Guest guest Posted May 16, 2003 Report Share Posted May 16, 2003 > >What is your name? Elke Verreet Welcome Elke!! I am so glad to have you here with us! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2003 Report Share Posted May 16, 2003 Welcome Elke )!!!!!! Gymmie in Cali )!!!!! Jerry--Army of One, Prayers of Millions--Get well Soon!!!!!!! Steve--Congrats on your new ride:o)!!!!!! Go #30 Go )!!!!!! -- (unknown) What is your name? Elke Verreet How old are you? 24, 25 in July Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2010 Report Share Posted March 10, 2010 Thanks Gloria! I am in West Tennessee, out in the country in Hardeman County which borders Mississippi. > > > Welcome Home Diane > > Remind me - where is home for you?? > > Gloria > > ________________________________ > > > Hi Dave, > > Diane here. I am doing fantastic!!!! For the first time in nearly 4 years, > I am writing from my own home tonight!!!! Praise the Lord!!!! I just > returned home tonight. We had moved out in August, 2006 to live with my MIL > and take care of her. Then, my husband got very ill and died and I am just > now getting back to where I felt competent to make a decision about where > to > live. I have to tell you, coming home is the best decision I have made > since Terry died!!!! I am sooooooo happy to be home!!!! > > Hope you are doing as well as you can. God bless! > > Many hugs............ > > Diane > > On Wed, Mar 10, 2010 at 1:07 PM, dave dodds <daveliltoe@...<daveliltoe%40yahoo.com>> > wrote: > > > > > > > How's everyone? Hope you are doing good. > > Dave > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2010 Report Share Posted March 11, 2010 Glad you have been able to get back to your own home, and that you are doing good, Diane. That is a long time to be away from there. I hope it works out well for you. Peace and comfort, Dave Dave ________________________________ To: livercirrhosissupport Sent: Wed, March 10, 2010 10:06:25 PM Subject: Re: (unknown) Hi Dave, Diane here. I am doing fantastic!!!! For the first time in nearly 4 years, I am writing from my own home tonight!!!! Praise the Lord!!!! I just returned home tonight. We had moved out in August, 2006 to live with my MIL and take care of her. Then, my husband got very ill and died and I am just now getting back to where I felt competent to make a decision about where to live. I have to tell you, coming home is the best decision I have made since Terry died!!!! I am sooooooo happy to be home!!!! Hope you are doing as well as you can. God bless! Many hugs............ Diane > > > How's everyone? Hope you are doing good. > Dave > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2010 Report Share Posted March 11, 2010 Diane...I am so happy for you! Welcome home!!                                                                            Love,Jill  We don't remember days, we remember moments. Life is not measured by the breaths we take,but by the moments that take our breath away. ________________________________ To: livercirrhosissupport Sent: Wed, March 10, 2010 11:08:23 PM Subject: Re: (unknown)  Welcome Home Diane Remind me - where is home for you?? Gloria ____________ _________ _________ __ Hi Dave, Diane here. I am doing fantastic!!! ! For the first time in nearly 4 years, I am writing from my own home tonight!!!! Praise the Lord!!!! I just returned home tonight. We had moved out in August, 2006 to live with my MIL and take care of her. Then, my husband got very ill and died and I am just now getting back to where I felt competent to make a decision about where to live. I have to tell you, coming home is the best decision I have made since Terry died!!!! I am sooooooo happy to be home!!!! Hope you are doing as well as you can. God bless! Many hugs........ .... Diane On Wed, Mar 10, 2010 at 1:07 PM, dave dodds <daveliltoeyahoo (DOT) com> wrote: > > > How's everyone? Hope you are doing good. > Dave > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2010 Report Share Posted March 11, 2010 Hi and update. I am checking into moving to Tamp again.l There is only 31 waiting there and there is 83 here in DFW TX. wain\ting on Tampa Gen to call. Thanks for this day and for our tomorrows  Love, Lyncia   > > > How's everyone? Hope you are doing good. > Dave > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2010 Report Share Posted March 11, 2010 Thanks Dave! > > > Glad you have been able to get back to your own home, and that you are > doing good, Diane. That is a long time to be away from there. I hope it > works out well for you. Peace and comfort, Dave > Dave > > ________________________________ > From: Diane Chandler <diane.chandler.75@...<diane.chandler.75%40gmail.com> > > > To: livercirrhosissupport <livercirrhosissupport%40yahoogroups.com> > Sent: Wed, March 10, 2010 10:06:25 PM > Subject: Re: (unknown) > > Hi Dave, > > Diane here. I am doing fantastic!!!! For the first time in nearly 4 > years, > I am writing from my own home tonight!!!! Praise the Lord!!!! I just > returned home tonight. We had moved out in August, 2006 to live with my > MIL > and take care of her. Then, my husband got very ill and died and I am just > now getting back to where I felt competent to make a decision about where > to > live. I have to tell you, coming home is the best decision I have made > since Terry died!!!! I am sooooooo happy to be home!!!! > > Hope you are doing as well as you can. God bless! > > Many hugs............ > > Diane > > On Wed, Mar 10, 2010 at 1:07 PM, dave dodds <daveliltoe@...<daveliltoe%40yahoo.com>> > wrote: > > > > > > > How's everyone? Hope you are doing good. > > Dave > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2010 Report Share Posted March 11, 2010 Lyncia, Praying for the decisions you must make here. Keep us posted! > > > Hi and update. I am checking into moving to Tamp again.l There is only 31 > waiting there and there is 83 here in DFW TX. > wain\ting on Tampa Gen to call. > > Thanks for this day and for our tomorrows > > Love, Lyncia > > > > > > > > > > > How's everyone? Hope you are doing good. > > Dave > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2010 Report Share Posted March 11, 2010 Thank you Jill! The first night was so peaceful! I have a million things to do, yet I find myself mostly just sitting or standing around today and just soaking up the joy of being back at home! On Thu, Mar 11, 2010 at 8:29 AM, Jill wrote: > > > Diane...I am so happy for you! Welcome home!! > > > Love,Jill > > We don't remember days, we remember moments. > Life is not measured by the breaths we take,but by the moments that take > our breath away. > > ________________________________ > From: Gloria <gadamscan@... <gadamscan%40yahoo.ca>> > To: livercirrhosissupport <livercirrhosissupport%40yahoogroups.com> > Sent: Wed, March 10, 2010 11:08:23 PM > > Subject: Re: (unknown) > > > Welcome Home Diane > > Remind me - where is home for you?? > > Gloria > > ____________ _________ _________ __ > > > Hi Dave, > > Diane here. I am doing fantastic!!! ! For the first time in nearly 4 years, > I am writing from my own home tonight!!!! Praise the Lord!!!! I just > returned home tonight. We had moved out in August, 2006 to live with my MIL > and take care of her. Then, my husband got very ill and died and I am just > now getting back to where I felt competent to make a decision about where > to > live. I have to tell you, coming home is the best decision I have made > since Terry died!!!! I am sooooooo happy to be home!!!! > > Hope you are doing as well as you can. God bless! > > Many hugs........ .... > > Diane > > On Wed, Mar 10, 2010 at 1:07 PM, dave dodds <daveliltoeyahoo (DOT) com> wrote: > > > > > > > How's everyone? Hope you are doing good. > > Dave > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2010 Report Share Posted June 29, 2010 Stage 4 is what is commonly called end stage liver disease. Without a transplant, she will eventually die of liver failure. Having said that, she may have many years left even without a transplant. Even doctors are very uncertain and will almost always refuse to give a time frame for life expectation. And, when they do, they are almost always wrong, but they do the best they can. My husband was told 6 months at the most; he lived for 15 more months. He was not interested in a transplant. There are so many variables and every person's body reacts different. Your mom may begin to have varices, which are varicose veins in her esphogus, abdominal area or rectum. These can bleed and be a life threatening issue. Most people are screened for these complications periodically. The varices can be banded, or tied off, so as to prevent them from rupturing and bleeding if they become large enough to need that. Ascites is another complication thay may develop. This is the collection of fluid in her body tissues. This can happen anywhere in her body, but is most common in her extremities and in her abdominal region. If fluid collects in the abdomin and causes her problems with breathing, she can have it drawn off periodically through a paracentesis. A needle is inserted through her abdomina wall and the fluid is drawn out. If she needs the paracentesis frequently, there are other measures which can be taken to eliminate the need for the paracentesis. Her doctor can tell you about those things and will be the one to decide when and if they become necessary. The most debilitating thing that can happen, in my opinion, is hepatic encephalopathy. Ammonia will build up in her system due to the livers inability to rid the body of it. It will cause mental confusion and body tremors. The mental confusion can be very severe. My own husband had many episodes of this and the tremors would get so bad he couldn't feed himself or take care of his own needs. He required my assistance with everything, including toileting. Lactulose can be prescribed when this becomes a problem. This helps his body eliminate the ammonia through his bowels. It was a wonderful drug for my husband and for me. The encephalopathy was a horrid complication to deal with. Many people will develop what most people refer to as liver pain or spleen pain. This can become very debilitating and requires a good pain specialist in order to deal adequately with it. The most important thing for you to know is that she may yet have a long time before any of the complications develop and some people never develop some of them. If she will allow you to see her doctor with her, that would be my suggestion. Go to her next appointment with her. Make notes of questions you have and ask the doctor. Establishing a realtionship with a good primary care doctor, gastroenterologist and/or hepatolotist is extremely important at this stage. Please know we are here for you. My prayers are with you and your Mom. BTW, I lost my husband to liver disease in Jan 2009 and I now have Grade 3, Stage 4 liver disease myself. We both got ours due to diabetes. You hang in there, there is still so much hope for a long life for your Mom! Many hugs................ Diane http://auntdisexperimentallife.blogspot.com/ On Mon, Jun 28, 2010 at 10:43 AM, Candace Rose < independentwoman_19840803@...> wrote: > > > My mother has hepatitis c and was just told she is in stage4. What can I > expect to start happening. Does this mean she doesn't have long to live? She > just told me about it but won't talk about it in detail. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2010 Report Share Posted July 1, 2010 Thank you for getting back to me. My mom has the liver pains and the fluid in the abdominal area. It just started getting bigger and she has lost some weight but that never goes down. I have also noticed her being tired alot and she does have times when she gets confused. This past winter she stayed sick. It didn't matter what she took nothing made her better. I had never seen her like that. I hate that she is hurting and there is nothing I can do to help. She wasn't in my life from the time I was 12 til I was 18. We just really got our relationship to a good place and now she may be taken from me. I have a two year old son so she has been trying to spend as much time with him as she can. Its hard though because she does have her bad days when she can hardly get out of bed. Thnk you again for talking with me. It really helps. My prayers are with you also > > > > > > > My mother has hepatitis c and was just told she is in > stage4. What can I > > expect to start happening. Does this mean she doesn't > have long to live? She > > just told me about it but won't talk about it in > detail. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2010 Report Share Posted July 1, 2010 I don't have Hep C and I haven't dealt with it in a loved one. However, I know others here have. Has a doctor told your Mom there is nothing that can be done for her? I was under the impression she could get a liver transplant even if she had not had the treatments for Hep C and then undergo the treatments? Or, is that even something your Mom would be interested in doing? I know my own husband did not want to consider a tranplant. It is not the answer for everyone. Having said that, the talk with her won't be easy. It is an emotional time and it most likely will be a very emotionally charged talk. Emotions are okay though. I guess I would say that's the most important thing to remember, it's ok to cry with each other. If possible, it may be better to have a series of talks rather than trying to get everything into one talk. That's how it was for me and my Mom and for me and my husband. We just talked a lot at different occasions. Sometimes, it was just too hard to have a complete conversation, but we would just talk about our memories. At other times, it seemed almost as if sharing my heart was meant to be for that particular time and place. Whatever you choose to do, just know there is no right or wrong way to do it. Share your heart with each other. Know that, when the time comes, there will inevitably be things that went unsaid and you will suffer regrets. There is no way we can remember to say everything we really would like to say to those we love. The regrets will be there no matter how good a job you do of it. It is human nature to have regrets when someone we love has gone. You will think " I should have this " or " I shouldn't have said that " or " I should have done this " or " I shouldn't have done that " .....the lists are endless. Just know that it's the effort that counts and what your loved one will leave remembering. She will know you love her and will have had the opportunity to tell you how much she loves you. Those are the important things....the effort to make that one last connection before we are parted. It will give her peace in her last days and it will give you peace as you say goodbye. Sometimes those talks begin with very innocent remarks that weave their way into a conversation that bears our heart and soul. Just be open to opportunity and take advantage of that opportunity when it becomes available. In our culture, we are so afraid to talk about death as though it is some un-natural thing. Death is just as natural as being born and living; it is a natural part of living and we all will face it at one time or another. Medicine cannot offer us eternal life, much as they would like to. Our time here is finite. The goal should be to make the leaving as precious as the arriving. I can witness from numerous experiences that it absolutely can be just that precious. The tears can be tears of joy for a life well lived and a heart filled with love so easily shared with those whom the individual loved most dearly. It can be joy for an end to the sufferings of the person we love. And, for me, the tears were joyful because I knew my Mom and husband had entered their eternal rest with their Lord and that I will see them again one day. Please know my heart and my prayers are with you and with your Mom. These are not easy times and the journey is a difficult one. However, it is the difficult journeys that build our character and make us better human beings. The love we share with others does not end when they leave this earthly plain, it continues to grow in our own hearts and brings us comfort the rest of the days of our lives. Many hugs............... Diane C. of TN http://auntdisexperimentallife.blogspot.com/ On Thu, Jul 1, 2010 at 8:24 AM, independentwoman_19840803 < independentwoman_19840803@...