MELD score and have a question for you all...,.

[Guest guest]

    Hi my names , I'm 29 MELD score of 7, it has to be 10 for me to get

on the transplant list I guess. So I would say 11 isn't exactly good but I have

heard of as high as 17 before. It's a combination of results of his bloodwork.

Look up meld score and it will say what results in his blood work you have to

add up to come up with the meld score. I believe its the combination of three

things.

     I have stage 4 cirrhosis of my liver, not even diagnosed a year ago.

Also have autoimmune hepatitis which is the cause of my cirrhosis. I never knew

my whole life so 29 years of not knowing I have done some damage to my liver

during my partying days. I have two little boys 2 and 6 years old and am so

tired everyday. I haven't really posted on this site before but I read everyone

elses posts. I take lactulose and all of you on it know...... it's no fun. I

take potassium, spiralactalone, milk thistle, anti depressants and my platlets

are at 33. Life isn't so fun right now. lol. I am currently in the hospital for

pneumonia and It's hard to treat me because my liver is so bad. Been in the

hospital for a week now.... I'm wondering if any of you have any advise on

hepatatic encephaly, I get it a lot even with the lactulose, confused,

disoriented, forgettfully " foggy brained " .....

    I also am a Medical Assistant and a Caregiver so it is hard for me to be

a patient. lol. Anyways, I hope I helped you in answering your question a little

bit....

                                        \

                                        \

                                        \

                                        \

             

________________________________

To: livercirrhosissupport

Sent: Wednesday, May 9, 2012 8:27 AM

Subject: meld scores

 

My husband is said by his doctor to have the meld score of 11. Where can I

find info on meld scores? I think that must mean that he is doing pretty well.

Jackie

[Guest guest]

Bless your heart, . I hope you feel better soon.

I read that scores can go up to 47 I think it said, and that would be bad.

I truly hope your pneumonia resolves quickly.

Jackie

meld scores

My husband is said by his doctor to have the meld score of 11. Where can I

find info on meld scores? I think that must mean that he is doing pretty well.

Jackie

[Guest guest]

My hubby was diagnosed 7 years ago. His MELD is currently 10.....but he has

compensated liver function,. His specialist says he has to be at least a MELD of

15 ....but that's at The Cleveland Clinic Foundation.....Hospitals can differ on

what their MELD score is to be listed.

                                       

                                    Love,Jill

 

We don't remember days, we remember moments.

Life is not measured by the breaths we take,but by the moments that take our

breath away.

________________________________

To: livercirrhosissupport

Sent: Wednesday, May 9, 2012 6:26 PM

Subject: Re: MELD score and have a question for you

all...,.

 

Bless your heart, . I hope you feel better soon.

I read that scores can go up to 47 I think it said, and that would be bad.

I truly hope your pneumonia resolves quickly.

Jackie

meld scores

My husband is said by his doctor to have the meld score of 11. Where can I find

info on meld scores? I think that must mean that he is doing pretty well.

Jackie

[Guest guest]

I'm so sorry that this has happened while you still have a lot of life to live

yet!!

Honestly, I think that any of us that have a hepatic liver, for whatever the

cause, had our party days.  But, we just didn't know and in my case, I'm not

sure that it would have stopped me at your age.  It took me another 6 yrs to

finally put a plug in the jug and then another 15 yrs to find out about the Hep

C.

I'm not really popular by saying this; but, your story is one of the reasons

that I've never been interested in having a transplant.  I'm on the other side

of 60 and don't have little ones around.  In fact, my one and only child hasn't

even reproduced yet and is not very interested in doing so.  LOL  Instead,

after having a liver resection and the cancer coming back in 15 months, I have

totally accepted my future.  I am not having the least problem with it.

Do you have help at home with your boys?  I know that it can't be easy at all.

Gloria

________________________________

 

    Hi my names , I'm 29 MELD score of 7, it has to be 10 for me to get

on the transplant list I guess. So I would say 11 isn't exactly good but I have

heard of as high as 17 before. It's a combination of results of his bloodwork.

Look up meld score and it will say what results in his blood work you have to

add up to come up with the meld score. I believe its the combination of three

things.

     I have stage 4 cirrhosis of my liver, not even diagnosed a year ago.

Also have autoimmune hepatitis which is the cause of my cirrhosis. I never knew

my whole life so 29 years of not knowing I have done some damage to my liver

during my partying days. I have two little boys 2 and 6 years old and am so

tired everyday. I haven't really posted on this site before but I read everyone

elses posts. I take lactulose and all of you on it know...... it's no fun. I

take potassium, spiralactalone, milk thistle, anti depressants and my platlets

are at 33. Life isn't so fun right now. lol. I am currently in the hospital for

pneumonia and It's hard to treat me because my liver is so bad. Been in the

hospital for a week now.... I'm wondering if any of you have any advise on

hepatatic encephaly, I get it a lot even with the lactulose, confused,

disoriented, forgettfully " foggy brained " .....

    I also am a Medical Assistant and a Caregiver so it is hard for me to be

a patient. lol. Anyways, I hope I helped you in answering your question a little

bit....

                                        \

                                        \

                                        \

                                        \

             

________________________________

To: livercirrhosissupport

Sent: Wednesday, May 9, 2012 8:27 AM

Subject: meld scores

 

My husband is said by his doctor to have the meld score of 11. Where can I

find info on meld scores? I think that must mean that he is doing pretty well.

