidney infection, and pneumonia

with fluid in her lungs, and an enlarged spleen. Her kidney function

went down to a gfr of 20 her heart beat was 140, very dangerous for a

women with a damaged heart from a previous heart attack. Yesterday

morning they sent her to a larger regional hospital. She was

increasingly less coherent, declined to go on analysis and the heart

dr. said then there really wasn't anything they could do for her. She

is being moved out of the cardiac unit into a more general unit for

the weekend, and as soon as my brother can find a hospice facility

which will take her that he would want her in, she will be going to

hospice. So over the last four days I have pretty much lost my

mother, just basically waiting for her heart to quit beating. It was

so quick, shocking, I am having a terrible time dealing with it. So,

if I seem distracted and mixed up, excuse me. Please pray for my

mother and my two brothers and myself. My brother who is in charge of

her care will not communicate regularly with me, so I talk to the

nurses and doctors directly. He is a supposedly recovering alcoholic,

has stopped drinking but is still the bully, controlling person he has

been most of my life. I was hoping we could work together especially

at a time like this but he is only open to informing us of the

decisions he has made. Jan

[Guest guest]

Here is an up date on my mom. Amazingly after my mother was moved to

the other ward, she started improving, her kidney function increased

so she wouldn't qualify for dialysis if she would agree to it. I

talked to her new doctor on that ward and he said he would recommend a

nursing home, and without a doctor's recommendation they generally

don't take patients through hospice. She said in his opinion she

could continue to improve to the point where in the future she could

go into a high level assisted living facilitiy. My younger daughter

and her family along with the new baby my mother has been so concerned

about and my younger son and oldest child of my oldest daughter all

went to visit her yesterday. My cousin and her husband were there for

quite a while too. She seemed to enjoy it, recognized them and when

she saw my daughter asked where the baby was. I talked to her last

night and she said she was also enjoying the quiet after everybody

left, but then she always said that at home too. I called today and

she was too tired to talk much. So I asked for the nurse and she said

mom's signs were still holding but she was just very tired after her

full day. So, hopefully, the doctor is right and she will continue to

improve. Because of her improvement, I am not going to go home this

week. Will take it as it comes, hope to get as much treatment for my

anemia as i can before I go so that it will be an easier trip and I

will be able to spend more time with her. The doctor said the second

iron infusion should show a marked improvement if this treatment is

going to help and it is scheduled for the 25th. Might ask if they can

do it earlier. Thanks for all your concern. I told my mother that

people from all over were praying for her, and a lot of them are on

these groups. Jan

On Sat, May 7, 2011 at 7:54 AM, Beverly Hurlock

wrote:

> jan,

> i am so sorry about your mom ,and you not taking it well.it is sad when family

can't put there problems aside to go thru bad times  together.everyone needs to

put your moms health and feelings 1st.i will pray for your family.i am here if

ya need to talk.

>

> god bless

> bev,tx

>

>

>

>

>

> Subject:

> To: CABGHeartBypassSupport , " livercirrhosissupport "

<livercirrhosissupport >

> Date: Saturday, May 7, 2011, 7:18 AM

>

>

>

>

>

>

> I just wanted to let you all know what has been going on in my life

> this week. I may not be available much for the next 2 to 3 weeks if I

> am able to go home to see my mother, if I can even make it in time.

> On Tuesday afternoon I was told by my sister in law that my mother was

> being treated for Alzheimers. She had been treated for two months and

> I had not been told. That was upsetting as well as shocking since

> there is no history of alzheimers in our family and with all the other

> diseases we are passing on, that was one we felt pretty confident

> wasn't on the list. Wednesday afternoon I found out that my mother

> had been taken by ambulance to the local hospital after being found by

> her sister incoherent rocking on her bed in extreme pain in her back.

> The local hospital could find no cause for her problems except that

> she was severely dehydrated, had a kidney infection, and pneumonia

> with fluid in her lungs, and an enlarged spleen. Her kidney function

> went down to a gfr of 20 her heart beat was 140, very dangerous for a

> women with a damaged heart from a previous heart attack. Yesterday

> morning they sent her to a larger regional hospital. She was

> increasingly less coherent, declined to go on analysis and the heart

> dr. said then there really wasn't anything they could do for her. She

> is being moved out of the cardiac unit into a more general unit for

> the weekend, and as soon as my brother can find a hospice facility

> which will take her that he would want her in, she will be going to

> hospice. So over the last four days I have pretty much lost my

> mother, just basically waiting for her heart to quit beating. It was

> so quick, shocking, I am having a terrible time dealing with it. So,

> if I seem distracted and mixed up, excuse me. Please pray for my

> mother and my two brothers and myself. My brother who is in charge of

> her care will not communicate regularly with me, so I talk to the

> nurses and doctors directly. He is a supposedly recovering alcoholic,

> has stopped drinking but is still the bully, controlling person he has

> been most of my life. I was hoping we could work together especially

> at a time like this but he is only open to informing us of the

> decisions he has made. Jan

>

>

>

>

>

>

>

>

[Guest guest]

Dear Jan,

This is positive news and trust me since I have read about your mum, I have been

thinking about you and her. She has been in my prayers. Mothers are special so

for you to worry about yours is quite natural. I am sure your mum will start

feeling much better soon. Please let her know that there is someone in a far far

land who is praying for her good health and thinking of her.

With all my love and luck,

Yours,

Arpita

>

>

>

> Subject:

> To: CABGHeartBypassSupport , " livercirrhosissupport "

<livercirrhosissupport >

> Date: Saturday, May 7, 2011, 7:18 AM

>

>

>

>

>

>

> I just wanted to let you all know what has been going on in my life

> this week. I may not be available much for the next 2 to 3 weeks if I

> am able to go home to see my mother, if I can even make it in time.

> On Tuesday afternoon I was told by my sister in law that my mother was

> being treated for Alzheimers. She had been treated for two months and

> I had not been told. That was upsetting as well as shocking since

> there is no history of alzheimers in our family and with all the other

> diseases we are passing on, that was one we felt pretty confident

> wasn't on the list. Wednesday afternoon I found out that my mother

> had been taken by ambulance to the local hospital after being found by

> her sister incoherent rocking on her bed in extreme pain in her back.

> The local hospital could find no cause for her problems except that

> she was severely dehydrated, had a kidney infection, and pneumonia

> with fluid in her lungs, and an enlarged spleen. Her kidney function

> went down to a gfr of 20 her heart beat was 140, very dangerous for a

> women with a damaged heart from a previous heart attack. Yesterday

> morning they sent her to a larger regional hospital. She was

> increasingly less coherent, declined to go on analysis and the heart

> dr. said then there really wasn't anything they could do for her. She

> is being moved out of the cardiac unit into a more general unit for

> the weekend, and as soon as my brother can find a hospice facility

> which will take her that he would want her in, she will be going to

> hospice. So over the last four days I have pretty much lost my

> mother, just basically waiting for her heart to quit beating. It was

> so quick, shocking, I am having a terrible time dealing with it. So,

> if I seem distracted and mixed up, excuse me. Please pray for my

> mother and my two brothers and myself. My brother who is in charge of

> her care will not communicate regularly with me, so I talk to the

> nurses and doctors directly. He is a supposedly recovering alcoholic,

> has stopped drinking but is still the bully, controlling person he has

> been most of my life. I was hoping we could work together especially

> at a time like this but he is only open to informing us of the

> decisions he has made. Jan

>

>

>

>

>

>

>

>

[Guest guest]

Arpita and everybody My mother died early Tues shortly after

midnight on the 10th. The funeral was last Saturday. The doctors

said they couldn't tell if she actually had alzheimers because she

wasn't strong enough to have any tests. She spent a good day on

Saturday with one of my daughters and her four children, one of my

sons and an adult great grandson, as well as my cousin and her family.

