CFSAC Spring 2012 Meeting - June 13 and 14

[Guest guest]

From: Massachusetts CFIDS/ME & FM Association

Massachusetts CFIDS/ME

& FM Association News

Chronic Fatigue Syndrome Advisory

Committee (CFSAC) Spring 2012

Meeting - Wednesday and Thursday,

June 13 and 14

The Health and Human Services (HHS) Department

has issued a notice that the Chronic Fatigue

Syndrome Advisory Committee (CFSAC) will hold a

meeting on Wednesday, June 13, 2012 and

Thursday, June 14, 2012 from 9:00 a.m. until 5:00

p.m.

This is the only federal cross-agency committee

focusing on Chronic Fatigue Syndrome (CFS).

The CFSAC, established in September 2002,

advises and makes recommendations to the

Secretary of Health and Human Services through

the Assistant Secretary for Health on a wide range

of issues affecting individuals with CFS.

These include things such as the current state of

knowledge and research; diagnosis and treatment

of CFS; educational programs for healthcare

professionals and the public; and developing

strategies to improve the quality of life of CFS

patients.

It is the primary means by which CFS-related

offices and programs at the Centers for Disease

Control (CDC), National Institutes of Health (NIH),

and members of the health care and patient

communities communicate with one another.

The Agenda for the upcoming meeting can be

viewed at: CFSAC Spring 2012 Meeting.

The first day will pay special attention to Childhood

CFS with a presentation in the morning by C.

Rowe, M.D., from the Hopkins Children's

Center Division of General Pediatrics, and Gail

Houle, Ph.D., Associate Division Director at the

Office of Special Education Programs, Department

of Education.

A panel discussion on CFS and children will take

place during the afternoon session.

On the afternoon of the second day there will be a

presentation on ME/CFS organizations, with a

discussion by Committee Members and

representatives of ME/CFS organizations.

This meeting will be live-video streamed - a service

that was reinstated for this meeting as a result of

many requests from patients and their families

since it was not available for the previous meeting.

It is very important for everyone to take advantage of

this service (in view of ongoing budget pressures)

and show interest in this service by having a

significant number of people " tune in " during the

live meetings.

People should make an effort to watch (or at least

tune into) these meetings in order to preserve this

opportunity for all going forward.

On the actual day of the meeting, to view the

live-streaming, click on Live Videocast or key in

following web address:

http://www.hhs.gov/live/

The videocast of the meeting will be archived

through the CFSAC website and should be

available for viewing a week or two after the

meeting.

For the complete HHS announcement and details,

click on Meeting of the Chronic Fatigue Syndrome

Advisory Committee.

Massachusetts CFIDS/ME & FM Association

PO Box 690305

Quincy, MA 02269-0305

United States