Re: Is 10 1/2 months old too old for the band?

[Guest guest]

:

10 1/2 months is NOT too old! Some babies are casted at 18 months!

You may not see results as quickly as if he were younger, but 's

head should benefit!

Good luck!

Kendra

Baran wrote:

> Hello,

>

> Our son is 10 1/2 months old and was just casted for the

band

today.

> The orthotist was quite pessimistic about expecting much progress

if any

at

> his age. Has anyone started their child wearing the band

at this age?

Was

> there any progress? How long did he or she have to wear

it? We are

> seriously debating not going any further because of his age and

because

> has been catagorized as Mild to slightly Moderate.

Thanks for any

> help you can give us!

>

>

>

>

[Guest guest]

, You have to go with your instincts as far as whether or not you

want to treat him. 10 and a half months is NOT too late. You can use

the band up until 2 years. For us the decision was whether or not we

wanted to spare our son future teasing about having an assymetrical face,

ears, etc. You would do braces for crooked teeth, so why not a crooked

noggin? I hope this helps! Ann

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[Guest guest]

In a message dated 6/16/00 9:49:48 AM Pacific Daylight Time,

yeeman@... writes:

<< The bad news I've heard recently though is that the facial asy and ear

algn are gambles(as far as correction) so we may be paying $3000 for nothing

except the back rounding out which is still really ok.

>>

Liz-

We did have the doc band & the good news is that it helped with Abby's ears &

her eye. The money paid by our insurance was worth every penny. Good luck

with the insurance! Kimry

[Guest guest]

Ann,

You are completely right! The doctors though keep saying that when he's two

or three years old it will be the same if he has the band or not. Do you

know if plagio progressively gets worse? Thanks

----- Original Message -----

From: KENT A <kanswede@...>

<Plagiocephalyegroups>

Sent: Friday, June 16, 2000 10:00 AM

Subject: Re: Is 10 1/2 months old too old for the band?

> , You have to go with your instincts as far as whether or not you

> want to treat him. 10 and a half months is NOT too late. You can use

> the band up until 2 years. For us the decision was whether or not we

> wanted to spare our son future teasing about having an assymetrical face,

> ears, etc. You would do braces for crooked teeth, so why not a crooked

> noggin? I hope this helps! Ann

> ________________________________________________________________

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[Guest guest]

, that depends on whether or not he varies his sleep position now.

Our son still primarily sleeps on his right side, although he does

alternate some, so his was staying the same or getting worse. However,

if your son doesn't have a favorite position and is sitting, crawling,

and in other words not spending all of his time on his back anymore, I

wouldn't think it would worsen. You can try repositioning, like turning

him over once he is asleep, but that did not work for us: he would just

turn right back. He is 8 and a half months old and has had his band for

3 weeks and we can already see improvement. Also, the surgeon we saw

said that if it has not improved by 6-9 months, they recommend treatment.

His theory was that by that time they are sitting, possibly crawling,

etc. and would have given it ample time to correct itself. Keep us

posted on what you decide! Ann

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[Guest guest]

We were also told that ours was mild and then at casting CT said mild to

moderate. BTW we received band at exactly 11 mos and things look good, 10 1/2

mos is NOT too late. Anyway, even though it is mild(and therefore peds won't

help with getting insurance to pay) - as far as I am concerned it is a

presense/absense issue - who cares how mild or severe - the presense is the

issue. Also, many people on this site have had peds tell them that it was mild

and nothing to worry about, etc. and have the child turn out to be very severe

when dx by people that really know. I'm sure alot of people here got the same

run around and could never tell how serious things were because there are so

many opinions. Do what you want to do. As far as I'm concerned - if it was my

head, I would want it tx. The bad news I've heard recently though is that the

facial asy and ear algn are gambles(as far as correction) so we may be paying

$3000 for nothing except the back rounding out which is still really ok.

-liz (sorry, don't get me started today - I'm so pissed over this stuff right

now, when are doctors gonna be held accountable for their screw ups and forced

to quit experimenting on us and our babies?!)

---------- Original Message ----------------------------------

From: " Baran " <mary@...>

Reply-Plagiocephalyegroups

Date: Thu, 15 Jun 2000 22:48:49 -0500

>> Hello,

>>

>> Our son is 10 1/2 months old and was just casted for the band

>today.

>> The orthotist was quite pessimistic about expecting much progress if any

>at

>> his age. Has anyone started their child wearing the band at this age?