The nurses said she thoroughly enjoyed the day and it didn't stress

her to the point where her vitals got worse. I think she just knew

she didn't have long, and decided, what a day to go out on. I called

her Sunday to acknowledge mother's day, couldn't wish her a happy

one, She said she was too tired to really talk so I told her she

didn't need to talk, just listen. When I had said what I had to say

she took quite a while to put the receiver back. Monday she slept all

day. About midnight a nurse entered her room, she seemed to be

sleeping peacefully, and five minutes later all her monitors went off

and that was the end. I hope I can go as peacefully. She had written

her funeral service years ago and it was beautiful. The pastor gave a

terrific sermon, based mostly on what she had heard about my mother.

She had only been at the church for about a year and during much of

that time my mother wasn't able to go to church. She used my mother's

faith and prayer life as an example of how each of us should live our

Christian life. I had told my mother I had people all over the

country praying for her, but didn't realize it had extended out of the

country, except to the Marshall Islands where my younger brother was

when she died. He made it back for the funeral. Thank you all so

much Jan

On Tue, May 10, 2011 at 3:00 PM, Arpita Khanna

wrote:

> Dear Jan,

>

> This is positive news and trust me since I have read about your mum, I have

been thinking about you and her. She has been in my prayers. Mothers are special

so for you to worry about yours is quite natural. I am sure your mum will start

feeling much better soon. Please let her know that there is someone in a far far

land who is praying for her good health and thinking of her.

>

> With all my love and luck,

> Yours,

> Arpita

>

>

>

>>

>

>>

>

>>

>

>> Subject:

>

>> To: CABGHeartBypassSupport , " livercirrhosissupport "

<livercirrhosissupport >

>

>> Date: Saturday, May 7, 2011, 7:18 AM

>

>>

>

>>

>

>>

>

>>

>

>>

>

>>

>

>> I just wanted to let you all know what has been going on in my life

>

>> this week. I may not be available much for the next 2 to 3 weeks if I

>

>> am able to go home to see my mother, if I can even make it in time.

>

>> On Tuesday afternoon I was told by my sister in law that my mother was

>

>> being treated for Alzheimers. She had been treated for two months and

>

>> I had not been told. That was upsetting as well as shocking since

>

>> there is no history of alzheimers in our family and with all the other

>

>> diseases we are passing on, that was one we felt pretty confident

>

>> wasn't on the list. Wednesday afternoon I found out that my mother

>

>> had been taken by ambulance to the local hospital after being found by

>

>> her sister incoherent rocking on her bed in extreme pain in her back.

>

>> The local hospital could find no cause for her problems except that

>

>> she was severely dehydrated, had a kidney infection, and pneumonia

>

>> with fluid in her lungs, and an enlarged spleen. Her kidney function

>

>> went down to a gfr of 20 her heart beat was 140, very dangerous for a

>

>> women with a damaged heart from a previous heart attack. Yesterday

>

>> morning they sent her to a larger regional hospital. She was

>

>> increasingly less coherent, declined to go on analysis and the heart

>

>> dr. said then there really wasn't anything they could do for her. She

>

>> is being moved out of the cardiac unit into a more general unit for

>

>> the weekend, and as soon as my brother can find a hospice facility

>

>> which will take her that he would want her in, she will be going to

>

>> hospice. So over the last four days I have pretty much lost my

>

>> mother, just basically waiting for her heart to quit beating. It was

>

>> so quick, shocking, I am having a terrible time dealing with it. So,

>

>> if I seem distracted and mixed up, excuse me. Please pray for my

>

>> mother and my two brothers and myself. My brother who is in charge of

>

>> her care will not communicate regularly with me, so I talk to the

>

>> nurses and doctors directly. He is a supposedly recovering alcoholic,

>

>> has stopped drinking but is still the bully, controlling person he has

>

>> been most of my life. I was hoping we could work together especially

>

>> at a time like this but he is only open to informing us of the

>

>> decisions he has made. Jan

>

>>

>

>>

>

>>

>

>>

>

>>

>

>>

>

>>

>

>>

[Guest guest]

My  deepest condolences on the loss of your beloved. 

The Lord  gives us life  and takes us back to Him.

 

eleni

 

>

>>

>

>>

>

>>

>

>> Subject:

>

>> To: CABGHeartBypassSupport , " livercirrhosissupport "

<livercirrhosissupport >

>

>> Date: Saturday, May 7, 2011, 7:18 AM

>

>>

>

>>

>

>>

>

>>

>

>>

>

>>

>

>> I just wanted to let you all know what has been going on in my life

>

>> this week. I may not be available much for the next 2 to 3 weeks if I

>

>> am able to go home to see my mother, if I can even make it in time.

>

>> On Tuesday afternoon I was told by my sister in law that my mother was

>

>> being treated for Alzheimers. She had been treated for two months and

>

>> I had not been told. That was upsetting as well as shocking since

>

>> there is no history of alzheimers in our family and with all the other

>

>> diseases we are passing on, that was one we felt pretty confident

>

>> wasn't on the list. Wednesday afternoon I found out that my mother

>

>> had been taken by ambulance to the local hospital after being found by

>

>> her sister incoherent rocking on her bed in extreme pain in her back.

>

>> The local hospital could find no cause for her problems except that

>

>> she was severely dehydrated, had a kidney infection, and pneumonia

>

>> with fluid in her lungs, and an enlarged spleen. Her kidney function

>

>> went down to a gfr of 20 her heart beat was 140, very dangerous for a

>

>> women with a damaged heart from a previous heart attack. Yesterday

>

>> morning they sent her to a larger regional hospital. She was

>

>> increasingly less coherent, declined to go on analysis and the heart

>

>> dr. said then there really wasn't anything they could do for her. She

>

>> is being moved out of the cardiac unit into a more general unit for

>

>> the weekend, and as soon as my brother can find a hospice facility

>

>> which will take her that he would want her in, she will be going to

>

>> hospice. So over the last four days I have pretty much lost my

>

>> mother, just basically waiting for her heart to quit beating. It was

>

>> so quick, shocking, I am having a terrible time dealing with it. So,

>

>> if I seem distracted and mixed up, excuse me. Please pray for my

>

>> mother and my two brothers and myself. My brother who is in charge of

>

>> her care will not communicate regularly with me, so I talk to the

>

>> nurses and doctors directly. He is a supposedly recovering alcoholic,

>

>> has stopped drinking but is still the bully, controlling person he has

>

>> been most of my life. I was hoping we could work together especially

>

>> at a time like this but he is only open to informing us of the

>

>> decisions he has made. Jan

>

>>

>

>>

>

>>

>

>>

>

>>

>

>>

>

>>

>

>>

[Guest guest]

Jan

I want to say how sorry that I am.  My hugs and hugs are being sent your way. 

Please take care of yourself.

Lyncia

________________________________

To: livercirrhosissupport

Sent: Fri, May 20, 2011 10:14:42 AM

Subject: Re:

 

My  deepest condolences on the loss of your beloved. 

The Lord  gives us life  and takes us back to Him.

 

eleni

 

>

>>

>

>>

>

>>

>

>> Subject:

>

>> To: CABGHeartBypassSupport , " livercirrhosissupport "

>><livercirrhosissupport >

>

>> Date: Saturday, May 7, 2011, 7:18 AM

>

>>

>

>>

>

>>

>

>>

>

>>

>

>>

>

>> I just wanted to let you all know what has been going on in my life

>

>> this week. I may not be available much for the next 2 to 3 weeks if I

>

>> am able to go home to see my mother, if I can even make it in time.

