Guest guest Posted April 10, 2012 Report Share Posted April 10, 2012 Will someone from hospice come and stay with you? Is there someone close by who can stay with your kids in a different part of the house? I wish I were close by. I would come and stay with you myself. You should not be alone. I believe there are hospice volunteers who are on call and may be able to help you. My heart is breaking as I write this to you. Love, Jackie Ellermann ________________________________ To: livercirrhosissupport Sent: Tuesday, April 10, 2012 5:32 PM Subject: a bad prognosis  Today started coughing up blood. I called the hospice people. The news wasn't good. I was told they thought he probably won't make it through the weekend. That I need to get the kids somewhere else because, it was going to be nasty. I was told to get a lot of dark colored towels. He is a high risk for a bleed out. I don't even know how to react. It's kind of like a bad dream. Or a cruel joke. I didn't ever expect it to end this way for him. I don't really know what I expected. I don't even have a clue where to send my kids. How to get them there, he can't be left alone. I can't leave any one else with him. I can't ask someone to sit with him with that being how they expect him to go. He asked me what the nurses and I were talkin about. I didn't want to tell him. I tried to avoid answering by telling him other things. It didn't work. I had to tell him. He just got this strangest look on his face. He said " no, I don't think so. I've got more than a week or two " . I don't have any idea what to do. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2012 Report Share Posted April 10, 2012 *hugs* i am so sorry. i really am. i am sending all my energies and thoughts to you and your family. are you in the houston area? i can come help out with him or help with the kiddos tomorrow night - i am not a weirdo either. i have a 2 year old daughter of my own who is asleep by 7. call hospice definitely - ask if they have a volunteer to help you. if you are outside of houston area, perhaps they have someone that could sit with him as you get your children to somewhere else temporarily. it might be good to have a good friend or family member,neighbor, church goer or etc...on stand by, someone who you can take the kids to..or ask someone to take the kids to, if things look like they are going to get scarey for them. Go ahead and get the dark towels, just in case. I am not saying this will happen. It wouldn't be bad to have on hand because if that does happen, it lessens the appearance of the amount of whatever fluid is being released. I mean, heck, if you drop a tablespoon of milk on the floor is looks huge, ya know? I was worried about that with my dad because all the grandkids were over right (and i mean right) around the time he passed because my parents have light colored towels. the hospice people can be wrong about the amount of time - stranger things have happened. no one knows the exact amount of time we have left, and often we know our bodies better than science and medicine.  Sincerely, E. Bassett >________________________________ > >To: livercirrhosissupport >Sent: Tuesday, April 10, 2012 4:32 PM >Subject: a bad prognosis > > > >Today started coughing up blood. I called the hospice people. The news wasn't good. I was told they thought he probably won't make it through the weekend. That I need to get the kids somewhere else because, it was going to be nasty. I was told to get a lot of dark colored towels. He is a high risk for a bleed out. > >I don't even know how to react. It's kind of like a bad dream. Or a cruel joke. I didn't ever expect it to end this way for him. I don't really know what I expected. I don't even have a clue where to send my kids. How to get them there, he can't be left alone. I can't leave any one else with him. I can't ask someone to sit with him with that being how they expect him to go. > >He asked me what the nurses and I were talkin about. I didn't want to tell him. I tried to avoid answering by telling him other things. It didn't work. I had to tell him. He just got this strangest look on his face. He said " no, I don't think so. I've got more than a week or two " . > >I don't have any idea what to do. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2012 Report Share Posted April 10, 2012 Kim I am so sorry to hear this!! Definitely, you should not be alone with . I know that Hospice where I live, would send somebody pretty quick. That person could sit with while you dealt with the kids. Besides, you should not be alone at a time like this!! Please ask for whatever they can give. But, if says he has another week or two - I wouldn't dispute that. It's kinda the opposite of a sick elderly person, that literally wants to die and does. Or the person that is waiting for a family member or to be told that it's OK to go now!! Recently, I had a friend that was in the hospital. When I got there, he was in ICU plugged in pretty good. I could only sit and talk to him a bit. Then another friend came in and when the nurse said that he was fighting back, she said " Oh ya, Pat doesn't want to die yet " . I had to look at her in utter amazement!! If you knew Pat, his diabetes had already taken a leg and he was getting tired of life. He didn't actually like her much; but, never told her!! Well, he did come out of that spell; but, had to stay in the hospital. About 2 weeks later, they took off his other leg and he died real shortly after, like the next morning. All I could think was - Oh thank heavens!!  