Guest guest Posted March 14, 2004 Report Share Posted March 14, 2004 On Sunday, March 14, 2004, at 08:20 PM, bandit5125 wrote: > Well I am new to this group so this has probably already been > discussed, but please bear with me!..lol.. > > Since we are here because we all have ra or know someone with ra, > > 1.what meds are you on? I am on Enbrel and Bextra. > 2.for how long? > I've been on Enbrel for a year the 22nd of this month, and on Bextra for a little longer. > 3.do you think it helps? > Enbrel works very well for me. It has helped the pain and inflammation tremendously, and helps the fatigue to some extent. I'm not sure how much the Bextra helps, but I'm taking it for my osteoarthritis. > 4. Do you have any other autoimmune disease? (such as lupus, or > thyroid or itp etc.) > No. > 5. Do you take anything other than prescription meds to help with > your ra? And what are they if yes? > > I take lots of vitamins, just hoping they'll help something. LOL > thank you for your participation! > You're welcome. Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2004 Report Share Posted March 15, 2004 > > Well I am new to this group so this has probably already been > > discussed, but please bear with me!..lol.. > > Since we are here because we all have ra or know someone with ra, 1.what meds are you on? I am on plaquenil and relafen. Used to take motrin. 2.for how long? I've been on the anti inflamatories for about 6 years now, and the plaquenil for 1 year. 3.do you think it helps? The meds have helped sofar, but I may have to go to stronger anti inflamatories. i'm meeting with my rheumatologist soon. 4. Do you have any other autoimmune disease? (such as lupus, or thyroid or itp etc.) I am hypothyroid. 5. Do you take anything other than prescription meds to help with your ra? And what are they if yes? I have lost about 38 pounds on the Atkins diet. That has really helped. The pain in my knee and foot joints has gone down quite a bit. I also take my vitamin suplements more or less faithfully. Lately, I have started on increasing the amount of ginger in my diet, and I may go to the powdered form. Time will tell if that helps. thank you for your participation! > > > You're welcome. Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2004 Report Share Posted March 15, 2004 In a message dated 3/15/04 6:16:31 AM Central Standard Time, writes: > Date: Mon, 15 Mar 2004 01:20:06 -0000 > From: " bandit5125 " <bandit5125@...> > Subject: ra and you > > Well I am new to this group so this has probably already been > discussed, but please bear with me!..lol.. > > Since we are here because we all have ra or know someone with ra, > > 1.what meds are you on? Enbrel, Methotrexate, Bextra, Prednisone, Leukovorin CA, Calcium/Vit D > 2.for how long? Enbrel about 4 months, Methotrexate 7 months, Bextra 2.5 yrs, Leukovorin CA 1 week, Cal/vit D 6 months, Prednisone off and on for 2.5 yrs > 3.do you think it helps? Enbrel helps with swelling but does nothing for fatigue or pain, Methotrexate does nothing but make me sick, Prednisone good for swelling and pain, though it makes me really evil and mean, Leukovorin CA helps with mouth and throat sores, vomiting and diarrhea from Methotrexate..Calcium/ Vit D, well aske me in twenty years if my I have bone density problems! LOL > 4. Do you have any other autoimmune disease? (such as lupus, or > thyroid or itp etc.) No..current having dry eyes investigated..could be Sojouns syndrome > 5. Do you take anything other than prescription meds to help with > your ra? And what are they if yes? Flexeril for sleep, Ultram for mild pain, Darvocet for more severe pain Multi-vit, evening primrose oil, Vitamin E > > thank you for your participation! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2004 Report Share Posted March 15, 2004 Bandit: Welcome to the group...I usually don't answer these type of questions because they are RA specific,but you did inquire about other autoimmune diseases, and this group is'nt just for RA, but lupus,fibro,and other autoimmune diseases even tho the majority have RA. I have scleroderma, but seeings how the joint problems are much like RA I use enbrel, 3 shots a week and have had great relief from it. I have been on it 2 years. I also tested positive recently anti- Ro, and originally they also thought lupus was going on, also hashimoto thyroid which they just diagnosed. Unfortunately there is no sure treatment so they treat each problem as it arises, which I feel is a great pain, because it causes you to be put on numerous meds in my case I poison myself with 18 different meds a day...I won't bore with the list;.]