Re: Re: Prosorba Column & Donna

February 15, 2004

Sorry, Boo! It wasn't my intention to dredge up something you'd rather

forget.

Since you're our one and only person to have mentioned trying the

Prosorba column, it may help others who are considering the therapy to

hear your story.

I have two further questions if you wouldn't mind answering (if you

don't want to answer, that's OK!):

1) Are you RF positive?

2) Were you on an ACE inhibitor, heparin, or warfarin at the time?

Thank you!

I'll tell you where to go!

Mayo Clinic in Rochester

s Hopkins Medicine

[ ] Re: Prosorba Column & Donna

> Hey ,I'm afraid my memory is somewhat of a blur.I have bits and

> pieces. It's been 5 years and not something that I wanted to

> remember.But I'll be happy to share what I can.It started off tough

> when they went to insert the heart cathater for doing the 12 week

> procedure's. It was to be done while I was under anestetic but they

> neglected to give me enough and I was awake for the whole procedure.

> Needless to say I was really scared.With each treatment I became

> weaker and weaker.I was extremely fatigued, more so than usual. And

> extremely nauseous.The pain was magnified as was the swelling.The

> really frustrating part was that at the end when all is said and

> done the doctor tells us that the other patient's being treated in

> the U.S. at the time are reacting the same way. But I guess you've

> got to try.But if I had it to do over again there's no way that I

> would. It just wasn't worth it.There was no benifit from the

> treatment. It looks good in theory but thats all it is, is

> theory.That's just my experiance.Humira has been the wonder drug for

> me.But it all so took the supplement sam-e along with it. And Donna,

> I wish you the very best in your search for answers. I wish I could

> be more help.I'd be happy to talk to you more about the treatment if

> you'd like. Let me know.Gentleness,Boo.

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