Guest guest Posted March 7, 2011 Report Share Posted March 7, 2011 I hear you, Jill. I did the same thing, and I still cry now thinking about what we went thru. You know, God gives you the strength you need for each day, one day at a time. I found that to be true. Hope you're having a good day today. Jackie Subject: Re: (unknown) To: livercirrhosissupport Date: Monday, March 7, 2011, 10:25 AM  I still cry at times.....Ed has been diagnosed for almost 6 years . I do really well most times...but then it hits and the tears come. The fear that we will not grow old together is huge sometimes. But as says. " no one has an expiration date " Only God knows that! So I pick myself up,dust myself off and start all over again! LOL!!                                                                            Love,Jill  We don't remember days, we remember moments. Life is not measured by the breaths we take,but by the moments that take our breath away. ________________________________ To: livercirrhosissupport Sent: Sun, March 6, 2011 11:53:13 PM Subject: Re: (unknown)  Thank you for coming forward and posting. The more the merrier and we can use merry. I am sorry this is making you cry. At times my wife will cry, but she tries to hide it from me. Three times is amazing. They HAVE to find a better way to combat viruses. Hopefully this current generation will realize they are not immortal, and get busy making the same advances in medicine that were made by previous ones. Life is not a video game with extra lives hidden in the landscape. I am just venting a but, because you and your husband have done it right. He should be virus free and transplanted. Love, Bobby ________________________________ To: livercirrhosissupport Sent: Sun, March 6, 2011 9:35:17 PM Subject: (unknown) Thank God that no one has a " expiration date " stamped on our foreheads. Statistics are just that-numbers. We are all different. By the numbers, my husband should have been dead before we met in 2003. My dad also outlived the statistics by many years. They do NOT predict outcome. Take care of yourself as well as you can. My husband has cirrohsis from Hepatits C. He was treated three times unsuccessfully for this damnable virus. Now we are looking at a transplant. They have found 2 tumors that look like cancer. So we are off and running into that lengthy process. Any of you out there who may be a candidate for a transplant and haven't started the " paperwork " , may I encourage you to do so. Even if you don't need it yet, at least the work-up will be ready for when you need it. When I found out my husband had the cancer, I cried and cried. Now, I'm just angry at the diseases that are trying to take my sweetie away from me. I've been lurking in this group and should have been posting all along. Looking forward to " seeing " all of you here. Prayers, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2011 Report Share Posted March 7, 2011 Thanks,Jackie! You're so sweet. You know what I've been through lately,but I don't think I posted it on the forum. For those who don't know...Ed has been my care taker the past 4 and 1/2 weeks! I've had total knee replacements on both knees...the right one 4 and 1/2 weeks ago and the left one 1 and 1/2 weeks ago. It's been tough going. Lots of pain,but I think in the end I'll feel lots better. Ed has been a terrific nurse!                                                                            Love,Jill  We don't remember days, we remember moments. Life is not measured by the breaths we take,but by the moments that take our breath away. ________________________________ To: livercirrhosissupport Sent: Mon, March 7, 2011 1:48:07 PM Subject: Re: (unknown)  I hear you, Jill. I did the same thing, and I still cry now thinking about what we went thru. You know, God gives you the strength you need for each day, one day at a time. I found that to be true. Hope you're having a good day today. Jackie Subject: Re: (unknown) To: livercirrhosissupport Date: Monday, March 7, 2011, 10:25 AM  I still cry at times.....Ed has been diagnosed for almost 6 years . I do really well most times...but then it hits and the tears come. The fear that we will not grow old together is huge sometimes. But as says. " no one has an expiration date " Only God knows that! So I pick myself up,dust myself off and start all over again! LOL!!                                                                            Love,Jill  We don't remember days, we remember moments. Life is not measured by the breaths we take,but by the moments that take our breath away. ________________________________ To: livercirrhosissupport Sent: Sun, March 6, 2011 11:53:13 PM Subject: Re: (unknown)  Thank you for coming forward and posting. The more the merrier and we can use merry. I am sorry this is making you cry. At times my wife will cry, but she tries to hide it from me. Three times is amazing. They HAVE to find a better way to combat viruses. Hopefully this current generation will realize they are not immortal, and get busy making the same advances in medicine that were made by previous ones. Life is not a video game with extra lives hidden in the landscape. I am just venting a but, because you and your husband have done it right. He should be virus free and transplanted. Love, Bobby ________________________________ To: livercirrhosissupport Sent: Sun, March 6, 2011 9:35:17 PM Subject: (unknown) Thank God that no one has a " expiration date " stamped on our foreheads. Statistics are just that-numbers. We are all different. By the numbers, my husband should have been dead before we met in 2003. My dad also outlived the statistics by many years. They do NOT predict outcome. Take care of yourself as well as you can. My husband has cirrohsis from Hepatits C. He was treated three times unsuccessfully for this damnable virus. Now we are looking at a transplant. They have found 2 tumors that look like cancer. So we are off and running into that lengthy process. Any of you out there who may be a candidate for a transplant and haven't started the " paperwork " , may I encourage you to do so. Even if you don't need it yet, at least the work-up will be ready for when you need it. When I found out my husband had the cancer, I cried and cried. Now, I'm just angry at the diseases that are trying to take my sweetie away from me. I've been lurking in this group and should have been posting all along. Looking forward to " seeing " all of you here. Prayers, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2011 Report Share Posted March 7, 2011 I haven't had the experience of being a caretaker or spouse of someone in your situations. But I do know that at times crying can help you get going again, releases a lot of the stress. Before I knew it, but when I was two weeks pregnant, I went flying over a 3 ft railing propelled by a mattress so bad my mother and I had folded it in half to get it up a stairway. I thought I had reached the top step but I hadn't, the mattress opened and away I went, luckily into an area where there was no furniture, flat on my back. It didn't even hurt to start with but after a few hours it got pretty bad. Finally, I went to my doctor, and I don't know why, he insisted on doing a pregnancy test before treating me for my back pain. I was pregnant. My husband and I hadn't been getting along, and I was thinking divorce, end of that. I had to have help with the housework besides what my husband could do after work. I already had two little girls and the oldest, 5 years old was a big help. Their father ended up in the hospital for a few days at the same time his brother was in another hospital miles away with a triple bypass and their grandfather was in the same hospital. I had to go to the Veteran's Service Office in his office in an old bank building which had ceilings high enough for two stories. I couldn't carry my youngest one who wasn't walking up stairs yet, but we put her on the stairs and she crawled up them. Got the business done, came down the stairs which was harder because she couldn't crawl down, out to the car. I sat down in that car and started bawling my eyes out. The pain was so bad and the frustration of having no one to help with everybody in the hospital. My oldest daughter was very frightened to see her mother like that. So, I told her " Don't worry, it makes mommy feel better " It may have relieved her anxiety that day, but there were days in the coming days when I cried because my back was still bothering me,or they weren't listening to me, and she would say 'Are you feeling better now mommy. " At that point, I wanted to wring her little neck. So, cry and relieve the stress, just be careful what you tell a 5 year old about the benefits of crying. Jan On Mon, Mar 7, 2011 at 11:48 AM, Jackie Ellermann wrote: > I hear you, Jill. I did the same thing, and I still cry now thinking about what we went thru. You know, God gives you the strength you need for each day, one day at a time. I found that to be true. Hope you're having a good day today. Jackie > > > > > > Subject: Re: (unknown) > To: livercirrhosissupport > Date: Monday, March 7, 2011, 10:25 AM > > > > > > > I still cry at times.....Ed has been diagnosed for almost 6 years . I do really > well most times...but then it hits and the tears come. The fear that we will not > grow old together is huge sometimes. But as says. " no one has an > expiration date " Only God knows that! So I pick myself up,dust myself off and > start all over again! LOL!! > > > Love,Jill > > We don't remember days, we remember moments. > Life is not measured by the breaths we take,but by the moments that take our > breath away. > > ________________________________ > > To: livercirrhosissupport > Sent: Sun, March 6, 2011 11:53:13 PM > Subject: Re: (unknown) > > > Thank you for coming forward and posting. The more the merrier and we can use > merry. > I am sorry this is making you cry. At times my wife will cry, but she tries to > hide it from me. > > Three times is amazing. They HAVE to find a better way to combat viruses. > Hopefully this current generation will realize they are not immortal, and get > busy making the same advances in medicine that were made by previous ones. Life > is not a video game with extra lives hidden in the landscape. I am just venting > a but, because you and your husband have done it right. > He should be virus free and transplanted. Love, Bobby > > ________________________________ > > To: livercirrhosissupport > Sent: Sun, March 6, 2011 9:35:17 PM > Subject: (unknown) > > Thank God that no one has a " expiration date " stamped on our foreheads. > Statistics are just that-numbers. We are all different. By the numbers, my > husband should have been dead before we met in 2003. My dad also outlived the > statistics by many years. They do NOT predict outcome. Take care of yourself > as well as you can. > > My husband has cirrohsis from Hepatits C. He was treated three times > unsuccessfully for this damnable virus. Now we are looking at a transplant. > They have found 2 tumors that look like cancer. So we are off and running into > that lengthy process. Any of you out there who may be a candidate for a > transplant and haven't started the " paperwork " , may I encourage you to do so. > Even if you don't need it yet, at least the work-up will be ready for when you > need it. > > When I found out my husband had the cancer, I cried and cried. Now, I'm just > angry at the diseases that are trying to take my sweetie away from