Re: My Support group.....without you I'd be in mental ward....

[Guest guest]

Carole. The only person who will really know when you overreact is you. I do

know our illnesses can be a drag on our loved ones, even my bone on bone knees

keeps us from doing some things we would like to do, and my husband's cirrhosis

is quietly taking its toll on his body. Diseases are life altering. Maybe your

husband could have a day out for fishing, golf, tennis or something??

I am wondering if a warm bath would help your legs and tail bone? Can you still

get in and out of the tub? (I cannot. You are lucky if you can.) I think the

medications are responsible for much of your confusion, if not all.

Fred is confused some times. I guess his liver is struggling to detox the meds

he is taking to deal with the portal hypertension etc. I confess to not

knowing much about cirrhosis, but I will learn. (I trust someone will tell me

how off base I am.)

take care, and hugs from me.

Jackie

My Support group.....without you I'd be in

mental ward....

I want to thank everyone for their support, on and off line, and the caring

you show me. It is a total shame the lack of support there is for us.

On 5 April I go to OKC to see their liver doctors etc. They are also a

transplant hospital. I'm tired of all the Doctors except Mayo, saying I'm not

that bad...and I could have a biopsy and Mayo was silly for not doing one.

So I'm driving (riding...I can't drive much anymore due to the sleeping

problem I have. I fall asleep at the wheel...etc..)for them to give me their

opinion. They accepted me rather quickly for nothing wrong! LOL.

Anyone heard of OKC transplant hospital/clinic?

For about a month I was dizzy, my head spinning like the mixer at the

carnival. It was strange as I'd get dizzy AFTER I slowly sat up...sometimes I'd

fall backward/forwards like in a faint. And I would go spinning dizzy sometimes

when I layed down...about 2 minutes after, I found the delayed reaction

puzzling. Doctors didn't care around here...

It is almost gone now...don't know why or how long for.

Questions for those who want to help me:

1. Swallowing. I am finding it increasingly hard to swallow. I take vicodine

and even with one pill I have to swallow several times before it will go

down...and it is getting worse. I mentioned it to my husband and he says it is

the pollen in the air (funny, didn't used to be bothered from pollen). He thinks

I am OVER REACTING and looking for symptoms to have....sigh.

2. Last night I had some symptons I'd like to see if could be the start of my

liver decompensating?

History: First diagnosed as moderate cirrhosis April 1997. Doctors ignored it

and so I thought it was no big deal.

In Mar 2011 I go to Mayo Clinic in Arizona for a general check up as I'd

turned 60 and the doctors in Arkansas I think of the bottom of their

class..haha...

I go home after 3 weeks due to expenses and go back to Mayo in June 2011 for 6

weeks. No communication from Mayo on any tests run in Mar so I figure I'm fine

and want to have some loproscopic surgery for fecal incontience and rectecelle.

(I wonder if these have anything to do with liver? The severe incontience was

really bad for 3 yrs and my GP just said slight diahrea on my chart...sigh.

When I have my June appt at Mayo the first the doctor says is " You do know you

have severe liver disease? " (If I'd known that wouldn't I have mentioned it in

Mar when I gave them my detailed medical history???)

I told her NO! She then went on with other test results.

So it is June 2011 before any liver tests are done. They determine I am too

severe to even do a biopsy....and I go home with no support etc.

**OK...that is the history...now my symptoms last night?

I slept for about 18 hours straight. My Grandson came into my room and I was

confused as to what day and time it was. He proved it to me with the cell phone.

I had asked him why he was home from school?

It was 8:30pm I asked him.

I had to take3 viodine which I rarely take more than 1/2 half pill. My legs

were so restless and painful. I tried a massager on them and the pain was so bad

I yelled out.

My tailbone area was killing me...it hurt and kept getting worse. A heating

pad helped a bit.

Again...trouble with swallowing.

My legs are that of a normal thin person (I'm 270)...but I gained 10 lbs in 9

weeks...should have lost weight with legs so thin.

So am I over reacting or what? Today is great compared to yesterday... but I'm

tired and not to focused.

Can anyone help me? No family or Doctors think I'm very bad. My husband wanted

to know why I felt the need to go to OKC...sigh

Carole

[Guest guest]

My dad went to the OU Medical Center near Bricktown and they treated him better

than any other hospital he went to in Oklahoma.  They treated him very well and

he had a specialist.  It is a training hospital but the care was exceptional. 

The nurses were awesome and the doctors were kind and a little blunt.  We had

ALL the family in my dad's room (all 5 grandkids, my brother, my sister in law,

my husband, and my mom) in the room and they never once complained).  I figured

there would have been a visitors limit.

If you can go to Mayo in Rochester MN...if you can....it's the HQ (if memory

serves) and that was the ultimate in care.

I hope this helps.

Stay away from Concerta or St. Francis and ESPECIALLY ST JOHNS if you're in the

Tulsa area. 

 

Sincerely,

E. Bassett

>________________________________

>

>To: livercirrhosissupport

>Sent: Monday, March 5, 2012 3:10 PM

>Subject: My Support group.....without you I'd be in

mental ward....

>

>

> 

>I want to thank everyone for their support, on and off line, and the caring you

show me. It is a total shame the lack of support there is for us.

>On 5 April I go to OKC to see their liver doctors etc. They are also a

transplant hospital. I'm tired of all the Doctors except Mayo, saying I'm not

that bad...and I could have a biopsy and Mayo was silly for not doing one.

>So I'm driving (riding...I can't drive much anymore due to the sleeping problem

I have. I fall asleep at the wheel...etc..)for them to give me their opinion.

They accepted me rather quickly for nothing wrong! LOL.

>Anyone heard of OKC transplant hospital/clinic?

>For about a month I was dizzy, my head spinning like the mixer at the carnival.

It was strange as I'd get dizzy AFTER I slowly sat up...sometimes I'd fall

backward/forwards like in a faint. And I would go spinning dizzy sometimes when

I layed down...about 2 minutes after, I found the delayed reaction puzzling.

Doctors didn't care around here...

>It is almost gone now...don't know why or how long for.

>Questions for those who want to help me:

>1. Swallowing. I am finding it increasingly hard to swallow. I take vicodine

and even with one pill I have to swallow several times before it will go

down...and it is getting worse. I mentioned it to my husband and he says it is

the pollen in the air (funny, didn't used to be bothered from pollen). He

thinks I am OVER REACTING and looking for symptoms to have....sigh.

>2. Last night I had some symptons I'd like to see if could be the start of my

liver decompensating?

>

>History: First diagnosed as moderate cirrhosis April 1997. Doctors ignored it

and so I thought it was no big deal.

>In Mar 2011 I go to Mayo Clinic in Arizona for a general check up as I'd turned

60 and the doctors in Arkansas I think of the bottom of their class..haha...

>I go home after 3 weeks due to expenses and go back to Mayo in June 2011 for 6

weeks. No communication from Mayo on any tests run in Mar so I figure I'm fine

and want to have some loproscopic surgery for fecal incontience and rectecelle.

(I wonder if these have anything to do with liver? The severe incontience was

really bad for 3 yrs and my GP just said slight diahrea on my chart...sigh.

>When I have my June appt at Mayo the first the doctor says is " You do know you

have severe liver disease? " (If I'd known that wouldn't I have mentioned it in

Mar when I gave them my detailed medical history???)

>I told her NO! She then went on with other test results.

>So it is June 2011 before any liver tests are done. They determine I am too

severe to even do a biopsy....and I go home with no support etc.

>**OK...that is the history...now my symptoms last night?

>

>I slept for about 18 hours straight. My Grandson came into my room and I was

confused as to what day and time it was. He proved it to me with the cell

phone. I had asked him why he was home from school?

>It was 8:30pm I asked him.

>I had to take3 viodine which I rarely take more than 1/2 half pill. My legs

were so restless and painful. I tried a massager on them and the pain was so

bad I yelled out.

>My tailbone area was killing me...it hurt and kept getting worse. A heating pad

helped a bit.