>

>> On Tuesday afternoon I was told by my sister in law that my mother was

>

>> being treated for Alzheimers. She had been treated for two months and

>

>> I had not been told. That was upsetting as well as shocking since

>

>> there is no history of alzheimers in our family and with all the other

>

>> diseases we are passing on, that was one we felt pretty confident

>

>> wasn't on the list. Wednesday afternoon I found out that my mother

>

>> had been taken by ambulance to the local hospital after being found by

>

>> her sister incoherent rocking on her bed in extreme pain in her back.

>

>> The local hospital could find no cause for her problems except that

>

>> she was severely dehydrated, had a kidney infection, and pneumonia

>

>> with fluid in her lungs, and an enlarged spleen. Her kidney function

>

>> went down to a gfr of 20 her heart beat was 140, very dangerous for a

>

>> women with a damaged heart from a previous heart attack. Yesterday

>

>> morning they sent her to a larger regional hospital. She was

>

>> increasingly less coherent, declined to go on analysis and the heart

>

>> dr. said then there really wasn't anything they could do for her. She

>

>> is being moved out of the cardiac unit into a more general unit for

>

>> the weekend, and as soon as my brother can find a hospice facility

>

>> which will take her that he would want her in, she will be going to

>

>> hospice. So over the last four days I have pretty much lost my

>

>> mother, just basically waiting for her heart to quit beating. It was

>

>> so quick, shocking, I am having a terrible time dealing with it. So,

>

>> if I seem distracted and mixed up, excuse me. Please pray for my

>

>> mother and my two brothers and myself. My brother who is in charge of

>

>> her care will not communicate regularly with me, so I talk to the

>

>> nurses and doctors directly. He is a supposedly recovering alcoholic,

>

>> has stopped drinking but is still the bully, controlling person he has

>

>> been most of my life. I was hoping we could work together especially

>

>> at a time like this but he is only open to informing us of the

>

>> decisions he has made. Jan

>

>>

>

>>

>

>>

>

>>

>

>>

>

>>

>

>>

>

>>

[Guest guest]

jan, i am very sorry about your mom.but it sounds like she left very happy and

full field.she is in a much better place.you and your family are in my

prayers.luv bev

>

>>

>

>>

>

>>

>

>> Subject:

>

>> To: CABGHeartBypassSupport , " livercirrhosissupport "

<livercirrhosissupport >

>

>> Date: Saturday, May 7, 2011, 7:18 AM

>

>>

>

>>

>

>>

>

>>

>

>>

>

>>

>

>> I just wanted to let you all know what has been going on in my life

>

>> this week. I may not be available much for the next 2 to 3 weeks if I

>

>> am able to go home to see my mother, if I can even make it in time.

>

>> On Tuesday afternoon I was told by my sister in law that my mother was

>

>> being treated for Alzheimers. She had been treated for two months and

>

>> I had not been told. That was upsetting as well as shocking since

>

>> there is no history of alzheimers in our family and with all the other

>

>> diseases we are passing on, that was one we felt pretty confident

>

>> wasn't on the list. Wednesday afternoon I found out that my mother

>

>> had been taken by ambulance to the local hospital after being found by

>

>> her sister incoherent rocking on her bed in extreme pain in her back.

>

>> The local hospital could find no cause for her problems except that

>

>> she was severely dehydrated, had a kidney infection, and pneumonia

>

>> with fluid in her lungs, and an enlarged spleen. Her kidney function

>

>> went down to a gfr of 20 her heart beat was 140, very dangerous for a

>

>> women with a damaged heart from a previous heart attack. Yesterday

>

>> morning they sent her to a larger regional hospital. She was

>

>> increasingly less coherent, declined to go on analysis and the heart

>

>> dr. said then there really wasn't anything they could do for her. She

>

>> is being moved out of the cardiac unit into a more general unit for

>

>> the weekend, and as soon as my brother can find a hospice facility

>

>> which will take her that he would want her in, she will be going to

>

>> hospice. So over the last four days I have pretty much lost my

>

>> mother, just basically waiting for her heart to quit beating. It was

>

>> so quick, shocking, I am having a terrible time dealing with it. So,

>

>> if I seem distracted and mixed up, excuse me. Please pray for my

>

>> mother and my two brothers and myself. My brother who is in charge of

>

>> her care will not communicate regularly with me, so I talk to the

>

>> nurses and doctors directly. He is a supposedly recovering alcoholic,

>

>> has stopped drinking but is still the bully, controlling person he has

>

>> been most of my life. I was hoping we could work together especially

>

>> at a time like this but he is only open to informing us of the

>

>> decisions he has made. Jan

>

>>

>

>>

>

>>

>

>>

>

>>

>

>>

>

>>

>

>>

[Guest guest]

Thanks everybody. I don't mean lack of respect or affection for my

mother by what I am about to say, but my mother's death, they way she

died, without suffering a lot for a long time, is really easier to

accept than the way my brother and my sisters-in-law acted. They were

so disrespectful of my mother's things, and either greedy, or they

weren't good enough for them that my children left because they

couldn't take it.. We went through everything she owned in a day and

a half, including visits to insurance agencies. She still had her

valentines from 8th grade, so you know there was a lot. But her

apartment was always beautifully decorated and immaculate. Wish I

were as good at storing things as she was. To me the valuable things

were her valentines, 70 yr old wedding presents, my baby clothes, my

baby book, she had all my grades from high school and college and even

cut out obits of classmates. Some of it she had labeled as to who it

was to go to. I hate to think of her looking down and seeing

especially how my brother acted, but then she probably expected it as

his daughter told me he had been bullying her too to the point where

she would call my niece crying. I don't understand people like that.

Jan

On Fri, May 20, 2011 at 12:04 PM, Beverly Hurlock

wrote:

> jan, i am very sorry about your mom.but it sounds like she left very happy and

full field.she is in a much better place.you and your family are in my

prayers.luv bev

>

>

>>

>>>

>>

>>>

>>

>>>

>>

>>> Subject:

>>

>>> To: CABGHeartBypassSupport , " livercirrhosissupport "

<livercirrhosissupport >

>>

>>> Date: Saturday, May 7, 2011, 7:18 AM

>>

>>>

>>

>>>

>>

>>>

>>

>>>

>>

>>>

>>

>>>

>>

>>> I just wanted to let you all know what has been going on in my life

>>

>>> this week. I may not be available much for the next 2 to 3 weeks if I

>>

>>> am able to go home to see my mother, if I can even make it in time.

>>

>>> On Tuesday afternoon I was told by my sister in law that my mother was

>>

>>> being treated for Alzheimers. She had been treated for two months and

>>

>>> I had not been told. That was upsetting as well as shocking since

>>

>>> there is no history of alzheimers in our family and with all the other

>>

>>> diseases we are passing on, that was one we felt pretty confident

>>

>>> wasn't on the list. Wednesday afternoon I found out that my mother

>>

>>> had been taken by ambulance to the local hospital after being found by

>>

>>> her sister incoherent rocking on her bed in extreme pain in her back.

