Re: injections, liver enzymes, sun sensitivity

[Guest guest]

i sat in the sun about 1/h hr yesterday and got a really nasty headache. i

wonder if that was from mtx. kathy in il

[Guest guest]

mike nelson inchester19572004@...:

> i feel or you about the injections.

I am a fellow pincushion:

MTX weekly injections

Enbrel injections twice weekly

Forteo daily injections

weekly IVIG (subcutaneous) infusions.

(In this case I insert the four needles which are

then removed, leaving a tiny cannula- much like an IV.

This infusion of 130 ml runs for six hours with a pump

which I wear with the miles of tubing in a fanny pack.

> Tawny <tawnyokc@s... When I go on MTX my liver enzymes

> go high, so that is not for me.>

My liver tests went sky-high also but then the doc added

weekly Leukovorin pills and made a world of difference.

without that I wouldn't be safe to remain on the MTX.

> I also experienced terrible problems with sunburn when I

> was on MTX.

If I'm able to remain on MTX...If I continue to show some

improvement... this ought to be an interesting summer.

I avoid prolonged sun anyway but will be extra cautious.

I think my sunscreen is SPF 40 or something. I wonder how

effective it is after the expiration date. Anyone know?

I hate to have to purchase more since the one in my cupboard is so

large- and still nearly full.

Joanne

[Guest guest]

Joanne, I'm tired just reading your long list of injections. I hope they

are all helping you.

As for the sunscreen, even though there's a good chance it will still

work if it's been stored under the optimal conditions, I'm not sure it's

worth the risk of getting a bad burn. Here's an answer from the American

Academy of Dermatology:

" 5. Can I use the sunscreen I bought last summer, or do I need to

purchase a new bottle each year? Does it lose strength?

Unless indicated by an expiration date, the FDA requires that all

sunscreens be stable and at their original strength for at least three

years.

While you can use the sunscreen that you bought last summer, keep in

mind that if you are using the appropriate amount, a bottle of sunscreen

should not last you very long. Approximately one ounce of sunscreen,

enough to fill a shot glass, is considered the amount needed to cover

the exposed areas of the body properly. "

http://www.aad.org/SkinCancerNews/SafeSunTips/sunscreenfacts.html

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] Re: injections, liver enzymes, sun sensitivity

> mike nelson inchester19572004@...:

> > i feel or you about the injections.

>

> I am a fellow pincushion:

> MTX weekly injections

> Enbrel injections twice weekly

> Forteo daily injections

> weekly IVIG (subcutaneous) infusions.

> (In this case I insert the four needles which are

> then removed, leaving a tiny cannula- much like an IV.

> This infusion of 130 ml runs for six hours with a pump

> which I wear with the miles of tubing in a fanny pack.

>

>

> > Tawny <tawnyokc@s... When I go on MTX my liver enzymes

> > go high, so that is not for me.>

>

> My liver tests went sky-high also but then the doc added

> weekly Leukovorin pills and made a world of difference.

> without that I wouldn't be safe to remain on the MTX.

>

>

> > I also experienced terrible problems with sunburn when I

> > was on MTX.

>

> If I'm able to remain on MTX...If I continue to show some

> improvement... this ought to be an interesting summer.

> I avoid prolonged sun anyway but will be extra cautious.

> I think my sunscreen is SPF 40 or something. I wonder how

> effective it is after the expiration date. Anyone know?

> I hate to have to purchase more since the one in my cupboard is so

> large- and still nearly full.

>

> Joanne

[Guest guest]

Kathy,

You be careful out in the sun, it's not a good idea to be out in the

sun to much while taking the MTX, I found that out last summer, good

luck T

> i sat in the sun about 1/h hr yesterday and got a really nasty

headache. i

> wonder if that was from mtx. kathy in il

>

>

>

[Guest guest]

wht can you tell me what happened? did you get sunburned, sick? kathy in il

[Guest guest]

In a message dated 18/04/2004 07:56:27 Central Standard Time,

benmke@... writes:

> I am a fellow pincushion:

> MTX weekly injections

> Enbrel injections twice weekly

> Forteo daily injections

> weekly IVIG (subcutaneous) infusions.

> (In this case I insert the four needles which are

> then removed, leaving a tiny cannula- much like an IV.

> This infusion of 130 ml runs for six hours with a pump

> which I wear with the miles of tubing in a fanny pack.

>

>

Is this similar to the idea of the insulin pump some diabetics are on? It is

subq in the abdomen, with lots of tubing and the little pump. I've never

seen that type of thing used for anything other than insulin, but it sure makes

sense with all the injections you get! Cary

[Guest guest]

> Is this similar to the idea of the insulin pump some diabetics are

on? It is

> subq in the abdomen, with lots of tubing and the little pump. I've

never

> seen that type of thing used for anything other than insulin, but

it sure makes

> sense with all the injections you get! Cary

>

Yes, it's exactly the same pump as diabetics use, about the size of a

paperback. I infuse subcutaneously- two sites into each upper thigh

and two into both sides of my abdomen- all four running at the same

time. With use of the stopcocks, if one site stings or becomes

too " full " I can turn off that one to let it rest for a bit, then

turn back on after 10 minutes or so.

Joanne

[Guest guest]

In a message dated 20/04/2004 13:40:36 Central Standard Time,

benmke@... writes:

>

> Yes, it's exactly the same pump as diabetics use, about the size of a

> paperback. I infuse subcutaneously- two sites into each upper thigh

> and two into both sides of my abdomen- all four running at the same

> time. With use of the stopcocks, if one site stings or becomes

> too " full " I can turn off that one to let it rest for a bit, then

> turn back on after 10 minutes or so.

>

> Joanne

>

>

Thanks for the explanation, Joanne. That's a terrific alternative to all

those pokes! Cary