>Again...trouble with swallowing.

>My legs are that of a normal thin person (I'm 270)...but I gained 10 lbs in 9

weeks...should have lost weight with legs so thin.

>

>So am I over reacting or what? Today is great compared to yesterday... but I'm

tired and not to focused.

>

>Can anyone help me? No family or Doctors think I'm very bad. My husband

wanted to know why I felt the need to go to OKC...sigh

>Carole

>

>

>

>

>

[Guest guest]

Hi Jackie,

No..can't get out of a tub..sigh..but I'm not on any meds for the liver etc.

Yep...doctors can't believe it.

---- son wrote:

=============

Carole. The only person who will really know when you overreact is you. I do

know our illnesses can be a drag on our loved ones, even my bone on bone knees

keeps us from doing some things we would like to do, and my husband's cirrhosis

is quietly taking its toll on his body. Diseases are life altering. Maybe your

husband could have a day out for fishing, golf, tennis or something??

I am wondering if a warm bath would help your legs and tail bone? Can you still

get in and out of the tub? (I cannot. You are lucky if you can.) I think the

medications are responsible for much of your confusion, if not all.

Fred is confused some times. I guess his liver is struggling to detox the meds

he is taking to deal with the portal hypertension etc. I confess to not

knowing much about cirrhosis, but I will learn. (I trust someone will tell me

how off base I am.)

take care, and hugs from me.

Jackie

My Support group.....without you I'd be in

mental ward....

I want to thank everyone for their support, on and off line, and the caring

you show me. It is a total shame the lack of support there is for us.

On 5 April I go to OKC to see their liver doctors etc. They are also a

transplant hospital. I'm tired of all the Doctors except Mayo, saying I'm not

that bad...and I could have a biopsy and Mayo was silly for not doing one.

So I'm driving (riding...I can't drive much anymore due to the sleeping

problem I have. I fall asleep at the wheel...etc..)for them to give me their

opinion. They accepted me rather quickly for nothing wrong! LOL.

Anyone heard of OKC transplant hospital/clinic?

For about a month I was dizzy, my head spinning like the mixer at the

carnival. It was strange as I'd get dizzy AFTER I slowly sat up...sometimes I'd

fall backward/forwards like in a faint. And I would go spinning dizzy sometimes

when I layed down...about 2 minutes after, I found the delayed reaction

puzzling. Doctors didn't care around here...

It is almost gone now...don't know why or how long for.

Questions for those who want to help me:

1. Swallowing. I am finding it increasingly hard to swallow. I take vicodine

and even with one pill I have to swallow several times before it will go

down...and it is getting worse. I mentioned it to my husband and he says it is

the pollen in the air (funny, didn't used to be bothered from pollen). He thinks

I am OVER REACTING and looking for symptoms to have....sigh.

2. Last night I had some symptons I'd like to see if could be the start of my

liver decompensating?

History: First diagnosed as moderate cirrhosis April 1997. Doctors ignored it

and so I thought it was no big deal.

In Mar 2011 I go to Mayo Clinic in Arizona for a general check up as I'd

turned 60 and the doctors in Arkansas I think of the bottom of their

class..haha...

I go home after 3 weeks due to expenses and go back to Mayo in June 2011 for 6

weeks. No communication from Mayo on any tests run in Mar so I figure I'm fine

and want to have some loproscopic surgery for fecal incontience and rectecelle.

(I wonder if these have anything to do with liver? The severe incontience was

really bad for 3 yrs and my GP just said slight diahrea on my chart...sigh.

When I have my June appt at Mayo the first the doctor says is " You do know you

have severe liver disease? " (If I'd known that wouldn't I have mentioned it in

Mar when I gave them my detailed medical history???)

I told her NO! She then went on with other test results.

So it is June 2011 before any liver tests are done. They determine I am too

severe to even do a biopsy....and I go home with no support etc.

**OK...that is the history...now my symptoms last night?

I slept for about 18 hours straight. My Grandson came into my room and I was

confused as to what day and time it was. He proved it to me with the cell phone.

I had asked him why he was home from school?

It was 8:30pm I asked him.

I had to take3 viodine which I rarely take more than 1/2 half pill. My legs

were so restless and painful. I tried a massager on them and the pain was so bad

I yelled out.

My tailbone area was killing me...it hurt and kept getting worse. A heating

pad helped a bit.

Again...trouble with swallowing.

My legs are that of a normal thin person (I'm 270)...but I gained 10 lbs in 9

weeks...should have lost weight with legs so thin.

So am I over reacting or what? Today is great compared to yesterday... but I'm

tired and not to focused.

Can anyone help me? No family or Doctors think I'm very bad. My husband wanted

to know why I felt the need to go to OKC...sigh

Carole

[Guest guest]

Thanks for the advice in Tulsa. Do you know a good liver doctor there or in

Fayetteville, Ar?

Everyone thinks I'm joking when I say our doctors and medical are 20 yrs behind

Americas.

Carole

---- Bassett wrote:

=============

My dad went to the OU Medical Center near Bricktown and they treated him better

than any other hospital he went to in Oklahoma.  They treated him very well and

he had a specialist.  It is a training hospital but the care was exceptional. 

The nurses were awesome and the doctors were kind and a little blunt.  We had

ALL the family in my dad's room (all 5 grandkids, my brother, my sister in law,

my husband, and my mom) in the room and they never once complained).  I figured

there would have been a visitors limit.

If you can go to Mayo in Rochester MN...if you can....it's the HQ (if memory

serves) and that was the ultimate in care.

I hope this helps.

Stay away from Concerta or St. Francis and ESPECIALLY ST JOHNS if you're in the

Tulsa area. 

 

Sincerely,

E. Bassett

>________________________________

>

>To: livercirrhosissupport

>Sent: Monday, March 5, 2012 3:10 PM

>Subject: My Support group.....without you I'd be in

mental ward....

>

>

> 

>I want to thank everyone for their support, on and off line, and the caring you

show me. It is a total shame the lack of support there is for us.

>On 5 April I go to OKC to see their liver doctors etc. They are also a

transplant hospital. I'm tired of all the Doctors except Mayo, saying I'm not

that bad...and I could have a biopsy and Mayo was silly for not doing one.

>So I'm driving (riding...I can't drive much anymore due to the sleeping problem

I have. I fall asleep at the wheel...etc..)for them to give me their opinion.

They accepted me rather quickly for nothing wrong! LOL.

>Anyone heard of OKC transplant hospital/clinic?

>For about a month I was dizzy, my head spinning like the mixer at the carnival.

It was strange as I'd get dizzy AFTER I slowly sat up...sometimes I'd fall

backward/forwards like in a faint. And I would go spinning dizzy sometimes when

I layed down...about 2 minutes after, I found the delayed reaction puzzling.

Doctors didn't care around here...

>It is almost gone now...don't know why or how long for.

>Questions for those who want to help me:

>1. Swallowing. I am finding it increasingly hard to swallow. I take vicodine

and even with one pill I have to swallow several times before it will go

down...and it is getting worse. I mentioned it to my husband and he says it is

the pollen in the air (funny, didn't used to be bothered from pollen). He

thinks I am OVER REACTING and looking for symptoms to have....sigh.

>2. Last night I had some symptons I'd like to see if could be the start of my

liver decompensating?

>

>History: First diagnosed as moderate cirrhosis April 1997. Doctors ignored it

and so I thought it was no big deal.

>In Mar 2011 I go to Mayo Clinic in Arizona for a general check up as I'd turned

60 and the doctors in Arkansas I think of the bottom of their class..haha...

>I go home after 3 weeks due to expenses and go back to Mayo in June 2011 for 6

weeks. No communication from Mayo on any tests run in Mar so I figure I'm fine

and want to have some loproscopic surgery for fecal incontience and rectecelle.

(I wonder if these have anything to do with liver? The severe incontience was

really bad for 3 yrs and my GP just said slight diahrea on my chart...sigh.