>>

>>> The local hospital could find no cause for her problems except that

>>

>>> she was severely dehydrated, had a kidney infection, and pneumonia

>>

>>> with fluid in her lungs, and an enlarged spleen. Her kidney function

>>

>>> went down to a gfr of 20 her heart beat was 140, very dangerous for a

>>

>>> women with a damaged heart from a previous heart attack. Yesterday

>>

>>> morning they sent her to a larger regional hospital. She was

>>

>>> increasingly less coherent, declined to go on analysis and the heart

>>

>>> dr. said then there really wasn't anything they could do for her. She

>>

>>> is being moved out of the cardiac unit into a more general unit for

>>

>>> the weekend, and as soon as my brother can find a hospice facility

>>

>>> which will take her that he would want her in, she will be going to

>>

>>> hospice. So over the last four days I have pretty much lost my

>>

>>> mother, just basically waiting for her heart to quit beating. It was

>>

>>> so quick, shocking, I am having a terrible time dealing with it. So,

>>

>>> if I seem distracted and mixed up, excuse me. Please pray for my

>>

>>> mother and my two brothers and myself. My brother who is in charge of

>>

>>> her care will not communicate regularly with me, so I talk to the

>>

>>> nurses and doctors directly. He is a supposedly recovering alcoholic,

>>

>>> has stopped drinking but is still the bully, controlling person he has

>>

>>> been most of my life. I was hoping we could work together especially

>>

>>> at a time like this but he is only open to informing us of the

>>

>>> decisions he has made. Jan

>>

>>>

>>

>>>

>>

>>>

>>

>>>

>>

>>>

>>

>>>

>>

>>>

>>

>>>

[Guest guest]

So sad, Jan.  Keeping you in prayer.  May God in His perfect timing heal your

hurts and leave you with sweet memories of your mom.  Glad you were able to be

with her for a little while before the Lord called her home.  Take care. 

Love, Jackie

To: livercirrhosissupport

Sent: Friday, May 20, 2011 7:25 PM

Subject: Re:

 

Thanks everybody. I don't mean lack of respect or affection for my

mother by what I am about to say, but my mother's death, they way she

died, without suffering a lot for a long time, is really easier to

accept than the way my brother and my sisters-in-law acted. They were

so disrespectful of my mother's things, and either greedy, or they

weren't good enough for them that my children left because they

couldn't take it.. We went through everything she owned in a day and

a half, including visits to insurance agencies. She still had her

valentines from 8th grade, so you know there was a lot. But her

apartment was always beautifully decorated and immaculate. Wish I

were as good at storing things as she was. To me the valuable things

were her valentines, 70 yr old wedding presents, my baby clothes, my

baby book, she had all my grades from high school and college and even

cut out obits of classmates. Some of it she had labeled as to who it

was to go to. I hate to think of her looking down and seeing

especially how my brother acted, but then she probably expected it as

his daughter told me he had been bullying her too to the point where

she would call my niece crying. I don't understand people like that.

Jan

On Fri, May 20, 2011 at 12:04 PM, Beverly Hurlock

wrote:

> jan, i am very sorry about your mom.but it sounds like she left very happy and

full field.she is in a much better place.you and your family are in my

prayers.luv bev

>

>

>>

>>>

>>

>>>

>>

>>>

>>

>>> Subject:

>>

>>> To: CABGHeartBypassSupport , " livercirrhosissupport "

<livercirrhosissupport >

>>

>>> Date: Saturday, May 7, 2011, 7:18 AM

>>

>>>

>>

>>>

>>

>>>

>>

>>>

>>

>>>

>>

>>>

>>

>>> I just wanted to let you all know what has been going on in my life

>>

>>> this week. I may not be available much for the next 2 to 3 weeks if I

>>

>>> am able to go home to see my mother, if I can even make it in time.

>>

>>> On Tuesday afternoon I was told by my sister in law that my mother was

>>

>>> being treated for Alzheimers. She had been treated for two months and

>>

>>> I had not been told. That was upsetting as well as shocking since

>>

>>> there is no history of alzheimers in our family and with all the other

>>

>>> diseases we are passing on, that was one we felt pretty confident

>>

>>> wasn't on the list. Wednesday afternoon I found out that my mother

>>

>>> had been taken by ambulance to the local hospital after being found by

>>

>>> her sister incoherent rocking on her bed in extreme pain in her back.

>>

>>> The local hospital could find no cause for her problems except that

>>

>>> she was severely dehydrated, had a kidney infection, and pneumonia

>>

>>> with fluid in her lungs, and an enlarged spleen. Her kidney function

>>

>>> went down to a gfr of 20 her heart beat was 140, very dangerous for a

>>

>>> women with a damaged heart from a previous heart attack. Yesterday

>>

>>> morning they sent her to a larger regional hospital. She was

>>

>>> increasingly less coherent, declined to go on analysis and the heart

>>

>>> dr. said then there really wasn't anything they could do for her. She

>>

>>> is being moved out of the cardiac unit into a more general unit for

>>

>>> the weekend, and as soon as my brother can find a hospice facility

>>

>>> which will take her that he would want her in, she will be going to

>>

>>> hospice. So over the last four days I have pretty much lost my

>>

>>> mother, just basically waiting for her heart to quit beating. It was

>>

>>> so quick, shocking, I am having a terrible time dealing with it. So,

>>

>>> if I seem distracted and mixed up, excuse me. Please pray for my

>>

>>> mother and my two brothers and myself. My brother who is in charge of

>>

>>> her care will not communicate regularly with me, so I talk to the

>>

>>> nurses and doctors directly. He is a supposedly recovering alcoholic,

>>

>>> has stopped drinking but is still the bully, controlling person he has

>>

>>> been most of my life. I was hoping we could work together especially

>>

>>> at a time like this but he is only open to informing us of the

>>

>>> decisions he has made. Jan

>>

>>>

>>

>>>

>>

>>>

>>

>>>

>>

>>>

>>

>>>

>>

>>>

>>

>>>

[Guest guest]

jan i do understand about your my sister in law was just like that when my

mother in law passed. she took all of the insurance because it was in her dads

name and he passed he was my husbands stepfather and he had everything changed

when she died so it went to my husbands half sister.she cleaned everything

out.my husband got a few things she wanted him to take.his family is so crazy

and only think of them selfs.the said part his she spent 110.ooo on drugs in

less then one year what a selfish and waste of time just to get high.its not a

easy thing when family does not stick together in the bad times.my self the

money is not important its the personal things and memories. but i always pray

for them because things do have away to what comes around goes around.i am

praying for you and your family. luv bev

>>

>>>

>>

>>>

>>

>>>

>>

>>> Subject:

>>

>>> To: CABGHeartBypassSupport , " livercirrhosissupport "

<livercirrhosissupport >

>>

>>> Date: Saturday, May 7, 2011, 7:18 AM

>>

>>>

>>

>>>

>>

>>>

>>

>>>

>>

>>>

>>

>>>

>>

>>> I just wanted to let you all know what has been going on in my life

>>

>>> this week. I may not be available much for the next 2 to 3 weeks if I

>>

>>> am able to go home to see my mother, if I can even make it in time.

>>

>>> On Tuesday afternoon I was told by my sister in law that my mother was

>>

>>> being treated for Alzheimers. She had been treated for two months and

>>

>>> I had not been told. That was upsetting as well as shocking since

>>

>>> there is no history of alzheimers in our family and with all the other

>>

>>> diseases we are passing on, that was one we felt pretty confident

>>

>>> wasn't on the list. Wednesday afternoon I found out that my mother

>>

>>> had been taken by ambulance to the local hospital after being found by

>>

>>> her sister incoherent rocking on her bed in extreme pain in her back.