No one wants to watch a person struggle!! Know that will be set free as soon as his breathing stops. He no longer will be struggling or having to rely on you for everything. THEN I'd suggest that you ask Hospice about grief counseling. Again, that's what is offered here anyway. Gloria ________________________________  Today started coughing up blood. I called the hospice people. The news wasn't good. I was told they thought he probably won't make it through the weekend. That I need to get the kids somewhere else because, it was going to be nasty. I was told to get a lot of dark colored towels. He is a high risk for a bleed out. I don't even know how to react. It's kind of like a bad dream. Or a cruel joke. I didn't ever expect it to end this way for him. I don't really know what I expected. I don't even have a clue where to send my kids. How to get them there, he can't be left alone. I can't leave any one else with him. I can't ask someone to sit with him with that being how they expect him to go. He asked me what the nurses and I were talkin about. I didn't want to tell him. I tried to avoid answering by telling him other things. It didn't work. I had to tell him. He just got this strangest look on his face. He said " no, I don't think so. I've got more than a week or two " . I don't have any idea what to do. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2012 Report Share Posted April 11, 2012 Thank you for your thoughts and prayers. Hospice will send someone once the agnal breathing, or bleeding begins. They will stay with us until the end after that. I have a friend who can take the kids. Problem really is getting them there. I can't take them, its 4 hours one way. She can't come get them because her cars in the shop. I'm going to ask my uncle to take them to her or meet her or something. As for someone sitting with me, no. There isn't really any one. Everyone works. It's ok tho. I don't mind being here alone with . I will have someone when its bad. I am in the Houston, I'm in league city, at s apartment. My step daughter cane last night so I could let her know and then she stayed while I ran to get some things from my house. hosissupport , Gloria wrote: > > Kim > > I am so sorry to hear this!! Definitely, you should not be alone with . I know that Hospice where I live, would send somebody pretty quick. That person could sit with while you dealt with the kids. Besides, you should not be alone at a time like this!! Please ask for whatever they can give. > > But, if says he has another week or two - I wouldn't dispute that. It's kinda the opposite of a sick elderly person, that literally wants to die and does. Or the person that is waiting for a family member or to be told that it's OK to go now!! > > Recently, I had a friend that was in the hospital. When I got there, he was in ICU plugged in pretty good. I could only sit and talk to him a bit. Then another friend came in and when the nurse said that he was fighting back, she said " Oh ya, Pat doesn't want to die yet " . I had to look at her in utter amazement!! If you knew Pat, his diabetes had already taken a leg and he was getting tired of life. He didn't actually like her much; but, never told her!! Well, he did come out of that spell; but, had to stay in the hospital. About 2 weeks later, they took off his other leg and he died real shortly after, like the next morning. All I could think was - Oh thank heavens!!  No one wants to watch a person struggle!! > > Know that will be set free as soon as his breathing stops. He no longer will be struggling or having to rely on you for everything. THEN I'd suggest that you ask Hospice about grief counseling. Again, that's what is offered here anyway. > > Gloria > > > > ________________________________ > > > >  > Today started coughing up blood. I called the hospice people. The news wasn't good. I was told they thought he probably won't make it through the weekend. That I need to get the kids somewhere else because, it was going to be nasty. I was told to get a lot of dark colored towels. He is a high risk for a bleed out. > > I don't even know how to react. It's kind of like a bad dream. Or a cruel joke. I didn't ever expect it to end this way for him. I don't really know what I expected. I don't even have a clue where to send my kids. How to get them there, he can't be left alone. I can't leave any one else with him. I can't ask someone to sit with him with that being how they expect him to go. > > He asked me what the nurses and I were talkin about. I didn't want to tell him. I tried to avoid answering by telling him other things. It didn't work. I had to tell him. He just got this strangest look on his face. He said " no, I don't think so. I've got more than a week or two " . > > I don't have any idea what to do. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2012 Report Share Posted April 11, 2012 I am so pleased to hear that Hospice would be with you constantly at the end. Don't count yourself out. You need support from Hospice, every bit as much as . The more I think about it - the less I want to die at home!! That would tear my mother, son and grandniece too much. Hopefully, I can get to the hospital in the last couple of days. Thank you for sharing this experience and helping me see what the end could be like!! I so believe the we, the patient, won't really be aware of what we put our loved ones through at that end. ________________________________  Thank you for your thoughts and prayers. Hospice will send someone once the agnal breathing, or bleeding begins. They will stay with us until the end after that. I have a friend who can take the kids. Problem really is getting them there. I can't take them, its 4 hours one way. She can't come get them because her cars in the shop. I'm going to ask my uncle to take them to her or meet her or something. As for someone sitting with me, no. There isn't really any one. Everyone works. It's ok tho. I don't mind being here alone with . I will have someone when its bad. I am in the Houston, I'm in league city, at s apartment. My step daughter cane last night so I could let her know and then she stayed while I ran to get some things from my house. hosissupport , Gloria wrote: > > Kim > > I am so sorry to hear this!! Definitely, you should not be alone with . I know that Hospice where I live, would send somebody pretty quick. That person could sit with while you dealt with the kids. Besides, you should not be alone at a time like this!! Please ask for whatever they can give. > > But, if says he has another week or two - I wouldn't dispute that. It's kinda the opposite of a sick elderly person, that literally wants to die and does. Or the person that is waiting for a family member or to be told that it's OK to go now!! > > Recently, I had a friend that was in the hospital. When I got there, he was in ICU plugged in pretty good. I could only sit and talk to him a bit. Then another friend came in and when the nurse said that he was fighting back, she said " Oh ya, Pat doesn't want to die yet " . I had to look at her in utter amazement!! If you knew Pat, his diabetes had already taken a leg and he was getting tired of life. He didn't actually like her much; but, never told her!! Well, he did come out of that spell; but, had to stay in the hospital. About 2 weeks later, they took off his other leg and he died real shortly after, like the next morning. All I could think was - Oh thank heavens!!  No one wants to watch a person struggle!! > > Know that will be set free as soon as his breathing stops. He no longer will be struggling or having to rely on you for everything. THEN I'd suggest that you ask Hospice about grief counseling. Again, that's what is offered here anyway. > > Gloria > > > > ________________________________ > > > >  > Today started coughing up blood. I called the hospice people. The news wasn't good. I was told they thought he probably won't make it through the weekend. That I need to get the kids somewhere else because, it was going to be nasty. I was told to get a lot of dark colored towels. He is a high risk for a bleed out. > > I don't even know how to react. It's kind of like a bad dream. Or a cruel joke. I didn't ever expect it to end this way for him. I don't really know what I expected. I don't even have a clue where to send my kids. How to get them there, he can't be left alone. I can't leave any one else with him. I can't ask someone to sit with him with that being how they expect him to go. > > He asked me what the nurses and I were talkin about. I didn't want to tell him. I tried to avoid answering by telling him other things. It didn't work. I had to tell him. He just got this strangest look on his face. He said " no, I don't think so. I've got more than a week or two " . > > I don't have any idea what to do. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2012 Report Share Posted April 11, 2012 If there is anything I can do to help, let me know. I don't mind a little bit of a drive to League City. I live close to the belt, not to far from I-10. I can't do much until after 5 pm this week, but my husband can stay with our daughter this weekend should you need anything. If you need a phone number of someone to call or text, I don't mind. I know sometimes going through this you may need a third party to help you think straight. I hope I am not being too pushy, but I am here if you need me.  