>When I have my June appt at Mayo the first the doctor says is " You do know you

have severe liver disease? " (If I'd known that wouldn't I have mentioned it in

Mar when I gave them my detailed medical history???)

>I told her NO! She then went on with other test results.

>So it is June 2011 before any liver tests are done. They determine I am too

severe to even do a biopsy....and I go home with no support etc.

>**OK...that is the history...now my symptoms last night?

>

>I slept for about 18 hours straight. My Grandson came into my room and I was

confused as to what day and time it was. He proved it to me with the cell

phone. I had asked him why he was home from school?

>It was 8:30pm I asked him.

>I had to take3 viodine which I rarely take more than 1/2 half pill. My legs

were so restless and painful. I tried a massager on them and the pain was so

bad I yelled out.

>My tailbone area was killing me...it hurt and kept getting worse. A heating pad

helped a bit.

>Again...trouble with swallowing.

>My legs are that of a normal thin person (I'm 270)...but I gained 10 lbs in 9

weeks...should have lost weight with legs so thin.

>

>So am I over reacting or what? Today is great compared to yesterday... but I'm

tired and not to focused.

>

>Can anyone help me? No family or Doctors think I'm very bad. My husband

wanted to know why I felt the need to go to OKC...sigh

>Carole

>

>

>

>

>

[Guest guest]

Carole

I do not believe that any of us here can venture anything near a medical

opinion.  If it had been me going to A Mayo for such a long time, the least I

would want is the records of allthe tests that were down.  Did you actually

stay in the hospital for all that time??

Anyway, I can relate to the difficulty swallowing.  Plus, I went to research

the Vicodin.  A pain med is not going to do anything for the swallowing. 

After surgery just about 2 yrs ago, I too had difficulty swallowing. 

Sometimes, it was scary because I live alone.  Anyway, I have a hiatus hernia

and it's a really special one because it slides.  LOL  Anyway, I take

Raberazole for it.  Most of my family have some problem with their stomaches so

we have been prescribed the same medication for them.  My mother has severe

acid reflux, my brother has heart burn, I don't know what it is with my Dad;

but, they got him on the medication and at least he isn't losing any more

weight.  If he did, he'd just fade away.

________________________________

 

I want to thank everyone for their support, on and off line, and the caring you

show me. It is a total shame the lack of support there is for us.

On 5 April I go to OKC to see their liver doctors etc. They are also a

transplant hospital. I'm tired of all the Doctors except Mayo, saying I'm not

that bad...and I could have a biopsy and Mayo was silly for not doing one.

So I'm driving (riding...I can't drive much anymore due to the sleeping problem

I have. I fall asleep at the wheel...etc..)for them to give me their opinion.

They accepted me rather quickly for nothing wrong! LOL.

Anyone heard of OKC transplant hospital/clinic?

For about a month I was dizzy, my head spinning like the mixer at the carnival.

It was strange as I'd get dizzy AFTER I slowly sat up...sometimes I'd fall

backward/forwards like in a faint. And I would go spinning dizzy sometimes when

I layed down...about 2 minutes after, I found the delayed reaction puzzling.

Doctors didn't care around here...

It is almost gone now...don't know why or how long for.

Questions for those who want to help me:

1. Swallowing. I am finding it increasingly hard to swallow. I take vicodine

and even with one pill I have to swallow several times before it will go

down...and it is getting worse. I mentioned it to my husband and he says it is

the pollen in the air (funny, didn't used to be bothered from pollen). He

thinks I am OVER REACTING and looking for symptoms to have....sigh.

2. Last night I had some symptons I'd like to see if could be the start of my

liver decompensating?

History: First diagnosed as moderate cirrhosis April 1997. Doctors ignored it

and so I thought it was no big deal.

In Mar 2011 I go to Mayo Clinic in Arizona for a general check up as I'd turned

60 and the doctors in Arkansas I think of the bottom of their class..haha...

I go home after 3 weeks due to expenses and go back to Mayo in June 2011 for 6

weeks. No communication from Mayo on any tests run in Mar so I figure I'm fine

and want to have some loproscopic surgery for fecal incontience and rectecelle.

(I wonder if these have anything to do with liver? The severe incontience was

really bad for 3 yrs and my GP just said slight diahrea on my chart...sigh.

When I have my June appt at Mayo the first the doctor says is " You do know you

have severe liver disease? " (If I'd known that wouldn't I have mentioned it in

Mar when I gave them my detailed medical history???)

I told her NO! She then went on with other test results.

So it is June 2011 before any liver tests are done. They determine I am too

severe to even do a biopsy....and I go home with no support etc.

**OK...that is the history...now my symptoms last night?

I slept for about 18 hours straight. My Grandson came into my room and I was

confused as to what day and time it was. He proved it to me with the cell

phone. I had asked him why he was home from school?

It was 8:30pm I asked him.

I had to take3 viodine which I rarely take more than 1/2 half pill. My legs

were so restless and painful. I tried a massager on them and the pain was so

bad I yelled out.

My tailbone area was killing me...it hurt and kept getting worse. A heating pad

helped a bit.

Again...trouble with swallowing.

My legs are that of a normal thin person (I'm 270)...but I gained 10 lbs in 9

weeks...should have lost weight with legs so thin.

So am I over reacting or what? Today is great compared to yesterday... but I'm

tired and not to focused.

Can anyone help me? No family or Doctors think I'm very bad. My husband wanted

to know why I felt the need to go to OKC...sigh

Carole

[Guest guest]

Hi ,

I live in Tulsa and was curious why you said to stay away from St.

Francis and St. s? I don't know anything about Concerta.

Best regards,

Roni

> Thanks for the advice in Tulsa. Do you know a good liver doctor

> there or in Fayetteville, Ar?

> Everyone thinks I'm joking when I say our doctors and medical are 20

> yrs behind Americas.

> Carole

> ---- Bassett wrote:

>

> =============

> My dad went to the OU Medical Center near Bricktown and they treated

> him better than any other hospital he went to in Oklahoma. They

> treated him very well and he had a specialist. It is a training

> hospital but the care was exceptional. The nurses were awesome and

> the doctors were kind and a little blunt. We had ALL the family in

> my dad's room (all 5 grandkids, my brother, my sister in law, my

> husband, and my mom) in the room and they never once complained). I

> figured there would have been a visitors limit.

>

> If you can go to Mayo in Rochester MN...if you can....it's the HQ

> (if memory serves) and that was the ultimate in care.

>

> I hope this helps.

>

> Stay away from Concerta or St. Francis and ESPECIALLY ST JOHNS if

> you're in the Tulsa area.

>

>

> Sincerely,

> E. Bassett

>

> >________________________________

> >

> >To: livercirrhosissupport

> >Sent: Monday, March 5, 2012 3:10 PM

> >Subject: My Support group.....without you

> I'd be in mental ward....

> >

> >

> >

> >I want to thank everyone for their support, on and off line, and

> the caring you show me. It is a total shame the lack of support

> there is for us.

> >On 5 April I go to OKC to see their liver doctors etc. They are

> also a transplant hospital. I'm tired of all the Doctors except

> Mayo, saying I'm not that bad...and I could have a biopsy and Mayo

> was silly for not doing one.

> >So I'm driving (riding...I can't drive much anymore due to the

> sleeping problem I have. I fall asleep at the wheel...etc..)for them

> to give me their opinion. They accepted me rather quickly for

> nothing wrong! LOL.

> >Anyone heard of OKC transplant hospital/clinic?

> >For about a month I was dizzy, my head spinning like the mixer at

> the carnival. It was strange as I'd get dizzy AFTER I slowly sat

> up...sometimes I'd fall backward/forwards like in a faint. And I

> would go spinning dizzy sometimes when I layed down...about 2

> minutes after, I found the delayed reaction puzzling. Doctors didn't

> care around here...

> >It is almost gone now...don't know why or how long for.

