Guest guest Posted September 30, 1999 Report Share Posted September 30, 1999 Re: NCC/Dudley > My daughter had previously been misdiagnosed with PSP until Chiari came > along. > Not meaning anyone personally, but do any of you ever wonder if the problem is YOURSELF? I have yet to be able to see someone about it thus my understandable wondering if I am just being a wimp and looking for any old excuse. Just wondering if anyone else has wondered this about themselves and not looking for sympathy. ;-} chows@... Australia Chow Addiction Society Founder and Lifetime Member #1 Are you OLD when you enjoy a good headbanger song with others over 40?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 1999 Report Share Posted September 30, 1999 Re: NCC/Dudley > My daughter had previously been misdiagnosed with PSP until Chiari came > along. > Not meaning anyone personally, but do any of you ever wonder if the problem is YOURSELF? I have yet to be able to see someone about it thus my understandable wondering if I am just being a wimp and looking for any old excuse. Just wondering if anyone else has wondered this about themselves and not looking for sympathy. ;-} chows@... Australia Chow Addiction Society Founder and Lifetime Member #1 Are you OLD when you enjoy a good headbanger song with others over 40?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 1999 Report Share Posted September 30, 1999 gregh wrote: > Not meaning anyone personally, but do any of you ever wonder if the problem > is YOURSELF? ... wondering if I am just being a wimp and looking for any old > excuse. Yeah, i've wondered off & on. Like today; I came home from work early even tho i had an important meeting with fellow employees. I have had a KILLER headache since yesterday afternoon, didn't sleep last nite, am becoming more & more nauseous & now am having trouble breathing. Was i a wimp for coming home??? i dunno. Could i have 'stood' it long enuff to have the meeting...maybe, but since most of the content & discussion in the meeting would have been my responsibility i thought i would probably be wasting everyone else's time because i could NOT function very effectively like this. I've already had one doc try to tell me that i have 'conversion disorder' ( a hysterical neurosis in which the patient actually feels symptoms, but there is no medical cause & patient just has deep seated emotional probs). I didn't believe him & i don't believe i'm being a wimp. i've done a lot of physical stuff in my life & have pushed through pain & illness to get done what needed to be done. I KNOW myself. This ain't wimping. Maybe i could push myself harder sometimes, but i tried to keep right on going at my original pace for the first year with this thing and just ended up dramatically worse. Now i try to pace myself & pick the things i'm going to expend extra on. This thing doesn't give you a lot of choices (my thing is not dx'd as chiari...yet...but i do have a rare chronic disorder). Someone here has said 'keep trying to find an answer & listen to your body.' It's excellent advice. June in CA dx of POTS, myelopathy, peripheral neuropathy; shaky credentials to be here; going to plan b++ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 1999 Report Share Posted September 30, 1999 Hey yall, This is something I had to fight and decide three years ago. Well, I fought it for a whole year ... and that last year, well, I'm only here because of God's grace. I often wonder had I stopped the fight sooner would I not have gotten as severe as I have. I think this is probably a subject that most every adult member has had to face on this list. Many of us, having sought years for dx, may have been psychologically referred. Strangely, I only had one doc refer me to some type of psychological something (can't remember the name) ... and he was the last neurologist I saw--the head of Neurology at a university hospital who didn't dx one thing in the neurological field. Still very strange how only a year later with the same symptoms that Dr. Rosner had more than one p h y s i c a l finding ... of course, we k n o w what we feel and know what is physical. I think some of us, especially if we have the fatigue problem, might find a bit of strength on one day ... but then it takes a week to recover if we spend that bit of strength. That may make the decision harder for us ... Oh, well, I'm rambling again ... but basically I think once we find diagnosis it erases any doubts that we may have had over the " reality " of our illnesses. I know without a doubt that by my acceptance of the " new chapter " in my life saved someone else's ... just by my driving cessation. I was so very blessed to have made it to the point I did without harming someone. Looking back, I should have stopped at least a year sooner--if not all the way back several years. Oh, well ... that's all in the past ... Stopping before everyone is asleep on the list ... but just to say you may being going through that transitional stage ... one day you will arrive at knowledge of knowing you did the right thing--the only thing available to us when we know what time it is in our lives. Blessings to all, JC > Re: NCC/Dudley > > > > > gregh wrote: > > > Not meaning anyone personally, but do any of you ever wonder if > the problem > > is YOURSELF? ... wondering if I am just being a wimp and > looking for any old > > excuse. > > Yeah, i've wondered off & on. Like today; I came home from work > early even tho i > had an important meeting with fellow employees. I have had a > KILLER headache > since yesterday afternoon, didn't sleep last nite, am becoming more & more > nauseous & now am having trouble breathing. > > Was i a wimp for coming home??? i dunno. Could i have 'stood' it > long enuff to > have the meeting...maybe, but since most of the content & > discussion in the > meeting would have been my responsibility i