me. > > I've been lurking in this group and should have been posting all along. Looking > > forward to " seeing " all of you here. > > Prayers, > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2011 Report Share Posted March 7, 2011 Oh, Jan. You have had some really hard times. Wish I could give you a hug. (((Jan))) Looks like that's the best I can do right now. Keep posting. I love hearing from you. Jackie > > > > Subject: Re: (unknown) > To: livercirrhosissupport > Date: Monday, March 7, 2011, 10:25 AM > > > > > > > I still cry at times.....Ed has been diagnosed for almost 6 years . I do really > well most times...but then it hits and the tears come. The fear that we will not > grow old together is huge sometimes. But as says. " no one has an > expiration date " Only God knows that! So I pick myself up,dust myself off and > start all over again! LOL!! > > >                                    Love,Jill > > We don't remember days, we remember moments. > Life is not measured by the breaths we take,but by the moments that take our > breath away. > > ________________________________ > > To: livercirrhosissupport > Sent: Sun, March 6, 2011 11:53:13 PM > Subject: Re: (unknown) > > > Thank you for coming forward and posting. The more the merrier and we can use > merry. > I am sorry this is making you cry. At times my wife will cry, but she tries to > hide it from me. > > Three times is amazing. They HAVE to find a better way to combat viruses. > Hopefully this current generation will realize they are not immortal, and get > busy making the same advances in medicine that were made by previous ones. Life > is not a video game with extra lives hidden in the landscape. I am just venting > a but, because you and your husband have done it right. > He should be virus free and transplanted. Love, Bobby > > ________________________________ > > To: livercirrhosissupport > Sent: Sun, March 6, 2011 9:35:17 PM > Subject: (unknown) > > Thank God that no one has a " expiration date " stamped on our foreheads. > Statistics are just that-numbers. We are all different. By the numbers, my > husband should have been dead before we met in 2003. My dad also outlived the > statistics by many years. They do NOT predict outcome. Take care of yourself > as well as you can. > > My husband has cirrohsis from Hepatits C. He was treated three times > unsuccessfully for this damnable virus. Now we are looking at a transplant. > They have found 2 tumors that look like cancer. So we are off and running into > that lengthy process. Any of you out there who may be a candidate for a > transplant and haven't started the " paperwork " , may I encourage you to do so. > Even if you don't need it yet, at least the work-up will be ready for when you > need it. > > When I found out my husband had the cancer, I cried and cried. Now, I'm just > angry at the diseases that are trying to take my sweetie away from me. > > I've been lurking in this group and should have been posting all along. Looking > > forward to " seeing " all of you here. > > Prayers, > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2011 Report Share Posted March 7, 2011 Jackie, thanks for your empathy. But, looking back on all of it, hard times aren't always such bad times. Some of them I have to admit I at least partially caused myself. And now that my kids have grown, we get laughs out of some of them. This wasn't a real hard time, but my second daughter wasn't very communicative as a child. When I would talk to her about it and tell her she should let me know her feelings, like when she had been with her dad for the weekend and came home and went right up to her room and stayed there until there was some reason to come down. Like the bathroom was downstairs. ha ha . She would say, " I feel cold " knowing perfectly well the different means of feel we were talking about. Yesterday, this mother posted about her little boy that it was so hard to start loving someone when you didn't see them, then they are born and you can see them and love them more and having to give him to the nurses and possibly not see him for a couple of days. She put that on facebook for everybody to read, the girl who wouldn't come out of her room and admit she missed her dad, wouldn't even say goodbye to him. My kids are so wonderful, (granted they can be brats sometimes still too) and some of the strength they have came from having to live through rough times in their early years I think. When I hurt my back, my oldest daughter took over a lot of the car of her younger sister, she even fixed some of her meals. I got the fun things like changing diapers. But she could do that to, if they were just wet. If I can get over this anemia which is dragging me down now, I want to write down stories like the one above and leave it as a present for my kids when I am gone. Or maybe I should give it to my grandkids to hold over their parents head? you think? lol I must be really getting old, the early days are so precious. And so is everyday and every night. Thank you God for giving them to me. Jan > Oh, Jan. You have had some really hard times. Wish I could give you a hug. (((Jan))) Looks like that's the best I can do right now. Keep posting. I love hearing from you. Jackie > > >> >> >> >> Subject: Re: (unknown) >> To: livercirrhosissupport >> Date: Monday, March 7, 2011, 10:25 AM >> >> >> >> >> >> >> I still cry at times.....Ed has been diagnosed for almost 6 years . I do really >> well most times...but then it hits and the tears come. The fear that we will not >> grow old together is huge sometimes. But as says. " no one has an >> expiration date " Only God knows that! So I pick myself up,dust myself off and >> start all over again! LOL!! >> >> >> Love,Jill >> >> We don't remember days, we remember moments. >> Life is not measured by the breaths we take,but by the moments that take our >> breath away. >> >> ________________________________ >> >> To: livercirrhosissupport >> Sent: Sun, March 6, 2011 11:53:13 PM >> Subject: Re: (unknown) >> >> >> Thank you for coming forward and posting. The more the merrier and we can use >> merry. >> I am sorry this is making you cry. At times my wife will cry, but she tries to >> hide it from me. >> >> Three times is amazing. They HAVE to find a better way to combat viruses. >> Hopefully this current generation will realize they are not immortal, and get >> busy making the same advances in medicine that were made by previous ones. Life >> is not a video game with extra lives hidden in the landscape. I am just venting >> a but, because you and your husband have done it right. >> He should be virus free and transplanted. Love, Bobby >> >> ________________________________ >> >> To: livercirrhosissupport >> Sent: Sun, March 6, 2011 9:35:17 PM >> Subject: (unknown) >> >> Thank God that no one has a " expiration date " stamped on our foreheads. >> Statistics are just that-numbers. We are all different. By the numbers, my >> husband should have been dead before we met in 2003. My dad also outlived the >> statistics by many years. They do NOT predict outcome. Take care of yourself >> as well as you can. >> >> My husband has cirrohsis from Hepatits C. He was treated three times >> unsuccessfully for this damnable virus. Now we are looking at a transplant. >> They have found 2 tumors that look like cancer. So we are off and running into >> that lengthy process. Any of you out there who may be a candidate for a >> transplant and haven't started the " paperwork " , may I encourage you to do so. >> Even if you don't need it yet, at least the work-up will be ready for when you >> need it. >> >> When I found out my husband had the cancer, I cried and cried. Now, I'm just >> angry at the diseases that are trying to take my sweetie away from me. >> >> I've been lurking in this group and should have been posting all along. Looking >> >> forward to " seeing " all of you here. >> >> Prayers, >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2011 Report Share Posted March 8, 2011 Jan, you should write down those precious stories. My mother-in-law did that. She had 50 pages of her life story and she gave us each a copy for Christmas one year. She is gone now and those stories are so precious. Our kids got the biggest kick out of Grandma's antics. It's a really cool idea. Try it if you can. Just jot down your memories as they come and when you get them all together compile them in some kind of order. Your family will treasure them for years to come. Have a good day. Love, Jackie >> >> >> >> Subject: Re: (unknown) >> To: livercirrhosissupport >> Date: Monday, March 7, 2011, 10:25 AM >> >> >> >> >> >> >> I still cry at times.....Ed has been diagnosed for almost 6 years . I do really >> well most times...but then it hits and the tears come. The fear that we will not >> grow old together is huge sometimes. But as says. " no one has an >> expiration date " Only God knows that! So I pick myself up,dust myself off and >> start all over again! LOL!! >> >> >>                                    Love,Jill >> >> We don't remember days, we remember moments. >> Life is not measured by the breaths we take,but by the moments that take our >> breath away. >> >> ________________________________ >> >> To: livercirrhosissupport >> Sent: Sun, March 6, 2011 11:53:13 PM >> Subject: Re: (unknown) >> >> >> Thank you for coming forward and posting. The more the merrier and we can use >> merry. >> I am sorry this is making you cry. At times my wife will cry, but she tries to >> hide it from me. >> >> Three times is amazing. They HAVE to find a better way to combat viruses. >> Hopefully this current generation will realize they are not immortal, and get >> busy making the same advances in medicine that were made by previous ones. Life >> is not a video game with extra lives hidden in the landscape. I am just venting >> a but, because you and your husband have done it right. >> He should be virus free and transplanted. Love, Bobby >> >> ________________________________ >> >> To: livercirrhosissupport >> Sent: Sun, March 6, 2011 9:35:17 PM >> Subject: (unknown) >> >> Thank God that no one has a " expiration date " stamped on our foreheads. >> Statistics are just that-numbers. We are all different. By the numbers, my >> husband should have been dead before we met in 2003. My dad also outlived the >> statistics by many years. They do NOT predict outcome. Take care of yourself >> as well as you can. >> >> My husband has cirrohsis from Hepatits C. He was treated three times >> unsuccessfully for this damnable virus. Now we are looking at a transplant. >> They have found 2 tumors that look like cancer. So we are off and running into >> that lengthy process. Any of you out there who may be a candidate for a >> transplant and haven't started the " paperwork " , may I encourage you to do so. >> Even if you don't need it yet, at least the work-up will be ready for when you >> need it. >> >> When I found out my husband had the cancer, I cried and cried. Now, I'm just >> angry at the diseases that are trying to take my sweetie away from me. >> >> I've been lurking in this group and should have been posting all along. Looking >> >> forward to " seeing " all of you here. >> >> Prayers, >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2011 Report Share Posted March 8, 2011 I too have a very strong belief and that is probably what gets me through most days. I do not have any support emotionaly or physically for this disease. Everyone either disappeared or like my kids went