>>

>>> The local hospital could find no cause for her problems except that

>>

>>> she was severely dehydrated, had a kidney infection, and pneumonia

>>

>>> with fluid in her lungs, and an enlarged spleen. Her kidney function

>>

>>> went down to a gfr of 20 her heart beat was 140, very dangerous for a

>>

>>> women with a damaged heart from a previous heart attack. Yesterday

>>

>>> morning they sent her to a larger regional hospital. She was

>>

>>> increasingly less coherent, declined to go on analysis and the heart

>>

>>> dr. said then there really wasn't anything they could do for her. She

>>

>>> is being moved out of the cardiac unit into a more general unit for

>>

>>> the weekend, and as soon as my brother can find a hospice facility

>>

>>> which will take her that he would want her in, she will be going to

>>

>>> hospice. So over the last four days I have pretty much lost my

>>

>>> mother, just basically waiting for her heart to quit beating. It was

>>

>>> so quick, shocking, I am having a terrible time dealing with it. So,

>>

>>> if I seem distracted and mixed up, excuse me. Please pray for my

>>

>>> mother and my two brothers and myself. My brother who is in charge of

>>

>>> her care will not communicate regularly with me, so I talk to the

>>

>>> nurses and doctors directly. He is a supposedly recovering alcoholic,

>>

>>> has stopped drinking but is still the bully, controlling person he has

>>

>>> been most of my life. I was hoping we could work together especially

>>

>>> at a time like this but he is only open to informing us of the

>>

>>> decisions he has made. Jan

>>

>>>

>>

>>>

>>

>>>

>>

>>>

>>

>>>

>>

>>>

>>

>>>

>>

>>>

[Guest guest]

Dear Jan,

I came back to London last week and only saw your email now. I am really sorry

to hear about your mum. But like you said, what is relieving is that she left in

peace. She was not in pain.

Please accept my condolences. You are in my prayers and thoughts.

You are a good daughter.

Lots of  love!

Arpita xxxxxxxxxxxxxxx

>>

>>>

>>

>>>

>>

>>>

>>

>>> Subject:

>>

>>> To: CABGHeartBypassSupport , " livercirrhosissupport "

<livercirrhosissupport >

>>

>>> Date: Saturday, May 7, 2011, 7:18 AM

>>

>>>

>>

>>>

>>

>>>

>>

>>>

>>

>>>

>>

>>>

>>

>>> I just wanted to let you all know what has been going on in my life

>>

>>> this week. I may not be available much for the next 2 to 3 weeks if I

>>

>>> am able to go home to see my mother, if I can even make it in time.

>>

>>> On Tuesday afternoon I was told by my sister in law that my mother was

>>

>>> being treated for Alzheimers. She had been treated for two months and

>>

>>> I had not been told. That was upsetting as well as shocking since

>>

>>> there is no history of alzheimers in our family and with all the other

>>

>>> diseases we are passing on, that was one we felt pretty confident

>>

>>> wasn't on the list. Wednesday afternoon I found out that my mother

>>

>>> had been taken by ambulance to the local hospital after being found by

>>

>>> her sister incoherent rocking on her bed in extreme pain in her back.

>>

>>> The local hospital could find no cause for her problems except that

>>

>>> she was severely dehydrated, had a kidney infection, and pneumonia

>>

>>> with fluid in her lungs, and an enlarged spleen. Her kidney function

>>

>>> went down to a gfr of 20 her heart beat was 140, very dangerous for a

>>

>>> women with a damaged heart from a previous heart attack. Yesterday

>>

>>> morning they sent her to a larger regional hospital. She was

>>

>>> increasingly less coherent, declined to go on analysis and the heart

>>

>>> dr. said then there really wasn't anything they could do for her. She

>>

>>> is being moved out of the cardiac unit into a more general unit for

>>

>>> the weekend, and as soon as my brother can find a hospice facility

>>

>>> which will take her that he would want her in, she will be going to

>>

>>> hospice. So over the last four days I have pretty much lost my

>>

>>> mother, just basically waiting for her heart to quit beating. It was

>>

>>> so quick, shocking, I am having a terrible time dealing with it. So,

>>

>>> if I seem distracted and mixed up, excuse me. Please pray for my

>>

>>> mother and my two brothers and myself. My brother who is in charge of

>>

>>> her care will not communicate regularly with me, so I talk to the

>>

>>> nurses and doctors directly. He is a supposedly recovering alcoholic,

>>

>>> has stopped drinking but is still the bully, controlling person he has

>>

>>> been most of my life. I was hoping we could work together especially

>>

>>> at a time like this but he is only open to informing us of the

>>

>>> decisions he has made. Jan

>>

>>>

>>

>>>

>>

>>>

>>

>>>

>>

>>>

>>

>>>

>>

>>>

>>

>>>

[Guest guest]

Jan

I'm actually looking forward to finally be able to turn by and night around.  I

know the constant battle to get up at a decent time.  Soon as I'm able to get

all the bookkeeping out of my place, then I'm going to give myself permission

finally, to stay up until my body tells me it's bedtime. 

I have always been an insomniac and the liver problems just made it a little

more difficult to fight.  However, I do need to take my sleeping pill or I'd be

in the psych ward.  Just earlier this week, I started taking 2 instead of

1-1/2.  Needless to say, my Dr would give me anything I wanted.  However, the

reason I ask, is to make sure I can't run out.  Anyway, the day after the first

night, I honestly believed that I must have encephalopathy.  My head was fogged

right in and I couldn't think or do.  I was in tears by mid afternoon.  The

next day, started out the same way; but, got a little easier later in the

afternoon.  Well, I can't live like that yet.  So I called my pharmacist to

ask if he had any special potions to keep this controllable.  Then, he flashed

up my medications and says " Gloria, I see here that your Dr increased your

Zopiclone " .  He didn't have to say anymore!!!  Both nights I had taken the

2.  I can tell you that it'll

be a long time before I do that again.  LOL

________________________________

 

I have been trying to catch up on some of the emalis. I have been

going through one thing after another unrelated to the liver for the

last two months. To those of you new ones, sorry you find you need a

group like this, but you are in the right place, not only to find out

about your or a loved ones condition, but also to join some of the

most compassionate people in the world. I can't pray for everybody

here individually all the time, just too many, but as a group you are

always on my list along with people from other health support groups.

someone was looking for a support group, and I know you meant one you

could go to in person, but this has to be very close. The knowledge

of the group and especially some members is amazing. We are a family,

so don't worry about your bio family if they can't understand, we do.

When we are hit by things like this, we do need support and it is best

to take it where we can find it, and not to expend energy on wishing

things were more like they should be with family. Agonizing over

unsupportive family members depletes our strength to cope with

everything we do need to cope with health wise, and keeping a good

attitude is strengthening.

Let me introduce myself to the new ones. I am a 68 year old

greatgrandmother of one, 2 in Sept, 14 grandchildren, 4 children who I

must say have been pretty supportive but live at a distance and of

course are involved with their own lives. I have moved away from my

roots in Minnesota to a small town in Arizona which I love. I have a

church family here which is great. I play for church when I can and

usually all summer, about 1/2 the year and sometimes otherwise. We

are a weird town where in the winter our population is transitory,

nobody stays for more than 6 months and some for 6 weeks, 6 days, 6

hours. (except of course for the small population of permanent

residents like me) So, I just sort of back off and let them do it

their way.

I was diagnosed about 13 years ago with end stage non alcoholic

cirrhosis, obviously compensated since I am still around. Diagnosing

dr. told me I had 2 to 3 years to live. Don't see him any more. I

have also had 9 artery and cardio stents placed, 7 in my heart, a

triple bypass, carotid artery surgery. In last few years, my kidneys

are rebelling and on a roller coaster of functioning level. Most

immediate serious medical problem now is anemia. Been taking EPO

shots for about 2 years but while they may be keeping the anemia at a

level I still can function to a limited degree, they aren't fixing the

problem as they can in other circumstances. My hemo thinks it is

related to chronic illness, the kidneys, and also getting my gastro to

give me at least an endoscopy in the near future to see if I have

minor esophogeal bleeds on a regular basis, depleting my blood supply.

I moved into my own apartment in October and still love it even though

it seems it has been one thing after another attacking my respiratory

system since shortly after I moved in here. I lived here for a few

weeks and realized I really needed to get some bedroom furniture, so

ordered a dresser, chest and night stand. It was full of formaldahyde

which made me sick, had to try to air out the apartmemt. Then about

the time that had settled down, I had a bad fall which really shocked

my whole body. My pcp is sending me to an Ortho to see if it is time

to think knee replacement as I have fallen and hurt them so many times

besides the arthritis I have had for close to 40 years.

