a.....

[Guest guest]

Hi a....

We have never camped at their campground but it is beautiful! We took a

tour on our own last time we were down. I would LOVE to camp there but its

such a long ride for us.

We love to go camping. We recently got a seasonla site at our favorite

campground near home. We set up last weekend and plan to go out this

weekend...even if just for the fishing derby

My girls 10 and almost 15 like camping too. They like to make Smores..and

Mountain PIes--do you know what they are? They are fun to make...usually we

do the pizza ones

We also have a boat! We are looking to get a raft or tube type thing to tow

behind it--we are not into water skiing....lol Probably break our necks.

So towing behind is the next best thing

We are looking forward to some SUMMER weather. Its been a miserable year as

far as rain and damp weather.

We are doing Disney Dec 23-Jan 2 this year. Cant wait! They have always

been very accomodating of us and his scooter.

I am involved in the Relay For Life Committee with our local cancer

telethon. I started volunteering to answer phones and one thing led to

another. Now I got my daycare parents to form a team with me. So we are

off to that adventure! The relay theme is 'relay goes to the races' and my

daycare name is Magical Moments so we decided on 'magical moments in the

fast lane' lol Its true if you think deeply---those moments are FAST!

Ya know we just did a 4 mile walk for MS. I talked Joe into doing this

since MS is an auto immune disorder too, like RA only MS is muscles..RA is

joints. If we find a cure for one--we may be able to conquer the other

We walked as part of our local GIANT team (GIANT is a grocery store we shop

at). We went thru Hershey parks Zoo america and thru the town of Hershey.

Have you heard of Hershey Park?

It makes you feel so good by giving your time to help others in need. I

really enjoy getting involved, but I will also know when to say NO---lol

You take it easy a.....Happy MOving. We may be doing the same if the

loan goes thru on the house we have an offer in on. Being self employed has

its drawbacks let me tell ya! Hard to prove income and hard to say the

deductions I can take as a biz in my home are what normal people would have

anyway and NOT be able to deduct. Argh----very hard unless you show a big

profit then have to pay the IRS....lol Such is life I guess. Well, catch

ya later

Re: [ ]

,

I hope Joe is feeling better. It¹s tough to be on Enbrel and have to stop

when we get sick,

but it isn¹t worth the risk to continue it.

We all hate this disease. It robs us of so many basic pleasures in life.

It¹s good that Joe¹s doctor isn¹t considering surgery on his carpel tunnel.

I have to agree with the ortho.

We moved to the southwestern part of Florida. We¹re a few hours from

Disney.

Getting a scooter is the only way to see Disney without being in agony.

They are very considerate of people in wheelchairs and scooters. Have you

ever camped in their campsites?

They are fabulous. We sold our camper before we moved but are looking

forward to getting another one.

We love camping and have a whole new area to explore.

The only plans we have are to get our new house the way we want it, go to

the beach and go boating.

How about you and Joe?

a

>

>

> Hi a.....

> I just think its neat that when one of our members are down--we are all

down

> The care and compassion of this group is like no other. I am so happy

I

> found this group!

>

> As for me and Joe.....Joe has had a terrible bout with a chest/head cold.

> He is now on his 2nd antibiotic. The first one did OK for a few days then

> seemed to stop working so the DR switched him, but this seems to be doing

> the same. He says he gets so far in feeling better, then thats it. He

had

> a CBC and a chest Xray and all came back OK but he is really feeling

> terrible still.

>

> On top of all that...he takes Enbrel, Metho as part of his main *cocktail*

> (takes the celebrex, folic acid...etc too) and when he is sick he has to

> stop that...then he is so sore. So he was weened off his prednisone but

> opted to take it again at least now to help with the swelling. He hated

to

> resort to that but he said he couldnt stand it anymore. He seems to be

> tired alot more then usual the past 2 months. He was so sore last weekend

> he said 'i hate this disease'......I didnt know how to respond to that or

> what to say

>

> Did I tell you about the carpal tunnel.....well his hands were falling

> asleep, numb..etc. He went to an Ortho dr who we really like and he

> suggested physical therapy and surgery as a very last resort. He said

> unless the muscles in his hands are atrophying he feels we should try the

PT

> cuz suregery on a patient w/ RA usually dont give good results and/or only

> aggitates the RA. He said a patient w/ RA is not a candidate for the

lazer

> type surgery becuz of the way they need to get in there and see and w/ all

> the swelling its just something he cant see w/ a scope.

>

> He just got a new CPAP machine for his sleep apnea. This one has a

> humigifier...he's in heaven! He used to have nose bleeds all the time but

> his old machine was about 8 years old so it was time for a new one.

>

> Besides that....we are looking forward to the camping season...he has been

> itching to go

> Hopefully that will help take some of his mind off the RA. He used to do

> remodleing on our home but he just cant anymore and I have a hard time

> getting that to sink into him. His hands hurt so bad after a small job.

I

> would rather hire someone to drywall...etc then have him in agony. I

guess

> its something he dont wanna admit to tho. Its just not worth the pain and

> aggrevation when we can easily find someone to do it.

>

> But enuff about us---how have you been? What part of FL are you from? We

> go to Disney every year for Christmas. We are Disney addicts. I rent Joe

a

> scooter from an outside company while we are there. (Of course he fought

> about that at first and didnt want it thinking what were people gonna say

> about him sicne on the outside he looks fine). Who cares what people say!

>

> Do you have any plans for the summer? I got long winded here..opps. Well

> you have a good weekend a!

>

> Hugs and Prayers...

> and Joe in PA