Re: New Member seeks support

[Guest guest]

Carole,

Welcome to the group. This is a great place to find answers, whine, to get

support, to share good times and bad. Hopefully your specialist will be able to

give you some meds to help with the pain. We are all in the same boat, its

rocky sometimes but there are calm moments.

Carole E <caroleew@...> wrote:

Hello all,

I have just recently been diagnosed with RA, and am awaiting to see a

specialist at the end of this month. I am happy with my doctor selection

though because she goes to my church and is a personal friend. This is good

for me, because I am in college, three hours from home, so I am free to

call her at home or email her.

My bones hurt so bad and just take up so much of my worrying and time. I

feel like sometimes the pain will never go away and I will have to live

like this for the rest of my life. I know so little about what is going on,

other than the pain, and am worried and need support from others who are

going through this as well.

I would love to chat with anyone, I have Messanger: Carole4Reach

Thanks for your help

Carole

[Guest guest]

> Hello all,

> I have just recently been diagnosed with RA, and am awaiting to

see a

> specialist at the end of this month. I am happy with my doctor

selection

> though because she goes to my church and is a personal friend.

This is good

> for me, because I am in college, three hours from home, so I am

free to

> call her at home or email her.

> My bones hurt so bad and just take up so much of my worrying and

time. I

> feel like sometimes the pain will never go away and I will have to

live

> like this for the rest of my life. I know so little about what is

going on,

> other than the pain, and am worried and need support from others

who are

> going through this as well.

> I would love to chat with anyone, I have Messanger:

Carole4Reach

>

> Thanks for your help

>

> Carole

>

> Carole Welcome I'm sorry it's under such circumstanses.I'm allso

sorry your suffering so.Hopefully your doctor will be able to help

you with that but they are natorious for not giving out pain

medication so you need to be firm in your needs.Make a list with all

your questions and then don't forget it !! I look forward to getting

to know you better.Gentleness,Boo.

>

>

[Guest guest]

Carole,

I'm sorry that you have RA, but you've come to the right place for

support and understanding. We know what you're going through. It sounds

as though you will have a great doctor who will be very accessible to

you. It might take a while to find the right combination of meds that

will help you, but there is hope.

Luckily I didn't get RA until I was 63, already retired, my kids

already raised. I have a wonderful rheumy who is very caring and

compassionate. He first tried methotrexate and prednisone. My white

blood cell count was below normal, so he switched me to Arava. That

worked well as far as controlling the pain and inflammation, but my WBC

count still continued to go down. At that point, he gave me a choice

between Enbrel and Humira. I chose Enbrel because it has been out

longer. So far, it is working wonderfully well for me. I can still tell

that I have RA, but I have very little pain.

I hope that it doesn't take long to find the right combination of meds

to relieve your pain, which I know can become unbearable at times. Good

luck.

Sue

On Thursday, January 15, 2004, at 09:54 PM, Carole E wrote:

> Hello all,

> I have just recently been diagnosed with RA, and am awaiting to see a

> specialist at the end of this month. I am happy with my doctor

> selection

> though because she goes to my church and is a personal friend. This is

> good

> for me, because I am in college, three hours from home, so I am free to

> call her at home or email her.

> My bones hurt so bad and just take up so much of my worrying and time.

> I

> feel like sometimes the pain will never go away and I will have to live

> like this for the rest of my life. I know so little about what is

> going on,

> other than the pain, and am worried and need support from others who

> are

> going through this as well.

> I would love to chat with anyone, I have Messanger: Carole4Reach

>

> Thanks for your help

>

> Carole

>

>

>

[Guest guest]

Carole, welcome to the group!

I'm sorry that you are in so much pain and that you are worried about

what is to come.

Why isn't your current doctor treating your pain? Is that the doctor who

is your friend or is the rheumatologist your friend?

With the right treatment and monitoring, it is quite likely that you can

feel better and get your disease under control. There is much hope.

[ ] New Member seeks support

> Hello all,

> I have just recently been diagnosed with RA, and am awaiting to see a

> specialist at the end of this month. I am happy with my doctor

selection

> though because she goes to my church and is a personal friend. This is

good

> for me, because I am in college, three hours from home, so I am free

to

> call her at home or email her.

> My bones hurt so bad and just take up so much of my worrying and time.

I

> feel like sometimes the pain will never go away and I will have to

live

> like this for the rest of my life. I know so little about what is

going on,

> other than the pain, and am worried and need support from others who

are

> going through this as well.

> I would love to chat with anyone, I have Messanger: Carole4Reach

>

> Thanks for your help

>

> Carole

[Guest guest]

Dear Carole: Welcome to the group, this is a wonderful group I have really

enjoyed e-mailing and keeping up on the news how everyone is doing. I was

diagnosed with severe RA in 1995 but probably had it a lot longer. I am

currently

on 3 Enbrel shots per week, 9 mgs. of prednisone and vioxx among other

numerous meds for bleeding ulcers and heart problems, but I am happy to report I

am

doing pretty well, a little stiff today and tired as I have a head cold, but

got up and went to church that always makes a body feel loved and feel better.

I f I can answer any questions please write to me I am Shirley at

Edmis3@....

Welcom e to th e group!!

Shirley