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I, too have struggled with doctors making me feel like a druggie for wanting

pain medicine. I am very limited and suffer all day long to be able to take

my one allowed pill per day at bedtime so I can rest. If I have a horrible day

and need one to make it throught the day at work, I will have to do without

one at all on a day at the end of the month. i have to call the dr each month

to get a refill. Even if I have had an episode with my degenerted disks and

could not even stand up for four or five days, my pain pill is limited to no

more than one a day. I feel like I am a pian cripple. It controls every moment

of my life. Yet, I work wiht others who have four or five times the pain

medicine I have. Do i look like an addict? I don't think so. What can we do?

Our HMO plans are so limiting.

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Yes, I know what you meant, Louise. I'm simply saying we should turn the

tables on those who want to make it a moral issue. Then they might see

who's wrong.

I'm so happy to hear that you are getting the treatment you require and

deserve.

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] Pain Issue.

> Dear ; I do agree with you...What I meant by a moral issue was

that

> Doc's telling you that you should not be having pain and that

something was

> wrong with the Patient because they were having pain... Dump it all

back on

> the patient.,, .... I DO agree with you. No one should have to suffer

like

> we do and to made to feel bad if we ask for relief. How many of us

were

> made to feel this way? I remember before my first knee replacement. I

had

> been on crutches for 6 mos. I called the day before my surgery was

> scheduled, to try and get something for the pain. It was really

horrible.and

> it was Easter Sunday.. all I wanted was to get through the day with

my

> family and to have some sort of relief. . I was told by a nurse in the

> practice that I could not have anything until the surgery, because it

would

> make me " drug dependent " What? One dose of medicine so I could have

enough

> pain relief to maybe nap and be somewhat refreshed and to be able to

make

> Easter Dinner for my family.? . I am sure many of us have been made to

feel

> this way.

> Back then I was not assertive enough concerning my pain to confront

that

> nurse. I just bit the bullet and went into surgery the next morning

totally

> exhausted due to pain and little sleep for months because of the

pain. It

> was a total relief to go under anesthesia. I remember thinking as the

> anesthesia team started was that I would not be in pain...I am sure

that

> being in so much pain for so long lengthened my recovery time. Three

months

> later it was the same thing.. I was so relieved to go under anesthesia

again

> to have the second knee done.

> What changed my attitude was I read an article on the Internet one

sleepless

> night about Jerry and the Chronic Pain he was in.. After the

article

> it recommended a web site and phone number to call.

> You log on to.. ..www.yourpainyourcall.com.. .. Or...1-.800-

510-6735. It

> is worth it to see what is available in your area. and they send you a

video

> etc.

> Do not feel trapped and alone by pain. Oh- I sound like a commercial!

Love

> to one and all....Louise

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I would tell your physician exactly what you told us here, . Or

write him a compelling letter of how your quality of life has been

affected. You've been suffering for so long.

If you get nowhere with him, please call your HMO for help. If put your

plight in writing, it's likely to get more notice and, possibly, a

positive response. Or have you already tried appealing to your doctor

and/or to your HMO?

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

Re: [ ] Pain Issue.

> I, too have struggled with doctors making me feel like a druggie for

wanting

> pain medicine. I am very limited and suffer all day long to be able

to take

> my one allowed pill per day at bedtime so I can rest. If I have a

horrible day

> and need one to make it throught the day at work, I will have to do

without

> one at all on a day at the end of the month. i have to call the dr

each month

> to get a refill. Even if I have had an episode with my degenerted

disks and

> could not even stand up for four or five days, my pain pill is limited

to no

> more than one a day. I feel like I am a pian cripple. It controls

every moment

> of my life. Yet, I work wiht others who have four or five times the

pain

> medicine I have. Do i look like an addict? I don't think so. What

can we do?

> Our HMO plans are so limiting.

>

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I am on 5/500 vicodin and no more. I do get to take one flexaril per day,

only. Same controls. Insurance will only pay for it once so I have to pay full

price to get it. Legs can't be still without it.

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Thanks to everyone for the helpful advice. I went to the rheumy doctor for

my long awaited appointment and guess what? He doesn't know what I have

wrong. My blood tests seemed to show positive for RA as well as lupus and

Hepatitis. His gut feeling is that I may have Hepatitis many years ago and

it is now emerging . He gave me tapes and info on Embrel, Humira etc and

told me to take 15 mg. of Prednisone for one week and 10 mig the second and

then to call him and report if I am feeling better. He is also going to

speak to my Pulmonary Specialist to see what he thinks - perhaps it is

related. Anyway, he didn't even question my request for the Darvocet

(Hallelujah!). He is very knowledgeable and explained everything as best he

could. Apparently I am a real " challenge " to his diagnostic skills. Well,

once again thanks to everyone who gave me support and advice. It really

helps to know that I am not alone. Hugs~~~~Suzy

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