into denial and I am not sick just crazy. If they only knew the truth it is both! I cry all the time by myself and it relieves so much pressure, I cannot pray anymore without crying. I am not crying for myself so much as for all of us in this situation and for all of the people out there who are a whole lot worst off than me. I try to remember that things can always get worst and to enjoy each day, we had a beautiful snowfall on Saturday night and I had one of my 4 year grandsons staying with me for the weekend and we went out and played in the snow. I pray that when I am gone these are the things my grandchildren will remember not me sick. I have a great worry about no one to take over my care when I need it, talking to a councilor about it and looking at different options. Oh yes a side note, I enjoyed the banding so much that they want to go in and do it again, NOT! I love reading your emails and even if I don't respond to all I am praying for all of us. Joan ________________________________ To: livercirrhosissupport Sent: Tue, March 8, 2011 6:33:02 AM Subject: Re: (unknown) Jan, you should write down those precious stories. My mother-in-law did that. She had 50 pages of her life story and she gave us each a copy for Christmas one year. She is gone now and those stories are so precious. Our kids got the biggest kick out of Grandma's antics. It's a really cool idea. Try it if you can. Just jot down your memories as they come and when you get them all together compile them in some kind of order. Your family will treasure them for years to come. Have a good day. Love, Jackie >> >> >> >> Subject: Re: (unknown) >> To: livercirrhosissupport >> Date: Monday, March 7, 2011, 10:25 AM >> >> >> >> >> >> >> I still cry at times.....Ed has been diagnosed for almost 6 years . I do >really >> well most times...but then it hits and the tears come. The fear that we will >>not >> grow old together is huge sometimes. But as says. " no one has an >> expiration date " Only God knows that! So I pick myself up,dust myself off and >> start all over again! LOL!! >> >> >> Love,Jill >> >> We don't remember days, we remember moments. >> Life is not measured by the breaths we take,but by the moments that take our >> breath away. >> >> ________________________________ >> >> To: livercirrhosissupport >> Sent: Sun, March 6, 2011 11:53:13 PM >> Subject: Re: (unknown) >> >> >> Thank you for coming forward and posting. The more the merrier and we can use >> merry. >> I am sorry this is making you cry. At times my wife will cry, but she tries to >> hide it from me. >> >> Three times is amazing. They HAVE to find a better way to combat viruses. >> Hopefully this current generation will realize they are not immortal, and get >> busy making the same advances in medicine that were made by previous ones. >Life >> is not a video game with extra lives hidden in the landscape. I am just >venting >> a but, because you and your husband have done it right. >> He should be virus free and transplanted. Love, Bobby >> >> ________________________________ >> >> To: livercirrhosissupport >> Sent: Sun, March 6, 2011 9:35:17 PM >> Subject: (unknown) >> >> Thank God that no one has a " expiration date " stamped on our foreheads. >> Statistics are just that-numbers. We are all different. By the numbers, my >> husband should have been dead before we met in 2003. My dad also outlived the >> statistics by many years. They do NOT predict outcome. Take care of yourself >> as well as you can. >> >> My husband has cirrohsis from Hepatits C. He was treated three times >> unsuccessfully for this damnable virus. Now we are looking at a transplant. >> They have found 2 tumors that look like cancer. So we are off and running into >> that lengthy process. Any of you out there who may be a candidate for a >> transplant and haven't started the " paperwork " , may I encourage you to do so. >> Even if you don't need it yet, at least the work-up will be ready for when you >> need it. >> >> When I found out my husband had the cancer, I cried and cried. Now, I'm just >> angry at the diseases that are trying to take my sweetie away from me. >> >> I've been lurking in this group and should have been posting all along. >Looking >> >> forward to " seeing " all of you here. >> >> Prayers, >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2011 Report Share Posted March 8, 2011 Good Heavens Jan ! How awful!! If we had known you then...we would have had the BIGGEST sympathy party for you! I can't bel;ieve what yoy went through then...and all of it fell on your shoulders....and thgere you were hurt and pregnant1 Good gracious! You must be made of steel! Thanks for sharing that story...I'm so glad you're part of this group...or maybe I'm glad I am!!! Love you,girl!                                                                           Love,Jill  We don't remember days, we remember moments. Life is not measured by the breaths we take,but by the moments that take our breath away. ________________________________ To: livercirrhosissupport Sent: Mon, March 7, 2011 11:34:22 PM Subject: Re: (unknown)  Oh, Jan. You have had some really hard times. Wish I could give you a hug. (((Jan))) Looks like that's the best I can do right now. Keep posting. I love hearing from you. Jackie > > > > Subject: Re: (unknown) > To: livercirrhosissupport > Date: Monday, March 7, 2011, 10:25 AM > > > > > > > I still cry at times.....Ed has been diagnosed for almost 6 years . I do really > well most times...but then it hits and the tears come. The fear that we will >not > grow old together is huge sometimes. But as says. " no one has an > expiration date " Only God knows that! So I pick myself up,dust myself off and > start all over again! LOL!! > > >                                    Love,Jill > > We don't remember days, we remember moments. > Life is not measured by the breaths we take,but by the moments that take our > breath away. > > ________________________________ > > To: livercirrhosissupport > Sent: Sun, March 6, 2011 11:53:13 PM > Subject: Re: (unknown) > > > Thank you for coming forward and posting. The more the merrier and we can use > merry. > I am sorry this is making you cry. At times my wife will cry, but she tries to > hide it from me. > > Three times is amazing. They HAVE to find a better way to combat viruses. > Hopefully this current generation will realize they are not immortal, and get > busy making the same advances in medicine that were made by previous ones. Life > is not a video game with extra lives hidden in the landscape. I am just venting > a but, because you and your husband have done it right. > He should be virus free and transplanted. Love, Bobby > > ________________________________ > > To: livercirrhosissupport > Sent: Sun, March 6, 2011 9:35:17 PM > Subject: (unknown) > > Thank God that no one has a " expiration date " stamped on our foreheads. > Statistics are just that-numbers. We are all different. By the numbers, my > husband should have been dead before we met in 2003. My dad also outlived the > statistics by many years. They do NOT predict outcome. Take care of yourself > as well as you can. > > My husband has cirrohsis from Hepatits C. He was treated three times > unsuccessfully for this damnable virus. Now we are looking at a transplant. > They have found 2 tumors that look like cancer. So we are off and running into > that lengthy process. Any of you out there who may be a candidate for a > transplant and haven't started the " paperwork " , may I encourage you to do so. > Even if you don't need it yet, at least the work-up will be ready for when you > need it. > > When I found out my husband had the cancer, I cried and cried. Now, I'm just > angry at the diseases that are trying to take my sweetie away from me. > > I've been lurking in this group and should have been posting all along. Looking > > forward to " seeing " all of you here. > > Prayers, > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2011 Report Share Posted March 8, 2011 Jan, my anemia was really helped with the iron infusions. Can you get those? Mine was due to low iron from leaking blood or not absorbing iron I did take in. I know some have to much iron.    Dave ________________________________ To: livercirrhosissupport Sent: Tue, March 8, 2011 1:27:22 AM Subject: Re: (unknown)  Jackie, thanks for your empathy. But, looking back on all of it, hard times aren't always such bad times. Some of them I have to admit I at least partially caused myself. And now that my kids have grown, we get laughs out of some of them. This wasn't a real hard time, but my second daughter wasn't very communicative as a child. When I would talk to her about it and tell her she should let me know her feelings, like when she had been with her dad for the weekend and came home and went right up to her room and stayed there until there was some reason to come down. Like the bathroom was downstairs. ha ha . She would say, " I feel cold " knowing perfectly well the different means of feel we were talking about. Yesterday, this mother posted about her little boy that it was so hard to start loving someone when you didn't see them, then they are born and you can see them and love them more and having to give him to the nurses and possibly not see him for a couple of days. She put that on facebook for everybody to read, the girl who wouldn't come out of her room and admit she missed her dad, wouldn't even say goodbye to him. My kids are so wonderful, (granted they can be brats sometimes still too) and some of the strength they have came from having to live through rough times in their early years I think. When I hurt my back, my oldest daughter took over a lot of the car of her younger sister, she even fixed some of her meals. I got the fun things like changing diapers. But she could do that to, if they were just wet. If I can get over this anemia which is dragging me down now, I want to write down stories like the one above and leave it as a present for my kids when I am gone. Or maybe I should give it to my grandkids to hold over their parents head? you think? lol I must be really getting old, the early days are so precious. And so is everyday and every night. Thank you God for giving them to me. Jan > Oh, Jan. You have had some really hard times. Wish I could give you a hug. >(((Jan))) Looks like that's the best I can do right now. Keep posting. I love >hearing from you. Jackie > > >> >> >> >> Subject: Re: (unknown) >> To: livercirrhosissupport >> Date: Monday, March 7, 2011, 10:25 AM >> >> >> >> >> >> >> I still cry at times.....Ed has been diagnosed for almost 6 years . I do >really >> well most times...but then it hits and the tears come. The fear that we will >>not >> grow old together is huge sometimes. But as says. " no one has an >> expiration date " Only God knows that! So I pick myself up,dust myself off and >> start all over again! LOL!! >> >> >>                                    Love,Jill >> >> We don't remember days, we remember moments. >> Life is not measured by the breaths we take,but by the moments that take our >> breath away. >> >> ________________________________ >> >> To: livercirrhosissupport >> Sent: Sun, March 6, 2011 11:53:13 PM >> Subject: Re: (unknown) >> >> >> Thank you for coming forward and posting. The more the merrier and we can use >> merry. >> I am sorry this is making you cry. At times my wife will cry, but she tries to >> hide it from me. >> >> Three times is amazing. They HAVE to find a better way to combat viruses. >> Hopefully