Re: Tawny....

April 28, 2004

Hang in there, i know how the waiting game is. A couple years back they thought

that I had lymphoma, and so they had to do a biopsy and that waiting game was

difficult. But, luckily for me it was only a severe case of mono. But i know how

you feel when you look around at those doing things and you wish that you too

could do them. I know this isn't any different, but i think that me being 22 is

difficult b/c I sill want to play like I am 12. But, I can't. But all I can say

is " hang in there " and whatever comes of it, just rememeber that the people that

suffer from diseases and other issues are the stongest people out there. (My

friend Lauryn told me that, and I believe it.)We know how to deal with a bad

situation and we try to make things better for ourselves no matter what. As

usual keep us posted and I will keep you posted on my doctors appointment today.

Try to have a good day.

Jillian

Tawny <tawnyokc@...> wrote:

Hey everyone, Just checking in to let you know haven't heard anything

on the lab work yet. I am getting a little anxious, trying to keep

myself from worrying, but you know how that is. I am also waiting on

the mammogram appointment, will try to find out something tomorrow.

I am in some terrible pain right now. I am having problems walking,

so I am beside myself right now. I just want to be normal, I just

have to get it through my thick skull, I'm not. It's hard sometimes,

you look around everyone is having a good time, and then here you

are. Does it ever get any better, I ask myself all the time.

I will keep you posted my friends, Tawny

April 28, 2004

Jillian,

Thanks for your understanding, the waiting game is the toughest I do

believe. I'm glad that your biopsy came out alright, I pray mine will

be too.

Yes, we just do the best we can, and keep going. I am sure at your

age it's real tough, but your strong, and with friends like Lauryn

you will be fine. I wish there were more people like, " Lauryn. "

I will keep you posted, do the same on your doc's visit, hugs Tawny

> Hey everyone, Just checking in to let you know haven't heard

anything

> on the lab work yet. I am getting a little anxious, trying to keep

> myself from worrying, but you know how that is. I am also waiting

on

> the mammogram appointment, will try to find out something tomorrow.

> I am in some terrible pain right now. I am having problems

walking,

> so I am beside myself right now. I just want to be normal, I just

> have to get it through my thick skull, I'm not. It's hard

sometimes,

> you look around everyone is having a good time, and then here you

> are. Does it ever get any better, I ask myself all the time.

> I will keep you posted my friends, Tawny

>

April 28, 2004

Tawny~

Well I have returned from the wonderful 3 hour visit at the doctors office. We

pretty much talked about how agressivly we want to treat my RA and the things

that he is thinking about putting me on. We are thinking that we might go with a

low dose txt of methotrexate (which i really don't want to go on) and continue

the Enbrel. I guess, being 22 and at the age in my life where i am thinking

about having kids, this all has to be put on hold so that I can get better. I

know that its the best, but at the same time I am so scared.

Not just the fact that we talked about my RA, but the Rheumatologist might also

think that I have a thyroid problem. Nice, ehh!? If i am going to go down, I

might as well go down with it all. But, I cannot stop my life now, I have to

keep going and wish for the best. I am still wishing the best of luck for you.

Have agood night.

Jillian

Tawny <tawnyokc@...> wrote:

Jillian,

Thanks for your understanding, the waiting game is the toughest I do

believe. I'm glad that your biopsy came out alright, I pray mine will

be too.

Yes, we just do the best we can, and keep going. I am sure at your

age it's real tough, but your strong, and with friends like Lauryn

you will be fine. I wish there were more people like, " Lauryn. "

I will keep you posted, do the same on your doc's visit, hugs Tawny

> Hey everyone, Just checking in to let you know haven't heard

anything

> on the lab work yet. I am getting a little anxious, trying to keep

> myself from worrying, but you know how that is. I am also waiting

on

> the mammogram appointment, will try to find out something tomorrow.

> I am in some terrible pain right now. I am having problems

walking,

> so I am beside myself right now. I just want to be normal, I just

> have to get it through my thick skull, I'm not. It's hard

sometimes,

> you look around everyone is having a good time, and then here you

> are. Does it ever get any better, I ask myself all the time.

> I will keep you posted my friends, Tawny

>

April 28, 2004

Jillian,

I know how that doctor's visit can turn into a whole day it seems. A

low dose of MTX shouldn't be to bad, I know just thinking of it is

enough to make you sick. The Enbrel and MTX combo, probably works

better together. You got to be able to go on with your life the best

way you can, and if it's taking this med, you got to Jillian.

I know a young lady who has RA, and is going to have a baby in May.

She stopped her meds while pregnant, and she has been doing great.

So, when you get ready for that step in your life, it will be

alright, just keep following your dream.

I am sorry to hear you might have a thyroid problem. Did they run

some tests, let me know? Your so young, and you have a whole life

ahead of you dear. At least your getting control of this RA thing at

a young age, I will keep you in my prayers, Tawny

> > Hey everyone, Just checking in to let you know haven't heard

> anything

> > on the lab work yet. I am getting a little anxious, trying to

keep

> > myself from worrying, but you know how that is. I am also

waiting

> on

> > the mammogram appointment, will try to find out something

tomorrow.

> > I am in some terrible pain right now. I am having problems

> walking,

> > so I am beside myself right now. I just want to be normal, I

just

> > have to get it through my thick skull, I'm not. It's hard

> sometimes,

> > you look around everyone is having a good time, and then here you

> > are. Does it ever get any better, I ask myself all the time.

> > I will keep you posted my friends, Tawny

> >

April 29, 2004

Tawny~

I have to have to do my blood tests some time today, I think. My Rheumatologist

allowed me to have my lab work done at my primary doctor, that way we know for

sure that it is going to be covered. So when the blood results are in, that is

when we will decide when and how much of the medication that my doc is going to

puit me on.

Have you heard anything yet? Just a question....are you a night owl? It seems

like all your emials come in at the wee hours of the am. Just curious. But since

I am rearing the end of my school semester I do have some studies to do.

Thanks for the support and reassurance. Its nice when someone you talk to knows

what you are talking about. Have a good one.