Some prayers please?

[Guest guest]

As I mentioned to Tawny, last night was not a very good night. We

had just sat down to an early supper before our Bible study class

(which is held at our house.) The phone rang, and it was our

daughter . One of the babies, Randy, had gotten his hand caught

in the VCR while she was getting dinner ready, and cut his fingers

badly. Ron jumped in the car and drove out there to sit with the

other 3 so she could drive Randy in to the hospital (her fiance, Tom,

started a new job yesterday, and wasn't home yet.)

As it turned out, the cuts weren't serious, but they did have to

bandage his hand which frustrated him terribly as those are the

fingers he prefers to suck on. Ron didn't get home until nearly 9,

very tired and shaky from no dinner. was tired, upset with

herself (of course, blamed herself for not watching and protecting

her baby, hard to do when you've got 4) and upset from an injured

baby, wondering where Tom was, who didn't get home until nearly 10 PM

(he quit that job--he was delivering appliances for Sears, worked 12

hours with no breaks allowed.) This morning when they got up Randy,

the poor injured baby, was wheezing and congested. She called me and

I came in to work to fill in for her while they took him in to the

doctor, and he has asthma. So now they have to start him on

breathing treatments and do allergy testing. Her ex-husband is being

nasty, blaming HER for this but he has joint custody, lives with his

mother, and the children are in a smoke-filled house every other

weekend.

I saw an oncologist yesterday who is going to take over treatment of

my Dercum's, and in the next 2 weeks is planning to do some research

and speak to colleagues and pharmaceutical companies, but his feeling

is that he would like to start me on chemotherapy. He found a melon-

sized mass in my upper abdomen, and another in my left buttock and

right calf. He thinks I either have one in my right kidney, or the

start of kidney disease. More testing has been scheduled to rule

that out. He thinks that I've had enough surgery, that liposuction

would be too traumatic, but that chemo might reverse the course of

the disease. I've got to do some serious thinking in the next 2

weeks and of course some praying too, and maybe he will find that it

really isn't the best thing, but in the research he has already done,

he has found that several people with Dercum's were treated with

chemo and were helped. It would mean 3 treatments a week for 6

months. Not exactly something to look forward to, but then maybe I'd

look nice in a blond wig? Seriously, though, if it gives hope to the

other people with Dercum's, I'd do it in a New York minute.

So there we are folks. I'm staying positive, keeping happy. No

stiff upper lip, hard to make people understand what you're trying to

say. Gonna be as goofy as ever, but try to watch myself with green

markers. (See my post to Tawny.)

Peace and grace to all, with the promise of a joyous Easter ahead,

Judi