this current generation will realize they are not immortal, and get >> busy making the same advances in medicine that were made by previous ones. >Life >> is not a video game with extra lives hidden in the landscape. I am just >venting >> a but, because you and your husband have done it right. >> He should be virus free and transplanted. Love, Bobby >> >> ________________________________ >> >> To: livercirrhosissupport >> Sent: Sun, March 6, 2011 9:35:17 PM >> Subject: (unknown) >> >> Thank God that no one has a " expiration date " stamped on our foreheads. >> Statistics are just that-numbers. We are all different. By the numbers, my >> husband should have been dead before we met in 2003. My dad also outlived the >> statistics by many years. They do NOT predict outcome. Take care of yourself >> as well as you can. >> >> My husband has cirrohsis from Hepatits C. He was treated three times >> unsuccessfully for this damnable virus. Now we are looking at a transplant. >> They have found 2 tumors that look like cancer. So we are off and running into >> that lengthy process. Any of you out there who may be a candidate for a >> transplant and haven't started the " paperwork " , may I encourage you to do so. >> Even if you don't need it yet, at least the work-up will be ready for when you >> need it. >> >> When I found out my husband had the cancer, I cried and cried. Now, I'm just >> angry at the diseases that are trying to take my sweetie away from me. >> >> I've been lurking in this group and should have been posting all along. >Looking >> >> forward to " seeing " all of you here. >> >> Prayers, >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2011 Report Share Posted March 8, 2011 My mother's mother died when I was about 9. I used to go stay with them for a week or two every summer. I don't remember her not being sick, but I do remember her sitting down to do the dishes, I would wipe and put away. Everything she did she had to do it sitting down. But, I remember my grandmother and that is precious. Of course, it would have been better if she could have lived a little longer, but it didn't matter that she couldn't do things standing up, not even sure if I knew then why she was always sitting. So, your grandchildren will remember you regardless of how much time they spend with you and what you are doing together. For me too, it seems that most people are in denial. More fuss was made over my broken wrist this summer than over the heart,kidney and liver problems. But maybe I contribute to that by being so accepting of my situation. And I can accept it because of my faith. Jan > I too have a very strong belief and that is probably what gets me through most > days. I do not have any support emotionaly or physically for this disease. > Everyone either disappeared or like my kids went into denial and I am not sick > just crazy. If they only knew the truth it is both! I cry all the time by myself > and it relieves so much pressure, I cannot pray anymore without crying. I am not > crying for myself so much as for all of us in this situation and for all of the > people out there who are a whole lot worst off than me. > I try to remember that things can always get worst and to enjoy each day, we had > a beautiful snowfall on Saturday night and I had one of my 4 year grandsons > staying with me for the weekend and we went out and played in the snow. I pray > that when I am gone these are the things my grandchildren will remember not me > sick. > > I have a great worry about no one to take over my care when I need it, talking > to a councilor about it and looking at different options. > Oh yes a side note, I enjoyed the banding so much that they want to go in and do > it again, NOT! > > > I love reading your emails and even if I don't respond to all I am praying for > all of us. Joan > > > > > > ________________________________ > > To: livercirrhosissupport > Sent: Tue, March 8, 2011 6:33:02 AM > Subject: Re: (unknown) > > > Jan, you should write down those precious stories. My mother-in-law did that. > She had 50 pages of her life story and she gave us each a copy for Christmas one > year. She is gone now and those stories are so precious. Our kids got the > biggest kick out of Grandma's antics. It's a really cool idea. Try it if you > can. Just jot down your memories as they come and when you get them all > together compile them in some kind of order. Your family will treasure them for > years to come. Have a good day. Love, Jackie > > >>> >>> >>> >>> Subject: Re: (unknown) >>> To: livercirrhosissupport >>> Date: Monday, March 7, 2011, 10:25 AM >>> >>> >>> >>> >>> >>> >>> I still cry at times.....Ed has been diagnosed for almost 6 years . I do >>really >>> well most times...but then it hits and the tears come. The fear that we will >>>not >>> grow old together is huge sometimes. But as says. " no one has an >>> expiration date " Only God knows that! So I pick myself up,dust myself off and >>> start all over again! LOL!! >>> >>> >>> Love,Jill >>> >>> We don't remember days, we remember moments. >>> Life is not measured by the breaths we take,but by the moments that take our >>> breath away. >>> >>> ________________________________ >>> >>> To: livercirrhosissupport >>> Sent: Sun, March 6, 2011 11:53:13 PM >>> Subject: Re: (unknown) >>> >>> >>> Thank you for coming forward and posting. The more the merrier and we can use >>> merry. >>> I am sorry this is making you cry. At times my wife will cry, but she tries > to >>> hide it from me. >>> >>> Three times is amazing. They HAVE to find a better way to combat viruses. >>> Hopefully this current generation will realize they are not immortal, and get >>> busy making the same advances in medicine that were made by previous ones. >>Life >>> is not a video game with extra lives hidden in the landscape. I am just >>venting >>> a but, because you and your husband have done it right. >>> He should be virus free and transplanted. Love, Bobby >>> >>> ________________________________ >>> >>> To: livercirrhosissupport >>> Sent: Sun, March 6, 2011 9:35:17 PM >>> Subject: (unknown) >>> >>> Thank God that no one has a " expiration date " stamped on our foreheads. >>> Statistics are just that-numbers. We are all different. By the numbers, my >>> husband should have been dead before we met in 2003. My dad also outlived the >>> statistics by many years. They do NOT predict outcome. Take care of yourself >>> as well as you can. >>> >>> My husband has cirrohsis from Hepatits C. He was treated three times >>> unsuccessfully for this damnable virus. Now we are looking at a transplant. >>> They have found 2 tumors that look like cancer. So we are off and running > into >>> that lengthy process. Any of you out there who may be a candidate for a >>> transplant and haven't started the " paperwork " , may I encourage you to do so. >>> Even if you don't need it yet, at least the work-up will be ready for when > you >>> need it. >>> >>> When I found out my husband had the cancer, I cried and cried. Now, I'm just >>> angry at the diseases that are trying to take my sweetie away from me. >>> >>> I've been lurking in this group and should have been posting all along. >>Looking >>> >>> forward to " seeing " all of you here. >>> >>> Prayers, >>> >>> >>> >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2011 Report Share Posted March 8, 2011 My iron levels are fine. Nothing in my blood work shows what might be causing it, just that it is there. I have a history of low iron and started taking iron pills as a teenager or preteen, Those little green triangular ones, Jan > > Jan, my anemia was really helped with the iron infusions. Can you get those? > Mine was due to low iron from leaking blood or not absorbing iron I did take > in. I know some have to much iron. Dave > > > > > > ________________________________ > > To: livercirrhosissupport > Sent: Tue, March 8, 2011 1:27:22 AM > Subject: Re: (unknown) > > > Jackie, thanks for your empathy. But, looking back on all of it, hard > times aren't always such bad times. Some of them I have to admit I at > least partially caused myself. And now that my kids have grown, we > get laughs out of some of them. This wasn't a real hard time, but my > second daughter wasn't very communicative as a child. When I would > talk to her about it and tell her she should let me know her feelings, > like when she had been with her dad for the weekend and came home and > went right up to her room and stayed there until there was some reason > to come down. Like the bathroom was downstairs. ha ha . She would > say, " I feel cold " knowing perfectly well the different means of feel > we were talking about. Yesterday, this mother posted about her little > boy that it was so hard to start loving someone when you didn't see > them, then they are born and you can see them and love them more and > having to give him to the nurses and possibly not see him for a couple > of days. She put that on facebook for everybody to read, the girl who > wouldn't come out of her room and admit she missed her dad, wouldn't > even say goodbye to him. My kids are so wonderful, (granted they can > be brats sometimes still too) and some of the strength they have came > from having to live through rough times in their early years I think. > When I hurt my back, my oldest daughter took over a lot of the car of > her younger sister, she even fixed some of her meals. I got the fun > things like changing diapers. But she could do that to, if they were > just wet. If I can get over this anemia which is dragging me down > now, I want to write down stories like the one above and leave it as a > present for my kids when I am gone. Or maybe I should give it to my > grandkids to hold over their parents head? you think? lol I must be > really getting old, the early days are so precious. And so is everyday > and every night. Thank you God for giving them to me. Jan > > On Mon, Mar 7, 2011 at 9:34 PM, Jackie Ellermann wrote: >> Oh, Jan. You have had some really hard times. Wish I could give you a hug. >>(((Jan))) Looks like that's the best I can do right now. Keep posting. I love >>hearing from you. Jackie >> >> >>> >>> >>> >>> Subject: Re: (unknown) >>> To: livercirrhosissupport >>> Date: Monday, March 7, 2011, 10:25 AM >>> >>> >>> >>> >>> >>> >>> I still cry at times.....Ed has been diagnosed for almost 6 years . I do >>really >>> well most times...but then it hits and the tears come. The fear that we will >>>not >>> grow old together is huge sometimes. But as says. " no one has an >>> expiration date " Only God knows that! So I pick myself up,dust myself off and >>> start all over again! LOL!! >>> >>> >>> Love,Jill >>> >>> We don't remember days, we remember moments. >>> Life is not measured by the breaths we take,but by the moments that take our >>> breath away. >>> >>> ________________________________ >>> >>> To: livercirrhosissupport >>> Sent: Sun, March 6, 2011 11:53:13 PM >>> Subject: Re: (unknown) >>> >>> >>> Thank you for coming forward and posting. The more the merrier and we can use >>> merry. >>> I am sorry this is making you cry. At times my wife will cry, but she tries > to >>> hide it from me. >>> >>> Three times is amazing. They HAVE to find a better way to combat viruses. >>> Hopefully this current generation will realize they are not immortal, and get >>> busy making the same advances in medicine that were made by previous ones. >>Life >>> is not a video game with extra lives hidden in the landscape. I am just >>venting >>> a but, because you and your husband have done it right. >>> He should be virus free and transplanted. Love, Bobby >>> >>> ________________________________ >>> >>> To: livercirrhosissupport >>> Sent: Sun, March 6, 2011 9:35:17 PM >>> Subject: (unknown) >>> >>> Thank God that no one has a " expiration date " stamped on our foreheads. >>> Statistics are just that-numbers. We are all different. By the numbers, my >>> husband should have been dead before we met in 2003. My dad also outlived the >>> statistics by many years. They do NOT predict outcome. Take care of yourself >>> as well as you can. >>> >>> My husband has cirrohsis from Hepatits C. He was treated three times >>> unsuccessfully for this damnable virus. Now we are looking at a transplant. >>> They have found 2 tumors that look like cancer. So we are off and running > into >>> that lengthy process. Any of you out there who may be a candidate for a >>> transplant and haven't started the " paperwork " , may I encourage you to do so. >>> Even if you don't need it yet, at least the work-up will be ready for when > you >>> need it. >>> >>> When I found out my husband had the cancer, I cried and cried. Now, I'm just >>> angry at the diseases that are trying to take my sweetie away from me. >>> >>> I've been lurking in this group and should have been posting all along. >>Looking >>> >>> forward to " seeing " all of you here. >>> >>> Prayers, >>> >>> >>> >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2011 Report Share Posted March 8, 2011 JILL - You made me lol. When I first started reading the post below I was wondering which of the events in my life you were talking about ( I have a poor memory) . People get upset with me when I say " I wonder what is going to happen next year: " , they think I am being negative, pessimistic. I think I am just accepting that this is my life. I do have what I call pity parties sometimes, usually with someone else in a similar state, complain, vent, used to cry when I had tears, and it would actually help, start feeling better much quicker. What was hard was that my mother, some doctors, and other people I knew had me down as a hypochondriac until they finally started doing some tests and found out why I hurt, why I had no energy. Was thought of as lazy I am sure. Then when it was found out I had low thyroid and other problems, most of them still didn't change their minds. My mother used to tell me to pull myself up by my boot straps and get going. When my Dad died, my mother went into a depression and I reminded her what she had always said to me. She said: " But what do you do when you don't have any boot straps, so she finally learned it isn't a choice to be depressed or ill.You just don't have any boot straps. I made her go to the doctor to get treated before I would leave her alone. So, I have learned we have to build our confidence on our faith and on what we know to be the truth. And happiness is not dependant on health. Jan > Good Heavens Jan ! How awful!! If we had known you then...we would have had the > BIGGEST sympathy party for you! I can't bel;ieve what yoy went through > then...and all of it fell on your shoulders....and thgere you were hurt and > pregnant1 Good gracious! You must be made of steel! Thanks for sharing that > story...I'm so glad you're part of this group...or maybe I'm glad I am!!! Love > you,girl! > > Love,Jill > > We don't remember days, we remember moments. > Life is not measured by the breaths we take,but by the moments that take our > breath away. > > > > > ________________________________ > > To: livercirrhosissupport > Sent: Mon, March 7, 2011 11:34:22 PM > Subject: Re: (unknown) > > > Oh, Jan. You have had some really hard times. Wish I could give you a hug. > (((Jan))) Looks like that's the best I can do right now. Keep posting. I love > hearing from you. Jackie > > >> >> >> >> Subject: Re: (unknown) >> To: livercirrhosissupport >> Date: Monday, March 7, 2011, 10:25 AM >> >> >> >> >> >> >> I still cry at times.....Ed has been diagnosed for almost 6 years . I do > really >> well most times...but then it hits and the tears come. The fear that we will >>not >> grow old together is huge sometimes. But as says. " no one has an >> expiration date " Only God knows that! So I pick myself up,dust myself off and >> start all over again! LOL!! >> >> >> Love,Jill >> >> We don't remember days, we remember moments. >> Life is not measured by the breaths we take,but by the moments that take our >> breath away. >> >> ________________________________ >> >> To: livercirrhosissupport >> Sent: Sun, March 6, 2011 11:53:13 PM >> Subject: Re: (unknown) >> >> >> Thank you for coming forward and posting. The more the merrier and we can use >> merry. >> I am sorry this is making you cry. At times my wife will cry, but she tries to >> hide it from me. >> >> Three times is amazing. They HAVE to find a better way to combat viruses. >> Hopefully this current generation will realize they are not immortal, and get >> busy making the same advances in medicine that were made by previous ones. > Life >> is not a video game with extra lives hidden in the landscape. I am just > venting >> a but, because you and your husband have done it right. >> He should be virus free and transplanted. Love, Bobby >> >> ________________________________ >> >> To: livercirrhosissupport >> Sent: Sun, March 6, 2011 9:35:17 PM >> Subject: (unknown) >> >> Thank God that no one has a " expiration date " stamped on our foreheads. >> Statistics are just that-numbers. We are all different. By the numbers, my >> husband should have been dead before we met in 2003. My dad also outlived the >> statistics by many years. They do NOT predict outcome. Take care of yourself >> as well as you can. >> >> My husband has cirrohsis from Hepatits C. He was treated three times >> unsuccessfully for this damnable virus. Now we are looking at a transplant. >> They have found 2 tumors that look like cancer. So we are off and running into >> that lengthy process. Any of you out there who may be a candidate for a >> transplant and haven't started the " paperwork " , may I encourage you to do so. >> Even if you don't need it yet, at least the work-up will be ready for when you >> need it. >> >> When I found out my husband had the cancer, I cried and cried. Now, I'm just >> angry at the diseases that are trying to take my sweetie away from me. >> >> I've been lurking in this group and should have been posting all along. > Looking >> >> forward to " seeing " all of you here. >> >> Prayers, >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2011 Report Share Posted March 9, 2011 Hi Jan: I know this is a little off the subject but when you talked about staying with your grandmother it brought back a precious memory and I think this will make you laugh. I also used to stay with my grandmother for a week every summer. But the funny story is about when I got married. My grandmother was so excited. And she had such a sweet personality. She was sweet and innocent, just like Edith Bunker on All In The Family. My husband and I had booked our wedding reception in a large catering hall that had 5 different rooms. Each room had a name. We decided on the Navajo room and had our reception response cards printed up with that room name on them. A week before the wedding the manager called us to tell us they had made a mistake. They had booked us in the wrong room. What were we to do? We had already sent out our invitations with the Navajo room all printed up on them. He apologized profusely and offered free hors derves with the cocktail hour. Well, that would be fine, but I asked him to please make sure that they would have someone at the door directing people to the right room. (they had given us the big room with the bridal staircase at no extra charge) He assured me they would do that. Well, the time came, and we (the bridal party) were ushered upstairs to make our grand entrance down the bridal staircase. Our guests, at the same time were ushered into the reception area to enjoy food and drinks while they waited for the reception to start. The couple who had been booked in the Navajo room were an oriental couple and had a big buffet table of oriental food for their guests to enjoy. You guessed it--no one was at the door to see that the guests were sent to the proper room and our guests lined up and began helping themselves to the oriental food in the Navajo room. Now--picture my grandmother with that sweet, innocent Edith Bunker voice, ok? She's piling her plate full and my father comes in and tells her she is in the wrong room. She's also hard of hearing, so she says to my grandfather " what did he say? "  and my grandfather says in a loud voice, " he says we are in the wrong room. "  She looks at her plate, and she looks around at all the other people (many of their guests oriental) and says to my grandfather, " oh! I didn't think Jackie and knew so many Chinese people. "  It was so funny! Hope you enjoyed that story. Have a good day. Jackie >>> >>> >>> >>> Subject: Re: (unknown) >>> To: livercirrhosissupport >>> Date: Monday, March 7, 2011, 10:25 AM >>> >>> >>> >>> >>> >>> >>> I still cry at times.....Ed has been diagnosed for almost 6 years . I do >>really >>> well most times...but then it hits and the tears come. The fear that we will >>>not >>> grow old together is huge sometimes.  But as says. " no one has an >>> expiration date " Only God knows that! So I pick myself up,dust myself off and >>> start all over again! LOL!! >>> >>> >>>                   Love,Jill >>> >>> We don't remember days, we remember moments. >>> Life is not measured by the breaths we take,but by the moments that take our >>> breath away. >>> >>> ________________________________ >>> >>> To: livercirrhosissupport >>> Sent: Sun, March 6, 2011 11:53:13 PM >>> Subject: Re: (unknown) >>> >>> >>> Thank you for coming forward and posting. The more the merrier and we can use >>> merry. >>> I am sorry this is making you cry. At times my wife will cry, but she tries > to >>> hide it from me. >>> >>> Three times is amazing. They HAVE to find a better way to combat viruses. >>> Hopefully this current generation will realize they are not immortal, and get >>> busy making the same advances in medicine that were made by previous ones. >>Life >>> is not a video game with extra lives hidden in the landscape. I am just >>venting >>> a but, because you and your husband have done it right. >>> He should be virus free and transplanted. Love, Bobby >>> >>> ________________________________ >>> >>> To: livercirrhosissupport >>> Sent: Sun, March 6, 2011 9:35:17 PM >>> Subject: (unknown) >>> >>> Thank God that no one has a " expiration date " stamped on our foreheads. >>> Statistics are just that-numbers. We are all different. By the numbers, my >>> husband should have been dead before we met in 2003. My dad also outlived the >>> statistics by many years. They do NOT predict outcome. Take care of yourself >>> as well as you can. >>> >>> My husband has cirrohsis from Hepatits C. He was treated three times >>> unsuccessfully for this damnable virus. Now we are looking at a transplant. >>> They have found 2 tumors that look like cancer. So we are off and running > into >>> that lengthy process. Any of you out there who may be a candidate for a >>> transplant and haven't started the " paperwork " , may I encourage you to do so. >>> Even if you don't need it yet, at least the work-up will be ready for when > you >>> need it. >>> >>> When I found out my husband had the cancer, I cried and cried. Now, I'm just >>> angry at the diseases that are trying to take my sweetie away from me. >>> >>> I've been lurking in this group and should have been posting all along. >>Looking >>> >>> forward to " seeing " all of you here. >>> >>> Prayers, >>> >>> >>> >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2011 Report Share Posted March 9, 2011 Jackie...that's hilarious!!                                                                            