feeling depressed\questions(long)

[Guest guest]

Hi all,

I have a couple of questions that needs answers please.

Haydn had decompression surgery in Dec 98.

after the surgery many of his sympoms such as GERD,sleep apnoea,mood

swings,drowsiness and zone outs (possibly partial complex

seizures-awaiting dx for this)

either improved drastically or disappeared altogether.

Now they're all back.The hardest for me to deal with are the mood

swings.

His nsg never hinted at a recurrence of his symptoms and when I asked

the question I was told in effect that I wouldn't have anything to worry

about.Judging from the posts I read it's quite common for symptoms to

reappear.

Have the nsgs not made a connection or are they knowingly wiithholding

this info or what?

Also I'd like to know if anybody who has other diagnoses has this

problem with specialists.

Haydn has an NSG,a respiratory specialist,an opthalmologist,a

gastroenterologist,an ENT,a urologist,a paediatrician,an ortho and also

has a physical therapist an occupational therapist and a speech

therapist involved in his care.BUT none of them talk to each other so

his various problems often get treated as separate conditions rather

than linked ones.

It is known for instance that sleep apnoea is symptomatic of chiari and

that memory problems are symptomatic of ACC(another of Haydns

diagnoses)but nobody has ever

looked at this?

Any ideas please.I'm getting quite depressed about all this.

I'm just about fed up with fighting constantly to make people who should

already know aware of Haydn.

I'm sick of fighting every step of the way to get him what he needs and

I'm fed up with him having unnecessary tests and procedures simply

because the docs won't bend their stiff necks and talk to other

specialties and certainly won't listen to me.After all what do I

know,I'm just his mother.

Sorry for the venting.

I'd appreciate any advice anyone can give me.

Regards

Trish in New Zealand