Re: Re: Darin, Re: Re: onset of symptoms

[Guest guest]

I just jumped in the group last week. I was dx with UC in '88 and dx with

PSC in '99

Darin

[Guest guest]

Darin,

I was dx with UC in 87 and then dx with PSC in 93. I didn't make it as far as you with my PSC. I wasn't able to keep taking the Actigall because it was so expensive. My first GI doctor said I wouldn't have gotten so sick so soon if I could have stayed on it. In Dec 99, I got so sick that I was hospitalized for over a week. I had been getting worse gradually. I started loosing my appetite during the summer of 99, and by Oct. I was vomiting every time I would eat. I had low grade fevers a lot plus my migraines had become more frequent. Not sure why PSC has any affect on migraines but in the research I've done some people seem to have more trouble with them. I've found that this disease can have numerous effects on the body. My main problem right now other than fatigue is my lower back and my legs. They hurt all the time. Especially, first thing in the morning. If I sit in one position or stand a long time I seem to get very stiff. And now since it's turned cold they ache even more. Do you experience any of this too?

My last doctor didn't like the exercising that I was doing so I stopped it so he would get off my back. I was weight lifting. But I've noticed since I've stopped I feel worse. So I'm planning on starting back. I think it must help the circulation because my back and legs didn't bother me as much then.

Beverly Mt Olive, NC

UC dx 87

PSC dx 93

[Guest guest]

Darin,

I was dx with UC in 87 and then dx with PSC in 93. I didn't make it as far as you with my PSC. I wasn't able to keep taking the Actigall because it was so expensive. My first GI doctor said I wouldn't have gotten so sick so soon if I could have stayed on it. In Dec 99, I got so sick that I was hospitalized for over a week. I had been getting worse gradually. I started loosing my appetite during the summer of 99, and by Oct. I was vomiting every time I would eat. I had low grade fevers a lot plus my migraines had become more frequent. Not sure why PSC has any affect on migraines but in the research I've done some people seem to have more trouble with them. I've found that this disease can have numerous effects on the body. My main problem right now other than fatigue is my lower back and my legs. They hurt all the time. Especially, first thing in the morning. If I sit in one position or stand a long time I seem to get very stiff. And now since it's turned cold they ache even more. Do you experience any of this too?

My last doctor didn't like the exercising that I was doing so I stopped it so he would get off my back. I was weight lifting. But I've noticed since I've stopped I feel worse. So I'm planning on starting back. I think it must help the circulation because my back and legs didn't bother me as much then.

Beverly Mt Olive, NC

UC dx 87

PSC dx 93

[Guest guest]

Darin,

I was dx with UC in 87 and then dx with PSC in 93. I didn't make

it as far as you with my PSC. I wasn't able to keep taking the

Actigall because it was so expensive. My first GI doctor said I

wouldn't have gotten so sick so soon if I could have stayed on it.

In Dec 99, I got so sick that I was hospitalized for over a

week. I had been getting worse gradually. I started

loosing my appetite during the summer of 99, and by Oct. I was

vomiting every time I would eat. I had low grade fevers a lot

plus my migraines had become more frequent. Not sure why PSC has

any affect on migraines but in the research I've done some people seem

to have more trouble with them. I've found that this disease can

have numerous effects on the body. My main problem right now

other than fatigue is my lower back and my legs. They hurt

all the time. Especially, first thing in the morning. If I

sit in one position or stand a long time I seem to get very stiff.

And now since it's turned cold they ache even more. Do you

experience any of this too?

My last doctor didn't like the exercising that I was doing so I

stopped it so he would get off my back. I was weight lifting.

But I've noticed since I've stopped I feel worse. So I'm

planning on starting back. I think it must help the circulation

because my back and legs didn't bother me as much then.

Beverly

Mt Olive, NC

UC dx 87

PSC dx 93

I posted a while back that my husband started with the headaches

so bad that he was checked for everything and that was when the dx

came back PSC. The leg cramps come and go with great pain but we

have started an exercise program with lots of walking and some

weights. Bob has progressed beautifully and when he does regress

he has some muscle mass to draw on. We also have a vitamin

regimen

of multi,calcium, vit E, milk thistle , C and E. He has

some trouble taking all these but being the nag I am he does. I also

have cut salt from his diet, push water,water,water and buy him those

fortified drinks with vitamins and minerals. I don't know if all

it helps but he looks good and the fatique is not as bad as last

winter. I am dreading the sunless days and am looking for a

light that people use for SAD. Anyone know where to get these, I

hear they are terribly expensive.

Dee Peoria husb 58 illeo 65 psc 99