Love,Jill  We don't remember days, we remember moments. Life is not measured by the breaths we take,but by the moments that take our breath away. ________________________________ To: livercirrhosissupport Sent: Wed, March 9, 2011 7:24:51 AM Subject: Re: (unknown)  Hi Jan: I know this is a little off the subject but when you talked about staying with your grandmother it brought back a precious memory and I think this will make you laugh. I also used to stay with my grandmother for a week every summer. But the funny story is about when I got married. My grandmother was so excited. And she had such a sweet personality. She was sweet and innocent, just like Edith Bunker on All In The Family. My husband and I had booked our wedding reception in a large catering hall that had 5 different rooms. Each room had a name. We decided on the Navajo room and had our reception response cards printed up with that room name on them. A week before the wedding the manager called us to tell us they had made a mistake. They had booked us in the wrong room. What were we to do? We had already sent out our invitations with the Navajo room all printed up on them. He apologized profusely and offered free hors derves with the cocktail hour. Well, that would be fine, but I asked him to please make sure that they would have someone at the door directing people to the right room. (they had given us the big room with the bridal staircase at no extra charge) He assured me they would do that. Well, the time came, and we (the bridal party) were ushered upstairs to make our grand entrance down the bridal staircase. Our guests, at the same time were ushered into the reception area to enjoy food and drinks while they waited for the reception to start. The couple who had been booked in the Navajo room were an oriental couple and had a big buffet table of oriental food for their guests to enjoy. You guessed it--no one was at the door to see that the guests were sent to the proper room and our guests lined up and began helping themselves to the oriental food in the Navajo room. Now--picture my grandmother with that sweet, innocent Edith Bunker voice, ok? She's piling her plate full and my father comes in and tells her she is in the wrong room. She's also hard of hearing, so she says to my grandfather " what did he say? "  and my grandfather says in a loud voice, " he says we are in the wrong room. "  She looks at her plate, and she looks around at all the other people (many of their guests oriental) and says to my grandfather, " oh! I didn't think Jackie and knew so many Chinese people. "  It was so funny! Hope you enjoyed that story. Have a good day. Jackie >>> >>> >>> >>> Subject: Re: (unknown) >>> To: livercirrhosissupport >>> Date: Monday, March 7, 2011, 10:25 AM >>> >>> >>> >>> >>> >>> >>> I still cry at times.....Ed has been diagnosed for almost 6 years . I do >>really >>> well most times...but then it hits and the tears come. The fear that we will >>>not >>> grow old together is huge sometimes.  But as says. " no one has an >>> expiration date " Only God knows that! So I pick myself up,dust myself off and >>> start all over again! LOL!! >>> >>> >>>                   Love,Jill >>> >>> We don't remember days, we remember moments. >>> Life is not measured by the breaths we take,but by the moments that take our >>> breath away. >>> >>> ________________________________ >>> >>> To: livercirrhosissupport >>> Sent: Sun, March 6, 2011 11:53:13 PM >>> Subject: Re: (unknown) >>> >>> >>> Thank you for coming forward and posting. The more the merrier and we can use >>> merry. >>> I am sorry this is making you cry. At times my wife will cry, but she tries > to >>> hide it from me. >>> >>> Three times is amazing. They HAVE to find a better way to combat viruses. >>> Hopefully this current generation will realize they are not immortal, and get >>> busy making the same advances in medicine that were made by previous ones. >>Life >>> is not a video game with extra lives hidden in the landscape. I am just >>venting >>> a but, because you and your husband have done it right. >>> He should be virus free and transplanted. Love, Bobby >>> >>> ________________________________ >>> >>> To: livercirrhosissupport >>> Sent: Sun, March 6, 2011 9:35:17 PM >>> Subject: (unknown) >>> >>> Thank God that no one has a " expiration date " stamped on our foreheads. >>> Statistics are just that-numbers. We are all different. By the numbers, my >>> husband should have been dead before we met in 2003. My dad also outlived the >>> statistics by many years. They do NOT predict outcome. Take care of yourself >>> as well as you can. >>> >>> My husband has cirrohsis from Hepatits C. He was treated three times >>> unsuccessfully for this damnable virus. Now we are looking at a transplant. >>> They have found 2 tumors that look like cancer. So we are off and running > into >>> that lengthy process. Any of you out there who may be a candidate for a >>> transplant and haven't started the " paperwork " , may I encourage you to do so. >>> Even if you don't need it yet, at least the work-up will be ready for when > you >>> need it. >>> >>> When I found out my husband had the cancer, I cried and cried. Now, I'm just >>> angry at the diseases that are trying to take my sweetie away from me. >>> >>> I've been lurking in this group and should have been posting all along. >>Looking >>> >>> forward to " seeing " all of you here. >>> >>> Prayers, >>> >>> >>> >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2011 Report Share Posted March 9, 2011 We are a lot alike...but then, all of us here in our " forum family " could be related in what experiences we have been through. Even though my hubby is the one with Cirrohsis,I have ing other issues....RA,OA and Fibromalgia . I'm telling you this because I can relate to your memory issues.....my Fibro causes the same thing with me! I can't remember anything! I can keep secrets really well !! ...So if you want to tell me any....fire away!!! LOL!!! You're the best Jan.!                                                                           Love,Jill  We don't remember days, we remember moments. Life is not measured by the breaths we take,but by the moments that take our breath away. ________________________________ To: livercirrhosissupport Sent: Tue, March 8, 2011 11:11:13 PM Subject: Re: (unknown)  JILL - You made me lol. When I first started reading the post below I was wondering which of the events in my life you were talking about ( I have a poor memory) . People get upset with me when I say " I wonder what is going to happen next year: " , they think I am being negative, pessimistic. I think I am just accepting that this is my life. I do have what I call pity parties sometimes, usually with someone else in a similar state, complain, vent, used to cry when I had tears, and it would actually help, start feeling better much quicker. What was hard was that my mother, some doctors, and other people I knew had me down as a hypochondriac until they finally started doing some tests and found out why I hurt, why I had no energy. Was thought of as lazy I am sure. Then when it was found out I had low thyroid and other problems, most of them still didn't change their minds. My mother used to tell me to pull myself up by my boot straps and get going. When my Dad died, my mother went into a depression and I reminded her what she had always said to me. She said: " But what do you do when you don't have any boot straps, so she finally learned it isn't a choice to be depressed or ill.You just don't have any boot straps. I made her go to the doctor to get treated before I would leave her alone. So, I have learned we have to build our confidence on our faith and on what we know to be the truth. And happiness is not dependant on health. Jan > Good Heavens Jan ! How awful!! If we had known you then...we would have had >the > BIGGEST sympathy party for you! I can't bel;ieve what yoy went through > then...and all of it fell on your shoulders....and thgere you were hurt and > pregnant1 Good gracious! You must be made of steel! Thanks for sharing that > story...I'm so glad you're part of this group...or maybe I'm glad I am!!! Love > you,girl! > >                                    Love,Jill > > We don't remember days, we remember moments. > Life is not measured by the breaths we take,but by the moments that take our > breath away. > > > > > ________________________________ > > To: livercirrhosissupport > Sent: Mon, March 7, 2011 11:34:22 PM > Subject: Re: (unknown) > > > Oh, Jan. You have had some really hard times. Wish I could give you a hug. > (((Jan))) Looks like that's the best I can do right now. Keep posting. I >love > hearing from you. Jackie > > >> >> >> >> Subject: Re: (unknown) >> To: livercirrhosissupport >> Date: Monday, March 7, 2011, 10:25 AM >> >> >> >> >> >> >> I still cry at times.....Ed has been diagnosed for almost 6 years . I do > really >> well most times...but then it hits and the tears come. The fear that we will >>not >> grow old together is huge sometimes. But as says. " no one has an >> expiration date " Only God knows that! So I pick myself up,dust myself off and >> start all over again! LOL!! >> >> >>                                    Love,Jill >> >> We don't remember days, we remember moments. >> Life is not measured by the breaths we take,but by the moments that take our >> breath away. >> >> ________________________________ >> >> To: livercirrhosissupport >> Sent: Sun, March 6, 2011 11:53:13 PM >> Subject: Re: (unknown) >> >> >> Thank you for coming forward and posting. The more the merrier and we can use >> merry. >> I am sorry this is making you cry. At times my wife will cry, but she tries to >> hide it from me. >> >> Three times is amazing. They HAVE to find a better way to combat viruses. >> Hopefully this current generation will realize they are not immortal, and get >> busy making the same advances in medicine that were made by previous ones. > Life >> is not a video game with extra lives hidden in the landscape. I am just > venting >> a but, because you and your husband have done it right. >> He should be virus free and transplanted. Love, Bobby >> >> ________________________________ >> >> To: livercirrhosissupport >> Sent: Sun, March 6, 2011 9:35:17 PM >> Subject: (unknown) >> >> Thank God that no one has a " expiration date " stamped on our foreheads. >> Statistics are just that-numbers. We are all different. By the numbers, my >> husband should have been dead before we met in 2003. My dad also outlived the >> statistics by many years. They do NOT predict outcome. Take care of yourself >> as well as you can. >> >> My husband has cirrohsis from Hepatits C. He was treated three times >> unsuccessfully for this damnable virus. Now we are looking at a transplant. >> They have found 2 tumors that look like cancer. So we are off and running into >> that lengthy process. Any of you out there who may be a candidate for a >> transplant and haven't started the " paperwork " , may I