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Scent free world???  I don't have any allergies regarding scent; but, being

aware now that lots and lots of other people do - I've quit with the scented

products that I used to use.

There is onethat I always have a tough time with!!  It's those cardboard trees

that one puts in their car.  Within seconds my eyes get watery.  When the

husband and I were dating many years back, he would leave his car with his

daughter when he was away working for 2 weeks.  Well, the day that he was due

to come home, she would go out and clean up the car and hang that stupid pine

scented think.  That very night, I would reach up and put it in the glove

box.  Ended up that I had quite the stash and she never thought about looking

in there.  LOL

________________________________

 

Gloria, I can't use fabric softener of any kind, and most cleaning

products. I had to get rid of my cleaning lady bi weekly because she

insisted on using products with a strong smell to sterilize this

place. I don't care if it is sterile, been living in a very

unsanitary house for years, but can't take the smelly cleaning

products, or aerosols, take my breath away. My allergies really

started full fledged with the birth of my youngest son. He would

shoot out a fountain every time I took off his diaper, so I sprayed

with lysol or other spray product so it didn't smell up the couch.

Eventually had to take the couch out of the house and give it away. I

use All Free and Clear and it seems to work pretty good. My kids

couldn't use baby powder either, broke out in a rash, and it made me

sneeze. They have fumigated ou building twice now in the last two

weeks and it is really making sick, first and then really tired, sleep

most of the time and I can't find my inhaler. /the second time they

supposedly used something different which is supposed to be for people

like me, but still bothered. I belonged to one of those multilevel

marketing companies which sold laundry products which didn't bother

me, and they made the point in their sales presentation that everybody

is allergic to laundry products if you use too much and then start

sweating. Will itch like crazy. But I still had trouble with their

fabric softener because of the scent. Why can't we have a scentless

world? Jan

> Jan

>

> My son was born with excemafrom head to toe!!  It runs in the family and he

was blessed with a bad case.  Because I had some cousins that had it bad, I

knew that I would be lucky if I could use the so-called 99.9% pure products.  I

couldn't.

>

> I was fortunate enough to buy a small washer and dryer and hook it up in my

apartment.  To start with, absolutely no one was every allowed to run a load

through and use those Bounce sheets and they had to use my laundry detergent. 

You don't want to know what those dryer sheets did to the son.  When it came to

laundry detergent, I finally started buying it from one of the multi-level

businesses.  Then, he didn't have problems.  Absolutely nothing that had a

scent to it, was another huge thing to be aware of.  Baby powder or baby oil

were definitely out!!

>

> He had cradle cap well into his teens, when it was up to him to be careful. 

His feet - oh his feet...  He would wear and probably still does, sneakers all

the time.  The sweat etc caused him to have big hunks of dried skin between his

toes.  It was ugly.  I was told when he was still a baby, that it was best

that he had bare feet around the house.  I ran out of disposable diapers at a

time and so started using the cloth ones I had.  Well, my mother forgot to tell

me that 4 out of 5 of us were allergic to rubber pants.  I thought that I had

permanently disfigured his little private parts.

>

> To this very day, there are only 2 laundry products that I can use and thank

heavens they are liquid now.  I have not and will not use any dryer sheets.  I

was shown an absolutely wonderful way of softening my clothes.  You take an old

cloth of some kind, usually a bit bigger than a washcloth and just pore some

cheap fabric softener on it and throw it in the dryer.  That method has never

bothered either one of us.

>

> I've had to go back on my anti-histamines because of the itchy.  I buy a

product that is dirt cheap and is the exact same as Chlortriplon.  It goes a

long way to stopping the itch.

>

> Gloria

>

>

>

> ________________________________

>

>

>

>

> I don't want to interrupt this thread.  Just reading all the emails

> for the last couple of days has made my eyes tear, and I don't have

> any tears, eyes too dry.  But there is something I want to inform

> everybody about and I don't know how to start a thread.

