Re: MRI & Consultation today

[Guest guest]

In a message dated 3/21/00 6:42:47 PM US Mountain Standard Time,

teri246@... writes:

<< ore research to do on adenomyosis, I feel like I'm

back to square one in a sense & I'm becoming depressed

again.. Has anyone out there had a successful UAE or

FAS for adenomyosis??? Is there anything else I can

do for this condition because I'd rather die (I'm not

kidding here ) then undergo hysterectomy.... I'm so

tired right now I feel like I'm going to pass out >>

Toaff in Pa and also the HERS docs and DelJunco all do myo for adenomyosis.

I am sure Carla will be able to tell you what is what with embo for it.

I know how overwhelming this all is, but try not to sweat it. You are

obviously very competent and you have good resources, you will find the right

answer for you, it just takes time and effort, as I well know. I did better

on stressful nights if I looked at it like " I am so lucky to be educated

enough to search out alternatives to hyst....a few years ago it would have

been straight to the O.R. and estrogen " . In the end it will be so worth it,

I can attest to that as well.

Oh, and also, I hate to say this, and maybe Carla can comment, but I have

gotten conflicting results from ultrasound and MRI reports ..... I am told

there are a number of reasons why this happens, hard to see, they just

measure what they can, there is even a mentality out there, as one woman

posted recently she was told by a radiologist (same happened to me) to have a

hysterectomy...they are actually TAUGHT that after a certain size that is

going to be the outcome, so I think they think once they see something that

puts your uterus in that range, say one or two big ones, they get those

measurements down 'cause they figure that will signal hyst to the doc, they

think that is what the doc is looking for, and they don't measure the rest...

I had a friend with me when an ultrasound was done and she said she saw what

looked like a bunch of grapes in my solar plexus, but there was no mention of

this on the report, only several large ones were listed.

This inability to get an accurate report is one problem with the " we got in

there and ________ so we had to do a hyst " ..... I don't like the uncertainty,

so this is why I made sure I chose a doc who can handle ANY number of

fibroids and ANY size without doing a hyst, that way they can't say " well you

had more than we thought " or " you had this kind " or " it was in this

location " .... and let me tell you wanting this kind of reassurance lets out

999 out of 1000 gyn's, in fact I could only find several in the whole country

who could say they could " handle anything " .

Getting back to my initial reason for posting to you, hang in there. I hope

you tell us all what/when you decide.

-Candace

[Guest guest]

Clifford wrote:

> Hello everyone, I had my MRI & consult today up in

> NY..THe MRI reveled only one intramural fibriod on the

> back wall of my uterus 5cm which greatly surprised me

> because I was told by two other gyn's that I probably

> had at least a dozen more tumors in my uterus... The

> bad new is that I also have adenomyosis & my uterus is

> enlarged to about a 10/12 wk pregnancy because of this

> embedded tissue..My IR seems to also think that the

> adenomyosis is responsible for my heavy periods &

> other symptoms & not the single fibriod.. He still

> seems to think that I'm a good candidate for UAE &

> told me that he's already done quite a few women

> suffering with adenomyosis & they all have had

> wonderful results... I'm a little confused & don't

> really understand how UAE can help with adenomyosis???

Has to do with build up of blood flow due to the adeno -- which UAE can

help. Dr. Forcade is one of the few IRs who has been taking quite a few

patients with adenomyosis. I spoke to him last month about " statistics " on

his website for clarification and learned that none of his patients have

progressed to hysterectomy. None. Not sure if that is still the case --

but he may have told you his current stats. He's done well over 100 UAEs

and a pretty good number of them also had adenomyosis. If you want a more

conservative opinion (more cautious approach in regard to adenomyosis), I

would suggest you contact Dr. Spies at town University and get

his take on UAE and adenomyosis. Honestly, I don't know what he would say

today -- but do think if there was extreme caution to take in this regard

that he would let you know. Also, you may want to call Dr. Forcade back and

ask for patient referrals -- names and numbers of women who went to him with

adenomyosis -- so that you can talk to them about how they are today.