> wrote: > > > I just found out that my mom is in stage 4 of hep c. I know there is > nothing left to do but try to make her comfortable. Im scared because I > don't know what to expect or what she is getting ready to go through. I dont > even know what to say to her. How do you start a conversation to make sure > you say everything you need to before its too late? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2010 Report Share Posted July 1, 2010 She tried the treaments when she was in stage2 but they made her too sick. She doesn't want to have a transplant either. The doctors have told her ther is nothing else to do but make her comfortable. I know that dying is a part of life and Im trying to prepare myself. There is no way to trully prepare but all I can do is think what life is going to be like without her. It feels like I just got her back and shouldn;t have to lose her. Knowing what is getting ready to happen and actually going through it are two different things. All I can do is take it one day at a time and enjoy what time we do have together. Thank you for your kind words. > > > > > > > I just found out that my mom is in stage 4 of hep c. I > know there is > > nothing left to do but try to make her comfortable. Im > scared because I > > don't know what to expect or what she is getting ready > to go through. I dont > > even know what to say to her. How do you start a > conversation to make sure > > you say everything you need to before its too late? > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2010 Report Share Posted July 1, 2010 Candace, I cannot say I understand what you are going through because I did not have the experience with my Mom as did you with yours. Sometimes life just seems to unfair and it makes the letting go even harder. I pray you and and your mother are able to spend many good quality hours together sharing your hearts wiith each other before the time of her leaving comes. It's funny how we plan our lives and seem to feel we have the right to do that, but God has a way of making His plans and it seems so hard and unfair to us. I have learned through hard experience that, when I open myself to His plan with love and acceptance, He will make my path clear and give me joy once again in my heart. It won't be easy to go on without your Mom, I speak from experience where that is concerned. However, I do promise you that you will find joy again and these times with her will become even more precious to you as the years go by. Please know my heart and my prayers are with you. I am always available if you need a shoulder to cry on or an ear to listen. Many hugs...................... Diane C from TN http://auntdisexperimentallife.blogspot.com/ On Thu, Jul 1, 2010 at 1:11 PM, Candace Rose < independentwoman_19840803@...> wrote: > > > She tried the treaments when she was in stage2 but they made her too sick. > She doesn't want to have a transplant either. The doctors have told her ther > is nothing else to do but make her comfortable. I know that dying is a part > of life and Im trying to prepare myself. There is no way to trully prepare > but all I can do is think what life is going to be like without her. It > feels like I just got her back and shouldn;t have to lose her. Knowing what > is getting ready to happen and actually going through it are two different > things. All I can do is take it one day at a time and enjoy what time we do > have together. Thank you for your kind words. > > > > > > > > > > > > > I just found out that my mom is in stage 4 of hep c. I > > know there is > > > nothing left to do but try to make her comfortable. Im > > scared because I > > > don't know what to expect or what she is getting ready > > to go through. I dont > > > even know what to say to her. How do you start a > > conversation to make sure > > > you say everything you need to before its too late? > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2010 Report Share Posted July 6, 2010 Beverly,  Welcome to one of the best support group ever.  I have ESLD due to two defective genes. Right now I am fine....tired all of the time.  Again, Welcome. Thank you God for this day and for my tomorrows .  