Jackie

[Guest guest]

Gloria,

    Yes I have help with my two boys. My boyfriend's sister watches my

youngest while I go to work mon-sat. My oldest son lives with his dad in

California due to the fact that it is so hard for me to have both of them. I

just don't have the energy to devote as much attention as they each deserve to

have both of them. That was one of the hardest decisions I have ever had to

make. I am very lucky his dad is an amazing father. I get my oldest for the

whole summer and any holiday's I want. It's a three hour drive to meet his dad

halfway from where I live in Arizona to Yuma.

    The past two days I have been super itchy! any advise? It's driving me

nuts.

                                        \

                                        \

                                        \

                                        \

          

________________________________

To: " livercirrhosissupport "

<livercirrhosissupport >

Sent: Friday, May 11, 2012 7:41 PM

Subject: Re: MELD score and have a question for you

all...,.

 

I'm so sorry that this has happened while you still have a lot of life to live

yet!!

Honestly, I think that any of us that have a hepatic liver, for whatever the

cause, had our party days.  But, we just didn't know and in my case, I'm not

sure that it would have stopped me at your age.  It took me another 6 yrs to

finally put a plug in the jug and then another 15 yrs to find out about the Hep

C.

I'm not really popular by saying this; but, your story is one of the reasons

that I've never been interested in having a transplant.  I'm on the other side

of 60 and don't have little ones around.  In fact, my one and only child hasn't

even reproduced yet and is not very interested in doing so.  LOL  Instead,

after having a liver resection and the cancer coming back in 15 months, I have

totally accepted my future.  I am not having the least problem with it.

Do you have help at home with your boys?  I know that it can't be easy at all.

Gloria

________________________________

 

    Hi my names , I'm 29 MELD score of 7, it has to be 10 for me to get

on the transplant list I guess. So I would say 11 isn't exactly good but I have

heard of as high as 17 before. It's a combination of results of his bloodwork.

Look up meld score and it will say what results in his blood work you have to

add up to come up with the meld score. I believe its the combination of three

things.

     I have stage 4 cirrhosis of my liver, not even diagnosed a year ago.

Also have autoimmune hepatitis which is the cause of my cirrhosis. I never knew

my whole life so 29 years of not knowing I have done some damage to my liver

during my partying days. I have two little boys 2 and 6 years old and am so

tired everyday. I haven't really posted on this site before but I read everyone

elses posts. I take lactulose and all of you on it know...... it's no fun. I

take potassium, spiralactalone, milk thistle, anti depressants and my platlets

are at 33. Life isn't so fun right now. lol. I am currently in the hospital for

pneumonia and It's hard to treat me because my liver is so bad. Been in the

hospital for a week now.... I'm wondering if any of you have any advise on

hepatatic encephaly, I get it a lot even with the lactulose, confused,

disoriented, forgettfully " foggy brained " .....

    I also am a Medical Assistant and a Caregiver so it is hard for me to be

a patient. lol. Anyways, I hope I helped you in answering your question a little

bit....

                                        \

                                        \

                                        \

                                        \

             

________________________________

To: livercirrhosissupport

Sent: Wednesday, May 9, 2012 8:27 AM

Subject: meld scores

 

My husband is said by his doctor to have the meld score of 11. Where can I

find info on meld scores? I think that must mean that he is doing pretty well.

Jackie

[Guest guest]

I can really believe that it is difficult having a 2 yr old and getting sick. 

I would not have been able to do it.  But, I'm much older than you are.  My

family was supposed to understand why I couldn't do things with the kids.  Most

of them had no problems with it.

Usually, I'm on support groups for Hep C!  That's what took my liver down to

stage 4.  However, you have my empathy for your Auto-Immune.  But, be easy on

yourself regarding the partying.  If any of us could go back and change some

things we all would hey??  Actually, I now hold firm that if even 1 little

thing was changed in my past, I wouldn't be me today.

Personally, for the itch - I use an anti-histamine called Novo-Pheniram.  They

are super cheap and work just fine.  In fact, my mother has suffered from

asthma that gets really bad.  This year is the first time that the Novo didn't

get it under control fast.  My itch is just getting bad again, so I know the

discomfort and irritability.  I need to start remembering to have the pills on

me all the time.  Doesn't look very good if I forget I'm in public and I haul

my shirt up to scratch my growing belly.  LOL

Another really good thing I've used is plain old Petroleum Jelly.  It sure

never harmed a baby that I know of.  I would just towel dry gently after a

shower and then apply the jelly.  I never had a case of being slimy because my

body would soak the jelly in really fast.  But, I do see that Vaseline has a

couple of lotions now.  I haven't tried them again yet; but, I will soon

enough.

I live on the island that is just off the west coast of Canada and Washington

State.  I promise you that you have to love rain, in order to live.  I always

say that's the reason we have big trees.  Anyway, the fall and the early winter

will be the time that my skin dries out the worst.  Weird!!  But, I know that

I could never make it in Arizona.  Even when I was healthy, being a snowbird in

the winter would not have been Arizona.  LOL

________________________________

 

Gloria,

    Yes I have help with my two boys. My boyfriend's sister watches my

youngest while I go to work mon-sat. My oldest son lives with his dad in

California due to the fact that it is so hard for me to have both of them. I

just don't have the energy to devote as much attention as they each deserve to

have both of them. That was one of the hardest decisions I have ever had to

make. I am very lucky his dad is an amazing father. I get my oldest for the

whole summer and any holiday's I want. It's a three hour drive to meet his dad

halfway from where I live in Arizona to Yuma.