> I've read that FAS can help with

> adenomyosis & that might be my only other alternative,

> I just don't know now i think the fibroids would have

> been easier to deal with alone & I would have had more

> choices including myomectomy...

With FAS, adenomyosis is excised--removed from the uterus. There is no

literature on this and no peer review has occurred (that I know of -- anyone

know of any?????) for this method of dealing with adeno. This may be

because the standard approach is to do the hyst. Again, if you are looking

at myomectomy (or FAS) to deal with your adeno, ask for patient names and

numbers who underwent this over a year ago so that you can speak to them

about their procedure and recovery today.

Best wishes to you Theresa and hang in there.

Carla Dionne

mailto:cdionne@...

http://www.uterinefibroids.com

/list/uterinefibroids

" Never doubt that a small group of thoughtful committed citizens can change

the world. Indeed it's the only thing that ever has. " Margaret Mead

[Guest guest]

In a message dated 3/22/00 5:07:25 AM US Mountain Standard Time,

cdionne@... writes:

<< at myomectomy (or FAS) to deal with your adeno, ask for patient names and

numbers who underwent this over a year ago so that you can speak to them

about their procedure and recovery today. >>

I just remembered that the New York Times Article " She surfed to a second

opinion " was about Dr. Toaff in Pa and a patient of his who avoided hyst, and

she had

adenomyosis. This was written about two years ago, I believe. I have

emailed her and she is still pleased as punch.

Hope that helps.

-Candace

[Guest guest]

Thank you so much for responding to my letter Carla, I

LOVE this group & really think I'd be lost with out

all of you wonderful, caring & compassionate ladies...

I do have a very supportive husband & two wonderful

sisters, a mother & several real girlfriends however

they are all getting a little tired of my problems.. I

guess I can't blame them in a way as they can not

relate to any of this because they haven't walked in

my shoes. Most of the woman here have & are dealing

with similar problems & can certainly relate & that's

the beauty of our group.

Dr. Forcade told me that he's done 94 UAE's already &

about 14 of those patients also had adenomyosis.. Out

of those 14 women NONE have gone on to have

hysterectomy's & they all had wonderful

results... He showed me several MRI pic's from other

woman & a few of them had larger fibriods & much worse

adeno then I yet still did very well with the

procedure :) .. I found all the info to be

encouraging & I did ask him to call me with the names

& #'s of some of the women who had the adeno so that I

can talk to them myself etc.. I am going to gather as

much info as I can on this subject & then I'll make a

decision.. I am also interested in contacting Dr.

Spies for another opinion, do you know his e

mail addy off hand Carla? Also, I asked Dr. Kirsch for

his input on adeno & UAE & he told me that his adeno

patients have had about a 50% success rate depending

on the case I guess (still better then nothing in my

book & still beats the big H) I will also look into

the FAS after I gather all info on UAE for adeno

first.. Thank you again & I'll keep everyone posted..

Teri Clifford

--- Carla Dionne wrote:

> Clifford wrote:

>

> > Hello everyone, I had my MRI & consult today up in

> > NY..THe MRI reveled only one intramural fibriod on

> the

> > back wall of my uterus 5cm which greatly surprised

> me

> > because I was told by two other gyn's that I

> probably

> > had at least a dozen more tumors in my uterus...

> The

> > bad new is that I also have adenomyosis & my

> uterus is

> > enlarged to about a 10/12 wk pregnancy because of

> this

> > embedded tissue..My IR seems to also think that

> the

> > adenomyosis is responsible for my heavy periods &

> > other symptoms & not the single fibriod.. He

> still

> > seems to think that I'm a good candidate for UAE &

> > told me that he's already done quite a few women

> > suffering with adenomyosis & they all have had

> > wonderful results... I'm a little confused & don't

> > really understand how UAE can help with

> adenomyosis???

