Guest guest Posted April 16, 2004 Report Share Posted April 16, 2004 Good luck, Judi! Why is it that the surface tumors would be the last to shrink? Two other people with Dercum's disease in your town! What is the population of your town? Where have the other two lived and do they have anything else in common with you? I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] a--chemo > Hi a, > > Folding chairs? Yeah, I hope you get your " real " furniture soon! I > will be taking 3 MU of alpha Interferon 3 times a week for 6 months. > They said it is the lowest dose, but that I would probably feel > pretty cruddy for awhile. The worst is that I have to stop all my > other meds because I won't know if it's having any effect on the deep > tumors. The surface tumors may be the last to shrink (if it works) > so I have been weaning off the Topamax the last 2 weeks and that is > pretty miserable, plus growing thru another growth spurt and popping > up these little (and not so little) boogers like mad. Yes, I hope > this works too, because I hate to imagine all the other people out > there like me. Now there are 3 of us in this little town, and > itmakes me think that it isn't as rare as we are led to believe. > > They said I would most likely lose my hair even at that dosage, and > Ron said he would see what life is like with a blond; I said no I > would see things from his perspective, life as a baldie! No wigs for > me in the summer, I'll just take a nice cool hat thank you, or paint > curls on my head with a marker. TJ will love it! > > Take care, and don't overstress yourself, > > Judi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2004 Report Share Posted April 16, 2004 > Good luck, Judi! Why is it that the surface tumors would be the last to > shrink? Beats me, that is just what the doc told me, ostensibly because they grow from the inside out? Who knows with this dumb disease! > > Two other people with Dercum's disease in your town! What is the > population of your town? Where have the other two lived and do they have anything else in common with you? Pop. of the town is only about 14,000. The other 2 are born and raised here; one owns the local mirror & glass company and we bought our first house from him, the other is a teacher and I had never met her before--she read my story in the paper. The man is about my age, the lady is 35. Go figure. Judi > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2004 Report Share Posted April 18, 2004 Judi, I hope the treatment works for you. You¹ll be in my prayers my friend. a Quote Link to comment Share on other sites More sharing options...
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