> >Questions for those who want to help me:

> >1. Swallowing. I am finding it increasingly hard to swallow. I take

> vicodine and even with one pill I have to swallow several times

> before it will go down...and it is getting worse. I mentioned it to

> my husband and he says it is the pollen in the air (funny, didn't

> used to be bothered from pollen). He thinks I am OVER REACTING and

> looking for symptoms to have....sigh.

> >2. Last night I had some symptons I'd like to see if could be the

> start of my liver decompensating?

> >

> >History: First diagnosed as moderate cirrhosis April 1997. Doctors

> ignored it and so I thought it was no big deal.

> >In Mar 2011 I go to Mayo Clinic in Arizona for a general check up

> as I'd turned 60 and the doctors in Arkansas I think of the bottom

> of their class..haha...

> >I go home after 3 weeks due to expenses and go back to Mayo in June

> 2011 for 6 weeks. No communication from Mayo on any tests run in Mar

> so I figure I'm fine and want to have some loproscopic surgery for

> fecal incontience and rectecelle. (I wonder if these have anything

> to do with liver? The severe incontience was really bad for 3 yrs

> and my GP just said slight diahrea on my chart...sigh.

> >When I have my June appt at Mayo the first the doctor says is " You

> do know you have severe liver disease? " (If I'd known that wouldn't

> I have mentioned it in Mar when I gave them my detailed medical

> history???)

> >I told her NO! She then went on with other test results.

> >So it is June 2011 before any liver tests are done. They determine

> I am too severe to even do a biopsy....and I go home with no support

> etc.

> >**OK...that is the history...now my symptoms last night?

> >

> >I slept for about 18 hours straight. My Grandson came into my room

> and I was confused as to what day and time it was. He proved it to

> me with the cell phone. I had asked him why he was home from school?

> >It was 8:30pm I asked him.

> >I had to take3 viodine which I rarely take more than 1/2 half pill.

> My legs were so restless and painful. I tried a massager on them and

> the pain was so bad I yelled out.

> >My tailbone area was killing me...it hurt and kept getting worse. A

> heating pad helped a bit.

> >Again...trouble with swallowing.

> >My legs are that of a normal thin person (I'm 270)...but I gained

> 10 lbs in 9 weeks...should have lost weight with legs so thin.

> >

> >So am I over reacting or what? Today is great compared to

> yesterday... but I'm tired and not to focused.

> >

> >Can anyone help me? No family or Doctors think I'm very bad. My

> husband wanted to know why I felt the need to go to OKC...sigh

> >Carole

> >

> >

> >

> >

> >

>

>

[Guest guest]

One reason people have trouble after surgery is that they had a tube

down their throat during the surgery. I also have a hiatal hernia.

Because of the tube, it was aggravated and had to eat all my food

pureed after my bypass operation. At the present time I am having

trouble swallowing because I have thrush as a result of multiple doses

of antibiotics. Will be awhile before it goes away as I am also

taking an antibiotic now because of pneumonia. I would like a scoop

which I could use to clean out my sinuses and my lungs and get rid of

all this gunk. They probably don't make them though

Jan

> Carole

>

> I do not believe that any of us here can venture anything near a medical

opinion.  If it had been me going to A Mayo for such a long time, the least I

would want is the records of allthe tests that were down.  Did you actually stay

in the hospital for all that time??

>

> Anyway, I can relate to the difficulty swallowing.  Plus, I went to research

the Vicodin.  A pain med is not going to do anything for the swallowing.  After

surgery just about 2 yrs ago, I too had difficulty swallowing.  Sometimes, it

was scary because I live alone.  Anyway, I have a hiatus hernia and it's a

really special one because it slides.  LOL  Anyway, I take Raberazole for it. 

Most of my family have some problem with their stomaches so we have been

prescribed the same medication for them.  My mother has severe acid reflux, my

brother has heart burn, I don't know what it is with my Dad; but, they got him

on the medication and at least he isn't losing any more weight.  If he did, he'd

just fade away.

>

>

>

> ________________________________

>

>

>

>

> I want to thank everyone for their support, on and off line, and the caring

you show me.  It is a total shame the lack of support there is for us.

> On 5 April I go to OKC to see their liver doctors etc.  They are also a

transplant hospital.  I'm tired of all the Doctors except Mayo, saying I'm not

that bad...and I could have a biopsy and Mayo was silly for not doing one.

> So I'm driving (riding...I can't drive much anymore due to the sleeping

problem I have.  I fall asleep at the wheel...etc..)for them to give me their

opinion.  They accepted me rather quickly for nothing wrong! LOL.

> Anyone heard of OKC transplant hospital/clinic?

> For about a month I was dizzy, my head spinning like the mixer at the

carnival.  It was strange as I'd get dizzy AFTER I slowly sat up...sometimes I'd

fall backward/forwards like in a faint.  And I would go spinning dizzy sometimes

when I layed down...about 2 minutes after, I found the delayed reaction

puzzling.  Doctors didn't care around here...

> It is almost gone now...don't know why or how long for.

> Questions for those who want to help me:

> 1.  Swallowing.  I am finding it increasingly hard to swallow. I take vicodine

and even with one pill I have to swallow several times before it will go

down...and it is getting worse.  I mentioned it to my husband and he says it is

the pollen in the air (funny, didn't used to be bothered from pollen).  He

thinks I am OVER REACTING and looking for symptoms to have....sigh.

> 2.  Last night I had some symptons I'd like to see if could be the start of my

liver decompensating?

>

> History:  First diagnosed as moderate cirrhosis April 1997.  Doctors ignored

it and so I thought it was no big deal.

> In Mar 2011 I go to Mayo Clinic in Arizona for a general check up as I'd

turned 60 and the doctors in Arkansas I think of the bottom of their

class..haha...

> I go home after 3 weeks due to expenses and go back to Mayo in June 2011 for 6

weeks.  No communication from Mayo on any tests run in Mar so I figure I'm fine

and want to have some loproscopic surgery for fecal incontience and rectecelle.

(I wonder if these have anything to do with liver?  The severe incontience was

really bad for 3 yrs and my GP just said slight diahrea on my chart...sigh.

> When I have my June appt at Mayo the first the doctor says is " You do know you

have severe liver disease? "  (If I'd known that wouldn't I have mentioned it in

Mar when I gave them my detailed medical history???)

> I told her NO!  She then went on with other test results.

> So it is June 2011 before any liver tests are done.  They determine I am too

severe to even do a biopsy....and I go home with no support etc.

> **OK...that is the history...now my symptoms last night?

>

> I slept for about 18 hours straight.  My Grandson came into my room and I was

confused as to what day and time it was.  He proved it to me with the cell

phone.  I had asked him why he was home from school?

> It was 8:30pm I asked him.

> I had to take3 viodine which I rarely take more than 1/2 half pill.  My legs

were so restless and painful.  I tried a massager on them and the pain was so

bad I yelled out.

> My tailbone area was killing me...it hurt and kept getting worse. A heating

pad helped a bit.

> Again...trouble with swallowing.

> My legs are that of a normal thin person (I'm 270)...but I gained 10 lbs in 9

weeks...should have lost weight with legs so thin.

>

> So am I over reacting or what?  Today is great compared to yesterday... but

I'm tired and not to focused.

>

> Can anyone help me?  No family or Doctors think I'm very bad.  My husband

wanted to know why I felt the need to go to OKC...sigh

> Carole

>

>

>

>

>

[Guest guest]

Terribly understaffed on care floors and ER.  Unsanitary conditions of the

hospital rooms - the nurses and staff left bandages and were left out and in

plain site in the room and the biohazard trash was overfilling.   they did not

provide much in the way of clean towels unless we PUSHED for it.  more than

once, they delivered meals that my dad was not " allowed " to have.  the staff a

more than two times almost FORGOT to give him meds and once or twice tried to

double dose him.  .  Whenever my father fell, they did not clean big spots of 

the blood on the walls and did a half ass job on the bathroom floor (whenever he

fell, he was trying to walk to the restroom and messed himself and then fell).

