Re: What the? (rheumy rant)

[Guest guest]

Olnisa...

Fibromyalgia cannot be diagnosed by blood tests---and CAN be diagnosed somewhat

by trigger points....BUT, it sounds as though this second rheumy has the right

idea in doing a lot of blood-work.  There are many other diseases

that mimic the symptoms that you have---and too many doctors are willing to

just chalk it up to " fibromyalgia " .....which has no cure.  Maybe the will find

the TRUE cause of your symptoms--and maybe there will be something you can take

to either cure or at least help your symptoms.  Being on so many pain meds the

rest of your life is not the answer.....

I would listen to the 2nd rheumy and find out what the test results

produce.....

JMHO.

Lynn

________________________________

To: CFAlliance

Sent: Wednesday, August 15, 2012 4:16 PM

Subject: What the? (rheumy rant)

 

So I waited months to get in with a rheumy. For a new patient appt. And kept

calling for cancellations.

I tried three different rheumy's, to see who i could get in soonest with, via

cancellations. I cancelled two, once one appt won the race.

So I went in for this appt. She looked young and new. Extremely nice, and

gentle sounding. Couple yrs out of residency I would guess.

She looked at the records from 10 doctors I went to before her in the same

medical center--other specialists (ent, pulmos) and my internist. She listened

to me complain about my fatigue and soreness. (Soreness, I don't have pain.).

She said, " Like the other doctors said, you have fibromyalgia. " . Huh. I thought

they said I *probably* have fibro. I thought the rhemy's had the final word on

the matter. That's why I was here! She didn't take any more blood--only looked

at what the internist had done. She didn't do an exam. No orthostatic

intolerance test. No nothing. He said my symptoms won't go away--from what she

knows. (sounded like " from what she reads... " ). She gave me some info on two

clinical trials--which I am not interested in! She calmed me and said one isn't

for a new med, it's behavioral--which I could handle--but it was too far for me

to drive and get too regularly--she must have forgotten about my primary sleep

problems.

And that was that. Everything she told me I had already read on the Internet.

I was quite disappointed. It wasn't helpful, nor did she inspire confidence in

her or in me getting better. She just said get my sleep In order and I'll feel

better. Funny I've had severe sleep problems for 2 decades +, and haven't

managed to get it in order, and it's my sleep fell apart when the fibro and

fatigue hit. If I could get rid of the fibro and fatigue, I might be able to go

back to my old messed up sleep (the devil you know) and at least be functional

again!!!!!!