>

> Has to do with build up of blood flow due to the

> adeno -- which UAE can

> help. Dr. Forcade is one of the few IRs who has

> been taking quite a few

> patients with adenomyosis. I spoke to him last

> month about " statistics " on

> his website for clarification and learned that none

> of his patients have

> progressed to hysterectomy. None. Not sure if that

> is still the case --

> but he may have told you his current stats. He's

> done well over 100 UAEs

> and a pretty good number of them also had

> adenomyosis. If you want a more

> conservative opinion (more cautious approach in

> regard to adenomyosis), I

> would suggest you contact Dr. Spies at

> town University and get

> his take on UAE and adenomyosis. Honestly, I don't

> know what he would say

> today -- but do think if there was extreme caution

> to take in this regard

> that he would let you know. Also, you may want to

> call Dr. Forcade back and

> ask for patient referrals -- names and numbers of

> women who went to him with

> adenomyosis -- so that you can talk to them about

> how they are today.

>

> > I've read that FAS can help with

> > adenomyosis & that might be my only other

> alternative,

> > I just don't know now i think the fibroids would

> have

> > been easier to deal with alone & I would have had

> more

> > choices including myomectomy...

>

> With FAS, adenomyosis is excised--removed from the

> uterus. There is no

> literature on this and no peer review has occurred

> (that I know of -- anyone

> know of any?????) for this method of dealing with

> adeno. This may be

> because the standard approach is to do the hyst.

> Again, if you are looking

> at myomectomy (or FAS) to deal with your adeno, ask

> for patient names and

> numbers who underwent this over a year ago so that

> you can speak to them

> about their procedure and recovery today.

>

> Best wishes to you Theresa and hang in there.

>

> Carla Dionne

> mailto:cdionne@...

> http://www.uterinefibroids.com

> /list/uterinefibroids

>

> " Never doubt that a small group of thoughtful

> committed citizens can change

> the world. Indeed it's the only thing that ever

> has. " Margaret Mead

>

>

>

>

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>

> -- Create a poll/survey for your group!

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__________________________________________________

[Guest guest]

Candace, Thanks so much for your letter & encouraging

words... I just have to get used to the fact that I

now have adenomyosis (geeze, I still can't pronounce

this word correctly) Instead of multiple fibroids like

I was told.. I also agree about these tests not being

as accurate as we'd like to think because one of the

ultrasounds that I had several months ago reveled that

my dominant fibroid was 6.5 cm with several smaller

fibroids here & there (that's how the GYN put it) &

then I had another ultrasound & It read that the tumor

was 5cm (Still was told I had several other's in the

uterus) hummmmmm? The MRI read 5cm with adeno being

the reason for the enlarged uterus so I guess I'll go

with that. Smaller is better in this case right

Yes, You are also right about being lucky enough to

have found this group & also to be able to search out

other options besides hysterectomy via the net... I am

so greatful that this didn't happen to me a few yrs

ago because you're right it would have been off to the

OR to be butchered & then onto HRT & If I couldn't

tolerate it tough luck... In some cases the Dr's leave

the woman's ovaries but If you ask me after such

radical surgery I think the ovaries go into shock (In

a lot of cases) & shut down & then welcome to instant

menopause if you can't tolerate the HRT. Sometimes as

we all know it takes many different formulations

before we hit the one that's right for us, ahhhhh I

could go on & on about this awful subject. My mother

had a Hyst as the age of 41, the dr. left one ovary in

but I think it shut down. She didn't go on HRT because

she didn't want to risk the chance of getting cancer

so after the hyst she was NEVER the same!!!!!! They

also gave her the verticle incision ahhhhhhhh!!! what

a butcher job they did back then!!!!! I'll nvr forge

the pain she endured & I told myself that I WILL NEVER

ALLOW something like that to happen to me EVER!!!!!!