Not only that, but the wound he got from falling, they simply bandaged - it was

not cleaned before bandaged.  The wound still had fecal matter. in it.  His

bandages, whenever attended to, seemed to be infrequent.  They also didn't alert

the doctor or us

or even chart that he had fallen until we pushed the issue.

In the ER, we were told that they " were busy and to be patient.  there were

other critical patients in the ward " .  then, they wouldn't administer or further

treat my father until they got ahold of his GP...while his ammonia levels were

through the roof. eventually, we got around it because his specialist was

contacted.  there's my father, lying there, incoherent, getting mad/confused,

trying to get up because he's scared and confused and exhausted - and we are

told that.  it took about 7-8 hours for them to admit him into a room.

St. Francis - my mother has went there a few times.  We never felt they listened

to us, ignored some of my mother's doctor's orders based on some of her

conditions and we just never really had a good feeling about the care - never

really felt until comfortable or listened to by the nursing staff.  Concentera

(I think it changed names since I moved in 1999) was the same.

 

Sincerely,

E. Bassett

>________________________________

>

>To: livercirrhosissupport

>Sent: Tuesday, March 6, 2012 11:39 AM

>Subject: Re: My Support group.....without you I'd be

in mental ward....

>

>Hi ,

>

>I live in Tulsa and was curious why you said to stay away from St. 

>Francis and St. s?  I don't know anything about Concerta.

>

>Best regards,

>Roni

>

>

>

>

>> Thanks for the advice in Tulsa. Do you know a good liver doctor 

>> there or in Fayetteville, Ar?

>> Everyone thinks I'm joking when I say our doctors and medical are 20 

>> yrs behind Americas.

>> Carole

>> ---- Bassett wrote:

>>

>> =============

>> My dad went to the OU Medical Center near Bricktown and they treated 

>> him better than any other hospital he went to in Oklahoma.  They 

>> treated him very well and he had a specialist.  It is a training 

>> hospital but the care was exceptional.  The nurses were awesome and 

>> the doctors were kind and a little blunt.  We had ALL the family in 

>> my dad's room (all 5 grandkids, my brother, my sister in law, my 

>> husband, and my mom) in the room and they never once complained).  I 

>> figured there would have been a visitors limit.

>>

>> If you can go to Mayo in Rochester MN...if you can....it's the HQ 

>> (if memory serves) and that was the ultimate in care.

>>

>> I hope this helps.

>>

>> Stay away from Concerta or St. Francis and ESPECIALLY ST JOHNS if 

>> you're in the Tulsa area.

>>

>>

>> Sincerely,

>> E. Bassett

>>

>> >________________________________

>> >

>> >To: livercirrhosissupport

>> >Sent: Monday, March 5, 2012 3:10 PM

>> >Subject: My Support group.....without you 

>> I'd be in mental ward....

>> >

>> >

>> >

>> >I want to thank everyone for their support, on and off line, and 

>> the caring you show me. It is a total shame the lack of support 

>> there is for us.

>> >On 5 April I go to OKC to see their liver doctors etc. They are 

>> also a transplant hospital. I'm tired of all the Doctors except 

>> Mayo, saying I'm not that bad...and I could have a biopsy and Mayo 

>> was silly for not doing one.

>> >So I'm driving (riding...I can't drive much anymore due to the 

>> sleeping problem I have. I fall asleep at the wheel...etc..)for them 

>> to give me their opinion. They accepted me rather quickly for 

>> nothing wrong! LOL.

>> >Anyone heard of OKC transplant hospital/clinic?

>> >For about a month I was dizzy, my head spinning like the mixer at 

>> the carnival. It was strange as I'd get dizzy AFTER I slowly sat 

>> up...sometimes I'd fall backward/forwards like in a faint. And I 

>> would go spinning dizzy sometimes when I layed down...about 2 

>> minutes after, I found the delayed reaction puzzling. Doctors didn't 

>> care around here...

>> >It is almost gone now...don't know why or how long for.

>> >Questions for those who want to help me:

>> >1. Swallowing. I am finding it increasingly hard to swallow. I take 

>> vicodine and even with one pill I have to swallow several times 

>> before it will go down...and it is getting worse. I mentioned it to 

>> my husband and he says it is the pollen in the air (funny, didn't 

>> used to be bothered from pollen). He thinks I am OVER REACTING and 

>> looking for symptoms to have....sigh.

>> >2. Last night I had some symptons I'd like to see if could be the 

>> start of my liver decompensating?

>> >

>> >History: First diagnosed as moderate cirrhosis April 1997. Doctors 

>> ignored it and so I thought it was no big deal.

>> >In Mar 2011 I go to Mayo Clinic in Arizona for a general check up 

>> as I'd turned 60 and the doctors in Arkansas I think of the bottom 

>> of their class..haha...

>> >I go home after 3 weeks due to expenses and go back to Mayo in June 

>> 2011 for 6 weeks. No communication from Mayo on any tests run in Mar 

>> so I figure I'm fine and want to have some loproscopic surgery for 

>> fecal incontience and rectecelle. (I wonder if these have anything 

>> to do with liver? The severe incontience was really bad for 3 yrs 

>> and my GP just said slight diahrea on my chart...sigh.

>> >When I have my June appt at Mayo the first the doctor says is " You 

>> do know you have severe liver disease? " (If I'd known that wouldn't 

>> I have mentioned it in Mar when I gave them my detailed medical 

>> history???)

>> >I told her NO! She then went on with other test results.

>> >So it is June 2011 before any liver tests are done. They determine 

>> I am too severe to even do a biopsy....and I go home with no support 

>> etc.

>> >**OK...that is the history...now my symptoms last night?

>> >

>> >I slept for about 18 hours straight. My Grandson came into my room 

>> and I was confused as to what day and time it was. He proved it to 

>> me with the cell phone. I had asked him why he was home from school?

>> >It was 8:30pm I asked him.

>> >I had to take3 viodine which I rarely take more than 1/2 half pill. 

>> My legs were so restless and painful. I tried a massager on them and 

>> the pain was so bad I yelled out.

>> >My tailbone area was killing me...it hurt and kept getting worse. A 

>> heating pad helped a bit.

>> >Again...trouble with swallowing.

>> >My legs are that of a normal thin person (I'm 270)...but I gained 

>> 10 lbs in 9 weeks...should have lost weight with legs so thin.

>> >

>> >So am I over reacting or what? Today is great compared to 

>> yesterday... but I'm tired and not to focused.

>> >

>> >Can anyone help me? No family or Doctors think I'm very bad. My 

>> husband wanted to know why I felt the need to go to OKC...sigh

>> >Carole

>> >

>> >

>> >

>> >

>> >

>>

>>

[Guest guest]

Up here where I live, I think the nurses did a big disserviceto themselves quite

a few years ago, when they refused to have LPN's in the hospitals.  Actually,

they do have cleaning people that do those messes, here in the hospitals, I

know.  It's definitely not a job for an RN.  However, it is horrible that a

nurse would put a bandage on an unclean wound.  I certainly hope your

complained loudly.

________________________________

 

Terribly understaffed on care floors and ER.  Unsanitary conditions of the

hospital rooms - the nurses and staff left bandages and were left out and in

plain site in the room and the biohazard trash was overfilling.   they did not

provide much in the way of clean towels unless we PUSHED for it.  more than

once, they delivered meals that my dad was not " allowed " to have.  the staff a

more than two times almost FORGOT to give him meds and once or twice tried to

double dose him.  .  Whenever my father fell, they did not clean big spots

of  the blood on the walls and did a half ass job on the bathroom floor

(whenever he fell, he was trying to walk to the restroom and messed himself and

then fell). Not only that, but the wound he got from falling, they simply

bandaged - it was not cleaned before bandaged.  The wound still had fecal

matter. in it.  His bandages, whenever attended to, seemed to be infrequent. 

They also didn't alert the doctor or us

or even chart that he had fallen until we pushed the issue.