    The past two days I have been super itchy! any advise? It's driving me

nuts.

                                        \

                                        \

                                        \

                                        \

          

________________________________

To: " livercirrhosissupport "

<livercirrhosissupport >

Sent: Friday, May 11, 2012 7:41 PM

Subject: Re: MELD score and have a question for you

all...,.

 

I'm so sorry that this has happened while you still have a lot of life to live

yet!!

Honestly, I think that any of us that have a hepatic liver, for whatever the

cause, had our party days.  But, we just didn't know and in my case, I'm not

sure that it would have stopped me at your age.  It took me another 6 yrs to

finally put a plug in the jug and then another 15 yrs to find out about the Hep

C.

I'm not really popular by saying this; but, your story is one of the reasons

that I've never been interested in having a transplant.  I'm on the other side

of 60 and don't have little ones around.  In fact, my one and only child hasn't

even reproduced yet and is not very interested in doing so.  LOL  Instead,

after having a liver resection and the cancer coming back in 15 months, I have

totally accepted my future.  I am not having the least problem with it.

Do you have help at home with your boys?  I know that it can't be easy at all.

Gloria

________________________________

 

    Hi my names , I'm 29 MELD score of 7, it has to be 10 for me to get

on the transplant list I guess. So I would say 11 isn't exactly good but I have

heard of as high as 17 before. It's a combination of results of his bloodwork.

Look up meld score and it will say what results in his blood work you have to

add up to come up with the meld score. I believe its the combination of three

things.

     I have stage 4 cirrhosis of my liver, not even diagnosed a year ago.

Also have autoimmune hepatitis which is the cause of my cirrhosis. I never knew

my whole life so 29 years of not knowing I have done some damage to my liver

during my partying days. I have two little boys 2 and 6 years old and am so

tired everyday. I haven't really posted on this site before but I read everyone

elses posts. I take lactulose and all of you on it know...... it's no fun. I

take potassium, spiralactalone, milk thistle, anti depressants and my platlets

are at 33. Life isn't so fun right now. lol. I am currently in the hospital for

pneumonia and It's hard to treat me because my liver is so bad. Been in the

hospital for a week now.... I'm wondering if any of you have any advise on

hepatatic encephaly, I get it a lot even with the lactulose, confused,

disoriented, forgettfully " foggy brained " .....

    I also am a Medical Assistant and a Caregiver so it is hard for me to be

a patient. lol. Anyways, I hope I helped you in answering your question a little

bit....

                                        \

                                        \

                                        \

                                        \

             

________________________________

To: livercirrhosissupport

Sent: Wednesday, May 9, 2012 8:27 AM

Subject: meld scores

 

My husband is said by his doctor to have the meld score of 11. Where can I

find info on meld scores? I think that must mean that he is doing pretty well.

Jackie

[Guest guest]

Hi

Gloria uses an anti histamine for the itch. Turmeric is also useful for that.

Then staying cool helps. Heat makes it worse. The kinds of material in your

clothes can also cause itch. I usually find something soft to wear. If you

wash with laundry detergent the detergent stays in your clothes and can cause

problems. I use something called Laundry Pure which is a device that attaches

to the washer and it puts oxygen into the water to form peroxides which washes

out dirt.

Hope any of this is helpful.

Z

Sent from my iPad

Gloria,

Yes I have help with my two boys. My boyfriend's sister watches my youngest

while I go to work mon-sat. My oldest son lives with his dad in California due

to the fact that it is so hard for me to have both of them. I just don't have

the energy to devote as much attention as they each deserve to have both of

them. That was one of the hardest decisions I have ever had to make. I am very

lucky his dad is an amazing father. I get my oldest for the whole summer and any

holiday's I want. It's a three hour drive to meet his dad halfway from where I

live in Arizona to Yuma.

The past two days I have been super itchy! any advise? It's driving me nuts.

________________________________

To: " livercirrhosissupport "

<livercirrhosissupport >

Sent: Friday, May 11, 2012 7:41 PM

Subject: Re: MELD score and have a question for you

all...,.

I'm so sorry that this has happened while you still have a lot of life to live

yet!!

Honestly, I think that any of us that have a hepatic liver, for whatever the

cause, had our party days. But, we just didn't know and in my case, I'm not

sure that it would have stopped me at your age. It took me another 6 yrs to

finally put a plug in the jug and then another 15 yrs to find out about the Hep

C.

I'm not really popular by saying this; but, your story is one of the reasons

that I've never been interested in having a transplant. I'm on the other side

of 60 and don't have little ones around. In fact, my one and only child hasn't

even reproduced yet and is not very interested in doing so. LOL Instead, after

having a liver resection and the cancer coming back in 15 months, I have totally

accepted my future. I am not having the least problem with it.

Do you have help at home with your boys? I know that it can't be easy at all.

Gloria

________________________________

Hi my names , I'm 29 MELD score of 7, it has to be 10 for me to get on

the transplant list I guess. So I would say 11 isn't exactly good but I have

heard of as high as 17 before. It's a combination of results of his bloodwork.

Look up meld score and it will say what results in his blood work you have to

add up to come up with the meld score. I believe its the combination of three

things.

