New at this

[Guest guest]

How badly do you need to have this scope done? How will knowing

what the scope indicates, make his long-term prognosis *better*? If

you use enzymes, it will make the results inaccurate. But making your

son live through this for many weeks, does not sound good to me.

Dana

> if he wasn't gfcf as a result of his allergies, his behavioral and

> developmental symptoms would be much worse. Right now, his

> gastroenterologist (a specialist we respect and trust very, very

> much) has scheduled a scope in a few weeks. The dr. told us to

> reintroduce all of the offending foods only short-term so we can see

> what is going on and giving him a better long-term prognosis. He

> which came as expected. I didn't anticipate the behavioral

> outbursts, temper tantrums all day, violent outbursts, thrashing,

> kicking, hitting, screaming...this is awful. He was piching his

skin

> up and down his arms until they bled and he couldn't get to sleep

> until well after 1 am. This was only the first day - and he had

> dairy and wheat. It's undoubtedly the gluten and casein causing his

[Guest guest]

Dear Sara,

I am also new at this, infact I just joined this group. When I read

your post I had to respond. My son has many problems. He is

Autistic, he is developmentally delayed, has speech and sensory

problems.

Sophie's mom sound's alot like me until quite recently. I knew the

Autism would be a life long problem, but I honestly thought that

with early intervention, additional speech and o.t. that he

would " catch " up with the other kids. What I am begining to realize

now is something all together different. MY perfect, beautiful, boy

is and always will be mentally handicapped. That is what I didn't

realize. However there are things, many things that can be done so

when SOphie goes to school she can have a smooth transaction.

I would recommend encouraging her to contact ARC in your area. SHe

can find support groups, information (videos and books), possibly

toys, they can go with durring an IEP which is a scarry thing when

you don't know what you are doing. The other is extablishing a good

relationship with the teacher. 's teacher is God sent. Make

sure she doesn't feel alone. Because until the denial is delt with

or at least realized, it just seems that you float by. I wish you

all the best and if you need anything please email me at

bissy6375@...

Best Reguards,

> My name is Sara and I'm a cousin to a child who I believe to have

> apraxia, or some developmental delay. Sophie is almost four and

far

> behind her other siblings (Hannah-5 and Connor-3). As a school

> project, I am studying the career of speech patholoy and am

attending

> classes with Sophie at her school. The school she attends has a

> specialized therapist who simply titled Sophie " developmentally

> delayed. " Sophie's mother seems reluctant to admit that Sophie

may

> have a problem, she sees her children as " perfect " in her eyes,

> doesn't every mother? If anyone has any tips as how I could alert

> Sophie's mother of the dangers, socially and educationally, that

> Sophie will face when she reached kindergarten if her problem is

not

> addressed more directly, I would really appreciate. Anyone's

input

> would be great, I have absolutely no experience in this field and

I'm

> very concerned for Sophie, I would hate to see her treated

> as " different. " I know her capabilities and want her to have the

> same opportunities as any other child, in my eyes, Sophie is an

> amazing child that I want to help in everyway I can.

[Guest guest]

Hi Sara,

First of all Sophie is very lucky to have you in her life. You must be

someone very special to be getting so involved with such a difficult issue.

You'll make a great Speech Path. someday.

Now in response to your questions. My first thought is both you and

Sophie's Mom should read " The Late Talker " by Marliyn Agin it may be just what

you

need to get started. But as a parent admitting your child may have a problem

is very difficult to do. She may need to speak to someone to be able to get to

that first step. I would be more than happy to try and have that conversation

with her. Either by E-mail or by phone. Just let me know , write me and I'll

pass on a phone number to you. I'm very new to this group, but I just think

sometimes you can tell a total stranger things that you can't tell anyone else,

even your closest friend.

I wish all of you the best of luck. And don't give up, Sophie needs you!

[Guest guest]

Hi Jillian,

Welcome to this group, but sorry you had to start at such a young

age. On the plus side, however, there are many new breakthroughs

happening every day, and with your youth you may see something great

happen!

Support groups are the best thing that could ever happen for someone

with any sort of health challenge, and your friends were right to

encourage you to find one to help you with your RA. Friends and

family are wonderful, but unless you can talk with someone who knows

exactly how you are feeling, they just don't understand it

completely. and a are wonderful with tons of information,

and everyone else is very supportive and friendly and helpful, not to

mention sometimes downright funny at times.

Peace,

Judi

[Guest guest]

Virginia, your work has just begun.

Study as much as you can about Autism and Aspergers.

Recognize that each child is different and prepare to work hard for

the sake of your son. You both deserve it.

Remember that professionals mean well, but not one professional is

perfect. They can be great helpers, but they can also be easily

misled, and careless.

You know your child best. Start making a diary , of sorts, that

spell out behaviors you see, as well as what works to help him.

I found a Neuro-psychologist well versed in Autism and Aspergers was

a good choice for the testing of my boys. They needed a FULL Neuro-

psychological testing in order to rule in A.S.

If you suspect A.S., then call your local Autism Society and see

what information they have about doctors in your area.

Google in Autism Society (with your state) and you should find a

link.

If you have difficulty tell me your state, and I can google for you,

ok?

Welcome, and keep posting. You will find great helpers here and moms

and dads who have 'been there and done that' many times and will be

glad to help you with loads of information!

Welcome!

*smiles*

B

>

> Hi my name is Virginia or ginger my son is he is 10 now for

years

> I have seen my son have problems in school and was differt from

his

> brothers they said he had adhd and other things but my mother and

I

> know that was not it he is very smart at alot of things but not at

> others at games he can beat them where guys in there teens and in

there

> 20s cant but when he dont like something he goes blank we are

trying to

> find a good Doc that knows about this I have been reading up on

> asperger's and it is me to my mom for years have been telling me

to

> stop swaing I am great at some things but have problems with

others I

> dont get along good with people and everything I did as a kid is

> I also was told at a very young age I have adhd and some other

things

> but now find that is not what I had please help me I want him to

get

> what ever help there is out there for him so he can have a happy

life

> thanx and god bless

>