encourage you to do so. >> Even if you don't need it yet, at least the work-up will be ready for when you >> need it. >> >> When I found out my husband had the cancer, I cried and cried. Now, I'm just >> angry at the diseases that are trying to take my sweetie away from me. >> >> I've been lurking in this group and should have been posting all along. > Looking >> >> forward to " seeing " all of you here. >> >> Prayers, >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2011 Report Share Posted March 9, 2011 Joan, Your post has touched my heart and I am crying for your pain. I am grateful you had found this group as it seems you do have support. I know it would be nice to have close support also and feel your pain. Three of my husband's siblings live close by and not one of them has been to see him, even when he was so sick at home. One of them is a real thorn in my side and has been from day 1. last night she called and did ask about him and then grilled me with " Well, have you told we are thinking of him , etc.? " She makes me feel so low and not smart. I finally asked her why she has not called him herself and she had no answer. Then when I say what is going on with him, I hear a family member say " exaggerates. " I get tired of them explaining to me about what is going on when not one of them has spoken to a doctor. They feel I exaggerate as with this disease, I see him really sick one day and up and seemingly ok, the next. people do not realize it can go this way with any serious illness. I do empathize with you. In my past marriage I was seriously ill with diabetes and my ex just did not get it and always figured I was just talking and saying how tired and sick I was for my health. After I left him, I ddiscovered I was so ill cause he made me that way.. Your grandchildren will surely remember the precious moments with you. Cryin g can be such a relief. HUGGGS to you > >> > >> > >> > >> Subject: Re: (unknown) > >> To: livercirrhosissupport > >> Date: Monday, March 7, 2011, 10:25 AM > >> > >> > >> > >> > >> > >> > >> I still cry at times.....Ed has been diagnosed for almost 6 years . I do > >really > >> well most times...but then it hits and the tears come. The fear that we will > >>not > >> grow old together is huge sometimes. But as says. " no one has an > >> expiration date " Only God knows that! So I pick myself up,dust myself off and > >> start all over again! LOL!! > >> > >> > >> Love,Jill > >> > >> We don't remember days, we remember moments. > >> Life is not measured by the breaths we take,but by the moments that take our > >> breath away. > >> > >> ________________________________ > >> > >> To: livercirrhosissupport > >> Sent: Sun, March 6, 2011 11:53:13 PM > >> Subject: Re: (unknown) > >> > >> > >> Thank you for coming forward and posting. The more the merrier and we can use > >> merry. > >> I am sorry this is making you cry. At times my wife will cry, but she tries > to > >> hide it from me. > >> > >> Three times is amazing. They HAVE to find a better way to combat viruses. > >> Hopefully this current generation will realize they are not immortal, and get > >> busy making the same advances in medicine that were made by previous ones. > >Life > >> is not a video game with extra lives hidden in the landscape. I am just > >venting > >> a but, because you and your husband have done it right. > >> He should be virus free and transplanted. Love, Bobby > >> > >> ________________________________ > >> > >> To: livercirrhosissupport > >> Sent: Sun, March 6, 2011 9:35:17 PM > >> Subject: (unknown) > >> > >> Thank God that no one has a " expiration date " stamped on our foreheads. > >> Statistics are just that-numbers. We are all different. By the numbers, my > >> husband should have been dead before we met in 2003. My dad also outlived the > >> statistics by many years. They do NOT predict outcome. Take care of yourself > >> as well as you can. > >> > >> My husband has cirrohsis from Hepatits C. He was treated three times > >> unsuccessfully for this damnable virus. Now we are looking at a transplant. > >> They have found 2 tumors that look like cancer. So we are off and running > into > >> that lengthy process. Any of you out there who may be a candidate for a > >> transplant and haven't started the " paperwork " , may I encourage you to do so. > >> Even if you don't need it yet, at least the work-up will be ready for when > you > >> need it. > >> > >> When I found out my husband had the cancer, I cried and cried. Now, I'm just > >> angry at the diseases that are trying to take my sweetie away from me. > >> > >> I've been lurking in this group and should have been posting all along. > >Looking > >> > >> forward to " seeing " all of you here. > >> > >> Prayers, > >> > >> > >> > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2011 Report Share Posted March 9, 2011 One of those stories which will be passed on from generation to generation. Jan > Hi Jan: I know this is a little off the subject but when you talked about staying with your grandmother it brought back a precious memory and I think this will make you laugh. I also used to stay with my grandmother for a week every summer. But the funny story is about when I got married. My grandmother was so excited. And she had such a sweet personality. She was sweet and innocent, just like Edith Bunker on All In The Family. My husband and I had booked our wedding reception in a large catering hall that had 5 different rooms. Each room had a name. We decided on the Navajo room and had our reception response cards printed up with that room name on them. A week before the wedding the manager called us to tell us they had made a mistake. They had booked us in the wrong room. What were we to do? We had already sent out our invitations with the Navajo room all printed up on them. He apologized profusely and offered free hors > derves with the cocktail hour. Well, that would be fine, but I asked him to please make sure that they would have someone at the door directing people to the right room. (they had given us the big room with the bridal staircase at no extra charge) He assured me they would do that. Well, the time came, and we (the bridal party) were ushered upstairs to make our grand entrance down the bridal staircase. Our guests, at the same time were ushered into the reception area to enjoy food and drinks while they waited for the reception to start. The couple who had been booked in the Navajo room were an oriental couple and had a big buffet table of oriental food for their guests to enjoy. You guessed it--no one was at the door to see that the guests were sent to the proper room and our guests lined up and began helping themselves to the oriental food in the Navajo room. Now--picture my grandmother with that sweet, innocent Edith Bunker voice, ok? > She's piling her plate full and my father comes in and tells her she is in the wrong room. She's also hard of hearing, so she says to my grandfather " what did he say? " and my grandfather says in a loud voice, " he says we are in the wrong room. " She looks at her plate, and she looks around at all the other people (many of their guests oriental) and says to my grandfather, " oh! I didn't think Jackie and knew so many Chinese people. " It was so funny! Hope you enjoyed that story. Have a good day. Jackie > > >>>> >>>> >>>> >>>> Subject: Re: (unknown) >>>> To: livercirrhosissupport >>>> Date: Monday, March 7, 2011, 10:25 AM >>>> >>>> >>>> >>>> >>>> >>>> >>>> I still cry at times.....Ed has been diagnosed for almost 6 years . I do >>>really >>>> well most times...but then it hits and the tears come. The fear that we will >>>>not >>>> grow old together is huge sometimes. But as says. " no one has an >>>> expiration date " Only God knows that! So I pick myself up,dust myself off and >>>> start all over again! LOL!! >>>> >>>> >>>> Love,Jill >>>> >>>> We don't remember days, we remember moments. >>>> Life is not measured by the breaths we take,but by the moments that take our >>>> breath away. >>>> >>>> ________________________________ >>>> >>>> To: livercirrhosissupport >>>> Sent: Sun, March 6, 2011 11:53:13 PM >>>> Subject: Re: (unknown) >>>> >>>> >>>> Thank you for coming forward and posting. The more the merrier and we can use >>>> merry. >>>> I am sorry this is making you cry. At times my wife will cry, but she tries >> to >>>> hide it from me. >>>> >>>> Three times is amazing. They HAVE to find a better way to combat viruses. >>>> Hopefully this current generation will realize they are not immortal, and get >>>> busy making the same advances in medicine that were made by previous ones. >>>Life >>>> is not a video game with extra lives hidden in the landscape. I am just >>>venting >>>> a but, because you and your husband have done it right. >>>> He should be virus free and transplanted. Love, Bobby >>>> >>>> ________________________________ >>>> >>>> To: livercirrhosissupport >>>> Sent: Sun, March 6, 2011 9:35:17 PM >>>> Subject: (unknown) >>>> >>>> Thank God that no one has a " expiration date " stamped on our foreheads. >>>> Statistics are just that-numbers. We are all different. By the numbers, my >>>> husband should have been dead before we met in 2003. My dad also outlived the >>>> statistics by many years. They do NOT predict outcome. Take care of yourself >>>> as well as you can. >>>> >>>> My husband has cirrohsis from Hepatits C. He was treated three times >>>> unsuccessfully for this damnable virus. Now we are looking at a transplant. >>>> They have found 2 tumors that look like cancer. So we are off and running >> into >>>> that lengthy process. Any of you out there who may be a candidate for a >>>> transplant and haven't started the " paperwork " , may I encourage you to do so. >>>> Even if you don't need it yet, at least the work-up will be ready for when >> you >>>> need it. >>>> >>>> When I found out my husband had the cancer, I cried and cried. Now, I'm just >>>> angry at the diseases that are trying to take my sweetie away from me. >>>> >>>> I've been lurking in this group and should have been posting all along. >>>Looking >>>> >>>> forward to " seeing " all of you here. >>>> >>>> Prayers, >>>> >>>> >>>> >>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2011 Report Share Posted March 9, 2011 The problem with secrets is when you forget it was a secret, but remember what it was about.And then tell it to someone. What gets me with this memory thing is that I can tell all kinds of stories about when I did something stupid, like setting off for the laundry room, going into the bathroom and then wondering why I didn't have to go. I can remember it in vivid detail. But, I forgot I was headed for the laundry room not the bathroom until I realized I didn't need to be in the bathroom. And, when I came out of the bathroom, I turned the wrong way to go to the laundry room, and then had to turn back. It takes me at least 4 days to wash clothes because I forget I am doing it. I put a timer on to remind me, when I remember, and then say I'll just finish this before I go take care of it. An hour later, I might remember that it had gone off. And that is just one case. Is this the beginning of hepatic encephalopathy or a side effect of all my medications, or just that I am getting old. I don't go along with the last one because a lot of people who tell me that are 20 years older than I am and they seem to have better memories. I tell people that there are advantages to a bad memory. I have always loved to learn things, and now I