Sincerely, E. Bassett >________________________________ > >To: livercirrhosissupport >Sent: Wednesday, April 11, 2012 7:03 AM >Subject: Re: a bad prognosis > > > >Thank you for your thoughts and prayers. >Hospice will send someone once the agnal breathing, or bleeding begins. They will stay with us until the end after that. >I have a friend who can take the kids. Problem really is getting them there. I can't take them, its 4 hours one way. She can't come get them because her cars in the shop. I'm going to ask my uncle to take them to her or meet her or something. >As for someone sitting with me, no. There isn't really any one. Everyone works. It's ok tho. I don't mind being here alone with . I will have someone when its bad. >I am in the Houston, I'm in league city, at s apartment. My step daughter cane last night so I could let her know and then she stayed while I ran to get some things from my house. > >hosissupport , Gloria wrote: >> >> Kim >> >> I am so sorry to hear this!! Definitely, you should not be alone with . I know that Hospice where I live, would send somebody pretty quick. That person could sit with while you dealt with the kids. Besides, you should not be alone at a time like this!! Please ask for whatever they can give. >> >> But, if says he has another week or two - I wouldn't dispute that. It's kinda the opposite of a sick elderly person, that literally wants to die and does. Or the person that is waiting for a family member or to be told that it's OK to go now!! >> >> Recently, I had a friend that was in the hospital. When I got there, he was in ICU plugged in pretty good. I could only sit and talk to him a bit. Then another friend came in and when the nurse said that he was fighting back, she said " Oh ya, Pat doesn't want to die yet " . I had to look at her in utter amazement!! If you knew Pat, his diabetes had already taken a leg and he was getting tired of life. He didn't actually like her much; but, never told her!! Well, he did come out of that spell; but, had to stay in the hospital. About 2 weeks later, they took off his other leg and he died real shortly after, like the next morning. All I could think was - Oh thank heavens!!  No one wants to watch a person struggle!! >> >> Know that will be set free as soon as his breathing stops. He no longer will be struggling or having to rely on you for everything. THEN I'd suggest that you ask Hospice about grief counseling. Again, that's what is offered here anyway. >> >> Gloria >> >> >> >> ________________________________ >> >> >> >>  >> Today started coughing up blood. I called the hospice people. The news wasn't good. I was told they thought he probably won't make it through the weekend. That I need to get the kids somewhere else because, it was going to be nasty. I was told to get a lot of dark colored towels. He is a high risk for a bleed out. >> >> I don't even know how to react. It's kind of like a bad dream. Or a cruel joke. I didn't ever expect it to end this way for him. I don't really know what I expected. I don't even have a clue where to send my kids. How to get them there, he can't be left alone. I can't leave any one else with him. I can't ask someone to sit with him with that being how they expect him to go. >> >> He asked me what the nurses and I were talkin about. I didn't want to tell him. I tried to avoid answering by telling him other things. It didn't work. I had to tell him. He just got this strangest look on his face. He said " no, I don't think so. I've got more than a week or two " . >> >> I don't have any idea what to do. >> >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2012 Report Share Posted April 11, 2012 Gloria, you and my dad could have been twins with that mindset!  However, I am glad he passed at home with my mom, my brother and I around him - in a place where we knew he was comfortable. But I can see this from angles, too. Sincerely, E. Bassett >________________________________ > >To: " livercirrhosissupport " <livercirrhosissupport > >Sent: Wednesday, April 11, 2012 2:21 PM >Subject: Re: a bad prognosis > > > >I am so pleased to hear that Hospice would be with you constantly at the end. Don't count yourself out. You need support from Hospice, every bit as much as . > >The more I think about it - the less I want to die at home!! That would tear my mother, son and grandniece too much. Hopefully, I can get to the hospital in the last couple of days. > >Thank you for sharing this experience and helping me see what the end could be like!! I so believe the we, the patient, won't really be aware of what we put our loved ones through at that end. > >________________________________ > > >Thank you for your thoughts and prayers. >Hospice will send someone once the agnal breathing, or bleeding begins. They will stay with us until the end after that. >I have a friend who can take the kids. Problem really is getting them there. I can't take them, its 4 hours one way. She can't come get them because her cars in the shop. I'm going to ask my uncle to take them to her or meet her or something. >As for someone sitting with me, no. There