In the ER, we were told that they " were busy and to be patient.  there were

other critical patients in the ward " .  then, they wouldn't administer or

further treat my father until they got ahold of his GP...while his ammonia

levels were through the roof. eventually, we got around it because his

specialist was contacted.  there's my father, lying there, incoherent, getting

mad/confused, trying to get up because he's scared and confused and exhausted -

and we are told that.  it took about 7-8 hours for them to admit him into a

room.

St. Francis - my mother has went there a few times.  We never felt they

listened to us, ignored some of my mother's doctor's orders based on some of her

conditions and we just never really had a good feeling about the care - never

really felt until comfortable or listened to by the nursing staff.  Concentera

(I think it changed names since I moved in 1999) was the same.

 

Sincerely,

E. Bassett

>________________________________

>

>To: livercirrhosissupport

>Sent: Tuesday, March 6, 2012 11:39 AM

>Subject: Re: My Support group.....without you I'd be

in mental ward....

>

>Hi ,

>

>I live in Tulsa and was curious why you said to stay away from St. 

>Francis and St. s?  I don't know anything about Concerta.

>

>Best regards,

>Roni

>

>

>

>

>> Thanks for the advice in Tulsa. Do you know a good liver doctor 

>> there or in Fayetteville, Ar?

>> Everyone thinks I'm joking when I say our doctors and medical are 20 

>> yrs behind Americas.

>> Carole

>> ---- Bassett wrote:

>>

>> =============

>> My dad went to the OU Medical Center near Bricktown and they treated 

>> him better than any other hospital he went to in Oklahoma.  They 

>> treated him very well and he had a specialist.  It is a training 

>> hospital but the care was exceptional.  The nurses were awesome and 

>> the doctors were kind and a little blunt.  We had ALL the family in 

>> my dad's room (all 5 grandkids, my brother, my sister in law, my 

>> husband, and my mom) in the room and they never once complained).  I 

>> figured there would have been a visitors limit.

>>

>> If you can go to Mayo in Rochester MN...if you can....it's the HQ 

>> (if memory serves) and that was the ultimate in care.

>>

>> I hope this helps.

>>

>> Stay away from Concerta or St. Francis and ESPECIALLY ST JOHNS if 

>> you're in the Tulsa area.

>>

>>

>> Sincerely,

>> E. Bassett

>>

>> >________________________________

>> >

>> >To: livercirrhosissupport

>> >Sent: Monday, March 5, 2012 3:10 PM

>> >Subject: My Support group.....without you 

>> I'd be in mental ward....

>> >

>> >

>> >

>> >I want to thank everyone for their support, on and off line, and 

>> the caring you show me. It is a total shame the lack of support 

>> there is for us.

>> >On 5 April I go to OKC to see their liver doctors etc. They are 

>> also a transplant hospital. I'm tired of all the Doctors except 

>> Mayo, saying I'm not that bad...and I could have a biopsy and Mayo 

>> was silly for not doing one.

>> >So I'm driving (riding...I can't drive much anymore due to the 

>> sleeping problem I have. I fall asleep at the wheel...etc..)for them 

>> to give me their opinion. They accepted me rather quickly for 

>> nothing wrong! LOL.

>> >Anyone heard of OKC transplant hospital/clinic?

>> >For about a month I was dizzy, my head spinning like the mixer at 

>> the carnival. It was strange as I'd get dizzy AFTER I slowly sat 

>> up...sometimes I'd fall backward/forwards like in a faint. And I 

>> would go spinning dizzy sometimes when I layed down...about 2 

>> minutes after, I found the delayed reaction puzzling. Doctors didn't 

>> care around here...

>> >It is almost gone now...don't know why or how long for.

>> >Questions for those who want to help me:

>> >1. Swallowing. I am finding it increasingly hard to swallow. I take 

>> vicodine and even with one pill I have to swallow several times 

>> before it will go down...and it is getting worse. I mentioned it to 

>> my husband and he says it is the pollen in the air (funny, didn't 

>> used to be bothered from pollen). He thinks I am OVER REACTING and 

>> looking for symptoms to have....sigh.

>> >2. Last night I had some symptons I'd like to see if could be the 

>> start of my liver decompensating?

>> >

>> >History: First diagnosed as moderate cirrhosis April 1997. Doctors 

>> ignored it and so I thought it was no big deal.

>> >In Mar 2011 I go to Mayo Clinic in Arizona for a general check up 

>> as I'd turned 60 and the doctors in Arkansas I think of the bottom 

>> of their class..haha...

>> >I go home after 3 weeks due to expenses and go back to Mayo in June 

>> 2011 for 6 weeks. No communication from Mayo on any tests run in Mar 

>> so I figure I'm fine and want to have some loproscopic surgery for 

>> fecal incontience and rectecelle. (I wonder if these have anything 

>> to do with liver? The severe incontience was really bad for 3 yrs 

>> and my GP just said slight diahrea on my chart...sigh.

>> >When I have my June appt at Mayo the first the doctor says is " You 

>> do know you have severe liver disease? " (If I'd known that wouldn't 

>> I have mentioned it in Mar when I gave them my detailed medical 

>> history???)

>> >I told her NO! She then went on with other test results.

>> >So it is June 2011 before any liver tests are done. They determine 

>> I am too severe to even do a biopsy....and I go home with no support 

>> etc.

>> >**OK...that is the history...now my symptoms last night?

>> >

>> >I slept for about 18 hours straight. My Grandson came into my room 

>> and I was confused as to what day and time it was. He proved it to 

>> me with the cell phone. I had asked him why he was home from school?

>> >It was 8:30pm I asked him.

>> >I had to take3 viodine which I rarely take more than 1/2 half pill. 

>> My legs were so restless and painful. I tried a massager on them and 

>> the pain was so bad I yelled out.

>> >My tailbone area was killing me...it hurt and kept getting worse. A 

>> heating pad helped a bit.

>> >Again...trouble with swallowing.

>> >My legs are that of a normal thin person (I'm 270)...but I gained 

>> 10 lbs in 9 weeks...should have lost weight with legs so thin.

>> >

>> >So am I over reacting or what? Today is great compared to 

>> yesterday... but I'm tired and not to focused.

>> >

>> >Can anyone help me? No family or Doctors think I'm very bad. My 

>> husband wanted to know why I felt the need to go to OKC...sigh

>> >Carole

>> >

>> >

>> >

>> >

>> >

>>

>>

[Guest guest]

That is horrible ! I was in St. Francis for about a week. At

first, they were wonderful but the care got worse and worse the longer

I stayed. I was so ready to get out of there! They did get me in

really fast because I had lost alot of blood which I appreciated.

They saved my life by getting me blood so fast. They are also great

about helping people pay for bills they can't afford. My only

complaint was they started ignoring when I rang the buzzer and it

wasn't like I was buzzing them constantly. But that is terrible about

your father.......they could have caused a very serious infection.

Roni

> Terribly understaffed on care floors and ER. Unsanitary conditions

> of the hospital rooms - the nurses and staff left bandages and were

> left out and in plain site in the room and the biohazard trash was

> overfilling. they did not provide much in the way of clean towels

> unless we PUSHED for it. more than once, they delivered meals that

> my dad was not " allowed " to have. the staff a more than two times

> almost FORGOT to give him meds and once or twice tried to double

> dose him. . Whenever my father fell, they did not clean big spots

> of the blood on the walls and did a half ass job on the bathroom

> floor (whenever he fell, he was trying to walk to the restroom and

> messed himself and then fell). Not only that, but the wound he got

> from falling, they simply bandaged - it was not cleaned before

> bandaged. The wound still had fecal matter. in it. His bandages,

> whenever attended to, seemed to be infrequent. They also didn't

> alert the doctor or us

> or even chart that he had fallen until we pushed the issue.

>

> In the ER, we were told that they " were busy and to be patient.

> there were other critical patients in the ward " . then, they

> wouldn't administer or further treat my father until they got ahold

> of his GP...while his ammonia levels were through the roof.

> eventually, we got around it because his specialist was contacted.

> there's my father, lying there, incoherent, getting mad/confused,

> trying to get up because he's scared and confused and exhausted -

> and we are told that. it took about 7-8 hours for them to admit him

> into a room.