>

> I have known for quite some time that some of my itching was being

> caused by something other than the cirrhosis.  When I went to MN last

> May for my mother's funeral, I came home to a washer so full of soap

> it took 4 loads of washing nothing, just putting in a cup of vinegar

> in each load to get rid of some of the soap.  The man I was living

> with washed his own clothes and had always used too much soap, had a

> rash on a good part of his body when I met him from all the soap left

> in his clothes.  I got him to cut it down and the rash went away.  But

> he still used too much, so I started running my clothes and the

> household laundry through two whole cycles to make sure the soap got

> out or so I thought.  Well, after moving, getting my own new washer

> and dryer hooked up, using only about 2 T of soap to wash my clothes

> and none sometimes for my towels (This had been recommended by an

> article I read on how to do the laundry, especially with these new

> concentrated detergents) my itching is considerably less.  Last week,

> it was cold here, so I put on a pair of leggings which I hadn't used

> since moving.  I started itching like crazy again.  When I took them

> off, the black leggings had white spots all over them, soap which had

> come out of them when I was wearing them.  When I first mentioned

> seeing this white stuff on my black clothes I was told it was probably

> from the elastic they put in some of our clothes to give them a better

> fit.  In some cases it may be, especially in older clothes, but if you

> wear dark clothes and notice white little spots all over them, and

> especially in areas where they are rubbed a lot, check your washer.

> Run some vinegar through it and make sure you see it after the wash

> cycle starts.  I know some of you probably don't have this problem,

> but the regular itching from the cirrhosis is bad enough, we don't

> need to add to it by having soap in our clothes.  The itching is a

> vicious cycle.  If you itch enough that you bleed, then it forms a

> scab, the scab is full of the toxins which caused the itching in the

> first place, so causes more itching, bigger sore, and on and on.

> Until my washer was hooked up which took about 2 months, I had to go

> to the laundromat.  The owner told me which machines to use, the older

> ones as they use more water and more apt to get the soap out, but they

> were still full of soap.  If you don't have your own washer, do

> anything you can to get one.  Test your clothes by putting them in the

> kitchen sink and swishing them around.   You will probably see soap

> suds.  Hope this helps someone.  Jan

>

>

>>

>>

>> Time of diagnosis until time of  passing varies on each individual.  The

kind of liver damage and the diagnosis time frame only a couple of many, many

factors Drs. have to consider for transplantation.  There are limited numbers

of doners and a patient has to be able to endure the surgery.

>> I my case- diagnosed in 2001, treatment that did not work 2002, cancer

developed 3 times ( liver cancer surgery, raydiation therapies, etc. from then

until I was listed in 2010.  Gift of life given April 2010 but body attacking

new liver and  rejecting.  Had shut put in for the ascites, lactalose for

amonias for encephalothopy.  This is an ugly disease for the patient and the

caregivers.  It truly in Gods hands now for me as it sounds like it was for

your father.  I will pray for your family.

>>

>> SUE

>>

>>

>> To: " livercirrhosissupport "

<livercirrhosissupport >

>> Sent: Sunday, January 29, 2012 6:04 AM

>> Subject: Re: I need help please.

>>

>>

>>

>> Whenever my father was diagnosed with ESLD, it took almost a 2 months for my

father to get rejected for a transplant.  By the time he was rejected from the

first group, his condition was waning (a few bad bouts of encephalopathy,

skyrocketing ammonia, uncontrollably high blood sugar, the ascities filling

quicker which needed more draining, more yellowing, more issues with taking

in/holding in food, and more).  We had been looking at going to Mayo for about

3 wks and this made him go (going to Rochester, MN from Tulsa).  His original

specialist and the one who broke the news said he would advise us to do

whatever  we thought needed to do.  I could read his face like a book, and I

know he felt bad telling my Dad and Mom, since all the grandkids and my brother

and myself were within an earshot.  Inconvenient or not, all of my family

sticks together even if it is in a hospital room the size of a small closet.  I

asked even if there was a 1% chance,

>> should we follow it - the doctor looked like he wanted us to keep up hope but

the prognosis was grim.  He said one percent was better then none - do what we

needed to do and quick.