isn't really any one. Everyone works. It's ok tho. I don't mind being here alone with . I will have someone when its bad. >I am in the Houston, I'm in league city, at s apartment. My step daughter cane last night so I could let her know and then she stayed while I ran to get some things from my house. > >hosissupport , Gloria wrote: >> >> Kim >> >> I am so sorry to hear this!! Definitely, you should not be alone with . I know that Hospice where I live, would send somebody pretty quick. That person could sit with while you dealt with the kids. Besides, you should not be alone at a time like this!! Please ask for whatever they can give. >> >> But, if says he has another week or two - I wouldn't dispute that. It's kinda the opposite of a sick elderly person, that literally wants to die and does. Or the person that is waiting for a family member or to be told that it's OK to go now!! >> >> Recently, I had a friend that was in the hospital. When I got there, he was in ICU plugged in pretty good. I could only sit and talk to him a bit. Then another friend came in and when the nurse said that he was fighting back, she said " Oh ya, Pat doesn't want to die yet " . I had to look at her in utter amazement!! If you knew Pat, his diabetes had already taken a leg and he was getting tired of life. He didn't actually like her much; but, never told her!! Well, he did come out of that spell; but, had to stay in the hospital. About 2 weeks later, they took off his other leg and he died real shortly after, like the next morning. All I could think was - Oh thank heavens!!  No one wants to watch a person struggle!! >> >> Know that will be set free as soon as his breathing stops. He no longer will be struggling or having to rely on you for everything. THEN I'd suggest that you ask Hospice about grief counseling. Again, that's what is offered here anyway. >> >> Gloria >> >> >> >> ________________________________ >> >> >> >>  >> Today started coughing up blood. I called the hospice people. The news wasn't good. I was told they thought he probably won't make it through the weekend. That I need to get the kids somewhere else because, it was going to be nasty. I was told to get a lot of dark colored towels. He is a high risk for a bleed out. >> >> I don't even know how to react. It's kind of like a bad dream. Or a cruel joke. I didn't ever expect it to end this way for him. I don't really know what I expected. I don't even have a clue where to send my kids. How to get them there, he can't be left alone. I can't leave any one else with him. I can't ask someone to sit with him with that being how they expect him to go. >> >> He asked me what the nurses and I were talkin about. I didn't want to tell him. I tried to avoid answering by telling him other things. It didn't work. I had to tell him. He just got this strangest look on his face. He said " no, I don't think so. I've got more than a week or two " . >> >> I don't have any idea what to do. >> >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2012 Report Share Posted April 11, 2012 What an exceptional offer, . I could cry!! If one was to look for the " silver linings " , there are posts like this one. We have been in those shoes and can walk with you. Folks that have not had to deal with chronic illness just do not understand. I know that it's the understanding of someone that's been through the crap, that has kept me strong enough to continue. ________________________________  If there is anything I can do to help, let me know. I don't mind a little bit of a drive to League City. I live close to the belt, not to far from I-10. I can't do much until after 5 pm this week, but my husband can stay with our daughter this weekend should you need anything. If you need a phone number of someone to call or text, I don't mind. I know sometimes going through this you may need a third party to help you think straight. I hope I am not being too pushy, but I am here if you need me.  Sincerely, E. Bassett >________________________________ > >To: livercirrhosissupport >Sent: Wednesday, April 11, 2012 7:03 AM >Subject: Re: a bad prognosis > > > >Thank you for your thoughts and prayers. >Hospice will send someone once the agnal breathing, or bleeding begins. They will stay with us until the end after that. >I have a friend who can take the kids. Problem really is getting them there. I can't take them, its 4 hours one way. She can't come get them because her cars in the shop. I'm going to ask my uncle to take them to her or meet her or something. >As for someone sitting with me, no. There isn't really any one. Everyone works. It's ok tho. I don't mind being here alone with . I will have someone when its bad. >I am in the Houston, I'm in league city, at s apartment. My step daughter cane last night so I could let her know and then she stayed while I ran to get some things from my house. > >hosissupport , Gloria wrote: >> >> Kim >> >> I am so sorry to hear this!! Definitely, you should not be alone with . I know that Hospice where