Love, Lyncia   Subject: (unknown) To: livercirrhosissupport Date: Tuesday, July 6, 2010, 8:44 PM  hi i am beverly i have alcohol induced cirrhosis. i have been on the waiting list for tp since dec 2009.i am having a really hard time coping with the swelling ,mood swings,nausea. i even have my dr baffeled over the fluid retention.some times i don't know if i can deal with this.i have a suport group once month,and i have gotten on some other sites for transplant patients most of them have hep. which i do not have.so any information or advice will be greatly appreciated. thank you beverly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2010 Report Share Posted July 7, 2010 Hi, Beverly. Nice to meet you. My name is Bobby. I am an alcoholic. Recovering, that is. I have been a moderator here since 2007. This thing seems to have you down. It puts things in perspective for me. I have been kinda in the dumps lately because of my spleen. My cirrhosis has caused my spleen to enlarge, and now it has gotten bigger, causing pain so bad even morphine only takes the edge off. But I am glad for that. I had a CT scan last week, and now my hepatologist is following something which is showing up on the scan, but seems to be baffling the doctors. They call it " hypodense " and use words like " non-hypervascular " so that is better than " hypervascular " which usually means tumors... but along with low platelets, this big spleen, and having to do scans every 90 days now, I should count myself lucky to not be having fluid retention. I am really sorry. We will be here for you to vent to, and chat with. There are a lot of really good people in this group, and I think it is the very best support group on the whole wide web. I hope you get a liver real soon. Do you have any zofran for nausea? It is the next best drug for that. I suppose marajuana would be the best , but it isnt usually an option, especially with transplant doctors. Thanks for joining and Welcome to our group. Love, Bobby ________________________________ To: livercirrhosissupport Sent: Tue, July 6, 2010 7:44:34 PM Subject: (unknown) hi i am beverly i have alcohol induced cirrhosis. i have been on the waiting list for tp since dec 2009.i am having a really hard time coping with the swelling ,mood swings,nausea. i even have my dr baffeled over the fluid retention.some times i don't know if i can deal with this.i have a suport group once month,and i have gotten on some other sites for transplant patients most of them have hep. which i do not have.so any information or advice will be greatly appreciated. thank you beverly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2010 Report Share Posted July 7, 2010 Welcome Beverly I'll be short because I broke my left arm/wrist a few hours ago. I had a terrible time because of fluid retention last summer. I had had trouble before because of heart problems but not this time. I think part of the problem was the added humidity in th air, and really never found from the doctors, They increased my lasix and eventually added to elevating my legs, it did go down, but not completely until the temp and humidity went down, The fluid put so much pressure on my veins, blood seeped out and I now have permanent dark spot on the top of each foot. Are you taking anything for the fluid retention? Jan H On Tue, Jul 6, 2010 at 6:44 PM, Beverly Hurlock wrote: > hi i am beverly i have alcohol induced cirrhosis. i have been on the > waiting > list for tp since dec 2009.i am having a really hard time coping with the > swelling ,mood swings,nausea. i even have my dr baffeled over the fluid > retention.some times i don't know if i can deal with this.i have a suport > group > once month,and i have gotten on some other sites for transplant patients > most of > them have hep. which i do not have.so any information or advice will be > greatly > appreciated. > > thank you > > beverly > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2010 Report Share Posted July 7, 2010 hi bob nice to meet you. they have also said my spleen is enlarged and with these swelling my upper stomach is sore all the time .they gave phanigan for nausea,and i take a lot of lactolose. and fluid pills.but i have been in the hosp. 15 times since oct 2008.aand everytime i have a uti infection i don't get it .i am also a recoverying almost 20mos. even though it took this illness to get me to stop. but the alcohol had became part of my life off and on for over 20yrs. thats said.becouse i don't approve off people doing hard drugs but here i am addicted to a different drug. are you on the tp list . i have been since dec 2009. well nice talking to you need to go finish laundry. have a good afternoon. ________________________________ To: livercirrhosissupport Sent: Wed, July 7, 2010 1:15:44 AM Subject: Re: (unknown) Hi, Beverly. Nice to meet you. My name is Bobby. I am an alcoholic. Recovering, that is. I have been a moderator here since 2007. This thing seems to have you down. It puts things in perspective for me. I have been kinda in the dumps lately because of my spleen. My cirrhosis has caused my spleen to enlarge, and now it has gotten bigger, causing pain so bad even morphine only takes the edge off. But I am glad for that. I had a CT scan last week, and now my hepatologist is following something which is showing up on the scan, but seems to be baffling the doctors. They call it " hypodense " and use words like " non-hypervascular " so that is better than " hypervascular " which usually means tumors... but along with low platelets, this big spleen, and having to do scans every 90 days now, I should count myself lucky to not be having fluid retention. I am really sorry. We will be here for you to vent to, and chat