Re: stents and/or diliation

August 17, 2001

I can't get on the support board anymore for some reason. Mother had a nose

bleed this morning (her first ever) do you think this might be caused by the

PSC? Do you know how I can rejoin the group?

Thanks.

Re: stents and/or diliation

> Barbara, I am definitely going to take that rx name to

> my new doc on April 9th.

>

> I have also discovered that increasing my Actigall

> worked the sludge blockage a little, but the itching

> still remains and probably will until all the bile has

> made it's way out of my system.

>

> I have not had any blockages in my legs but I know

> what you are talking about. My brother, who does not

> have PSC, but he has kidney failure, heart attacks,

> stroke, gran mal seizures and is malnourished and only

> 49, has had total blockages in his legs...twice! The

> first time he had a bypass done and the second time

> angioplasty. Both times, immediately after the

> procedures, he noticed immense relief, and we could

> feel the warmth back in his legs too.

>

> I have wondered, if my family is just proned to

> strictures and narrow passes of any nature. My dad

> had strictures in his heart arteries. My 2 siblings

> that are deceased also had blockages/strictures. My

> living brother has strictures in the heart, legs,

> coroted arteries, and my living sister has extra small

> arteries near her heart. But me,...oh me, I a colon

> that had many strictures and narrowing and scarring

> and now PSC with narrowing and blocked bile ducts.

> All of my dad's brothers and sisters have had heart

> surgery due to strictures. The only one that escaped

> was my Mom, and of course, she isn't blood related

> down that side of the family.

>

> in Michigan - bracing for yet another storm. I

> bragged alittle too early today about the sunshine.

>

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