I live, would send somebody pretty quick. That person could sit with while you dealt with the kids. Besides, you should not be alone at a time like this!! Please ask for whatever they can give. >> >> But, if says he has another week or two - I wouldn't dispute that. It's kinda the opposite of a sick elderly person, that literally wants to die and does. Or the person that is waiting for a family member or to be told that it's OK to go now!! >> >> Recently, I had a friend that was in the hospital. When I got there, he was in ICU plugged in pretty good. I could only sit and talk to him a bit. Then another friend came in and when the nurse said that he was fighting back, she said " Oh ya, Pat doesn't want to die yet " . I had to look at her in utter amazement!! If you knew Pat, his diabetes had already taken a leg and he was getting tired of life. He didn't actually like her much; but, never told her!! Well, he did come out of that spell; but, had to stay in the hospital. About 2 weeks later, they took off his other leg and he died real shortly after, like the next morning. All I could think was - Oh thank heavens!!  No one wants to watch a person struggle!! >> >> Know that will be set free as soon as his breathing stops. He no longer will be struggling or having to rely on you for everything. THEN I'd suggest that you ask Hospice about grief counseling. Again, that's what is offered here anyway. >> >> Gloria >> >> >> >> ________________________________ >> >> >> >>  >> Today started coughing up blood. I called the hospice people. The news wasn't good. I was told they thought he probably won't make it through the weekend. That I need to get the kids somewhere else because, it was going to be nasty. I was told to get a lot of dark colored towels. He is a high risk for a bleed out. >> >> I don't even know how to react. It's kind of like a bad dream. Or a cruel joke. I didn't ever expect it to end this way for him. I don't really know what I expected. I don't even have a clue where to send my kids. How to get them there, he can't be left alone. I can't leave any one else with him. I can't ask someone to sit with him with that being how they expect him to go. >> >> He asked me what the nurses and I were talkin about. I didn't want to tell him. I tried to avoid answering by telling him other things. It didn't work. I had to tell him. He just got this strangest look on his face. He said " no, I don't think so. I've got more than a week or two " . >> >> I don't have any idea what to do. >> >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2012 Report Share Posted April 11, 2012 Today I went to a self-care clinic suggested by Hospice. It was called Healing Touch. It was novel for me; but, I've certainly signed up for another session. I don't remember the last time that I relaxed so much and especially around people I don't know. Tomorrow is my 2nd counseling session and I am looking forward to that. So far, I've only meant women that are involved with Hospice; but, they are all absolute angels. Turns out that one of the gals only lives about 2 miles from me, out here next to a nature park. It gives me a little hope. As an eldest child, it's tough to allow people in, if I believe they have had to go out of their way!! Then, after my session, I came out of the room and there sat a fella and his girlfriend that I know!! When they were done their session, I pulled him away and asked if his cancer was back. Yup!! So so many people out there need compassion and support. I truly learned a great deal about chronic disease when I was doing my 2nd Hep C treatment. I was ready to be in a support group and helping those that may be less fortunate than I, when it comes to family. However, the cancer managed to stop that for the most part. Gloria ________________________________  Gloria, you and my dad could have been twins with that mindset!  However, I am glad he passed at home with my mom, my brother and I around him - in a place where we knew he was comfortable. But I can see this from angles, too. Sincerely, E. Bassett >________________________________ > >To: " livercirrhosissupport " <livercirrhosissupport > >Sent: Wednesday, April 11, 2012 2:21 PM >Subject: Re: a bad prognosis > > > >I am so pleased to hear that Hospice would be with you constantly at the end. Don't count yourself out. You need support from Hospice, every bit as much as . > >The more I think about it - the less I want to die at home!! That would tear my mother, son and grandniece too much. Hopefully, I can get to the hospital in the last couple of days. > >Thank you for sharing this experience and helping me see what the end could be like!! I so believe the we, the patient, won't really be aware of what we put our loved ones through at that end. > >________________________________ > > >Thank you for your thoughts and prayers. >Hospice will send someone once the agnal breathing, or bleeding begins. They will stay with us until the end after that. >I have a friend who can take the kids. Problem