Guest guest Posted September 24, 1999 Report Share Posted September 24, 1999 << Personally, I think Milhorat's new study findings show CSF flow problem areas most docs don't even consider significant. I may be wrong, but does anyone concur? >> eurico in my humble opinion .....the mathmatical reconstruction models , develped and put into use , in the last five years ......have changed understanding of the chiari syndrome ......we now can measure , and see small posterior fossa volumes , and movement of csf , throughout the brain and spinal cord , ........with special mri techniques , and new machines that allow upright views of us zipperheads .......understanding is gaining in leeps and bounds ! your daughter is a great example , of what science couldnt see .....( except perhaps on autoposy ) ......until just a short time ago ........what a blessing these doctors have worked so diligently to help us ! id sugest for all intrested in reading up on this csf movement ,and the impacts of acm and syringomyelia , you might follow that link on the asap resources page .......to firma invitada ......<A HREF= " http://www.pareras.com/neuroxxi/xxi05/xxi05-02.htm " >Firma Invitada</A> ( http://www.pareras.com/neuroxxi/xxi05/xxi05-02.htm ) , its in english , so scroll down past the spannish doc's introduction . and youll find the full article ....these docs have published other work as well . another great source of understanding , is renting the presentation of Dr Heiss , at the beaverton asap confrence in 97 ......chock full of mri examples , moving cine study , charts and stats , its an intense but worthwhile hour of information ! ( you can rent it from asap _) the gentetic studys at duke , are also worth suporting , and reading up on , there to , a link from asap's site ....... it stricks me this am , as i write this ramble around csf , posterior fossas and leeking brains , how truly fortunate we have wacma , and asap , the compasion of some special docs and friends , and hope ! hugs to you Eurico , you and your family have gained so much , another reason to celebrate now all ! sarah in paradise Quote Link to comment Share on other sites More sharing options...
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