Well the medical community has really come a long way

& hopefully I'll be able to find a solution for my

current problems .. Also, thank you for the info

regarding myo & I will look into it as soon as I find

the energy.. I had a horrible period a week 1/2 ago &

I'm still not 100%, I also had a tiring day yesterday

with my consult/mri (I only had an hour of lite sleep

the night before) so I'm still beat from everything...

I will look into Dr. Toaff & the others as well...

Thank you again for everything & I will keep the group

posted ... take care

--- FMnme@... wrote:

>

> In a message dated 3/21/00 6:42:47 PM US Mountain

> Standard Time,

> teri246@... writes:

>

> << ore research to do on adenomyosis, I feel like

> I'm

> back to square one in a sense & I'm becoming

> depressed

> again.. Has anyone out there had a successful UAE

> or

> FAS for adenomyosis??? Is there anything else I

> can

> do for this condition because I'd rather die (I'm

> not

> kidding here ) then undergo hysterectomy.... I'm so

> tired right now I feel like I'm going to pass out

> >>

> Toaff in Pa and also the HERS docs and DelJunco all

> do myo for adenomyosis.

> I am sure Carla will be able to tell you what is

> what with embo for it.

> I know how overwhelming this all is, but try not to

> sweat it. You are

> obviously very competent and you have good

> resources, you will find the right

> answer for you, it just takes time and effort, as I

> well know. I did better

> on stressful nights if I looked at it like " I am so

> lucky to be educated

> enough to search out alternatives to hyst....a few

> years ago it would have

> been straight to the O.R. and estrogen " . In the end

> it will be so worth it,

> I can attest to that as well.

>

> Oh, and also, I hate to say this, and maybe Carla

> can comment, but I have

> gotten conflicting results from ultrasound and MRI

> reports ..... I am told

> there are a number of reasons why this happens, hard

> to see, they just

> measure what they can, there is even a mentality out

> there, as one woman

> posted recently she was told by a radiologist (same

> happened to me) to have a

> hysterectomy...they are actually TAUGHT that after a

> certain size that is

> going to be the outcome, so I think they think once

> they see something that

> puts your uterus in that range, say one or two big

> ones, they get those

> measurements down 'cause they figure that will

> signal hyst to the doc, they

> think that is what the doc is looking for, and they

> don't measure the rest...

> I had a friend with me when an ultrasound was done

> and she said she saw what

> looked like a bunch of grapes in my solar plexus,

> but there was no mention of

> this on the report, only several large ones were

> listed.

>

> This inability to get an accurate report is one

> problem with the " we got in

> there and ________ so we had to do a hyst " ..... I

> don't like the uncertainty,

> so this is why I made sure I chose a doc who can

> handle ANY number of

> fibroids and ANY size without doing a hyst, that way

> they can't say " well you

> had more than we thought " or " you had this kind " or

> " it was in this

> location " .... and let me tell you wanting this kind

> of reassurance lets out

> 999 out of 1000 gyn's, in fact I could only find

> several in the whole country

> who could say they could " handle anything " .

>

> Getting back to my initial reason for posting to

> you, hang in there. I hope

> you tell us all what/when you decide.

> -Candace

>

>

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> Intro or 9.9% Fixed APR and no hidden fees. Apply

> NOW!

> http://click./1/937/5/_/4009/_/953703608/

>

> -- Create a poll/survey for your group!

> --

>

/vote?listname=uterinefibroids & m=1

>

>

__________________________________________________

[Guest guest]

Many thanks again Candace!!!! Do you have this woman's

e mail addy??? THis is very encouraging & I'd also

love to e mail her.

Teri

--- FMnme@... wrote:

>

> In a message dated 3/22/00 5:07:25 AM US Mountain

> Standard Time,

> cdionne@... writes:

>

> << at myomectomy (or FAS) to deal with your adeno,

> ask for patient names and

> numbers who underwent this over a year ago so that

> you can speak to them

> about their procedure and recovery today. >>

>

> I just remembered that the New York Times Article

> " She surfed to a second

> opinion " was about Dr. Toaff in Pa and a patient of

> his who avoided hyst, and

> she had

> adenomyosis. This was written about two years ago,

> I believe. I have

> emailed her and she is still pleased as punch.