I have stage 4 cirrhosis of my liver, not even diagnosed a year ago. Also

have autoimmune hepatitis which is the cause of my cirrhosis. I never knew my

whole life so 29 years of not knowing I have done some damage to my liver during

my partying days. I have two little boys 2 and 6 years old and am so tired

everyday. I haven't really posted on this site before but I read everyone elses

posts. I take lactulose and all of you on it know...... it's no fun. I take

potassium, spiralactalone, milk thistle, anti depressants and my platlets are at

33. Life isn't so fun right now. lol. I am currently in the hospital for

pneumonia and It's hard to treat me because my liver is so bad. Been in the

hospital for a week now.... I'm wondering if any of you have any advise on

hepatatic encephaly, I get it a lot even with the lactulose, confused,

disoriented, forgettfully " foggy brained " .....

I also am a Medical Assistant and a Caregiver so it is hard for me to be a

patient. lol. Anyways, I hope I helped you in answering your question a little

bit....

________________________________

To: livercirrhosissupport

Sent: Wednesday, May 9, 2012 8:27 AM

Subject: meld scores

My husband is said by his doctor to have the meld score of 11. Where can I find

info on meld scores? I think that must mean that he is doing pretty well.

Jackie

[Guest guest]

Yes, I forgot about the brand of laundry detergent.  My son was born with

excema from his head to his toes.  Didn't take long to learn that baby products

(oil and powder) were a definite no no.  The absolute worst was those Bounce

sheets!!  I am fairly sensitive to the detergents.  Actually, I might have to

look again at what I am using and take a break.

________________________________

 

Hi

Gloria uses an anti histamine for the itch. Turmeric is also useful for that.

Then staying cool helps. Heat makes it worse. The kinds of material in your

clothes can also cause itch. I usually find something soft to wear. If you

wash with laundry detergent the detergent stays in your clothes and can cause

problems. I use something called Laundry Pure which is a device that attaches

to the washer and it puts oxygen into the water to form peroxides which washes

out dirt.

Hope any of this is helpful.

Z

Sent from my iPad

Gloria,

Yes I have help with my two boys. My boyfriend's sister watches my youngest

while I go to work mon-sat. My oldest son lives with his dad in California due

to the fact that it is so hard for me to have both of them. I just don't have

the energy to devote as much attention as they each deserve to have both of

them. That was one of the hardest decisions I have ever had to make. I am very

lucky his dad is an amazing father. I get my oldest for the whole summer and any

holiday's I want. It's a three hour drive to meet his dad halfway from where I

live in Arizona to Yuma.

The past two days I have been super itchy! any advise? It's driving me nuts.

________________________________

To: " livercirrhosissupport "

<livercirrhosissupport >

Sent: Friday, May 11, 2012 7:41 PM

Subject: Re: MELD score and have a question for you

all...,.

I'm so sorry that this has happened while you still have a lot of life to live

yet!!

Honestly, I think that any of us that have a hepatic liver, for whatever the

cause, had our party days. But, we just didn't know and in my case, I'm not

sure that it would have stopped me at your age. It took me another 6 yrs to

finally put a plug in the jug and then another 15 yrs to find out about the Hep

C.

I'm not really popular by saying this; but, your story is one of the reasons

that I've never been interested in having a transplant. I'm on the other side

of 60 and don't have little ones around. In fact, my one and only child hasn't

even reproduced yet and is not very interested in doing so. LOL Instead, after

having a liver resection and the cancer coming back in 15 months, I have totally

accepted my future. I am not having the least problem with it.

Do you have help at home with your boys? I know that it can't be easy at all.

Gloria

________________________________

Hi my names , I'm 29 MELD score of 7, it has to be 10 for me to get on the

transplant list I guess. So I would say 11 isn't exactly good but I have heard

of as high as 17 before. It's a combination of results of his bloodwork. Look up

meld score and it will say what results in his blood work you have to add up to

come up with the meld score. I believe its the combination of three things.

I have stage 4 cirrhosis of my liver, not even diagnosed a year ago. Also have

autoimmune hepatitis which is the cause of my cirrhosis. I never knew my whole

life so 29 years of not knowing I have done some damage to my liver during my

partying days. I have two little boys 2 and 6 years old and am so tired

everyday. I haven't really posted on this site before but I read everyone elses

posts. I take lactulose and all of you on it know...... it's no fun. I take

potassium, spiralactalone, milk thistle, anti depressants and my platlets are at

33. Life isn't so fun right now. lol. I am currently in the hospital for

pneumonia and It's hard to treat me because my liver is so bad. Been in the

hospital for a week now.... I'm wondering if any of you have any advise on

hepatatic encephaly, I get it a lot even with the lactulose, confused,

disoriented, forgettfully " foggy brained " .....

I also am a Medical Assistant and a Caregiver so it is hard for me to be a

patient. lol. Anyways, I hope I helped you in answering your question a little

bit....

________________________________

To: livercirrhosissupport

Sent: Wednesday, May 9, 2012 8:27 AM

Subject: meld scores

My husband is said by his doctor to have the meld score of 11. Where can I find

info on meld scores? I think that must mean that he is doing pretty well.

Jackie

[Guest guest]

I got an antihistimine today and nothing.still itching from head to toe. as for

the heat, it's unavoidable. i live in az. 105 today. i use an free and clear

laundry soap as i have for years because i always thought i was allergic to the

soap before i found out about my liver issues, and i always put it on a second

rinse.the itching is really making me super irritable and hard to take a nap or

sleep at night when i'm clawing my skin off. its one of the most frustrating

symptoms besides the fatigue. cold showers help but only while i'm in the

shower. as soon as i dry off it's like i never took a shower. just as itchy as

before. sigh.....this all sucks! you scratch for a second and have the scars for

a week. i try so hard not to scratch but sometimes its almost involuntary. i

take so many medications i finally bought a morning, noon, eavning, night weekly

pill box. sometimes i wonder if i'm on too many meds, are they all really

necessary? who knows. i

voluntarily choose not to take any pain medications since non of them are good

for my liver. so i just put up with the pain from my liver, carpal tunnel, knee

and back problems hoping it's helping a little to preven liver failer. i want to

be around as long as i can for my kids withour being a burden on them.