....thank you for letting me paticipate in your questions even tho I don't hqve RA...and once again welcome...Kathi in OK --- In , " bandit5125 " <bandit5125@y...> wrote: > Well I am new to this group so this has probably already been > discussed, but please bear with me!..lol.. > > Since we are here because we all have ra or know someone with ra, > > 1.what meds are you on? > 2.for how long? > 3.do you think it helps? > 4. Do you have any other autoimmune disease? (such as lupus, or > thyroid or itp etc.) > 5. Do you take anything other than prescription meds to help with > your ra? And what are they if yes? > > thank you for your participation! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2004 Report Share Posted March 16, 2004 In a message dated 14/03/2004 19:56:19 Central Standard Time, bandit5125@... writes: > > 1.what meds are you on? Zoloft, Remicade, Plaquenil, Ultracet > 2.for how long? Zoloft > 10 years, Remicade about 1.5 years I think, Plaquenil > 2 years, Ultracet intermittently for almost 1 year > > 3.do you think it helps? Yes...esp. the Remicade, Zoloft and Ultracet. Not sure how much the Plaquenil is doing at this point. > 4. Do you have any other autoimmune disease? (such as lupus, or Allergies/Asthma. > thyroid or itp etc.) > 5. Do you take anything other than prescription meds to help with > your ra? > > Sometimes. I take a mineral supplement, I take vitamins, ibuprofen at times > because it works better than Celebrex, sometimes I need something to sleep > also. And what are they if yes? > > Cary Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2004 Report Share Posted March 17, 2004 Bandit, you may want to check out this site: RemedyFind.com: http://remedyfind.com/index.asp " Remedyfind is an independent, unbiased site where individuals and healthcare professionals can rate the effectiveness of different treatments for specific health conditions. Our philosophy is that the everyday, real-life experiences of individuals are an invaluable and largely untapped health resource. " Brett Hodges is the founder of the site and is a member here, although he rarely posts. I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] ra and you > Well I am new to this group so this has probably already been > discussed, but please bear with me!..lol.. > > Since we are here because we all have ra or know someone with ra, > > 1.what meds are you on? > 2.for how long? > 3.do you think it helps? > 4. Do you have any other autoimmune disease? (such as lupus, or > thyroid or itp etc.) > 5. Do you take anything other than prescription meds to help with > your ra? And what are they if yes? > > thank you for your participation! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2004 Report Share Posted March 17, 2004 Thanks for that site, I found it vwery interesting to see that means other than prescription worked for such a large group! Thanks Again! > Bandit, you may want to check out this site: > > > RemedyFind.com: > http://remedyfind.com/index.asp > > " Remedyfind is an independent, unbiased site where individuals and > healthcare professionals can rate the effectiveness of different > treatments for specific health conditions. Our philosophy is that the > everyday, real-life experiences of individuals are an invaluable and > largely untapped health resource. " > > > Brett Hodges is the founder of the site and is a member here, although > he rarely posts. > > > > > I'll tell you where to go! > > Mayo Clinic in Rochester > http://www.mayoclinic.org/rochester > > s Hopkins Medicine > http://www.hopkinsmedicine.org > > > [ ] ra and you > > > > Well I am new to this group so this has probably already been > > discussed, but please bear with me!..lol.. > > > > Since we are here because we all have ra or know someone with ra, > > > > 1.what meds are you on? > > 2.for how long? > > 3.do you think it helps? > > 4. Do you have any other autoimmune disease? (such as lupus, or > > thyroid or itp etc.) > > 5. Do you take anything other than prescription meds to help with > > your ra? And what are they if yes? > > > > thank you for your participation! Quote Link to comment Share on other sites More sharing options...
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