>>

>> A friend's boss offered to fly my dad to Mayo two days later and an

appointment was set.  Dad went through 2 days of testing and doctor's, and was

told the opinion of his Mayo hepatologist that he wouldn't advise the

transplant, that day should go home and be comfortable and not worry about his

blood sugar, ammonia, sodium, etc... I appreciate their efforts and for not

wasting my dad's time. The very next day, Dad came home.  About 5 days after

they got back, my dad slipped into a coma and hospice was called in.  I spent

the entire time that night, minus about 1.5 hours whenever my mom relieved me,

talking to him, turning the tv to law and order or csi or ncis, reading his

facebook to him, reading bible verses to him, going through photo albums telling

him what photos i was looking at, anything to let him know someone was there - i

wasn't sure if he was there or not but if i were and i was coming in and out,

i'd be freaked out if i thought i was

>> alone.  during this time, too, whenever i'd be talking to him about our

family or my daughter who was just a year old, his eyes would start watering

like he was tearing up.  i don't know if that was him, but i sure hope he heard

some of what i said.  About 24 hours after slipping into the coma, he passed

with us at his side.

>>

>> i digress majorly...but how long does it normally take for the transplant

panel to get your request and review it?  i cannot remember why it took that

long for my dad or maybe none of us thought to ask in my family.  from time or

diagnosis to time of death for my dad was just under 2.5 months.

>>

>>

>> Sincerely,

>> E. Bassett

>>

>>>________________________________

>>>

>>>To: " livercirrhosissupport "

<livercirrhosissupport >

>>>Sent: Sunday, January 29, 2012 4:38 AM

>>>Subject: Re: I need help please.

>>>

>>>

>>>

>>>The shrunken liver makes sense to me. For most of us, our liver's capsule

hides the cirrhosis very well.  Mine does.

>>>

>>>Is he at a transplant center? Are these doctors liver doctors? I have just

never heard of liver doctors " cross their fingers " that a mans' liver will start

" compensating " again , at least not in front of the family.

>>>

>>>Hepatologists (liver doctors) are usually very scientific, and have no sense

of humor, and do not use slang, or at least rarely do. . I hope that some one

there can do a liver transplant. At some point you might want to ask them point

blank. If the patient is at a hospital which does liver transplants, they will

evaluate for transplant for anyone who is not activly an alcoholic, or drug

addict, and has end stage liver disease, (stage 4 fibrosis) who has experienced

the first major complication, such as encephalopathy, ascites, and certainly

liver failure. Severe obesity and other major health conditions might also

affect the decision.  A person in liver failure will be placed in a priority

position for an organ in their region, which is why everyone waiting on the list

have to wait. The last word is up to the transplant surgeon, and no one below

him, and EVERYONE else is below him, except God. You might want to first find

o0ut if he is in a

transplant

>>>hospital, and then if he is, ask the " question " . If he is not, you might want

to ask if he can be transferred to one if he is a possible candidate. Have they

even told you that a liver transplant is the only treatment for this condition ?

>>>

>>>Love, and prayers , Bobby

>>>

>>>________________________________

>>>

>>>To: livercirrhosissupport

>>>Sent: Thursday, January 26, 2012 7:00 PM

>>>Subject: Re: I need help please.

>>>

>>>

>>>

>>>

>>>Bobby,

>>>

>>>They haven't mentioned anything about a liver transplant. Just said they are

crossing their fingers that his liver will start 'compensating' again. He's

having some pretty significant confusion and lethargy.

>>>He's been in the hospital for over 3 weeks now. They say his kidneys aren't

doing that hot, his ammonia is still elevated, and all that kind of stuff.

>>>He's on a pill to keep his blood pressure elevated, a pill to keep his heart

rate down in a normal range, they just took him off the oxygen finally, they

have him on lactulose 4 times a day, and 80mg of Lasix twice a day.

>>>He is also a diabetic, and is getting over pneumonia. They haven't been able

to give me much information about anything really. Other than he is in Stage 4

liver failure with no need to biopsy because they can see the cirrhosis on the

catscan they did. They said his liver is shrunken from the cirrhosis.