thought i would > probably be wasting > everyone else's time because i could NOT function very > effectively like this. > > I've already had one doc try to tell me that i have 'conversion > disorder' ( a > hysterical neurosis in which the patient actually feels symptoms, > but there is > no medical cause & patient just has deep seated emotional probs). I didn't > believe him & i don't believe i'm being a wimp. > > i've done a lot of physical stuff in my life & have pushed through pain & > illness to get done what needed to be done. I KNOW myself. This > ain't wimping. > Maybe i could push myself harder sometimes, but i tried to keep > right on going > at my original pace for the first year with this thing and just ended up > dramatically worse. > > Now i try to pace myself & pick the things i'm going to expend > extra on. This > thing doesn't give you a lot of choices (my thing is not dx'd as > chiari...yet...but i do have a rare chronic disorder). > > Someone here has said 'keep trying to find an answer & listen to > your body.' > It's excellent advice. > > June in CA > dx of POTS, myelopathy, peripheral neuropathy; shaky credentials > to be here; > going to plan b++ > > > ------------------------------------------------------------------------ > WACMA Site: http://www.pressenter.com/~wacma > Your Personal support group member page: > http://www.eGroups.com/group/chiari/ > **Avoid List Congestion: > > Unsubscribe from this list: mailto:chiari-unsubscribeegroups > Contact list mgmt: mailto:chiari-owneregroups > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 1999 Report Share Posted September 30, 1999 Hey yall, This is something I had to fight and decide three years ago. Well, I fought it for a whole year ... and that last year, well, I'm only here because of God's grace. I often wonder had I stopped the fight sooner would I not have gotten as severe as I have. I think this is probably a subject that most every adult member has had to face on this list. Many of us, having sought years for dx, may have been psychologically referred. Strangely, I only had one doc refer me to some type of psychological something (can't remember the name) ... and he was the last neurologist I saw--the head of Neurology at a university hospital who didn't dx one thing in the neurological field. Still very strange how only a year later with the same symptoms that Dr. Rosner had more than one p h y s i c a l finding ... of course, we k n o w what we feel and know what is physical. I think some of us, especially if we have the fatigue problem, might find a bit of strength on one day ... but then it takes a week to recover if we spend that bit of strength. That may make the decision harder for us ... Oh, well, I'm rambling again ... but basically I think once we find diagnosis it erases any doubts that we may have had over the " reality " of our illnesses. I know without a doubt that by my acceptance of the " new chapter " in my life saved someone else's ... just by my driving cessation. I was so very blessed to have made it to the point I did without harming someone. Looking back, I should have stopped at least a year sooner--if not all the way back several years. Oh, well ... that's all in the past ... Stopping before everyone is asleep on the list ... but just to say you may being going through that transitional stage ... one day you will arrive at knowledge of knowing you did the right thing--the only thing available to us when we know what time it is in our lives. Blessings to all, JC > Re: NCC/Dudley > > > > > gregh wrote: > > > Not meaning anyone personally, but do any of you ever wonder if > the problem > > is YOURSELF? ... wondering if I am just being a wimp and > looking for any old > > excuse. > > Yeah, i've wondered off & on. Like today; I came home from work > early even tho i > had an important meeting with fellow employees. I have had a > KILLER headache > since yesterday afternoon, didn't sleep last nite, am becoming more & more > nauseous & now am having trouble breathing. > > Was i a wimp for coming home??? i dunno. Could i have 'stood' it > long enuff to > have the meeting...maybe, but since most of the content & > discussion in the > meeting would have been my responsibility i thought i would > probably be wasting > everyone else's time because i could NOT function very > effectively like this. > > I've already had one doc try to tell me that i have 'conversion > disorder' ( a > hysterical neurosis in which the patient actually feels symptoms, > but there is > no medical cause & patient just has deep seated emotional probs). I didn't > believe him & i don't believe i'm being a wimp. > > i've done a lot of physical stuff in my life & have pushed through pain & > illness to get done what needed to be done. I KNOW myself. This > ain't wimping. > Maybe i could push myself harder sometimes, but i tried to keep > right on going > at my original pace for the first year with this thing and just ended up > dramatically worse. > > Now i try to pace myself & pick the things i'm going to expend > extra on. This > thing doesn't give you a lot of choices (my thing is not dx'd as > chiari...yet...but i do have a rare chronic disorder). > > Someone here has said 'keep trying to find an answer & listen to > your body.' > It's excellent advice. > > June in CA > dx of POTS, myelopathy, peripheral neuropathy; shaky credentials > to be here; > going to plan b++ > > > ------------------------------------------------------------------------ > WACMA Site: http://www.pressenter.com/~wacma > Your Personal support group member page: > http://www.eGroups.com/group/chiari/ > **Avoid List Congestion: > > Unsubscribe from this list: mailto:chiari-unsubscribeegroups > Contact list mgmt: mailto:chiari-owneregroups > > Quote Link to comment Share on other sites More sharing options...
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