with. There are a lot of really good people in this group, and I think it is the very best support group on the whole wide web. I hope you get a liver real soon. Do you have any zofran for nausea? It is the next best drug for that. I suppose marajuana would be the best , but it isnt usually an option, especially with transplant doctors. Thanks for joining and Welcome to our group. Love, Bobby ________________________________ To: livercirrhosissupport Sent: Tue, July 6, 2010 7:44:34 PM Subject: (unknown) hi i am beverly i have alcohol induced cirrhosis. i have been on the waiting list for tp since dec 2009.i am having a really hard time coping with the swelling ,mood swings,nausea. i even have my dr baffeled over the fluid retention.some times i don't know if i can deal with this.i have a suport group once month,and i have gotten on some other sites for transplant patients most of them have hep. which i do not have.so any information or advice will be greatly appreciated. thank you beverly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2010 Report Share Posted July 7, 2010 yes i am taking spironalactone,and lasis but yesterday he called in some other fluid pill.because these are not working for some reason i am on a very low soduim diet. i also have dark spots on both my feet.have you or are you on the transplant list. hope your arm/wrist get better. have a good one bev ________________________________ To: livercirrhosissupport Sent: Wed, July 7, 2010 6:17:45 AM Subject: Re: (unknown) Welcome Beverly I'll be short because I broke my left arm/wrist a few hours ago. I had a terrible time because of fluid retention last summer. I had had trouble before because of heart problems but not this time. I think part of the problem was the added humidity in th air, and really never found from the doctors, They increased my lasix and eventually added to elevating my legs, it did go down, but not completely until the temp and humidity went down, The fluid put so much pressure on my veins, blood seeped out and I now have permanent dark spot on the top of each foot. Are you taking anything for the fluid retention? Jan H On Tue, Jul 6, 2010 at 6:44 PM, Beverly Hurlock wrote: > hi i am beverly i have alcohol induced cirrhosis. i have been on the > waiting > list for tp since dec 2009.i am having a really hard time coping with the > swelling ,mood swings,nausea. i even have my dr baffeled over the fluid > retention.some times i don't know if i can deal with this.i have a suport > group > once month,and i have gotten on some other sites for transplant patients > most of > them have hep. which i do not have.so any information or advice will be > greatly > appreciated. > > thank you > > beverly > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2010 Report Share Posted September 18, 2010 Dear nagi eltemsah, I have changed your setting to not recieve any emails. You are still enrolled in the group, and can access the group through the internet, but you should stop recieving emails. Bobby, administrator Cirrhosis support-Yahoogroups ________________________________ To: livercirrhosissupport Sent: Sat, September 18, 2010 4:13:59 PM Subject: (unknown) please dont send me any more e mails thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2010 Report Share Posted September 18, 2010 thanks Subject: Re: (unknown) To: livercirrhosissupport Date: Saturday, September 18, 2010, 7:18 PM Â Dear nagi eltemsah, I have changed your setting to not recieve any emails. You are still enrolled in the group, and can access the group through the internet, but you should stop recieving emails. Bobby, administrator Cirrhosis support-Yahoogroups ________________________________ To: livercirrhosissupport Sent: Sat, September 18, 2010 4:13:59 PM Subject: (unknown) please dont send me any more e mails thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2010 Report Share Posted September 30, 2010 I have been getting a lot of mail like this. When I click on the ural, I get a message they can't open that site, and then a red sign comes up saying it is an infected email. Is there any way we can block these Jan > http://www.odjx.drugmedsx.com > > > > > > > ------------------------------------ > > Group Email: livercirrhosissupport > web address: > http://groups.yahoo.com/group/livercirrhosissupport/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2010 Report Share Posted October 1, 2010 We get a notice as moderators that there is spam that needs to be moderated. I deleted three of them just this morning. As general rule, one should never click on an email without a subject, or one that is a retail company offering products. My cousin fell victim recently, because I often see an ad for acai berry on yahoo, and it shows a girl in tight jeans. Last week, an email supoosedly from my cousin shows up, and it says " I've discovered the secret of acia berry! " Yeah, Ray, I bet you did. The spam is pretty clever, cause it acts like we havent seen ach other for a while. It is true that I havent seen him since he went to Baghdad, but he's been back for one year. Two days later, I get another email from him saying " Hey, how are you anyway? You know, this acia berry is really great! You gotta learn the secret to good health and prosperity