Then, the senior appts where I live decided it needed to spray my

building and another one inside and out for bug infestations in at

least one appt in each building. Don't know what you know about that,

but if they just treat the infected unit, the bugs move into one not

treated. Made me sick, they of course needed to do again to get the

babies a couple of weeks later, used something different in mine since

I am so sensitive but still got sick, not as bad. Then they realized

the buildings hadn't been treated for termites since they were built 7

years ago. Termites are a bad problem here. A nest was discovered in

the corner of two walls and the ceiling in my bedroom, so of course

that meant more treatment. They are doing everything they can to cut

down on the problems this causes me, but my lungs finally just said

enough. about 10 days ago, I knew I had to get to a dr. He diagnosed

me with a sinus infection, prescribed augmentin, bronchitis,

prescribed a short term massive dose of prednisone which turned me

into a different person than the me I knew. Loved some of it, but

don't like feeling like someone I don't know. Have never taken

illegal drugs or overdosed on legal ones to get high, so a new

experience, believe me. Coming down off of it now. Also, having

increased asthma problems. Went back yesterday, have bronchial

pneumonia so the prednisone didn't work very well, and from this dose

of antibiotics and others for utis, I have a systemic yeast infection.

Won't be able to get the prescriptions filled until at least Monday

as even WalMart couldn't fill one yesterday. Pharmacy closed here by

the time I remembered to ask some one to pick them up for me. Didn't

dare drive myself, head in a fog from neck up. I did get some meds

from a Dollar store so hopefully that will hold it off so it doesn't

get massively worse before Monday. Still on the augmentin for another

week.

Guess that is the highlights or lowlights of my medical condition,

although I also have other things which are more controlled by meds

and aren't usually too much of a problem. If they do cause problems,

seem to love to do it when it is bedtime. I also had my nights and

days reversed when first starting on this ride, but now have gotten on

a more regular schedule although I have trouble going to bed at what

most people consider a reasonable bed time, like 10. Mine is more

like midnight or 1 AM. that reversal is more of a problem than most

people would think since we do need to go to dr. appts. and some

people are working, and the rest of the world thinks we should fall in

with the majority. Guess they think we can just sleep when we decide

to, not when our body decides to. For me, realizing there were some

things I couldn't control was helpful, and when people would say

otherwise, " Just stay up so you are tired and you will go to bed at a

decent time " for instance, just let it go in one ear and out another.

Or would tell them to do some research on the problem online.

I find humor where I can find it and it helps to keep my spirits up.

Some people get crabby on the prednisone treatment, I got very happy.

This might be a little too subtle for someone not expecting it, but

yesterday and today I am having a good laugh at a sticker on a tray of

glazed donut holes I bought yesterday. Seem to have to eat a lot to

help to keep the fog away some and not feel so weak. It said " Use

By: 03/11/12 " I figured I could do that, so bought them and have been

working on making sure I get the job done. lol Probably the biggest

problem will be making sure they don't dry out before I finish. It

wasn't a small tray. And of course I shouldn't be eating them at all

with the calories not helping me lose weight and the sugar

contributing to the yeast infections. So, if you figure that isn't

funny, you aren't the only one. Many of my friends think I have no

sense of humor or a weird one.

Again, to the newbies, sorry you have a need for us, but we will do

all we can to help you through this. And for the caretakers, you are

marvels. God Bless You each and every one. Jan

[Guest guest]

We all react individually to meds, so what others could take sounds

like too much for you. The prednisone I took certainly doesn't act

like on everyone as it did on me. 10 days now, 2 days without any,

and I am still feeling it. I don't do well on sleeping pills, they

just don't last, so I have come up with taking 1 mg of xanax at

bedtime, if I have to get up, I usually don't have much trouble

getting back to sleep. But, my pcp is not the doctor who originally

prescribed it and he jumped to the conclusion that I have anxiety

disorder, to the point where I can not live a social life. Me, the

social gad about. Wasn't easy trying to convince him, not sure I ever

will. But at least I think, he removed it from my chart so it won't

be passed on.

Yes we do have to give ourselves permission. What does being in bed

long periods do for us if we aren't sleeping. My clothes wash any

time of the day, I can come on here any time of the day. Being in bed

without sleeping can cause muscle strains, etc. Jan

> Jan

>

> I'm actually looking forward to finally be able to turn by and night around. 

I know the constant battle to get up at a decent time.  Soon as I'm able to get

all the bookkeeping out of my place, then I'm going to give myself permission

finally, to stay up until my body tells me it's bedtime.

>

>

> I have always been an insomniac and the liver problems just made it a little

more difficult to fight.  However, I do need to take my sleeping pill or I'd be

in the psych ward.  Just earlier this week, I started taking 2 instead of

1-1/2.  Needless to say, my Dr would give me anything I wanted.  However, the

reason I ask, is to make sure I can't run out.  Anyway, the day after the first

night, I honestly believed that I must have encephalopathy.  My head was fogged

right in and I couldn't think or do.  I was in tears by mid afternoon.  The next

day, started out the same way; but, got a little easier later in the afternoon. 

Well, I can't live like that yet.  So I called my pharmacist to ask if he had

any special potions to keep this controllable.  Then, he flashed up my

medications and says " Gloria, I see here that your Dr increased your

Zopiclone " .  He didn't have to say anymore!!!  Both nights I had taken the 2.  I

can tell you that it'll

>  be a long time before I do that again.  LOL

>

>

>

> ________________________________

>

>

>

>

> I have been trying to catch up on some of the emalis.  I have been

> going through one thing after another unrelated to the liver for the

> last two months.  To those of you new ones, sorry you find you need a

> group like this, but you are in the right place, not only to find out

> about your or a loved ones condition, but also to join some of the

> most compassionate people in the world.  I can't pray for everybody

> here individually all the time, just too many, but as a group you are

> always on my list along with people from other health support groups.

> someone was looking for a support group, and I know you meant one you

> could go to in person, but this has to be very close.  The knowledge

> of the group and especially some members is amazing.  We are a family,

> so don't worry about your bio family if they can't understand, we do.

> When we are hit by things like this, we do need support and it is best

> to take it where we can find it, and not to expend energy on wishing

> things were more like they should be with family.  Agonizing over

> unsupportive family members depletes our strength to cope with

> everything we do need to cope with health wise, and keeping a good

> attitude is strengthening.

>

> Let me introduce myself to the new ones.  I am a 68 year old

> greatgrandmother of one, 2 in Sept, 14 grandchildren, 4 children who I

> must say have been pretty supportive but live at a distance and of

> course are involved with their own lives.  I have moved away from my

> roots in Minnesota to a small town in Arizona which I love.  I have a

> church family here which is great.  I play for church when I can and

> usually all summer, about 1/2 the year and sometimes otherwise.  We

> are a weird town where in the winter our population is transitory,

> nobody stays for more than 6 months and some for 6 weeks, 6 days, 6

> hours. (except of course for the small population of permanent

> residents like me) So, I just sort of back off and let them do it

> their way.

>

> I was diagnosed about 13 years ago with end stage non alcoholic

> cirrhosis, obviously compensated since I am still around.  Diagnosing

> dr. told me I had 2 to 3 years to live.  Don't see him any more.  I

> have also had 9 artery and cardio stents placed, 7 in my heart, a

> triple bypass, carotid artery surgery.  In last few years, my kidneys

> are rebelling and on a roller coaster of functioning level.  Most

> immediate serious medical problem now is anemia.  Been taking EPO

> shots for about 2 years but while they may be keeping the anemia at a

> level I still can function to a limited degree, they aren't fixing the

> problem as they can in other circumstances.  My hemo thinks it is

> related to chronic illness, the kidneys, and also getting my gastro to

> give me at least an endoscopy in the near future to see if I have

> minor esophogeal bleeds on a regular basis, depleting my blood supply.