really is getting them there. I can't take them, its 4 hours one way. She can't come get them because her cars in the shop. I'm going to ask my uncle to take them to her or meet her or something. >As for someone sitting with me, no. There isn't really any one. Everyone works. It's ok tho. I don't mind being here alone with . I will have someone when its bad. >I am in the Houston, I'm in league city, at s apartment. My step daughter cane last night so I could let her know and then she stayed while I ran to get some things from my house. > >hosissupport , Gloria wrote: >> >> Kim >> >> I am so sorry to hear this!! Definitely, you should not be alone with . I know that Hospice where I live, would send somebody pretty quick. That person could sit with while you dealt with the kids. Besides, you should not be alone at a time like this!! Please ask for whatever they can give. >> >> But, if says he has another week or two - I wouldn't dispute that. It's kinda the opposite of a sick elderly person, that literally wants to die and does. Or the person that is waiting for a family member or to be told that it's OK to go now!! >> >> Recently, I had a friend that was in the hospital. When I got there, he was in ICU plugged in pretty good. I could only sit and talk to him a bit. Then another friend came in and when the nurse said that he was fighting back, she said " Oh ya, Pat doesn't want to die yet " . I had to look at her in utter amazement!! If you knew Pat, his diabetes had already taken a leg and he was getting tired of life. He didn't actually like her much; but, never told her!! Well, he did come out of that spell; but, had to stay in the hospital. About 2 weeks later, they took off his other leg and he died real shortly after, like the next morning. All I could think was - Oh thank heavens!!  No one wants to watch a person struggle!! >> >> Know that will be set free as soon as his breathing stops. He no longer will be struggling or having to rely on you for everything. THEN I'd suggest that you ask Hospice about grief counseling. Again, that's what is offered here anyway. >> >> Gloria >> >> >> >> ________________________________ >> >> >> >>  >> Today started coughing up blood. I called the hospice people. The news wasn't good. I was told they thought he probably won't make it through the weekend. That I need to get the kids somewhere else because, it was going to be nasty. I was told to get a lot of dark colored towels. He is a high risk for a bleed out. >> >> I don't even know how to react. It's kind of like a bad dream. Or a cruel joke. I didn't ever expect it to end this way for him. I don't really know what I expected. I don't even have a clue where to send my kids. How to get them there, he can't be left alone. I can't leave any one else with him. I can't ask someone to sit with him with that being how they expect him to go. >> >> He asked me what the nurses and I were talkin about. I didn't want to tell him. I tried to avoid answering by telling him other things. It didn't work. I had to tell him. He just got this strangest look on his face. He said " no, I don't think so. I've got more than a week or two " . >> >> I don't have any idea what to do. >> >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2012 Report Share Posted April 12, 2012 I just wanted to say that my heart aches for you, Kim. I went through this with my husband in January, 2009. He did bleed out and it was awful, but I will never be sorry for having him at home where he was most comfortable. His doctors and the Hospice team had warned me that the bleed out was most likely to happen and what to look for to indicate it would be like that. He didn't begin to bleed externally until after his last breath. He then bleed out through every orifice in his body. It wasn't pleasant to witness, but I am not sorry that I was there for him. My two younger sisters were with me, as was his Mom. However, we let her sleep through all of that, got him cleaned up and then awoke her to come to his bedside. He was her only child and I did not want that to be her last memory of him. I know how difficult all of this is for you. Please do ask for someone to be with you. You will need them in ways you can't imagine at this time. I am praying for you and would so be there with you if I were closer (I am in TN). I don't know what the law is in TX, but in TN it is required that Hospice be there because either a Hospice nurse or physician MUST pronounce an individual before the funeral directors can be notified to come for the body. If you do have an inpatient Hospice facility available and have a desire to go in that direction, please know that it is not a weakness on your part to do so. Do whatever is necessary to help you give the best care possible as he makes his journey to the other side. Again, I am praying........ Many hugs............ Diane C from TN Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2012 Report Share Posted April 13, 2012 I just know it's so scarey. If can help give someone even just a little relief, I will. It might not be much that I can do, but if it helps someone else, I am all for it, even if it's just an ear.  