>

> St. Francis - my mother has went there a few times. We never felt

> they listened to us, ignored some of my mother's doctor's orders

> based on some of her conditions and we just never really had a good

> feeling about the care - never really felt until comfortable or

> listened to by the nursing staff. Concentera (I think it changed

> names since I moved in 1999) was the same.

>

>

> Sincerely,

> E. Bassett

>

> >________________________________

> >

> >To: livercirrhosissupport

> >Sent: Tuesday, March 6, 2012 11:39 AM

> >Subject: Re: My Support group.....without

> you I'd be in mental ward....

> >

> >Hi ,

> >

> >I live in Tulsa and was curious why you said to stay away from St.

> >Francis and St. s? I don't know anything about Concerta.

> >

> >Best regards,

> >Roni

> >

> >

> >

> >

> >> Thanks for the advice in Tulsa. Do you know a good liver doctor

> >> there or in Fayetteville, Ar?

> >> Everyone thinks I'm joking when I say our doctors and medical are

> 20

> >> yrs behind Americas.

> >> Carole

> >> ---- Bassett wrote:

> >>

> >> =============

> >> My dad went to the OU Medical Center near Bricktown and they

> treated

> >> him better than any other hospital he went to in Oklahoma. They

> >> treated him very well and he had a specialist. It is a training

> >> hospital but the care was exceptional. The nurses were awesome and

> >> the doctors were kind and a little blunt. We had ALL the family in

> >> my dad's room (all 5 grandkids, my brother, my sister in law, my

> >> husband, and my mom) in the room and they never once

> complained). I

> >> figured there would have been a visitors limit.

> >>

> >> If you can go to Mayo in Rochester MN...if you can....it's the HQ

> >> (if memory serves) and that was the ultimate in care.

> >>

> >> I hope this helps.

> >>

> >> Stay away from Concerta or St. Francis and ESPECIALLY ST JOHNS if

> >> you're in the Tulsa area.

> >>

> >>

> >> Sincerely,

> >> E. Bassett

> >>

> >> >________________________________

> >> >

> >> >To: livercirrhosissupport

> >> >Sent: Monday, March 5, 2012 3:10 PM

> >> >Subject: My Support group.....without

> you

> >> I'd be in mental ward....

> >> >

> >> >

> >> >

> >> >I want to thank everyone for their support, on and off line, and

> >> the caring you show me. It is a total shame the lack of support

> >> there is for us.

> >> >On 5 April I go to OKC to see their liver doctors etc. They are

> >> also a transplant hospital. I'm tired of all the Doctors except

> >> Mayo, saying I'm not that bad...and I could have a biopsy and Mayo

> >> was silly for not doing one.

> >> >So I'm driving (riding...I can't drive much anymore due to the

> >> sleeping problem I have. I fall asleep at the wheel...etc..)for

> them

> >> to give me their opinion. They accepted me rather quickly for

> >> nothing wrong! LOL.

> >> >Anyone heard of OKC transplant hospital/clinic?

> >> >For about a month I was dizzy, my head spinning like the mixer at

> >> the carnival. It was strange as I'd get dizzy AFTER I slowly sat

> >> up...sometimes I'd fall backward/forwards like in a faint. And I

> >> would go spinning dizzy sometimes when I layed down...about 2

> >> minutes after, I found the delayed reaction puzzling. Doctors

> didn't

> >> care around here...

> >> >It is almost gone now...don't know why or how long for.

> >> >Questions for those who want to help me:

> >> >1. Swallowing. I am finding it increasingly hard to swallow. I

> take

> >> vicodine and even with one pill I have to swallow several times

> >> before it will go down...and it is getting worse. I mentioned it to

> >> my husband and he says it is the pollen in the air (funny, didn't

> >> used to be bothered from pollen). He thinks I am OVER REACTING and

> >> looking for symptoms to have....sigh.

> >> >2. Last night I had some symptons I'd like to see if could be the

> >> start of my liver decompensating?

> >> >

> >> >History: First diagnosed as moderate cirrhosis April 1997. Doctors

> >> ignored it and so I thought it was no big deal.

> >> >In Mar 2011 I go to Mayo Clinic in Arizona for a general check up

> >> as I'd turned 60 and the doctors in Arkansas I think of the bottom

> >> of their class..haha...

> >> >I go home after 3 weeks due to expenses and go back to Mayo in

> June

> >> 2011 for 6 weeks. No communication from Mayo on any tests run in

> Mar

> >> so I figure I'm fine and want to have some loproscopic surgery for

> >> fecal incontience and rectecelle. (I wonder if these have anything

> >> to do with liver? The severe incontience was really bad for 3 yrs

> >> and my GP just said slight diahrea on my chart...sigh.

> >> >When I have my June appt at Mayo the first the doctor says is " You

> >> do know you have severe liver disease? " (If I'd known that wouldn't

> >> I have mentioned it in Mar when I gave them my detailed medical

> >> history???)

> >> >I told her NO! She then went on with other test results.

> >> >So it is June 2011 before any liver tests are done. They determine

> >> I am too severe to even do a biopsy....and I go home with no

> support

> >> etc.

> >> >**OK...that is the history...now my symptoms last night?

> >> >

> >> >I slept for about 18 hours straight. My Grandson came into my room

> >> and I was confused as to what day and time it was. He proved it to

> >> me with the cell phone. I had asked him why he was home from

> school?

> >> >It was 8:30pm I asked him.

> >> >I had to take3 viodine which I rarely take more than 1/2 half

> pill.

> >> My legs were so restless and painful. I tried a massager on them

> and

> >> the pain was so bad I yelled out.

> >> >My tailbone area was killing me...it hurt and kept getting

> worse. A

> >> heating pad helped a bit.

> >> >Again...trouble with swallowing.

> >> >My legs are that of a normal thin person (I'm 270)...but I gained

> >> 10 lbs in 9 weeks...should have lost weight with legs so thin.

> >> >

> >> >So am I over reacting or what? Today is great compared to

> >> yesterday... but I'm tired and not to focused.

> >> >

> >> >Can anyone help me? No family or Doctors think I'm very bad. My

> >> husband wanted to know why I felt the need to go to OKC...sigh

> >> >Carole

> >> >

> >> >

> >> >

> >> >

> >> >

> >>

> >>

[Guest guest]

, complain to the local Dept. of Health. In Calif where I worked one

could call in complaints anomymously (sp?)

and I hope that is the case where you are.

Jackie

My Support group.....without you

>> I'd be in mental ward....

>> >

>> >

>> >

>> >I want to thank everyone for their support, on and off line, and

>> the caring you show me. It is a total shame the lack of support

>> there is for us.

>> >On 5 April I go to OKC to see their liver doctors etc. They are

>> also a transplant hospital. I'm tired of all the Doctors except

>> Mayo, saying I'm not that bad...and I could have a biopsy and Mayo

>> was silly for not doing one.

>> >So I'm driving (riding...I can't drive much anymore due to the

>> sleeping problem I have. I fall asleep at the wheel...etc..)for them

>> to give me their opinion. They accepted me rather quickly for

>> nothing wrong! LOL.

>> >Anyone heard of OKC transplant hospital/clinic?

>> >For about a month I was dizzy, my head spinning like the mixer at

>> the carnival. It was strange as I'd get dizzy AFTER I slowly sat

>> up...sometimes I'd fall backward/forwards like in a faint. And I

>> would go spinning dizzy sometimes when I layed down...about 2

>> minutes after, I found the delayed reaction puzzling. Doctors didn't

>> care around here...

>> >It is almost gone now...don't know why or how long for.

>> >Questions for those who want to help me:

>> >1. Swallowing. I am finding it increasingly hard to swallow. I take

>> vicodine and even with one pill I have to swallow several times

>> before it will go down...and it is getting worse. I mentioned it to

>> my husband and he says it is the pollen in the air (funny, didn't

>> used to be bothered from pollen). He thinks I am OVER REACTING and

>> looking for symptoms to have....sigh.