>

> I moved into my own apartment in October and still love it even though

> it seems it has been one thing after another attacking my respiratory

> system since shortly after I moved in here.  I lived here for a few

> weeks and realized I really needed to get some bedroom furniture, so

> ordered a dresser, chest and night stand.  It was full of formaldahyde

> which made me sick, had to try to air out the apartmemt.  Then about

> the time that had settled down, I had a bad fall which really shocked

> my whole body.  My pcp is sending me to an Ortho to see if it is time

> to think knee replacement as I have fallen and hurt them so many times

> besides the arthritis I have had for close to 40 years.

>

> Then, the senior appts where I live decided it needed to spray my

> building and another one inside and out for bug infestations in at

> least one appt in each building.  Don't know what you know about that,

> but if they just treat the infected unit, the bugs move into one not

> treated.  Made me sick, they of course needed to do again to get the

> babies a couple of weeks later, used something different in mine since

> I am so sensitive but still got sick, not as bad.  Then they realized

> the buildings hadn't been treated for termites since they were built 7

> years ago.  Termites are a bad problem here.  A nest was discovered in

> the corner of two walls and the ceiling in my bedroom, so of course

> that meant more treatment.  They are doing everything they can to cut

> down on the problems this causes me, but my lungs finally just said

> enough.  about 10 days ago, I knew I had to get to a dr. He diagnosed

> me with a sinus infection, prescribed augmentin, bronchitis,

> prescribed a short term massive dose of prednisone which turned me

> into a different person than the me I knew.  Loved some of it, but

> don't like feeling like someone I don't know.  Have never taken

> illegal drugs or overdosed on legal ones to get high, so a new

> experience, believe me.  Coming down off of it now.  Also, having

> increased asthma problems.  Went back yesterday, have bronchial

> pneumonia so the prednisone didn't work very well, and from this dose

> of antibiotics and others for utis, I have a systemic yeast infection.

> Won't be able to get the prescriptions filled until at least Monday

> as even WalMart couldn't fill one yesterday.  Pharmacy closed here by

> the time I remembered to ask some one to pick them up for me.  Didn't

> dare drive myself, head in a fog from neck up.  I did get some meds

> from a Dollar store so hopefully that will hold it off so it doesn't

> get massively worse before Monday.  Still on the augmentin for another

> week.

>

> Guess that is the highlights or lowlights of my medical condition,

> although I also have other things which are more controlled by meds

> and aren't usually too much of a problem.  If they do cause problems,

> seem to love to do it when it is bedtime.  I also had my nights and

> days reversed when first starting on this ride, but now have gotten on

> a more regular schedule although I have trouble going to bed at what

> most people consider a reasonable bed time, like 10.  Mine is more

> like midnight or 1 AM.  that reversal is more of a problem than most

> people would think since we do need to go to dr. appts. and some

> people are working, and the rest of the world thinks we should fall in

> with the majority.  Guess they think we can just sleep when we decide

> to, not when our body decides to.  For me, realizing there were some

> things I couldn't control was helpful, and when people would say

> otherwise, " Just stay up so you are tired and you will go to bed at a

> decent time " for instance, just let it go in one ear and out another.

> Or would tell them to do some research on the problem online.

>

> I find humor where I can find it and it helps to keep my spirits up.

> Some people get crabby on the prednisone treatment, I got very happy.

> This might be a little too subtle for someone not expecting it, but

> yesterday and today I am having a good laugh at a sticker on a tray of

> glazed donut holes I bought yesterday.  Seem to have to eat a lot to

> help to keep the fog away some and not feel so weak.  It said " Use

> By: 03/11/12 "  I figured I could do that, so bought them and have been

> working on making sure I get the job done. lol   Probably the biggest

> problem will be making sure they don't dry out before I finish.  It

> wasn't a small tray.  And of course I shouldn't be eating them at all

> with the calories not helping me lose weight and the sugar

> contributing to the yeast infections.  So, if you figure that isn't

> funny, you aren't the only one.  Many of my friends think I have no

> sense of humor or a weird one.

>

> Again, to the newbies, sorry you have a need for us, but we will do

> all we can to help you through this.  And for the caretakers, you are

> marvels.  God Bless You each and every one.   Jan

>

>

>

>

[Guest guest]

Welcome You don't say if your husband has a specialist, or if he

does, what level. It sounds to me as if he may be going to a primary

care doctor, or a gastrologist who doesn't have much experience with

cirrhosis. what do you mean by the transplant test? who administered

it? What was involved? I have never heard of anyone on this list who

had to pass blood before they could be listed if their MELD score was

in the right range. From the symptoms you are describing, your

husband should be evaluated by a transplant team. If you can't get a

referral from his present doctor, either see if you can set up an

appt. without one, or get a different doctor. Some doctors think they

know it all and hate to pass patients on to a specialist. I have been

to two different transplant centers and been evaluated. Both said I

wouldn't qualify for a transplant because of multiple medical

problems, and now of course my age, and the state I live in which has

a huge shortage of organs. The doctor who ordered the biopsy which

diagnosed my cirrhosis told me I only had 2 to 3 years to live. Well

that was 13 or more years ago now. I have a different gastro. It is

difficult to do, especially when going through something like this

which is scary and you don't know much about, but we have to learn to

be our own advocates, or in your case advocate for your husband. I am

going to have to push my hemotologist to do a bone marrow test to

eliminate the last causes for anemia, and it isn't going to be easy,

but if he won't do it, then I will go back to my kidney doctor for

treatment and also my primary care doctor and possibly find a

different hemotologist. I used to think doctors knew it all, but even

if they think they do, they don't. If he was evaluated at a

transplant center, then you probably need to go to a different one.

You can even be listed at more than one center. Praying for you and

your husband and family. Jan

> WELL I'M NEW TO THE GROUP AND NOT SURE WHERE TO START. MY HUSBAND HAS CIRCUSIS

OF THE LIVER. IT STARTED OUT (KNOW I'M GONNA MISPELL THIS BUT MAYBE YOU CAN

FIGURE IT OUT.) HEMACROMATOSIS AND THEN WE WERE TOLD HE HAD CIRCUSIS. HES GONE

THOUGHT THE TRANSPLANT TEST BUT WAS TOLD THAT UNTILL HE STARTS PASSING BLOOD HE

WOULDN'T BE PUT ON ANY LIST. I WORRY THAT BY THEN IT WILL BE TOO LATE. HES

ALREADY BEEN IN HOSIPTAL SEVERAL TIMES FOR HIS AMMONI BEING TOO HIGH, LAST TIME

THEY SAID IT WAS OFF THE CHARTS. BEEN IN HOSIPTAL TO HAVE FLUID REMOVED.HE GETS

VERY CONFUSED AND SAYS HES IN ALOT OF PAIN.I DON'T KNOW IF THE PAIN IS FROM HIS

LIVER OR BEAUSE HE HAD AN ACCIDENT IN 2002.I GET SO SCARED AND DON'T KNOW WHAT

TO DO OR WHATS GONNA HAPPEN NEXT. MY DAUGHTER HELPS ALOT BUT I HATE LEANING ON

HER SO MUCH. I JUST WAS HOPING THERE WERE OTHER PEOPLE OUT THERE. DON'T TAKE ME

WRONG I DON'T WISH THIS ON ANYONE. BUT IT SURE WOULD HELP TO BEABLE TO TALK TO

SOMEONE THAT KNOWS WHAT I'M GOING THOUGHT. SO WITH THAT SAID I'LL STOP HERE.

