Guest guest Posted July 24, 2012 Report Share Posted July 24, 2012 i use mirapex and it works great i got it neuro. i have been bedritten for 24 days between a sinus infection that wont go away tomorrow i have to get a cat scan of my sinus and a mamagram .i am afraid they will see my huge deviated septum from 10 years of drug abuse i have been clean 14 years now i hope they dont judge me by that. my head feels funny my eyes hurt and are swollen underneath and i am so so tired but yet i cant sleep maybe y ebv is acting up and my ears hurt to but yet i am on antibotics for 7 days now. today i went to a chiroprator but he would not adjust me till he sees my xrays but i gave him a copy of my mri but they just did stim and heat today tomorrow he will adjust hopefully and i start phyiscal therepy monday. i dont think the chiro or phyiscal therepy will work i need pain meds or surgery. i am having a hell of a time getting my records to a new pain manager then it will be two more weeks of suffering till i get to see them, they are so strict now they will not write for roxy or oxycotin at all i hope he gives me something for pain and notr just epidurals they hurt alot. i would not wish what i am going thru on anyone florida is so strict with pain managemnt In a message dated 7/24/2012 3:29:20 P.M. Eastern Daylight Time, drjohngreensmith@... writes: Restless legs syndrome Does anyone else have " Restless legs syndrome " ? I have a constant problem, when awake but especially getting comfortable to sleep. The pain is everywhere but especially the calf of both legs, whether lying on my back, front, sides, or even sitting up in a chair. I have also tried raised legs on a footstool to a level of hips. I have heard other M.E. sufferers complain of “Restless Leg Syndromeâ€. My level of intensity is now intolerable. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2012 Report Share Posted July 24, 2012 I found this remedy from Dr. Gott in paper; put a bar of soap under your sheet where your feet would be. It really does work. I was also given mirapex by my sleep doctor for restless leg syndrome. Good luck. Hope this stops soon. Restless legs syndrome Restless legs syndrome Does anyone else have " Restless legs syndrome " ? I have a constant problem, when awake but especially getting comfortable to sleep. The pain is everywhere but especially the calf of both legs, whether lying on my back, front, sides, or even sitting up in a chair. I have also tried raised legs on a footstool to a level of hips. I have heard other M.E. sufferers complain of “Restless Leg Syndrome”. My level of intensity is now intolerable. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2012 Report Share Posted July 25, 2012 , Three excellent reference sites for help: http://www.rls.org/, http://www.rlshelp.org/, and http://www.wemove.org/. I have had severe restless legs syndrome/ Willis-Ekbom disease and periodic limb movement disorder (PLMD) my entire life. My rls feels like a million ants crawling around inside the muscles of my legs when I'm not on medication. I'm very fortunate that medication works very well for me. Because I am an RLS Foundation support group leader, I am not allowed to tell you the name of my medication nor my dosage. However, you can learn about the various medications available on the above-mentioned web sites. The RLS Foundation also has several publications you can download for free. The Foundation has a list of support group leaders in the U.S. and Canada on their web site. If there is not one in your state or province, you can call any of us who are listed to discuss your rls. Some suggestions: 1. See a neurologist and/or sleep medicine physician to discuss your symptoms. When you call to make an appointment, ask how many patients the doctor treats for RLS. You want one who is familiar with and knows how to treat RLS. You may need a sleep study done to confirm the diagnosis. Most insurance companies won't pay for a sleep study for RLS but they will pay for a sleep study for PLMD. 2. Cut down gradually on your caffeine intake until you have eliminated it from your diet (this includes chocolate, sob...). 3. Walk around the house for about 10 minutes before going to bed. 4. After you go to bed, if the symptoms begin, get out of bed and distract yourself with computer games, reading, crosswords...whatever you can do to take your mind off of your creepy crawly legs. 5. If you're on medication for another condition, very carefully read the information sheet, especially the possible side effects, to see if leg movements are a side effect. 6. Regularly exercise moderately. Too much or too little exercise can aggravate RLS. 7. Stay away from antihistamines. They are notorius for aggravating RLS. Let me know if I can be of futher help. Kay Day Quote Link to comment Share on other sites More sharing options...
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