>>>

>>>

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Bonnie

I couldn't even begin to add up what I spent on supplements during my

adulthood.  Obviously, didn't do me a whole lot of good when it came to my

liver.  However, my folks have always and still do, take cod liver oil.  Thank

heavens it comes in capsules now.  LOL  My Mom is 80 and my Dad is 86.  I

certainly do take stock what they have done.  Remember, fish oil is an omega 3

as well.  We had powdered boracic something and my Dad would wash his eyes with

it whenever they bothered him bad.  Mom would use her gold ring to rub any

sty's.

I've laid off taking most of those cold remedies etc.  Truly, good ole tea and

honey works the best.  Plus, getting someone to rub the Vicks on the back and

front!!  One time my husband was given a script for some cold med. 

Truthfully, it was basically a bottle of tea and honey.  Most times he could

only use Buckly's.  I hate to say it; but, the advertising is true.  It tastes

awful; but, it works.  I guess they have it in capsules now too.

________________________________

 

Thanks for the idea. We are going to try it and see if it helps her. I do think

all the chemicals in cleaning supplies, etc aren't good for a person to use.

When I was young we only had about 4 basic things in the medicine cabinet and

that seemed to cure all. The iodine for a cut or scrape, vicks vapor rub for

colds , vaseline , and caster oil!!! Look now whats all on the market for every

little thing.  I have started to take the Braggs Apple Cider Raw

Unfiltered Organic Vinegar as someone told me all the benefits it has for a

person's body. It can't be the distilled kind as that takes all the good things

out of it. I feel better I think. Not sure if it's that or in my mind. Just

started to take it.

>>>>

>>>>

>>>> Time of diagnosis until time of  passing varies on each individual.  The

kind of liver damage and the diagnosis time frame only a couple of many, many

factors Drs. have to consider for transplantation.  There are limited numbers

of doners and a patient has to be able to endure the surgery.

>>>> I my case- diagnosed in 2001, treatment that did not work 2002, cancer

developed 3 times ( liver cancer surgery, raydiation therapies, etc. from then

until I was listed in 2010.  Gift of life given April 2010 but body attacking

new liver and  rejecting.  Had shut put in for the ascites, lactalose for

amonias for encephalothopy.  This is an ugly disease for the patient and the

caregivers.  It truly in Gods hands now for me as it sounds like it was for

your father.  I will pray for your family.

>>>>

>>>> SUE

>>>>

>>>>

>>>> To: " livercirrhosissupport "

<livercirrhosissupport >

>>>> Sent: Sunday, January 29, 2012 6:04 AM

>>>> Subject: Re: I need help please.

>>>>

>>>>

>>>>

>>>> Whenever my father was diagnosed with ESLD, it took almost a 2 months for

my father to get rejected for a transplant.  By the time he was rejected from

the first group, his condition was waning (a few bad bouts of encephalopathy,

skyrocketing ammonia, uncontrollably high blood sugar, the ascities filling

quicker which needed more draining, more yellowing, more issues with taking

in/holding in food, and more).  We had been looking at going to Mayo for about

3 wks and this made him go (going to Rochester, MN from Tulsa).  His original

specialist and the one who broke the news said he would advise us to do

whatever  we thought needed to do.  I could read his face like a book, and I

know he felt bad telling my Dad and Mom, since all the grandkids and my brother

and myself were within an earshot.  Inconvenient or not, all of my family

sticks together even if it is in a hospital room the size of a small

closet.  I asked even if there was a 1%

>chance,

>>>> should we follow it - the doctor looked like he wanted us to keep up hope

but the prognosis was grim.  He said one percent was better then none - do what

we needed to do and quick.

>>>>

>>>> A friend's boss offered to fly my dad to Mayo two days later and an

appointment was set.  Dad went through 2 days of testing and doctor's, and was

told the opinion of his Mayo hepatologist that he wouldn't advise the

transplant, that day should go home and be comfortable and not worry about his

blood sugar, ammonia, sodium, etc... I appreciate their efforts and for not

wasting my dad's time. The very next day, Dad came home.  About 5 days after

they got back, my dad slipped into a coma and hospice was called in.  I spent

the entire time that night, minus about 1.5 hours whenever my mom relieved me,

talking to him, turning the tv to law and order or csi or ncis, reading his

facebook to him, reading bible verses to him, going through photo albums telling

him what photos i was looking at, anything to let him know someone was there - i

wasn't sure if he was there or not but if i were and i was coming in and out,

i'd be freaked

out if i thought i was

>>>> alone.  during this time, too, whenever i'd be talking to him about our

family or my daughter who was just a year old, his eyes would start watering

like he was tearing up.  i don't know if that was him, but i sure hope he heard

some of what i said.  About 24 hours after slipping into the coma, he passed

with us at his side.