will never run out. Jan > We are a lot alike...but then, all of us here in our " forum family " could be > related in what experiences we have been through. Even though my hubby is the > one with Cirrohsis,I have ing other issues....RA,OA and Fibromalgia . I'm > telling you this because I can relate to your memory issues.....my Fibro causes > the same thing with me! I can't remember anything! I can keep secrets really > well !! ...So if you want to tell me any....fire away!!! LOL!!! You're the > best Jan.! > > Love,Jill > > We don't remember days, we remember moments. > Life is not measured by the breaths we take,but by the moments that take our > breath away. > > > > > ________________________________ > > To: livercirrhosissupport > Sent: Tue, March 8, 2011 11:11:13 PM > Subject: Re: (unknown) > > > JILL - You made me lol. When I first started reading the post below I > was wondering which of the events in my life you were talking about ( > I have a poor memory) . People get upset with me when I say " I wonder > what is going to happen next year: " , they think I am being negative, > pessimistic. I think I am just accepting that this is my life. I do > have what I call pity parties sometimes, usually with someone else in > a similar state, complain, vent, used to cry when I had tears, and it > would actually help, start feeling better much quicker. What was hard > was that my mother, some doctors, and other people I knew had me down > as a hypochondriac until they finally started doing some tests and > found out why I hurt, why I had no energy. Was thought of as lazy I > am sure. Then when it was found out I had low thyroid and other > problems, most of them still didn't change their minds. My mother > used to tell me to pull myself up by my boot straps and get going. > When my Dad died, my mother went into a depression and I reminded her > what she had always said to me. She said: " But what do you do when > you don't have any boot straps, so she finally learned it isn't a > choice to be depressed or ill.You just don't have any boot straps. I > made her go to the doctor to get treated before I would leave her > alone. So, I have learned we have to build our confidence on our > faith and on what we know to be the truth. And happiness is not > dependant on health. Jan > > >> Good Heavens Jan ! How awful!! If we had known you then...we would have had >>the >> BIGGEST sympathy party for you! I can't bel;ieve what yoy went through >> then...and all of it fell on your shoulders....and thgere you were hurt and >> pregnant1 Good gracious! You must be made of steel! Thanks for sharing that >> story...I'm so glad you're part of this group...or maybe I'm glad I am!!! > Love >> you,girl! >> >> Love,Jill >> >> We don't remember days, we remember moments. >> Life is not measured by the breaths we take,but by the moments that take our >> breath away. >> >> >> >> >> ________________________________ >> >> To: livercirrhosissupport >> Sent: Mon, March 7, 2011 11:34:22 PM >> Subject: Re: (unknown) >> >> >> Oh, Jan. You have had some really hard times. Wish I could give you a hug. >> (((Jan))) Looks like that's the best I can do right now. Keep posting. I >>love >> hearing from you. Jackie >> >> >>> >>> >>> >>> Subject: Re: (unknown) >>> To: livercirrhosissupport >>> Date: Monday, March 7, 2011, 10:25 AM >>> >>> >>> >>> >>> >>> >>> I still cry at times.....Ed has been diagnosed for almost 6 years . I do >> really >>> well most times...but then it hits and the tears come. The fear that we will >>>not >>> grow old together is huge sometimes. But as says. " no one has an >>> expiration date " Only God knows that! So I pick myself up,dust myself off and >>> start all over again! LOL!! >>> >>> >>> Love,Jill >>> >>> We don't remember days, we remember moments. >>> Life is not measured by the breaths we take,but by the moments that take our >>> breath away. >>> >>> ________________________________ >>> >>> To: livercirrhosissupport >>> Sent: Sun, March 6, 2011 11:53:13 PM >>> Subject: Re: (unknown) >>> >>> >>> Thank you for coming forward and posting. The more the merrier and we can use >>> merry. >>> I am sorry this is making you cry. At times my wife will cry, but she tries > to >>> hide it from me. >>> >>> Three times is amazing. They HAVE to find a better way to combat viruses. >>> Hopefully this current generation will realize they are not immortal, and get >>> busy making the same advances in medicine that were made by previous ones. >> Life >>> is not a video game with extra lives hidden in the landscape. I am just >> venting >>> a but, because you and your husband have done it right. >>> He should be virus free and transplanted. Love, Bobby >>> >>> ________________________________ >>> >>> To: livercirrhosissupport >>> Sent: Sun, March 6, 2011 9:35:17 PM >>> Subject: (unknown) >>> >>> Thank God that no one has a " expiration date " stamped on our foreheads. >>> Statistics are just that-numbers. We are all different. By the numbers, my >>> husband should have been dead before we met in 2003. My dad also outlived the >>> statistics by many years. They do NOT predict outcome. Take care of yourself >>> as well as you can. >>> >>> My husband has cirrohsis from Hepatits C. He was treated three times >>> unsuccessfully for this damnable virus. Now we are looking at a transplant. >>> They have found 2 tumors that look like cancer. So we are off and running > into >>> that lengthy process. Any of you out there who may be a candidate for a >>> transplant and haven't started the " paperwork " , may I encourage you to do so. >>> Even if you don't need it yet, at least the work-up will be ready for when > you >>> need it. >>> >>> When I found out my husband had the cancer, I cried and cried. Now, I'm just >>> angry at the diseases that are trying to take my sweetie away from me. >>> >>> I've been lurking in this group and should have been posting all along. >> Looking >>> >>> forward to " seeing " all of you here. >>> >>> Prayers, >>> >>> >>> >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2012 Report Share Posted April 17, 2012 So true! My husband had an esophageal bleed in July, 2007 and we hadn't even thought of transplant yet. It was pretty bad and they banded 8 varicose veins in his esophagus. He was fine for awhile after that and was put on the list in January 2010 because he had 3 cancerous tumors in his liver. He received a new liver in May of 2010. He is doing fine today. There are many things that increase the MELD score and determine a person's placement on the list. Hoping you will hear from Bobby, our group moderator. He can give you lots of information about this. Please stay with our group, and welcome. You will learn much. God bless, Jackie ________________________________ To: livercirrhosissupport Sent: Tuesday, April 17, 2012 12:51 PM Subject: (unknown)  my father passed at the young age of 41 of the same condition, I know there is nothing anyone person can say to make this hopeless feeling go away. I can almost verify that the pain he is having does come from the liver. I do not know many of the doctors terms. but do know once the bleeding begins- get him to the hospital once my fathers began " his was beyond help within 3 days he slipped into a coma...but do keep this in mind no two cases are the same and med. practices have changed since his passing. never give up hope or faith. > > WELL I'M NEW TO THE GROUP AND NOT SURE WHERE TO START. MY HUSBAND HAS CIRCUSIS OF THE LIVER. IT STARTED OUT (KNOW I'M GONNA MISPELL THIS BUT MAYBE YOU CAN FIGURE IT OUT.) HEMACROMATOSIS AND THEN WE WERE TOLD HE HAD CIRCUSIS. HES GONE THOUGHT THE TRANSPLANT TEST BUT WAS TOLD THAT UNTILL HE STARTS PASSING BLOOD HE WOULDN'T BE PUT ON ANY LIST. I WORRY THAT BY THEN IT WILL BE TOO LATE. HES ALREADY BEEN IN HOSIPTAL SEVERAL TIMES FOR HIS AMMONI BEING TOO HIGH, LAST TIME THEY SAID IT WAS OFF THE CHARTS. BEEN IN HOSIPTAL TO HAVE FLUID REMOVED.HE GETS VERY CONFUSED AND SAYS HES IN ALOT OF PAIN.I DON'T KNOW IF THE PAIN IS FROM HIS LIVER OR BEAUSE HE HAD AN ACCIDENT IN 2002.I GET SO SCARED AND DON'T KNOW WHAT TO DO OR WHATS GONNA HAPPEN NEXT. MY DAUGHTER HELPS ALOT BUT I HATE LEANING ON HER SO MUCH. I JUST WAS HOPING THERE WERE OTHER PEOPLE OUT THERE. DON'T TAKE ME WRONG I DON'T WISH THIS ON ANYONE. BUT IT SURE WOULD HELP TO BEABLE TO TALK TO SOMEONE THAT KNOWS WHAT I'M GOING THOUGHT. SO WITH THAT SAID I'LL STOP HERE. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2012 Report Share Posted April 17, 2012 THANK YOU FOR THE INFORMATION AND ENCOUAGEMENT.SOMETIMES I FEEL SO ALONE AND IT HURTS TO SEE HIM SO OUT OF IT AND IN PAIN WHERE HE CAN'T SLEEP.HE TRIES SO HARD BUT MORE AND MORE HE WANTS TO GIVE UP.AND HE GETS SO ANGRY AND I CAN'T SEEM TO SAY ANYTHING RIGHT TO HIM. I WISH WITH ALL MY HEART I COULD TAKE HIS PAIN AWAY BUT I CAN'T AND I GET SO UPSET.THE HARD PART IS THAT I WORK FULL TIME AND DON'T DRIVE SO IT PUTS US INTO A TOUGH SITURATION. I JUST DO ALOT OF PRAYING AND LEAVING IT IN GODS HANDS. ---- Jackie Ellermann wrote: > So true! My husband had an esophageal bleed in July, 2007 and we hadn't even thought of transplant yet. It was pretty bad and they banded 8 varicose veins in his esophagus. He was fine for awhile after that and was put on the list in January 2010 because he had 3 cancerous tumors in his liver. He received a new liver in May of 2010. He is doing fine today. There are many things that increase the MELD score and determine a person's placement on the list. Hoping you will hear from Bobby, our group moderator. He can give you lots of information about this. Please stay with our group, and welcome. You will learn much. God bless, Jackie > > > > ________________________________ > > To: livercirrhosissupport > Sent: Tuesday, April 17, 2012 12:51 PM > Subject: (unknown) > > >  > > > my father passed at the young age of 41 of the same condition, I know there is nothing anyone person can say to make this hopeless feeling go away. I can almost verify that the pain he is having does come from the liver. I do not know many of the doctors terms. but do know once the bleeding begins- get him to the hospital once my fathers began " his was beyond help within 3 days he slipped into a coma...but do keep this in mind no two cases are the same and med. practices have changed since his passing. never give up hope or faith. > > > > > > WELL I'M NEW TO THE GROUP AND NOT SURE WHERE TO START. MY HUSBAND HAS CIRCUSIS OF THE LIVER. IT STARTED OUT (KNOW I'M GONNA MISPELL THIS BUT MAYBE YOU CAN FIGURE IT OUT.) HEMACROMATOSIS AND THEN WE WERE TOLD HE HAD CIRCUSIS. HES GONE THOUGHT THE TRANSPLANT TEST BUT WAS TOLD THAT UNTILL HE STARTS PASSING BLOOD HE WOULDN'T BE PUT ON ANY LIST. I WORRY THAT BY THEN IT WILL BE TOO LATE. HES ALREADY BEEN IN HOSIPTAL SEVERAL TIMES FOR HIS AMMONI BEING TOO HIGH, LAST TIME THEY SAID IT WAS OFF THE CHARTS. BEEN IN HOSIPTAL TO HAVE FLUID REMOVED.HE GETS VERY CONFUSED AND SAYS HES IN ALOT OF PAIN.I DON'T KNOW IF THE PAIN IS FROM HIS LIVER OR BEAUSE HE HAD AN ACCIDENT IN 2002.I GET SO SCARED AND DON'T KNOW WHAT TO DO OR WHATS GONNA HAPPEN NEXT. MY DAUGHTER HELPS ALOT BUT I HATE LEANING ON HER SO MUCH. I JUST WAS HOPING THERE WERE OTHER PEOPLE OUT THERE. DON'T TAKE ME WRONG I DON'T WISH THIS ON ANYONE. BUT IT SURE WOULD HELP TO BEABLE TO TALK TO SOMEONE THAT KNOWS > WHAT I'M GOING THOUGHT. SO WITH THAT SAID I'LL STOP HERE. > > > > > > > Quote Link to comment Share on other sites More sharing options...
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