________________________________

To: " livercirrhosissupport "

<livercirrhosissupport >

Sent: Tuesday, May 15, 2012 9:55 AM

Subject: Re: MELD score and have a question for you

all...,.

 

Hi

Gloria uses an anti histamine for the itch. Turmeric is also useful for that.

Then staying cool helps. Heat makes it worse. The kinds of material in your

clothes can also cause itch. I usually find something soft to wear. If you

wash with laundry detergent the detergent stays in your clothes and can cause

problems. I use something called Laundry Pure which is a device that attaches

to the washer and it puts oxygen into the water to form peroxides which washes

out dirt.

Hope any of this is helpful.

Z

Sent from my iPad

Gloria,

Yes I have help with my two boys. My boyfriend's sister watches my youngest

while I go to work mon-sat. My oldest son lives with his dad in California due

to the fact that it is so hard for me to have both of them. I just don't have

the energy to devote as much attention as they each deserve to have both of

them. That was one of the hardest decisions I have ever had to make. I am very

lucky his dad is an amazing father. I get my oldest for the whole summer and any

holiday's I want. It's a three hour drive to meet his dad halfway from where I

live in Arizona to Yuma.

The past two days I have been super itchy! any advise? It's driving me nuts.

________________________________

To: " livercirrhosissupport "

<livercirrhosissupport >

Sent: Friday, May 11, 2012 7:41 PM

Subject: Re: MELD score and have a question for you

all...,.

I'm so sorry that this has happened while you still have a lot of life to live

yet!!

Honestly, I think that any of us that have a hepatic liver, for whatever the

cause, had our party days. But, we just didn't know and in my case, I'm not

sure that it would have stopped me at your age. It took me another 6 yrs to

finally put a plug in the jug and then another 15 yrs to find out about the Hep

C.

I'm not really popular by saying this; but, your story is one of the reasons

that I've never been interested in having a transplant. I'm on the other side

of 60 and don't have little ones around. In fact, my one and only child hasn't

even reproduced yet and is not very interested in doing so. LOL Instead, after

having a liver resection and the cancer coming back in 15 months, I have totally

accepted my future. I am not having the least problem with it.

Do you have help at home with your boys? I know that it can't be easy at all.

Gloria

________________________________

Hi my names , I'm 29 MELD score of 7, it has to be 10 for me to get on the

transplant list I guess. So I would say 11 isn't exactly good but I have heard

of as high as 17 before. It's a combination of results of his bloodwork. Look up

meld score and it will say what results in his blood work you have to add up to

come up with the meld score. I believe its the combination of three things.

I have stage 4 cirrhosis of my liver, not even diagnosed a year ago. Also have

autoimmune hepatitis which is the cause of my cirrhosis. I never knew my whole

life so 29 years of not knowing I have done some damage to my liver during my

partying days. I have two little boys 2 and 6 years old and am so tired

everyday. I haven't really posted on this site before but I read everyone elses

posts. I take lactulose and all of you on it know...... it's no fun. I take

potassium, spiralactalone, milk thistle, anti depressants and my platlets are at

33. Life isn't so fun right now. lol. I am currently in the hospital for

pneumonia and It's hard to treat me because my liver is so bad. Been in the

hospital for a week now.... I'm wondering if any of you have any advise on

hepatatic encephaly, I get it a lot even with the lactulose, confused,

disoriented, forgettfully " foggy brained " .....

I also am a Medical Assistant and a Caregiver so it is hard for me to be a

patient. lol. Anyways, I hope I helped you in answering your question a little

bit....

________________________________

To: livercirrhosissupport

Sent: Wednesday, May 9, 2012 8:27 AM

Subject: meld scores

My husband is said by his doctor to have the meld score of 11. Where can I find

info on meld scores? I think that must mean that he is doing pretty well.

Jackie

[Guest guest]

Kate,

      My partner died back in nov 2009 from liver disease they gave him

hrdoxyine pam it is a prescription antihistamine I use it for panic attacks but

it is and old drug that is also used for itching and as far as i know safe for

liver. It gave him and he recieved a lot of  relief

Gloria,

Yes I have help with my two boys. My boyfriend's sister watches my youngest

while I go to work mon-sat. My oldest son lives with his dad in California due

to the fact that it is so hard for me to have both of them. I just don't have

the energy to devote as much attention as they each deserve to have both of

them. That was one of the hardest decisions I have ever had to make. I am very

lucky his dad is an amazing father. I get my oldest for the whole summer and any

holiday's I want. It's a three hour drive to meet his dad halfway from where I

live in Arizona to Yuma.

The past two days I have been super itchy! any advise? It's driving me nuts.

________________________________

To: " livercirrhosissupport "

<livercirrhosissupport >

Sent: Friday, May 11, 2012 7:41 PM

Subject: Re: MELD score and have a question for you

all...,.

I'm so sorry that this has happened while you still have a lot of life to live

yet!!

Honestly, I think that any of us that have a hepatic liver, for whatever the

cause, had our party days. But, we just didn't know and in my case, I'm not sure

that it would have stopped me at your age. It took me another 6 yrs to finally

put a plug in the jug and then another 15 yrs to find out about the Hep C.