Sincerely, E. Bassett >________________________________ > >To: " livercirrhosissupport " <livercirrhosissupport > >Sent: Wednesday, April 11, 2012 10:26 PM >Subject: Re: a bad prognosis > > > >What an exceptional offer, . I could cry!! > >If one was to look for the " silver linings " , there are posts like this one. We have been in those shoes and can walk with you. Folks that have not had to deal with chronic illness just do not understand. I know that it's the understanding of someone that's been through the crap, that has kept me strong enough to continue. > >________________________________ > > >If there is anything I can do to help, let me know. I don't mind a little bit of a drive to League City. I live close to the belt, not to far from I-10. I can't do much until after 5 pm this week, but my husband can stay with our daughter this weekend should you need anything. > >If you need a phone number of someone to call or text, I don't mind. I know sometimes going through this you may need a third party to help you think straight. > >I hope I am not being too pushy, but I am here if you need me. > > >Sincerely, > E. Bassett > >>________________________________ >> >>To: livercirrhosissupport >>Sent: Wednesday, April 11, 2012 7:03 AM >>Subject: Re: a bad prognosis >> >> >> >>Thank you for your thoughts and prayers. >>Hospice will send someone once the agnal breathing, or bleeding begins. They will stay with us until the end after that. >>I have a friend who can take the kids. Problem really is getting them there. I can't take them, its 4 hours one way. She can't come get them because her cars in the shop. I'm going to ask my uncle to take them to her or meet her or something. >>As for someone sitting with me, no. There isn't really any one. Everyone works. It's ok tho. I don't mind being here alone with . I will have someone when its bad. >>I am in the Houston, I'm in league city, at s apartment. My step daughter cane last night so I could let her know and then she stayed while I ran to get some things from my house. >> >>hosissupport , Gloria wrote: >>> >>> Kim >>> >>> I am so sorry to hear this!! Definitely, you should not be alone with . I know that Hospice where I live, would send somebody pretty quick. That person could sit with while you dealt with the kids. Besides, you should not be alone at a time like this!! Please ask for whatever they can give. >>> >>> But, if says he has another week or two - I wouldn't dispute that. It's kinda the opposite of a sick elderly person, that literally wants to die and does. Or the person that is waiting for a family member or to be told that it's OK to go now!! >>> >>> Recently, I had a friend that was in the hospital. When I got there, he was in ICU plugged in pretty good. I could only sit and talk to him a bit. Then another friend came in and when the nurse said that he was fighting back, she said " Oh ya, Pat doesn't want to die yet " . I had to look at her in utter amazement!! If you knew Pat, his diabetes had already taken a leg and he was getting tired of life. He didn't actually like her much; but, never told her!! Well, he did come out of that spell; but, had to stay in the hospital. About 2 weeks later, they took off his other leg and he died real shortly after, like the next morning. All I could think was - Oh thank heavens!!  No one wants to watch a person struggle!! >>> >>> Know that will be set free as soon as his breathing stops. He no longer will be struggling or having to rely on you for everything. THEN I'd suggest that you ask Hospice about grief counseling. Again, that's what is offered here anyway. >>> >>> Gloria >>> >>> >>> >>> ________________________________ >>> >>> >>> >>>  >>> Today started coughing up blood. I called the hospice people. The news wasn't good. I was told they thought he probably won't make it through the weekend. That I need to get the kids somewhere else because, it was going to be nasty. I was told to get a lot of dark colored towels. He is a high risk for a bleed out. >>> >>> I don't even know how to react. It's kind of like a bad dream. Or a cruel joke. I didn't ever expect it to end this way for him. I don't really know what I expected. I don't even have a clue where to send my kids. How to get them there, he can't be left alone. I can't leave any one else with him. I can't ask someone to sit with him with that being how they expect him to go. >>> >>> He asked me what the nurses and I were talkin about. I didn't want to tell him. I tried to avoid answering by telling him other things. It didn't work. I had to tell him. He just got this strangest look on his face. He said " no, I don't think so. I've got more than a week or two " . >>> >>> I don't have any idea what to do. >>> >>> >>> >>> >>> Quote Link to comment Share on other sites More sharing options...
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