>>>>

>>>> i digress majorly...but how long does it normally take for the transplant

panel to get your request and review it?  i cannot remember why it took that

long for my dad or maybe none of us thought to ask in my family.  from time or

diagnosis to time of death for my dad was just under 2.5 months.

>>>>

>>>>

>>>> Sincerely,

>>>> E. Bassett

>>>>

>>>>>________________________________

>>>>>

>>>>>To: " livercirrhosissupport "

<livercirrhosissupport >

>>>>>Sent: Sunday, January 29, 2012 4:38 AM

>>>>>Subject: Re: I need help please.

>>>>>

>>>>>

>>>>>

>>>>>The shrunken liver makes sense to me. For most of us, our liver's capsule

hides the cirrhosis very well.  Mine does.

>>>>>

>>>>>Is he at a transplant center? Are these doctors liver doctors? I have just

never heard of liver doctors " cross their fingers " that a mans' liver will start

" compensating " again , at least not in front of the family.

>>>>>

>>>>>Hepatologists (liver doctors) are usually very scientific, and have no

sense of humor, and do not use slang, or at least rarely do. . I hope that some

one there can do a liver transplant. At some point you might want to ask them

point blank. If the patient is at a hospital which does liver transplants, they

will evaluate for transplant for anyone who is not activly an alcoholic, or drug

addict, and has end stage liver disease, (stage 4 fibrosis) who has experienced

the first major complication, such as encephalopathy, ascites, and certainly

liver failure. Severe obesity and other major health conditions might also

affect the decision.  A person in liver failure will be placed in a priority

position for an organ in their region, which is why everyone waiting on the list

have to wait. The last word is up to the transplant surgeon, and no one below

him, and EVERYONE else is below him, except God. You might want to first find

o0ut if he is in a

>transplant

>>>>>hospital, and then if he is, ask the " question " . If he is not, you might

want to ask if he can be transferred to one if he is a possible candidate. Have

they even told you that a liver transplant is the only treatment for this

condition ?

>>>>>

>>>>>Love, and prayers , Bobby

>>>>>

>>>>>________________________________

>>>>>

>>>>>To: livercirrhosissupport

>>>>>Sent: Thursday, January 26, 2012 7:00 PM

>>>>>Subject: Re: I need help please.

>>>>>

>>>>>

>>>>>

>>>>>

>>>>>Bobby,

>>>>>

>>>>>They haven't mentioned anything about a liver transplant. Just said they

are crossing their fingers that his liver will start 'compensating' again. He's

having some pretty significant confusion and lethargy.

>>>>>He's been in the hospital for over 3 weeks now. They say his kidneys aren't

doing that hot, his ammonia is still elevated, and all that kind of stuff.

>>>>>He's on a pill to keep his blood pressure elevated, a pill to keep his

heart rate down in a normal range, they just took him off the oxygen finally,

they have him on lactulose 4 times a day, and 80mg of Lasix twice a day.

>>>>>He is also a diabetic, and is getting over pneumonia. They haven't been

able to give me much information about anything really. Other than he is in

Stage 4 liver failure with no need to biopsy because they can see the cirrhosis

on the catscan they did. They said his liver is shrunken from the cirrhosis.

>>>>>

>>>>>

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After reading this post, I scrolled down to see if there was another

one after it. There wasn't, but there was an ad for Downy fabric

softener which makes me sick too. I just thought it was really ironic.