I'm not really popular by saying this; but, your story is one of the reasons

that I've never been interested in having a transplant. I'm on the other side of

60 and don't have little ones around. In fact, my one and only child hasn't even

reproduced yet and is not very interested in doing so. LOL Instead, after having

a liver resection and the cancer coming back in 15 months, I have totally

accepted my future. I am not having the least problem with it.

Do you have help at home with your boys? I know that it can't be easy at all.

Gloria

________________________________

Hi my names , I'm 29 MELD score of 7, it has to be 10 for me to get on the

transplant list I guess. So I would say 11 isn't exactly good but I have heard

of as high as 17 before. It's a combination of results of his bloodwork. Look up

meld score and it will say what results in his blood work you have to add up to

come up with the meld score. I believe its the combination of three things.

I have stage 4 cirrhosis of my liver, not even diagnosed a year ago. Also have

autoimmune hepatitis which is the cause of my cirrhosis. I never knew my whole

life so 29 years of not knowing I have done some damage to my liver during my

partying days. I have two little boys 2 and 6 years old and am so tired

everyday. I haven't really posted on this site before but I read everyone elses

posts. I take lactulose and all of you on it know...... it's no fun. I take

potassium, spiralactalone, milk thistle, anti depressants and my platlets are at

33. Life isn't so fun right now. lol. I am currently in the hospital for

pneumonia and It's hard to treat me because my liver is so bad. Been in the

hospital for a week now.... I'm wondering if any of you have any advise on

hepatatic encephaly, I get it a lot even with the lactulose, confused,

disoriented, forgettfully " foggy brained " .....

I also am a Medical Assistant and a Caregiver so it is hard for me to be a

patient. lol. Anyways, I hope I helped you in answering your question a little

bit....

________________________________

To: livercirrhosissupport

Sent: Wednesday, May 9, 2012 8:27 AM

Subject: meld scores

My husband is said by his doctor to have the meld score of 11. Where can I find

info on meld scores? I think that must mean that he is doing pretty well.

Jackie

[Guest guest]

i'm sorry for your loss. what happened if you dont mind me asing

________________________________

To: livercirrhosissupport

Sent: Thursday, May 17, 2012 5:11 PM

Subject: Re: MELD score and have a question for you

all...,.

 

Kate,

      My partner died back in nov 2009 from liver disease they gave him

hrdoxyine pam it is a prescription antihistamine I use it for panic attacks but

it is and old drug that is also used for itching and as far as i know safe for

liver. It gave him and he recieved a lot of  relief

Gloria,

Yes I have help with my two boys. My boyfriend's sister watches my youngest

while I go to work mon-sat. My oldest son lives with his dad in California due

to the fact that it is so hard for me to have both of them. I just don't have

the energy to devote as much attention as they each deserve to have both of

them. That was one of the hardest decisions I have ever had to make. I am very

lucky his dad is an amazing father. I get my oldest for the whole summer and any

holiday's I want. It's a three hour drive to meet his dad halfway from where I

live in Arizona to Yuma.

The past two days I have been super itchy! any advise? It's driving me nuts.

________________________________

To: " livercirrhosissupport "

<livercirrhosissupport >

Sent: Friday, May 11, 2012 7:41 PM

Subject: Re: MELD score and have a question for you

all...,.

I'm so sorry that this has happened while you still have a lot of life to live

yet!!

Honestly, I think that any of us that have a hepatic liver, for whatever the

cause, had our party days. But, we just didn't know and in my case, I'm not sure

that it would have stopped me at your age. It took me another 6 yrs to finally

put a plug in the jug and then another 15 yrs to find out about the Hep C.

I'm not really popular by saying this; but, your story is one of the reasons

that I've never been interested in having a transplant. I'm on the other side of

60 and don't have little ones around. In fact, my one and only child hasn't even

reproduced yet and is not very interested in doing so. LOL Instead, after having

a liver resection and the cancer coming back in 15 months, I have totally

accepted my future. I am not having the least problem with it.

Do you have help at home with your boys? I know that it can't be easy at all.

Gloria

________________________________

Hi my names , I'm 29 MELD score of 7, it has to be 10 for me to get on the

transplant list I guess. So I would say 11 isn't exactly good but I have heard

of as high as 17 before. It's a combination of results of his bloodwork. Look up

meld score and it will say what results in his blood work you have to add up to

come up with the meld score. I believe its the combination of three things.

I have stage 4 cirrhosis of my liver, not even diagnosed a year ago. Also have

autoimmune hepatitis which is the cause of my cirrhosis. I never knew my whole

life so 29 years of not knowing I have done some damage to my liver during my

partying days. I have two little boys 2 and 6 years old and am so tired

everyday. I haven't really posted on this site before but I read everyone elses

posts. I take lactulose and all of you on it know...... it's no fun. I take

potassium, spiralactalone, milk thistle, anti depressants and my platlets are at

33. Life isn't so fun right now. lol. I am currently in the hospital for

pneumonia and It's hard to treat me because my liver is so bad. Been in the

hospital for a week now.... I'm wondering if any of you have any advise on

hepatatic encephaly, I get it a lot even with the lactulose, confused,

disoriented, forgettfully " foggy brained " .....

I also am a Medical Assistant and a Caregiver so it is hard for me to be a

patient. lol. Anyways, I hope I helped you in answering your question a little

bit....

