Letter, Re: Time to end M.E. sufferers’ hell (Paisley Daily Express, 4 February 2012)

February 6, 2012

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Paisley Daily Express Letters.

The Paisley Daily Express has a World Exclusive!

I believe Jeff Holmes's article (Time to end M.E. sufferers’ hell,

Paisley Daily Express, 4 February 2012 --

e/paisley-news/2012/02/04/time-to-end-m-e-sufferers-hell-87085-30260942/#.Ty_Srk\

GOirk.twitter)

is the first EVER about M.E. (Myalgic Encephalomyelitis), in which this

seriously disabling neurological illness is not written off as tiredness

or fecklessness. Nowhere is it said to be synonymous with Chronic

Fatigue Syndrome (CFS), or any of its variants (CFS/ME, Post Viral

Fatigue etc.), with which M.E. is commonly taken to be interchangeable

and which has been responsible for impeding progress to understanding

and recovery since, at least, 1988. It does not belittle M.E. with a

derisory slang term like 'Yuppie flu,' which erroneously tried to

pigeonhole it when, actually, M.E. affects both sexes, all ages and

social classes, worldwide. Nor does it give any bogus statistics about

numbers of people affected and recovery rates, which are all guesswork;

or raise false hopes of recovery by mentioning unproven therapies that

one might try, which experience and research evidence show to be

disappointingly ineffective and, in some cases, irrecoverably harmful.

It is a first!

It shouldn't have been necessary for anyone to have to clear the decks

of these negative obstacles but M.E. sufferers will be grateful to the

Paisley Express for laying these clean foundations, on which to build.

Thank you, also, to the ish Government and, in particular, MSP,

Fee, for representing M.E. as a discrete illness, with a

physiological cause, which has had no serious funding for biomedical

research, in a way people affected by it have never known but, instead,

have been shabbily neglected for decades.

Yours sincerely

drjohngreensmith@...

Dr H Greensmith

ME Community Trust.org

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