Re: Sorry I missed Chat

[Guest guest]

Hi ,

 

We missed you at chat. A nice girl has applied to join the group, her initials

on chat were mjas or similar. She was very sweet. Her Dad was recently diagnosed

at age 57 and she and her Mom are very worried about him. We chattend quite

awhile. He is on Kineret and seems to be responding well, but his liver enzymes

were up and they abruptly took him off all pain medications. They are not sure

what to do with him now for his pain. The ice him down and that gets him

through, but he has trouble sleeping at night. They were talking of taking him

to a neurologist, which I urged them to do. Their Rheumy does not know much

about still's. He was diagnosed after being in the hospital for blacking out

with a high fever if I remember correctly. I told her we were a group operating

round the clock, and she was on our wed. chat. So the chat seems to bring group

members in. talked to her some as well. The mom really wanted to know if

it was possible that his

asthma medicine didn't bring this on, advair. I told her I had not heard of

that, and that my daughter and I both had asthma before mel was diagnosed with

stills. They are from indi indiana. They really need the group. Dad is not into

computers, but the mom and daughter caretakers could use the support. Look for

them to be signing up, she sent her request in already.

Hope you're doing well pet sitting. Hoping a huge bunch of money drops out of

the sky so I can go to Vegas. We shall see.

Love and Hugs,

>To: " stillsdisease " <stillsdisease >

>Sent: Wednesday, August 8, 2012 11:58 PM

>Subject: Sorry I missed Chat

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>Hello, I'm sorry I wasn't able to come to Chat this week. I have pet sitting 3

dogs and a cat for friends and I'm not at home. It's a little hectic in the

eve's around dinner time so it didn't work out for me. We never know, but I will

try my best to make it next week. I hope some of you were able to visit. Wishing

all well. Night,

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