> Hope that helps.

> -Candace

>

>

------------------------------------------------------------------------

> GET A NEXTCARD VISA, in 30 seconds! Get rates as

> low as 0.0%

> Intro or 9.9% Fixed APR and no hidden fees. Apply

> NOW!

> http://click./1/937/5/_/4009/_/953746894/

>

> -- Easily schedule meetings and events using the

> group calendar!

> --

>

/cal?listname=uterinefibroids & m=1

>

>

__________________________________________________

[Guest guest]

Correction, My mother can semi relate to my problems

as she was diagnosed with fibriods back then & had

pain with her periods only (no heavy bleeding like

myself) that's why she was persuaded to have a hyst..

Also, she very well might have had adenomyosis as well

as fibroids but I really don't think they understood

adeno or endo yrs ago.. It seems like they blamed

everything on fibroids??

Teri

--- Clifford wrote:

>

> Thank you so much for responding to my letter Carla,

> I

> LOVE this group & really think I'd be lost with out

> all of you wonderful, caring & compassionate

> ladies...

> I do have a very supportive husband & two wonderful

> sisters, a mother & several real girlfriends however

> they are all getting a little tired of my problems..

> I

> guess I can't blame them in a way as they can not

> relate to any of this because they haven't walked in

> my shoes. Most of the woman here have & are dealing

> with similar problems & can certainly relate &

> that's

> the beauty of our group.

>

> Dr. Forcade told me that he's done 94 UAE's already

> &

> about 14 of those patients also had adenomyosis..

> Out

> of those 14 women NONE have gone on to have

> hysterectomy's & they all had wonderful

> results... He showed me several MRI pic's from other

> woman & a few of them had larger fibriods & much

> worse

> adeno then I yet still did very well with the

> procedure :) .. I found all the info to be

> encouraging & I did ask him to call me with the

> names

> & #'s of some of the women who had the adeno so that

> I

> can talk to them myself etc.. I am going to gather

> as

> much info as I can on this subject & then I'll make

> a

> decision.. I am also interested in contacting Dr.

> Spies for another opinion, do you know his e

> mail addy off hand Carla? Also, I asked Dr. Kirsch

> for

> his input on adeno & UAE & he told me that his adeno

> patients have had about a 50% success rate depending

> on the case I guess (still better then nothing in my

> book & still beats the big H) I will also look into

> the FAS after I gather all info on UAE for adeno

> first.. Thank you again & I'll keep everyone

> posted..

>

> Teri Clifford

>

>

> --- Carla Dionne wrote:

> > Clifford wrote:

> >

> > > Hello everyone, I had my MRI & consult today up

> in

> > > NY..THe MRI reveled only one intramural fibriod

> on

> > the

> > > back wall of my uterus 5cm which greatly

> surprised

> > me

> > > because I was told by two other gyn's that I

> > probably

> > > had at least a dozen more tumors in my

> uterus...

> > The

> > > bad new is that I also have adenomyosis & my

> > uterus is

> > > enlarged to about a 10/12 wk pregnancy because

> of

> > this

> > > embedded tissue..My IR seems to also think that

> > the

> > > adenomyosis is responsible for my heavy periods

> &

> > > other symptoms & not the single fibriod.. He

> > still

> > > seems to think that I'm a good candidate for UAE

> &

> > > told me that he's already done quite a few women

> > > suffering with adenomyosis & they all have had

> > > wonderful results... I'm a little confused &

> don't

> > > really understand how UAE can help with

> > adenomyosis???