I will be looking for the recipe for the cleaning products, but if it

contains any citrus or fish oil, I can't use it, allergic to citrus

rind and fish oil conflicts with one of my meds. Jan

> Bonnie

>

>

> I couldn't even begin to add up what I spent on supplements during my

adulthood.  Obviously, didn't do me a whole lot of good when it came to my

liver.  However, my folks have always and still do, take cod liver oil.  Thank

heavens it comes in capsules now.  LOL  My Mom is 80 and my Dad is 86.  I

certainly do take stock what they have done.  Remember, fish oil is an omega 3

as well.  We had powdered boracic something and my Dad would wash his eyes with

it whenever they bothered him bad.  Mom would use her gold ring to rub any

sty's.

>

> I've laid off taking most of those cold remedies etc.  Truly, good ole tea and

honey works the best.  Plus, getting someone to rub the Vicks on the back and

front!!  One time my husband was given a script for some cold med.  Truthfully,

it was basically a bottle of tea and honey.  Most times he could only use

Buckly's.  I hate to say it; but, the advertising is true.  It tastes awful;

but, it works.  I guess they have it in capsules now too.

>

>

>

> ________________________________

>

>

>

>

> Thanks for the idea. We are going to try it and see if it helps her. I do

think all the chemicals in cleaning supplies, etc aren't good for a person to

use. When I was young we only had about 4 basic things in the medicine cabinet

and that seemed to cure all. The iodine for a cut or scrape, vicks vapor rub for

colds , vaseline , and caster oil!!! Look now whats all on the market for every

little thing.  I have started to take the Braggs Apple Cider Raw

Unfiltered Organic Vinegar as someone told me all the benefits it has for a

person's body. It can't be the distilled kind as that takes all the good things

out of it. I feel better I think. Not sure if it's that or in my mind. Just

started to take it.

>

>

>>>>>

>>>>>

>>>>> Time of diagnosis until time of  passing varies on each individual.  The

kind of liver damage and the diagnosis time frame only a couple of many, many

factors Drs. have to consider for transplantation.  There are limited numbers of

doners and a patient has to be able to endure the surgery.

>>>>> I my case- diagnosed in 2001, treatment that did not work 2002, cancer

developed 3 times ( liver cancer surgery, raydiation therapies, etc. from then

until I was listed in 2010.  Gift of life given April 2010 but body attacking

new liver and  rejecting.  Had shut put in for the ascites, lactalose for

amonias for encephalothopy.  This is an ugly disease for the patient and the

caregivers.  It truly in Gods hands now for me as it sounds like it was for your

father.  I will pray for your family.

>>>>>

>>>>> SUE

>>>>>

>>>>>

>>>>> To: " livercirrhosissupport "

<livercirrhosissupport >

>>>>> Sent: Sunday, January 29, 2012 6:04 AM

>>>>> Subject: Re: I need help please.

>>>>>

>>>>>

>>>>>

>>>>> Whenever my father was diagnosed with ESLD, it took almost a 2 months for

my father to get rejected for a transplant.  By the time he was rejected from

the first group, his condition was waning (a few bad bouts of encephalopathy,

skyrocketing ammonia, uncontrollably high blood sugar, the ascities filling

quicker which needed more draining, more yellowing, more issues with taking

in/holding in food, and more).  We had been looking at going to Mayo for about 3

wks and this made him go (going to Rochester, MN from Tulsa).  His original

specialist and the one who broke the news said he would advise us to do

whatever  we thought needed to do.  I could read his face like a book, and I

know he felt bad telling my Dad and Mom, since all the grandkids and my brother

and myself were within an earshot.  Inconvenient or not, all of my family sticks

together even if it is in a hospital room the size of a small

>  closet.  I asked even if there was a 1%

>>chance,

>>>>> should we follow it - the doctor looked like he wanted us to keep up hope

but the prognosis was grim.  He said one percent was better then none - do what

we needed to do and quick.