________________________________

To: livercirrhosissupport

Sent: Wednesday, May 9, 2012 8:27 AM

Subject: meld scores

My husband is said by his doctor to have the meld score of 11. Where can I find

info on meld scores? I think that must mean that he is doing pretty well.

Jackie

[Guest guest]

Perhaps try the Petroleum Jelly.  You apply it all over after just pat drying

in the shower.  If that seems a little gross (I did it), I see that Vaseline

has some new lotions now.

You know, I found out at lunch today that it was 105 in Arizona.  Too funny. 

It was 2 of our snowbirds.  The ones that flock to Arizona in the winter.

________________________________

 

I got an antihistimine today and nothing.still itching from head to toe. as for

the heat, it's unavoidable. i live in az. 105 today. i use an free and clear

laundry soap as i have for years because i always thought i was allergic to the

soap before i found out about my liver issues, and i always put it on a second

rinse.the itching is really making me super irritable and hard to take a nap or

sleep at night when i'm clawing my skin off. its one of the most frustrating

symptoms besides the fatigue. cold showers help but only while i'm in the

shower. as soon as i dry off it's like i never took a shower. just as itchy as

before. sigh.....this all sucks! you scratch for a second and have the scars for

a week. i try so hard not to scratch but sometimes its almost involuntary. i

take so many medications i finally bought a morning, noon, eavning, night weekly

pill box. sometimes i wonder if i'm on too many meds, are they all really

necessary? who knows. i

voluntarily choose not to take any pain medications since non of them are good

for my liver. so i just put up with the pain from my liver, carpal tunnel, knee

and back problems hoping it's helping a little to preven liver failer. i want to

be around as long as i can for my kids withour being a burden on them.

________________________________

To: " livercirrhosissupport "

<livercirrhosissupport >

Sent: Tuesday, May 15, 2012 9:55 AM

Subject: Re: MELD score and have a question for you

all...,.

 

Hi

Gloria uses an anti histamine for the itch. Turmeric is also useful for that.

Then staying cool helps. Heat makes it worse. The kinds of material in your

clothes can also cause itch. I usually find something soft to wear. If you

wash with laundry detergent the detergent stays in your clothes and can cause

problems. I use something called Laundry Pure which is a device that attaches

to the washer and it puts oxygen into the water to form peroxides which washes

out dirt.

Hope any of this is helpful.

Z

Sent from my iPad

Gloria,

Yes I have help with my two boys. My boyfriend's sister watches my youngest

while I go to work mon-sat. My oldest son lives with his dad in California due

to the fact that it is so hard for me to have both of them. I just don't have

the energy to devote as much attention as they each deserve to have both of

them. That was one of the hardest decisions I have ever had to make. I am very

lucky his dad is an amazing father. I get my oldest for the whole summer and any

holiday's I want. It's a three hour drive to meet his dad halfway from where I

live in Arizona to Yuma.

The past two days I have been super itchy! any advise? It's driving me nuts.

________________________________

To: " livercirrhosissupport "

<livercirrhosissupport >

Sent: Friday, May 11, 2012 7:41 PM

Subject: Re: MELD score and have a question for you

all...,.

I'm so sorry that this has happened while you still have a lot of life to live

yet!!

Honestly, I think that any of us that have a hepatic liver, for whatever the

cause, had our party days. But, we just didn't know and in my case, I'm not

sure that it would have stopped me at your age. It took me another 6 yrs to

finally put a plug in the jug and then another 15 yrs to find out about the Hep

C.

I'm not really popular by saying this; but, your story is one of the reasons

that I've never been interested in having a transplant. I'm on the other side

of 60 and don't have little ones around. In fact, my one and only child hasn't

even reproduced yet and is not very interested in doing so. LOL Instead, after

having a liver resection and the cancer coming back in 15 months, I have totally

accepted my future. I am not having the least problem with it.

Do you have help at home with your boys? I know that it can't be easy at all.

Gloria

________________________________

Hi my names , I'm 29 MELD score of 7, it has to be 10 for me to get on the

transplant list I guess. So I would say 11 isn't exactly good but I have heard

of as high as 17 before. It's a combination of results of his bloodwork. Look up

meld score and it will say what results in his blood work you have to add up to

come up with the meld score. I believe its the combination of three things.

I have stage 4 cirrhosis of my liver, not even diagnosed a year ago. Also have

autoimmune hepatitis which is the cause of my cirrhosis. I never knew my whole

life so 29 years of not knowing I have done some damage to my liver during my

partying days. I have two little boys 2 and 6 years old and am so tired

everyday. I haven't really posted on this site before but I read everyone elses

posts. I take lactulose and all of you on it know...... it's no fun. I take

potassium, spiralactalone, milk thistle, anti depressants and my platlets are at

33. Life isn't so fun right now. lol. I am currently in the hospital for

pneumonia and It's hard to treat me because my liver is so bad. Been in the

hospital for a week now.... I'm wondering if any of you have any advise on

hepatatic encephaly, I get it a lot even with the lactulose, confused,

disoriented, forgettfully " foggy brained " .....

I also am a Medical Assistant and a Caregiver so it is hard for me to be a

patient. lol. Anyways, I hope I helped you in answering your question a little

bit....

________________________________

To: livercirrhosissupport

Sent: Wednesday, May 9, 2012 8:27 AM

Subject: meld scores

My husband is said by his doctor to have the meld score of 11. Where can I find

info on meld scores? I think that must mean that he is doing pretty well.