> >

> > Has to do with build up of blood flow due to the

> > adeno -- which UAE can

> > help. Dr. Forcade is one of the few IRs who has

> > been taking quite a few

> > patients with adenomyosis. I spoke to him last

> > month about " statistics " on

> > his website for clarification and learned that

> none

> > of his patients have

> > progressed to hysterectomy. None. Not sure if

> that

> > is still the case --

> > but he may have told you his current stats. He's

> > done well over 100 UAEs

> > and a pretty good number of them also had

> > adenomyosis. If you want a more

> > conservative opinion (more cautious approach in

> > regard to adenomyosis), I

> > would suggest you contact Dr. Spies at

> > town University and get

> > his take on UAE and adenomyosis. Honestly, I

> don't

> > know what he would say

> > today -- but do think if there was extreme caution

> > to take in this regard

> > that he would let you know. Also, you may want to

> > call Dr. Forcade back and

> > ask for patient referrals -- names and numbers of

> > women who went to him with

> > adenomyosis -- so that you can talk to them about

> > how they are today.

> >

> > > I've read that FAS can help with

> > > adenomyosis & that might be my only other

> > alternative,

> > > I just don't know now i think the fibroids would

> > have

> > > been easier to deal with alone & I would have

> had

> > more

> > > choices including myomectomy...

> >

> > With FAS, adenomyosis is excised--removed from the

> > uterus. There is no

> > literature on this and no peer review has occurred

> > (that I know of -- anyone

> > know of any?????) for this method of dealing with

> > adeno. This may be

> > because the standard approach is to do the hyst.

> > Again, if you are looking

> > at myomectomy (or FAS) to deal with your adeno,

> ask

> > for patient names and

> > numbers who underwent this over a year ago so that

> > you can speak to them

> > about their procedure and recovery today.

> >

> > Best wishes to you Theresa and hang in there.

> >

> > Carla Dionne

> > mailto:cdionne@...

> > http://www.uterinefibroids.com

> > /list/uterinefibroids

> >

> > " Never doubt that a small group of thoughtful

> > committed citizens can change

> > the world. Indeed it's the only thing that ever

> > has. " Margaret Mead

> >

> >

> >

> >

>

------------------------------------------------------------------------

> > GET A NEXTCARD VISA, in 30 seconds! Get rates as

> > low as 2.9%

> > Intro or 9.9% Fixed APR and no hidden fees. Apply

> > NOW!

> >

> http://click./1/936/5/_/4009/_/953726671/

> >

> > -- Create a poll/survey for your group!

> > --

> >

>

/vote?listname=uterinefibroids & m=1

> >

> >

>

> > ATTACHMENT part 2 application/x-pkcs7-signature

> name=smime.p7s

>

>

> __________________________________________________

>

[Guest guest]

" ... Now I have so much > more research to do on adenomyosis, I feel

like I'm

> back to square one in a sense & I'm becoming depressed

> again.. Has anyone out there had a successful UAE or

> FAS for adenomyosis??? Is there anything else I can

> do for this condition because I'd rather die (I'm not

> kidding here ) then undergo hysterectomy

Teri,

There are some blessings here - if you had just a regular ultrasound,

no MRI, you possibly may not have been aware of adeno, as I understand

it is harder to diagnose this way. Then, guess what? You may have gone

to have a regular myo, or UAE w/o realizing what the other problem was

and you would have been less-than-prepared for what the surgeon/IR

could do. This way you can do more research, maybe more exhaustive than

you anticipated, but still you have another chance to look into it.

As far as FAS, I didn't have adeno, but I did talk to former patients

who had my conditions while I was researching my options. Any doctor

who is trying to help people out ought to be able to give you some

names. But, again, each person is different so you have to use this

info as " inventory value " as my mom used to say whenever I was trying

to figure out a problem.

The most important thing here is to be persistent, it will pay off in

the end. Look at the bright side - it's not malignant, so it's

" fixable " . I know it's easier to give advice, but believe me, it took

me a year to " shoot straight " . Another issue is fertility, and I am not

sure how you feel about it right now. Probably all confused. Just try

to conserve your energy for what's important. We are here to help in

small ways - I personally made quite a few friends talking about

surgery of all things.

