Guest guest Posted February 19, 2004 Report Share Posted February 19, 2004 Tawyny I agree with you. Each one of us is totally different. I do believe that if we can we should do some form of exercise. I used to do 30 minutes of aerobics every morning and evening. Now I walk a little each day and try to do a little more when I can. We are here talking with each other for support and help and every little bit helps me. Just to be able to talk with someone who knows what I am going through is an immense relief to me. I go through awful flare-ups where days meld into days and I wonder what has happened to all the time. Yet there are other times when I feel almost normal and accomplish thousands of things. I know that during those times I overdo but oh gosh it feels wonderful. I hope that anyone and everyone knows that all anyone of us can do is tell our experiences and try to help answer any questions that someone else might have. Steer a person in the right direction to answer the question that they have. I know that words can be terribly hurtful even when the person writing them meant no harm or criticism. I know that I am very sensitive and it hurts me to hear someone say that you should get up and walk or run or use a treadmill because that would be a benefit to you. I know in the beginning I thought that too but as my disease has progressed it has made my eyes open wide to how different each one of us is. I hope that I can support each person who needs support and answer questions if I know the answer. I have experienced quite a bit in the short time since I have contracted this disease and all the incorrect diagnosis that I went through before they figured it out. I was thought to be lazy and a slacker. That was the toughest thing for me. I had always been a go-getter and now I could hardly move and was being criticized for it but didn't understand it myself. I am an A personality who will always strive to do good but have found that now I have to slow down and that that is okay too. We don't have to rush through life and we don't have to own every toy on the market; we don't have to compete with the Jone's anymore. Oh gosh, I have gone on and on but I want all to know that I care about each and every one of you and thank you so much for the concern and help you give each and every one here plus those in your own lives at home. Not one of us wished this disease upon ourselves and we are all warriors trying to help ourselves and those around us not have to suffer the way we do. God bless, Althea Quote Link to comment Share on other sites More sharing options...
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