>> >2. Last night I had some symptons I'd like to see if could be the

>> start of my liver decompensating?

>> >

>> >History: First diagnosed as moderate cirrhosis April 1997. Doctors

>> ignored it and so I thought it was no big deal.

>> >In Mar 2011 I go to Mayo Clinic in Arizona for a general check up

>> as I'd turned 60 and the doctors in Arkansas I think of the bottom

>> of their class..haha...

>> >I go home after 3 weeks due to expenses and go back to Mayo in June

>> 2011 for 6 weeks. No communication from Mayo on any tests run in Mar

>> so I figure I'm fine and want to have some loproscopic surgery for

>> fecal incontience and rectecelle. (I wonder if these have anything

>> to do with liver? The severe incontience was really bad for 3 yrs

>> and my GP just said slight diahrea on my chart...sigh.

>> >When I have my June appt at Mayo the first the doctor says is " You

>> do know you have severe liver disease? " (If I'd known that wouldn't

>> I have mentioned it in Mar when I gave them my detailed medical

>> history???)

>> >I told her NO! She then went on with other test results.

>> >So it is June 2011 before any liver tests are done. They determine

>> I am too severe to even do a biopsy....and I go home with no support

>> etc.

>> >**OK...that is the history...now my symptoms last night?

>> >

>> >I slept for about 18 hours straight. My Grandson came into my room

>> and I was confused as to what day and time it was. He proved it to

>> me with the cell phone. I had asked him why he was home from school?

>> >It was 8:30pm I asked him.

>> >I had to take3 viodine which I rarely take more than 1/2 half pill.

>> My legs were so restless and painful. I tried a massager on them and

>> the pain was so bad I yelled out.

>> >My tailbone area was killing me...it hurt and kept getting worse. A

>> heating pad helped a bit.

>> >Again...trouble with swallowing.

>> >My legs are that of a normal thin person (I'm 270)...but I gained

>> 10 lbs in 9 weeks...should have lost weight with legs so thin.

>> >

>> >So am I over reacting or what? Today is great compared to

>> yesterday... but I'm tired and not to focused.

>> >

>> >Can anyone help me? No family or Doctors think I'm very bad. My

>> husband wanted to know why I felt the need to go to OKC...sigh

>> >Carole

>> >

>> >

>> >

>> >

>> >

>>

>>

[Guest guest]

I reported my Grandsons abuse at a mental hospital where he was put to get

started on meds for his autism. It was very clearly they weren't going to let

him out (8 yrs old!) in the 10 days we gave him so we removed him with our atty

present.

Within a month Child Protective Services came and took him and kept him until he

was 11 yrs old! He was abused, physically and mentally...taken from all his

family and put at other end of state without us being allowed to talk too him.

His only crime was being autistic and having autistic fits. It cost us $50,000

and we had to move and they took him from his Mom and gave him to us.

At 11 when we finally got him back he was at a PRE KINDERGARTEN level of

education! His back is permanently damaged from illegal restrains from school

and hospitals.

In Arkansas the good ol boys are alive and do not take to outisiders that

weren't born here. (We've lived here 15 yrs). The school district (who reported

along with the hospital to DHS) are very influential here. If you make waves

you will be sorry you ever did.

I went national and the local TV anchor (his wife works at the school that

reported) he sent out an email to I don't know how many thousands of people, so

no one would write the story and help Zakh. (Still have a copy of email someone

sent me).

I can't find anyone to write a book, or investigate anyone involved. I

documented everything..but no one will look at proof.

I grew up in Calif and was shocked at how backwards this place is.

Attorneys won't take case even though it would make them famous if they did.

Now with me so sluggish and tired I can't help bring him justice. He is 13 now

and the things he says went on break my heart. Hopefully when he is 18 he will

find an atty to listen to his story so he can file Civil Suit on all

involved...and they go up to the Capitol of Arkansas.

I think stuff is still on the internet regarding him. Look up Zakh Price and

autism.

Be careful in small towns and states like here.

---- son wrote:

=============

, complain to the local Dept. of Health. In Calif where I worked one

could call in complaints anomymously (sp?)

and I hope that is the case where you are.

Jackie

My Support group.....without you

>> I'd be in mental ward....

>> >

>> >

>> >

>> >I want to thank everyone for their support, on and off line, and

>> the caring you show me. It is a total shame the lack of support

>> there is for us.

>> >On 5 April I go to OKC to see their liver doctors etc. They are

>> also a transplant hospital. I'm tired of all the Doctors except

>> Mayo, saying I'm not that bad...and I could have a biopsy and Mayo

>> was silly for not doing one.

>> >So I'm driving (riding...I can't drive much anymore due to the

>> sleeping problem I have. I fall asleep at the wheel...etc..)for them

>> to give me their opinion. They accepted me rather quickly for

>> nothing wrong! LOL.

>> >Anyone heard of OKC transplant hospital/clinic?

>> >For about a month I was dizzy, my head spinning like the mixer at

>> the carnival. It was strange as I'd get dizzy AFTER I slowly sat

>> up...sometimes I'd fall backward/forwards like in a faint. And I

>> would go spinning dizzy sometimes when I layed down...about 2

>> minutes after, I found the delayed reaction puzzling. Doctors didn't

>> care around here...

>> >It is almost gone now...don't know why or how long for.

>> >Questions for those who want to help me:

>> >1. Swallowing. I am finding it increasingly hard to swallow. I take

>> vicodine and even with one pill I have to swallow several times

>> before it will go down...and it is getting worse. I mentioned it to

>> my husband and he says it is the pollen in the air (funny, didn't

>> used to be bothered from pollen). He thinks I am OVER REACTING and

>> looking for symptoms to have....sigh.

>> >2. Last night I had some symptons I'd like to see if could be the

>> start of my liver decompensating?

>> >

>> >History: First diagnosed as moderate cirrhosis April 1997. Doctors

>> ignored it and so I thought it was no big deal.

>> >In Mar 2011 I go to Mayo Clinic in Arizona for a general check up

>> as I'd turned 60 and the doctors in Arkansas I think of the bottom

>> of their class..haha...

>> >I go home after 3 weeks due to expenses and go back to Mayo in June

>> 2011 for 6 weeks. No communication from Mayo on any tests run in Mar

>> so I figure I'm fine and want to have some loproscopic surgery for

>> fecal incontience and rectecelle. (I wonder if these have anything

>> to do with liver? The severe incontience was really bad for 3 yrs

>> and my GP just said slight diahrea on my chart...sigh.

>> >When I have my June appt at Mayo the first the doctor says is " You

>> do know you have severe liver disease? " (If I'd known that wouldn't

>> I have mentioned it in Mar when I gave them my detailed medical

>> history???)

>> >I told her NO! She then went on with other test results.

>> >So it is June 2011 before any liver tests are done. They determine

>> I am too severe to even do a biopsy....and I go home with no support

>> etc.

>> >**OK...that is the history...now my symptoms last night?

>> >

>> >I slept for about 18 hours straight. My Grandson came into my room

>> and I was confused as to what day and time it was. He proved it to

>> me with the cell phone. I had asked him why he was home from school?

>> >It was 8:30pm I asked him.

>> >I had to take3 viodine which I rarely take more than 1/2 half pill.

>> My legs were so restless and painful. I tried a massager on them and

>> the pain was so bad I yelled out.

>> >My tailbone area was killing me...it hurt and kept getting worse. A

>> heating pad helped a bit.

>> >Again...trouble with swallowing.

>> >My legs are that of a normal thin person (I'm 270)...but I gained

>> 10 lbs in 9 weeks...should have lost weight with legs so thin.

>> >

>> >So am I over reacting or what? Today is great compared to

>> yesterday... but I'm tired and not to focused.

>> >

>> >Can anyone help me? No family or Doctors think I'm very bad. My

>> husband wanted to know why I felt the need to go to OKC...sigh

>> >Carole

>> >

>> >

>> >

>> >

>> >

>>

>>