Re: Getting some sleep

[Guest guest]

i have a terrible time sleeping and i suffer from ebv ebstein barr virus, i

fell again down my own step outside and twisted my ankle my back and

scrped both kneed bending down i fell faint to take the dogs collar off i fell

my friend wsas in the house and she picked me up off the cememnt. when i

do sleep its for short periods fo time 2 hours and i have horrible frighning

nightmares so scary. i am at the point where it is dangerous for me i have

been falling aslepp sitting up for hours lately and now even walkingf the

dog if he stops for 4 minsd to sniff soemthing i found myself falling over

cause my eyes were closing i was falling sleep standing up, in the waiting

room at doctors office i fall asleep but yet i am getting about 6 hours

sleep at night and i am so exhausted during the day my whole day is spent on

the couch i am always in a laying down postion it is so hard for me to even

get in the shower afraid i will fall so on the 12th i go to pain managemnt

and i want him to give me provigil a stimulant but i have to get apporval

the doctor has rto write that is is medically neccesary for me to have it

for ebv i hope they dont make me do a sleep study,i tried this drug my

brother gets it and it works for me pray i am approved for it cause i am so

exhausted all day long

netty

In a message dated 3/30/2012 3:05:19 P.M. Eastern Daylight Time,

angie.rowan01@... writes:

I've been living with CFS for nearly 4 years and have been seriously sleep

deprived for that long. I was officially diagnosed 4 months ago and have

been on a variety of prescription drugs and supplements to fight my way back.

Prescription drugs don't work for me, the 'antidepressants' only made me

sicker or I had all kinds of bad reactions to them. The sleeping pills only

gave me 4 hours of sleep on a good night. Melatonin basically allowed me a

nap. Desperate to get some sleep I did my own research and found Valerian

Root. It takes a few weeks to build up in your system. I have been taking it

for 4 nights and am already noticing a huge difference. Last night I slept

for 6 hours and didn't wake up once. Normally sleep for me is like

watching tv in my head all night, there was just no getting away from all the

dreaming and I could recall every moment of them. From last night I am only

aware of the dream I had before waking up. I don't wake up feeling drugged. I

am hop eful that this new supplement will allow me to get most of the sleep

that I should be and perhaps catch up some on all that sleep deprivation

and if I am really lucky, have some kind of a 'normal' life.

[Guest guest]

Netty, Getting a sleep study is the first thing you should do. Many people

with cfs/me/ebv have related sleep disorders. Youd be surprised. It sounds

like it could be Narcolepsy, or, extreme daytime sleepiness. They would test

for that in the sleep study. Or, it could be the orthostatic intolerance with

low blood pressure†doing that to you. And, when laying down, the symptoms

tend to go away. Could definitely, cause the falling down, too. Hope youll

look into this. Good luck.

From: annettini935@...

Subject: Re: Getting some sleep

i have a terrible time sleeping and i suffer from ebv ebstein barr virus, i

fell again down my own step outside and twisted my ankle my back and

scrped both kneed bending down i fell faint to take the dogs collar off i fell

my friend wsas in the house and she picked me up off the cememnt. when i

do sleep its for short periods fo time 2 hours and i have horrible frighning

nightmares so scary. i am at the point where it is dangerous for me i have

been falling aslepp sitting up for hours lately and now even walkingf the

dog if he stops for 4 minsd to sniff soemthing i found myself falling over

cause my eyes were closing i was falling sleep standing up, in the waiting

room at doctors office i fall asleep but yet i am getting about 6 hours