>>>>>

>>>>> A friend's boss offered to fly my dad to Mayo two days later and an

appointment was set.  Dad went through 2 days of testing and doctor's, and was

told the opinion of his Mayo hepatologist that he wouldn't advise the

transplant, that day should go home and be comfortable and not worry about his

blood sugar, ammonia, sodium, etc... I appreciate their efforts and for not

wasting my dad's time. The very next day, Dad came home.  About 5 days after

they got back, my dad slipped into a coma and hospice was called in.  I spent

the entire time that night, minus about 1.5 hours whenever my mom relieved me,

talking to him, turning the tv to law and order or csi or ncis, reading his

facebook to him, reading bible verses to him, going through photo albums telling

him what photos i was looking at, anything to let him know someone was there - i

wasn't sure if he was there or not but if i were and i was coming in and out,

i'd be freaked

>  out if i thought i was

>>>>> alone.  during this time, too, whenever i'd be talking to him about our

family or my daughter who was just a year old, his eyes would start watering

like he was tearing up.  i don't know if that was him, but i sure hope he heard

some of what i said.  About 24 hours after slipping into the coma, he passed

with us at his side.

>>>>>

>>>>> i digress majorly...but how long does it normally take for the transplant

panel to get your request and review it?  i cannot remember why it took that

long for my dad or maybe none of us thought to ask in my family.  from time or

diagnosis to time of death for my dad was just under 2.5 months.

>>>>>

>>>>>

>>>>> Sincerely,

>>>>> E. Bassett

>>>>>

>>>>>>________________________________

>>>>>>

>>>>>>To: " livercirrhosissupport "

<livercirrhosissupport >

>>>>>>Sent: Sunday, January 29, 2012 4:38 AM

>>>>>>Subject: Re: I need help please.

>>>>>>

>>>>>>

>>>>>>

>>>>>>The shrunken liver makes sense to me. For most of us, our liver's capsule

hides the cirrhosis very well.  Mine does.

>>>>>>

>>>>>>Is he at a transplant center? Are these doctors liver doctors? I have just

never heard of liver doctors " cross their fingers " that a mans' liver will start

" compensating " again , at least not in front of the family.

>>>>>>

>>>>>>Hepatologists (liver doctors) are usually very scientific, and have no

sense of humor, and do not use slang, or at least rarely do. . I hope that some

one there can do a liver transplant. At some point you might want to ask them

point blank. If the patient is at a hospital which does liver transplants, they

will evaluate for transplant for anyone who is not activly an alcoholic, or drug

addict, and has end stage liver disease, (stage 4 fibrosis) who has experienced

the first major complication, such as encephalopathy, ascites, and certainly

liver failure. Severe obesity and other major health conditions might also

affect the decision.  A person in liver failure will be placed in a priority

position for an organ in their region, which is why everyone waiting on the list

have to wait. The last word is up to the transplant surgeon, and no one below

him, and EVERYONE else is below him, except God. You might want to first find

>  o0ut if he is in a

>>transplant

>>>>>>hospital, and then if he is, ask the " question " . If he is not, you might

want to ask if he can be transferred to one if he is a possible candidate. Have

they even told you that a liver transplant is the only treatment for this

condition ?

>>>>>>

>>>>>>Love, and prayers , Bobby

>>>>>>

>>>>>>________________________________

>>>>>>

>>>>>>To: livercirrhosissupport

>>>>>>Sent: Thursday, January 26, 2012 7:00 PM

>>>>>>Subject: Re: I need help please.

>>>>>>

>>>>>>

>>>>>>

>>>>>>

>>>>>>Bobby,

>>>>>>

>>>>>>They haven't mentioned anything about a liver transplant. Just said they

are crossing their fingers that his liver will start 'compensating' again. He's

having some pretty significant confusion and lethargy.

>>>>>>He's been in the hospital for over 3 weeks now. They say his kidneys

aren't doing that hot, his ammonia is still elevated, and all that kind of

stuff.

>>>>>>He's on a pill to keep his blood pressure elevated, a pill to keep his

heart rate down in a normal range, they just took him off the oxygen finally,

they have him on lactulose 4 times a day, and 80mg of Lasix twice a day.

>>>>>>He is also a diabetic, and is getting over pneumonia. They haven't been

able to give me much information about anything really. Other than he is in

Stage 4 liver failure with no need to biopsy because they can see the cirrhosis

on the catscan they did. They said his liver is shrunken from the cirrhosis.

>>>>>>

>>>>>>

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