>Was

>> there any progress? How long did he or she have to wear it? We are

>> seriously debating not going any further because of his age and because

>> has been catagorized as Mild to slightly Moderate. Thanks for any

>> help you can give us!

>>

>>

>>

>>

>

>

>

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[Guest guest]

Ann

Thanks for all of the info. I'm glad to hear that it's helping your son! I

wish that the pediatritions were more educated in this subject. Ours blew

us off until I became adament about getting help.

----- Original Message -----

From: KENT A <kanswede@...>

<Plagiocephalyegroups>

Sent: Friday, June 16, 2000 11:18 AM

Subject: Re: Is 10 1/2 months old too old for the band?

> , that depends on whether or not he varies his sleep position now.

> Our son still primarily sleeps on his right side, although he does

> alternate some, so his was staying the same or getting worse. However,

> if your son doesn't have a favorite position and is sitting, crawling,

> and in other words not spending all of his time on his back anymore, I

> wouldn't think it would worsen. You can try repositioning, like turning

> him over once he is asleep, but that did not work for us: he would just

> turn right back. He is 8 and a half months old and has had his band for

> 3 weeks and we can already see improvement. Also, the surgeon we saw

> said that if it has not improved by 6-9 months, they recommend treatment.

> His theory was that by that time they are sitting, possibly crawling,

> etc. and would have given it ample time to correct itself. Keep us

> posted on what you decide! Ann

> ________________________________________________________________

> YOU'RE PAYING TOO MUCH FOR THE INTERNET!

> Juno now offers FREE Internet Access!

> Try it today - there's no risk! For your FREE software, visit:

> http://dl.www.juno.com/get/tagj.

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[Guest guest]

In a message dated 6/16/00 12:52:28 PM Pacific Daylight Time, AAKARA@...

writes:

<< << The bad news I've heard recently though is that the facial asy and ear

algn are gambles(as far as correction) so we may be paying $3000 for nothing

except the back rounding out which is still really ok.

>> >>

I was explained that if the head had a nice round shape, the facial bones

connected would follow. I don't expect 100% correction, but facial asymmetry

should correct some.

Tammy & 12/8/99

[Guest guest]

Kimry

Thanks, we're paying the entire amount because no doctor wansts to write a

medical necessity letter - SHOCKER! considering they don't know anything about

the band and failed to tell us about pp in the first place. Anyway, what did it

do with her eye?

liz

---------- Original Message ----------------------------------

From: AAKARA@...

Reply-Plagiocephalyegroups

Date: Fri, 16 Jun 2000 15:35:19 EDT

>In a message dated 6/16/00 9:49:48 AM Pacific Daylight Time,

>yeeman@... writes:

>

><< The bad news I've heard recently though is that the facial asy and ear

>algn are gambles(as far as correction) so we may be paying $3000 for nothing

>except the back rounding out which is still really ok.

> >>

>Liz-

>We did have the doc band & the good news is that it helped with Abby's ears &

>her eye. The money paid by our insurance was worth every penny. Good luck

>with the insurance! Kimry

>

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[Guest guest]

In a message dated 6/16/00 3:57:12 PM Pacific Daylight Time,

yeeman@... writes:

<< Anyway, what did it do with her eye?

liz

>>

Liz-

She had the extra skin (the inner cathus fold) over her eye. It now looks

like her other eyelid. The extra skin never interfered with her vision, but

it looked " funny " . It now looks great! Kimry

[Guest guest]

Kimry

Lil doesn't have the extra fold buit she has some asy in her right eye and

nostril pulls up. Just had plastic surgeon tell me that we won't get any or

littl;e change in that because he says there is little to change - I guess he

meant the little bit of bossing on that side of her forehead. Plus I thinki the

changes in the front occur in a sense on an axis with the chin so that lower asy

will not get as much change. So i'm bummed. PLMK the info again - we started

band at 11 mos only in 3 weeks now. also, funny the CT said the facial asy

would be helped. thanks - liz

---------- Original Message ----------------------------------

From: AAKARA@...

Reply-Plagiocephalyegroups

Date: Sun, 18 Jun 2000 21:06:28 EDT

>In a message dated 6/16/00 3:57:12 PM Pacific Daylight Time,

>yeeman@... writes:

>

><< Anyway, what did it do with her eye?

> liz

>

> >>

>Liz-

>She had the extra skin (the inner cathus fold) over her eye. It now looks

>like her other eyelid. The extra skin never interfered with her vision, but

>it looked " funny " . It now looks great! Kimry

>

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