Guest guest Posted January 19, 2004 Report Share Posted January 19, 2004 Thanks for the info, Judi. I'll have to see what I can learn about this Dr. Tomlinson. I hope he and his group can come up with some information that can lead to better treatments for you and those who suffer from Dercum's. Also good news about the prospect of a Dercum's organization that could lead to research here. Do you think it's possible that the Topamax is causing your fevers? I see that it's listed as a frequent side effect. I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] Re: Rough Time-- > Hi , > > Well, the kids are working things out. It will take time, but Ron > and I are just going to try to keep out of it as much as possible. > > The group in England is Dr. Tomlinson, a cancer research lab. They > are doing genetic research and since Dercum's is a type of non- > malignant (so far) cancer, their research is important. And good > news, a group of people from the DD support group is working at > forming a non-profit to perhaps get some formal research started. > > As far as the Duragesic/fever goes, the fever seems to be less this > time, and still present even though I put the patch back on, so I'm > thinking it's a Dercum thing. It's hovering around 98.7-99, so as > long as it doesn't go over 102 I should be ok. I'm drinking tons of > water (mostly because of the Topamax which can cause kidney stones) > so that helps to keep the temp down. Ah, the days when all we needed > was a good ol' Bayer! > > How are you doing? > > OK, back to my blanket & book, > > Peace, > Judi > > > > > Quote Link to comment Share on other sites More sharing options...
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