>

>

> ------------------------------------

>

> Group Email:    livercirrhosissupport

> web address:

> http://groups.yahoo.com/group/livercirrhosissupport/

>

[Guest guest]

HE GOES TO A LIVER SPECIALIST AND I DO LIKE HIM HE LETS ME KNOW MORE THAN MOST

OF MY HUSBANDS DR DO. MY HUSBAND ALSO GOES TO A CANCER DR. SHE DOESN'T SAY HE

HAS CANCER BUT BOTH HIS WHITE AND RED BLOOD CELLS ARE LOW AS IS HIS PLATLETS.HE

WENT TO A TRANSPLANT HOSIPTAL. I THINK PART OF HIS PROBLEM IS HE GETS STUBBORN

AND WON'T ALWAYS DO WHAT THE DRS SAY. AND I'VE TRIED TO GET HIM TO GO TO

DIFFURENT DR BUT HE SAYS HIS DR ARE THE BEST AND HE DON'T NEED ANY OTHERS. RIGHT

NOW HE ISN'T SLEEPING AND SAYS HIS LEGS HURT TOO MUCH. HE SLEEPS MAYBE AN HOUR

AT A TIME. HES VERY WEAK AND I'M SO WORRIED FOR HIM. I JUST DON'T KNOW WHAT TO

EXPECT OR WHATS GONNA HAPPEN NEXT.HE SEEMS TO HAVE MORE BAD DAYS THEN GOOD ONES.

---- Jan Holman wrote:

> Welcome You don't say if your husband has a specialist, or if he

> does, what level. It sounds to me as if he may be going to a primary

> care doctor, or a gastrologist who doesn't have much experience with

> cirrhosis. what do you mean by the transplant test? who administered

> it? What was involved? I have never heard of anyone on this list who

> had to pass blood before they could be listed if their MELD score was

> in the right range. From the symptoms you are describing, your

> husband should be evaluated by a transplant team. If you can't get a

> referral from his present doctor, either see if you can set up an

> appt. without one, or get a different doctor. Some doctors think they

> know it all and hate to pass patients on to a specialist. I have been

> to two different transplant centers and been evaluated. Both said I

> wouldn't qualify for a transplant because of multiple medical

> problems, and now of course my age, and the state I live in which has

> a huge shortage of organs. The doctor who ordered the biopsy which

> diagnosed my cirrhosis told me I only had 2 to 3 years to live. Well

> that was 13 or more years ago now. I have a different gastro. It is

> difficult to do, especially when going through something like this

> which is scary and you don't know much about, but we have to learn to

> be our own advocates, or in your case advocate for your husband. I am

> going to have to push my hemotologist to do a bone marrow test to

> eliminate the last causes for anemia, and it isn't going to be easy,

> but if he won't do it, then I will go back to my kidney doctor for

> treatment and also my primary care doctor and possibly find a

> different hemotologist. I used to think doctors knew it all, but even

> if they think they do, they don't. If he was evaluated at a

> transplant center, then you probably need to go to a different one.

> You can even be listed at more than one center. Praying for you and

> your husband and family. Jan

>

>

> > WELL I'M NEW TO THE GROUP AND NOT SURE WHERE TO START. MY HUSBAND HAS

CIRCUSIS OF THE LIVER. IT STARTED OUT (KNOW I'M GONNA MISPELL THIS BUT MAYBE YOU

CAN FIGURE IT OUT.) HEMACROMATOSIS AND THEN WE WERE TOLD HE HAD CIRCUSIS. HES

GONE THOUGHT THE TRANSPLANT TEST BUT WAS TOLD THAT UNTILL HE STARTS PASSING

BLOOD HE WOULDN'T BE PUT ON ANY LIST. I WORRY THAT BY THEN IT WILL BE TOO LATE.

HES ALREADY BEEN IN HOSIPTAL SEVERAL TIMES FOR HIS AMMONI BEING TOO HIGH, LAST

TIME THEY SAID IT WAS OFF THE CHARTS. BEEN IN HOSIPTAL TO HAVE FLUID REMOVED.HE

GETS VERY CONFUSED AND SAYS HES IN ALOT OF PAIN.I DON'T KNOW IF THE PAIN IS FROM

HIS LIVER OR BEAUSE HE HAD AN ACCIDENT IN 2002.I GET SO SCARED AND DON'T KNOW

WHAT TO DO OR WHATS GONNA HAPPEN NEXT. MY DAUGHTER HELPS ALOT BUT I HATE LEANING

ON HER SO MUCH. I JUST WAS HOPING THERE WERE OTHER PEOPLE OUT THERE. DON'T TAKE

ME WRONG I DON'T WISH THIS ON ANYONE. BUT IT SURE WOULD HELP TO BEABLE TO TALK

TO SOMEONE THAT KNOWS WHAT I'M GOING THOUGHT. SO WITH THAT SAID I'LL STOP HERE.

> >

> >

> > ------------------------------------

> >

> > Group Email:    livercirrhosissupport

> > web address:

> > http://groups.yahoo.com/group/livercirrhosissupport/

> >

[Guest guest]

My husband suffered from cirrhosis also. there should be NO REASON WHAT SO EVER

for your husband to have to hjave a bleed BEFORE he can be placed on the

transplant list.

First thing i would look into is another doctor, if his dr, is the one saying

that. i tried, unsuccessfully, to get to change doctors. They kept

telling him a bunch of crap, and said he weasn;t that bad...less than 8 weeks

later he passed away...following their orders for meds only.

DEfinitely research cirrhosis, and learn about the dsease yourself. then ask the

doc how your husband fits into the grand scheme of things. Learn to ask for

copies of his labs, so you can calculate his MELD score yourself. here, in

texas @ a 17 is when they will start the transplant eval.

Good luck to your and your husband.

> > > WELL I'M NEW TO THE GROUP AND NOT SURE WHERE TO START. MY HUSBAND HAS

CIRCUSIS OF THE LIVER. IT STARTED OUT (KNOW I'M GONNA MISPELL THIS BUT MAYBE YOU

CAN FIGURE IT OUT.) HEMACROMATOSIS AND THEN WE WERE TOLD HE HAD CIRCUSIS. HES

GONE THOUGHT THE TRANSPLANT TEST BUT WAS TOLD THAT UNTILL HE STARTS PASSING

BLOOD HE WOULDN'T BE PUT ON ANY LIST. I WORRY THAT BY THEN IT WILL BE TOO LATE.

HES ALREADY BEEN IN HOSIPTAL SEVERAL TIMES FOR HIS AMMONI BEING TOO HIGH, LAST

TIME THEY SAID IT WAS OFF THE CHARTS. BEEN IN HOSIPTAL TO HAVE FLUID REMOVED.HE

GETS VERY CONFUSED AND SAYS HES IN ALOT OF PAIN.I DON'T KNOW IF THE PAIN IS FROM

HIS LIVER OR BEAUSE HE HAD AN ACCIDENT IN 2002.I GET SO SCARED AND DON'T KNOW

WHAT TO DO OR WHATS GONNA HAPPEN NEXT. MY DAUGHTER HELPS ALOT BUT I HATE LEANING

ON HER SO MUCH. I JUST WAS HOPING THERE WERE OTHER PEOPLE OUT THERE. DON'T TAKE

ME WRONG I DON'T WISH THIS ON ANYONE. BUT IT SURE WOULD HELP TO BEABLE TO TALK

TO SOMEONE THAT KNOWS WHAT I'M GOING THOUGHT. SO WITH THAT SAID I'LL STOP HERE.

> > >

> > >

> > > ------------------------------------

> > >

> > > Group Email:    livercirrhosissupport

> > > web address:

> > > http://groups.yahoo.com/group/livercirrhosissupport/

> > >