Good luck,

Mica

>

> __________________________________________________

>

[Guest guest]

Thanks a million again.. Yes, I am very lucky that I

had the MRI instead of just a plain ultrasound & from

what I understand there are some IR's who only do

ultrasound testing prior to UAE's & you're right my

situation would have been much worse without the

MRI...

I'll be 40 yrs old next week & I also feel extremely

fortunate to have already had 3 children All boys

8,12, & 16... I also had very easy pregnancies &

quick delivery's as well.. I had my first son in under

a hour the other's I also had very quick (under 2

hours) so I really feel lucky to have them especially

now...(hummmmm, maybe it's pay back time now)I have

heard many horror stories about women being in labor

for hours & hours & then having to have C sections

anyway, etc., etc., you name it I've heard it... I

also feel for the woman who are having problems with

fibroids, adeno, endo, etc. who don't have children &

probably never will because of their health conditions

.... When I really sit down & think of my health

problems yes, I'm hurt over all of this. yes! I want

to keep my uterus for many, many reasons however when

I think about the other woman who can't have their own

children & the hell they are going through I feel kind

of selfish in a way because I should be counting my

blessings instead of being so upset..Dr. Forcade told

me that he saw a 25 yr old woman a few months ago who

was suffering with a bad case of adeno, she was in

horrendous pain every single day of her life &

bleeding like crazy as well.. He offered her the UAE,

but she refused it & had a hyst instead!!! SHe told

him that she just wanted it out!!!! She was at the end

of her rope & the woman wasn't married & had no

children yet... THe more I discuss hyst & such with

different people the more horror stories I keep

hearing yet I still feel bad & probably shouldn't..

I will still continue to research my other options &

will do everything I possibly can to avoid the big H

however, If I can't find another solution & the

quality of my life continues to go down (including my

blood count:)) I will then probably have to make a

decision between Hyst or death? & I have plenty to

live for here.. I certainly hope everything works out

for me & believe me I'm a real fighter . I hope to

win this battle but I'm also a very reasonable woman &

realize that there's only so much I can do... I will

keep you all posted...

Teri

--- Mica wrote:

>

> " ... Now I have so much > more research to do on

> adenomyosis, I feel

> like I'm

> > back to square one in a sense & I'm becoming

> depressed

> > again.. Has anyone out there had a successful UAE

> or

> > FAS for adenomyosis??? Is there anything else I

> can

> > do for this condition because I'd rather die (I'm

> not

> > kidding here ) then undergo hysterectomy

>

> Teri,

>

> There are some blessings here - if you had just a

> regular ultrasound,

> no MRI, you possibly may not have been aware of

> adeno, as I understand

> it is harder to diagnose this way. Then, guess what?

> You may have gone

> to have a regular myo, or UAE w/o realizing what the

> other problem was

> and you would have been less-than-prepared for what

> the surgeon/IR

> could do. This way you can do more research, maybe

> more exhaustive than

> you anticipated, but still you have another chance

> to look into it.

>

> As far as FAS, I didn't have adeno, but I did talk

> to former patients

> who had my conditions while I was researching my

> options. Any doctor

> who is trying to help people out ought to be able to

> give you some

> names. But, again, each person is different so you

> have to use this

> info as " inventory value " as my mom used to say

> whenever I was trying

> to figure out a problem.

>

> The most important thing here is to be persistent,

> it will pay off in

> the end. Look at the bright side - it's not

> malignant, so it's

> " fixable " . I know it's easier to give advice, but

> believe me, it took

> me a year to " shoot straight " . Another issue is

> fertility, and I am not

> sure how you feel about it right now. Probably all

> confused. Just try

> to conserve your energy for what's important. We are

> here to help in

> small ways - I personally made quite a few friends

> talking about

> surgery of all things.

>

> Good luck,

>

> Mica

>

> >

> > __________________________________________________

> >