Guest guest Posted April 6, 2004 Report Share Posted April 6, 2004 LouAnn, why did he want to test you for lupus? Do you have lupus symptoms? What tests did he do? In the absence of an overlap syndrome, the true concurrence of lupus and RA is rare. I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] lupus and ra > Well went ot the dr.s today, he wanted me tested for Lupus, ok now > what! so I have been tested, guess I should know in a fe wdays, I > really don't want yet another autoimmune disorder!!! any info is > greatly appreciated! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2004 Report Share Posted April 7, 2004 Well from what he says I have 3 of the criteria for it. I have ra, itp and thyroid disease. Which make it so I have well over 4 of the 11 symptoms for lupus. I think he is just being cautious, and wants to eliminate some stuff. so I have been trying to read up on it. They did labs for it yesterday, so I guess I should know in a few days. I am so hoping it comes back negative! > LouAnn, why did he want to test you for lupus? Do you have lupus > symptoms? What tests did he do? > > In the absence of an overlap syndrome, the true concurrence of lupus and > RA is rare. > > > > > I'll tell you where to go! > > Mayo Clinic in Rochester > http://www.mayoclinic.org/rochester > > s Hopkins Medicine > http://www.hopkinsmedicine.org > > > [ ] lupus and ra > > > > Well went ot the dr.s today, he wanted me tested for Lupus, ok now > > what! so I have been tested, guess I should know in a fe wdays, I > > really don't want yet another autoimmune disorder!!! any info is > > greatly appreciated! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2004 Report Share Posted April 7, 2004 I really don't know exacally what tests he ordered, on my slip it does say ana,(if positive provide), tsh, crp, and of course the rf. It is a very confusing disease, because I have a lot of the " symptoms " yet I think its ra symptoms that just happen to be the same as lupus symptoms..lol..so I guess my next question is, so it comes back positive, then what? another course of drugs, no thanks! I am getting by pretty good right now on the vitamins and suppliments I am on and more than willing ot try more of those, but would prefer to have no more drugs! guess I need a few good sites for lupus to check out..lol..has anyone tried the Dhea nutrient?Its supposed to reduce fatigue and improve memory dificulties. -- In , " " <Matsumura_Clan@m...> wrote: > LouAnn, > > You didn't say what test(s) he ordered, but, if your doctor is testing > for ANA, even if it's positive, it wouldn't necessarily mean that you > have lupus. Somewhere around 30% of RA patients (and maybe more) are > ANA-positive. 10% of seemingly healthy people are, too. People with > other rheumatic diseases are also often ANA-positive. Antinuclear > antibodies (ANA) are not specific to lupus. > > In addition, the lupus criteria are, strictly speaking, supposed to be > used for classification, not diagnosis. That is, they were devised to > help researchers and physicians decide which people qualify for studies > involving those with lupus. > > Here's the catch - in the " real world, " one may fulfill the criteria and > not have the disease. It is also possible to not fulfill the criteria > yet actually have the disease. As you can imagine, this is great source > of confusion and debate for both physicians and patients. > > > > > I'll tell you where to go! > > Mayo Clinic in Rochester > http://www.mayoclinic.org/rochester > > s Hopkins Medicine > http://www.hopkinsmedicine.org > > > [ ] Re: lupus and ra > > > > Well from what he says I have 3 of the criteria for it. I have ra, > > itp and thyroid disease. Which make it so I have well over 4 of the > > 11 symptoms for lupus. I think he is just being cautious, and wants > > to eliminate some stuff. so I have been trying to read up on it. > > They did labs for it yesterday, so I guess I should know in a few > > days. I am so hoping it comes back negative! > > > > > > > > > LouAnn, why did he want to test you for lupus? Do you have lupus > > > symptoms? What tests did he do? > > > > > > In the absence of an overlap syndrome, the true concurrence of > > lupus and > > > RA is rare. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2004 Report Share Posted April 7, 2004 I kinda figured that, so I am not too excited over that. most all the symptoms I have are from the ra, so I really don't think it will be positive, and like you said it could be a false positive anyway, because of the overlapping..lol..I will let you know what they say. But thanks for the info! its greatly appreciated! And I am passing it on to some of my itp buddies that have been diagnosed with lupus. > > > LouAnn, > > > > > > You didn't say what test(s) he ordered, but, if your doctor is > > testing > > > for ANA, even if it's positive, it wouldn't necessarily mean that > > you > > > have lupus. Somewhere around 30% of RA patients (and maybe more) > > are > > > ANA-positive. 10% of seemingly healthy people are, too. People with > > > other rheumatic diseases are also often ANA-positive. Antinuclear > > > antibodies (ANA) are not specific to lupus. > > > > > > In addition, the lupus criteria are, strictly speaking, supposed > > to be > > > used for classification, not diagnosis. That is, they were devised > > to > > > help researchers and physicians decide which people qualify for > > studies > > > involving those with lupus. > > > > > > Here's the catch - in the " real world, " one may fulfill the > > criteria and > > > not have the disease. It is also possible to not fulfill the > > criteria > > > yet actually have the disease. As you can imagine, this is great > > source > > > of confusion and debate for both physicians and patients. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2004 Report Share Posted April 8, 2004 Nothing can be easy huh? false positive, positive negative, yikes!!!! lol...guess I don;t know what the point is of taking the test then cause it really doesn't tell you much either way..lol... > > > No, LouAnn, what I'm trying to convey to you is that, if the ANA > > comes > > > back positive, that doesn't prove that you have lupus. More > > specific > > > testing and further critical thinking by your rheumatologist would > > have > > > to be done before you could reach that conclusion. > > > > > > Many of the symptoms (and labs) do overlap. That's another big > > reason > > > for the confusion. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2006 Report Share Posted August 18, 2006 You most definitely can have Lupus and test negative. Mine did not show for quite a while and then bang, everything showed up at once!! Patsy (63) AZ DX 2005 Stage 1 PBC AIH/SLE/RA Quote Link to comment Share on other sites More sharing options...
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