Guest guest Posted April 27, 2004 Report Share Posted April 27, 2004 I'd like to hear people's experiences of starting oral MTX--I will be next week. How much did you start with and how did it go? Anyone have the experience of starting at a certain dose and needing to lower it for awhile? Any med. I've ever been on seems like " too much " . Thanks! Sierra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2004 Report Share Posted April 29, 2004 Good luck, Sierra! How much MTX will you be taking? 7.5 mg per week is a common starting point. I hope you're going to be taking folic acid, too. I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] Starting methotrexate > I'd like to hear people's experiences of starting oral MTX--I will be > next week. How much did you start with and how did it go? Anyone have > the experience of starting at a certain dose and needing to lower it > for awhile? Any med. I've ever been on seems like " too much " . > > Thanks! > > Sierra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2005 Report Share Posted September 4, 2005 Hi susan, I think we are all a little different but my fatigue was bad the day after I took the MTX and less so the rest of the week. Folic acid supplements helped some. Has your doc prescribed them? If it were me I'd start it on a day when you don't have to worry about working the next day until you see how your body reacts to it. good luck! best wishes, Marti > Hi, anyone and everyone who will listen. PA is a new diagnosis for > me. I've had psoriasis,(which is very mild psoriasis) for over 20 > years. Have the flair ups when I'm stressed or in the winter. Just > started having the arthritis symptoms over the past year or so. I saw > a new dermatologist this week and she prescribed MTX. I am not having > alot of pain or have the sausage fingers etc, but want to stop the > disease progresion. The side effects of this medication is very > scary. I just don't know what to do. My insurance will not cover > Enbrel, at this time. I'm a registered nurse, so I am very active and > on my feet 4-5 days a week. I'm not sure how long the fatigue will > last or when you start feeling the fatigue. Does it last for hours or > days?? I need to start this medication either today or next weekend. > My shift starts at 5:00 tomorrow morning, which means I need to get up > at 3:00 am. Will I be able to function if I take it today?? I am > trying to get in touch with my brother who is a pharmacist, to ask him > questions about MTX, but he hasn't returned my call. If anyone out > there, has any suggestions, or positive experiences with MTX, please > write back. Thanks, and God Bless You!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2005 Report Share Posted September 4, 2005 If you are taking MTX make sure you take folic acid. I couldn't take MTX. I tried the pills and then the injections. It made me sick as a dog whew I couldn't function at all. Most people don't have such a severe reaction but it is nasty stuff. It did, however, force my insurance provider to cover Enbrel. I had the same experience as you. I had mild P for 20 years until the PA manifested in my hands starting as yours has. Enbrel has been a miracle for me. You might consider telling your RD that you can't take MTX and have him send a letter to your IP demanding Enbrel. If he won't try someone else. Enbrel could reverse your disease and maybe put you in remission. Especially if you are newly diagnosed. I believe Enbrel should be the first line treatment, not the last. If I had gone on it immediately I am sure I could have avoided the permanent joint damage in my fingers. Above all I would advise you not to allow them to inject cortisone in your fingers. [ ] Starting methotrexate Hi, anyone and everyone who will listen. PA is a new diagnosis for me. I've had psoriasis,(which is very mild psoriasis) for over 20 years. Have the flair ups when I'm stressed or in the winter. Just started having the arthritis symptoms over the past year or so. I saw a new dermatologist this week and she prescribed MTX. I am not having alot of pain or have the sausage fingers etc, but want to stop the disease progresion. The side effects of this medication is very scary. I just don't know what to do. My insurance will not cover Enbrel, at this time. I'm a registered nurse, so I am very active and on my feet 4-5 days a week. I'm not sure how long the fatigue will last or when you start feeling the fatigue. Does it last for hours or days?? I need to start this medication either today or next weekend. My shift starts at 5:00 tomorrow morning, which means I need to get up at 3:00 am. Will I be able to function if I take it today?? I am trying to get in touch with my brother who is a pharmacist, to ask him questions about MTX, but he hasn't returned my call. If anyone out there, has any suggestions, or positive experiences with MTX, please write back. Thanks, and God Bless You!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2005 Report Share Posted September 5, 2005 During my first few weeks on methotrexate, the day after the dose was difficult -- extreme fatigue and nausea. I described it as " the hangover without the party " . During this time, I would have energy spikes and valleys every couple of hours for days. Eventually, we increased my dose of folic acid and B vitamins, and things settled down. I'd be fatigued the day after, but fairly normal the rest of the week. I've been on on 15 mg of MTX for over a year now, and the day-after symptoms are hardly noticeable. Good luck! - ===================================================== Stein http://www.noblefusion.com/astein http://www.livejournal.com/users/astein142/ http://darkart42.deviantart.com/ ----------------------------------------------------- " Do or do not. There is no try. " - Yoda ----------------------------------------------------- " If you're tired of fighting battles with yourself If you want to be somebody else, change your mind... " -- Sister Hazel ===================================================== ______________________________________________________ Click here to donate to the Hurricane Katrina relief effort. http://store./redcross-donate3/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2005 Report Share Posted September 10, 2005 hiya ive been on meth for a few months now and just recently had my injection increased to 15mg ,,,could anyone tell me if headaches are a side effect ,,,ive been fine until they increased my dose and have had a constant headache since ive also had what i can only discribe as tired eyes ive never felt anything like this before my bloods are all normal and i take folic acid every day execpt the day i get my injection,hope someone can shed some light on what im feeling thanks kelly x ______________________________________________________ Click here to donate to the Hurricane Katrina relief effort. http://store./redcross-donate3/ Quote Link to comment Share on other sites More sharing options...
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