through this amazing offer. " Poor ray, his computer is infected and he doesnt even know it. here is a link on avoiding getting infected. http://www.brighthub.com/internet/security-privacy/articles/2257.aspx love, Bobby ________________________________ To: livercirrhosissupport Sent: Thu, September 30, 2010 10:43:13 PM Subject: Re: (unknown) I have been getting a lot of mail like this. When I click on the ural, I get a message they can't open that site, and then a red sign comes up saying it is an infected email. Is there any way we can block these Jan > http://www.odjx.drugmedsx.com > > > > > > > ------------------------------------ > > Group Email: livercirrhosissupport > web address: > http://groups.yahoo.com/group/livercirrhosissupport/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2011 Report Share Posted March 6, 2011 Thank you for coming forward and posting. The more the merrier and we can use merry. I am sorry this is making you cry. At times my wife will cry, but she tries to hide it from me. Three times is amazing. They HAVE to find a better way to combat viruses. Hopefully this current generation will realize they are not immortal, and get busy making the same advances in medicine that were made by previous ones. Life is not a video game with extra lives hidden in the landscape. I am just venting a but, because you and your husband have done it right. He should be virus free and transplanted. Love, Bobby ________________________________ To: livercirrhosissupport Sent: Sun, March 6, 2011 9:35:17 PM Subject: (unknown) Thank God that no one has a " expiration date " stamped on our foreheads. Statistics are just that-numbers. We are all different. By the numbers, my husband should have been dead before we met in 2003. My dad also outlived the statistics by many years. They do NOT predict outcome. Take care of yourself as well as you can. My husband has cirrohsis from Hepatits C. He was treated three times unsuccessfully for this damnable virus. Now we are looking at a transplant. They have found 2 tumors that look like cancer. So we are off and running into that lengthy process. Any of you out there who may be a candidate for a transplant and haven't started the " paperwork " , may I encourage you to do so. Even if you don't need it yet, at least the work-up will be ready for when you need it. When I found out my husband had the cancer, I cried and cried. Now, I'm just angry at the diseases that are trying to take my sweetie away from me. I've been lurking in this group and should have been posting all along. Looking forward to " seeing " all of you here. Prayers, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2011 Report Share Posted March 7, 2011 I still cry at times.....Ed has been diagnosed for almost 6 years . I do really well most times...but then it hits and the tears come. The fear that we will not grow old together is huge sometimes. But as says. " no one has an expiration date " Only God knows that! So I pick myself up,dust myself off and start all over again! LOL!!                                                                            Love,Jill  We don't remember days, we remember moments. Life is not measured by the breaths we take,but by the moments that take our breath away. ________________________________ To: livercirrhosissupport Sent: Sun, March 6, 2011 11:53:13 PM Subject: Re: (unknown)  Thank you for coming forward and posting. The more the merrier and we can use merry. I am sorry this is making you cry. At times my wife will cry, but she tries to hide it from me. Three times is amazing. They HAVE to find a better way to combat viruses. Hopefully this current generation will realize they are not immortal, and get busy making the same advances in medicine that were made by previous ones. Life is not a video game with extra lives hidden in the landscape. I am just venting a but, because you and your husband have done it right. He should be virus free and transplanted. Love, Bobby ________________________________ To: livercirrhosissupport Sent: Sun, March 6, 2011 9:35:17 PM Subject: (unknown) Thank God that no one has a " expiration date " stamped on our foreheads. Statistics are just that-numbers. We are all different. By the numbers, my husband should have been dead before we met in 2003. My dad also outlived the statistics by many years. They do NOT predict outcome. Take care of yourself as well as you can. My husband has cirrohsis from Hepatits C. He was treated three times unsuccessfully for this damnable virus. Now we are looking at a transplant. They have found 2 tumors that look like cancer. So we are off and running into that lengthy process. Any of you out there who may be a candidate for a transplant and haven't started the " paperwork " , may I encourage you to do so. Even if you don't need it yet, at least the work-up will be ready for when you need it. When I found out my husband had the cancer, I cried and cried. Now, I'm just angry at the diseases that are trying to take my sweetie away from me. I've been lurking in this group and should have been posting all along. Looking forward to " seeing " all of you here. Prayers, Quote Link to comment Share on other sites More sharing options...
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