Jackie

[Guest guest]

Yahoo weather says it is only 86 here at 11:02. Was too busy running

around this afternoon to check the temp. Could well have been 105.

We really don't notice it until it gets to be 115 to 125. Jan

>

>

> Perhaps try the Petroleum Jelly.  You apply it all over after just pat drying

in the shower.  If that seems a little gross (I did it), I see that Vaseline has

some new lotions now.

>

> You know, I found out at lunch today that it was 105 in Arizona.  Too funny. 

It was 2 of our snowbirds.  The ones that flock to Arizona in the winter.

>

>

>

> ________________________________

>

>

>

>

> I got an antihistimine today and nothing.still itching from head to toe. as

for the heat, it's unavoidable. i live in az. 105 today. i use an free and clear

laundry soap as i have for years because i always thought i was allergic to the

soap before i found out about my liver issues, and i always put it on a second

rinse.the itching is really making me super irritable and hard to take a nap or

sleep at night when i'm clawing my skin off. its one of the most frustrating

symptoms besides the fatigue. cold showers help but only while i'm in the

shower. as soon as i dry off it's like i never took a shower. just as itchy as

before. sigh.....this all sucks! you scratch for a second and have the scars for

a week. i try so hard not to scratch but sometimes its almost involuntary. i

take so many medications i finally bought a morning, noon, eavning, night weekly

pill box. sometimes i wonder if i'm on too many meds, are they all really

necessary? who knows. i

> voluntarily choose not to take any pain medications since non of them are good

for my liver. so i just put up with the pain from my liver, carpal tunnel, knee

and back problems hoping it's helping a little to preven liver failer. i want to

be around as long as i can for my kids withour being a burden on them.

>

>

> ________________________________

>

> To: " livercirrhosissupport "

<livercirrhosissupport >

> Sent: Tuesday, May 15, 2012 9:55 AM

> Subject: Re: MELD score and have a question for you

all...,.

>

>

>

>

> Hi

> Gloria uses an anti histamine for the itch.  Turmeric is also useful for that.

 Then staying cool helps.  Heat makes it worse.  The kinds of material in your

clothes can also cause itch.  I usually find something soft to wear.  If you

wash with laundry detergent the detergent stays in your clothes and can cause

problems.  I use something called Laundry Pure which is a device that attaches

to the washer and it puts oxygen into the water to form peroxides which washes

out dirt.

> Hope any of this is helpful.

> Z

>

> Sent from my iPad

>

>

>

> Gloria,

> Yes I have help with my two boys. My boyfriend's sister watches my youngest

while I go to work mon-sat. My oldest son lives with his dad in California due

to the fact that it is so hard for me to have both of them. I just don't have

the energy to devote as much attention as they each deserve to have both of

them. That was one of the hardest decisions I have ever had to make. I am very

lucky his dad is an amazing father. I get my oldest for the whole summer and any

holiday's I want. It's a three hour drive to meet his dad halfway from where I

live in Arizona to Yuma.

> The past two days I have been super itchy! any advise? It's driving me nuts.

>

>

> ________________________________

>

> To: " livercirrhosissupport "

<livercirrhosissupport >

> Sent: Friday, May 11, 2012 7:41 PM

> Subject: Re: MELD score and have a question for you

all...,.

>

>

>

> I'm so sorry that this has happened while you still have a lot of life to live

yet!!

>

> Honestly, I think that any of us that have a hepatic liver, for whatever the

cause, had our party days.  But, we just didn't know and in my case, I'm not

sure that it would have stopped me at your age.  It took me another 6 yrs to

finally put a plug in the jug and then another 15 yrs to find out about the Hep

C.

>

> I'm not really popular by saying this; but, your story is one of the reasons

that I've never been interested in having a transplant.  I'm on the other side

of 60 and don't have little ones around.  In fact, my one and only child hasn't

even reproduced yet and is not very interested in doing so.  LOL  Instead, after

having a liver resection and the cancer coming back in 15 months, I have totally

accepted my future.  I am not having the least problem with it.

>

> Do you have help at home with your boys?  I know that it can't be easy at all.

>

> Gloria

>

> ________________________________

>

> Hi my names , I'm 29 MELD score of 7, it has to be 10 for me to get on

the transplant list I guess. So I would say 11 isn't exactly good but I have

heard of as high as 17 before. It's a combination of results of his bloodwork.

Look up meld score and it will say what results in his blood work you have to

add up to come up with the meld score. I believe its the combination of three

things.

> I have stage 4 cirrhosis of my liver, not even diagnosed a year ago. Also have

autoimmune hepatitis which is the cause of my cirrhosis. I never knew my whole

life so 29 years of not knowing I have done some damage to my liver during my

partying days. I have two little boys 2 and 6 years old and am so tired

everyday. I haven't really posted on this site before but I read everyone elses

posts. I take lactulose and all of you on it know...... it's no fun. I take

potassium, spiralactalone, milk thistle, anti depressants and my platlets are at

33. Life isn't so fun right now. lol. I am currently in the hospital for

pneumonia and It's hard to treat me because my liver is so bad. Been in the

hospital for a week now.... I'm wondering if any of you have any advise on

hepatatic encephaly, I get it a lot even with the lactulose, confused,

disoriented, forgettfully " foggy brained " .....

> I also am a Medical Assistant and a Caregiver so it is hard for me to be a

patient. lol. Anyways, I hope I helped you in answering your question a little

bit....

>

>

> ________________________________

>

> To: livercirrhosissupport

> Sent: Wednesday, May 9, 2012 8:27 AM

> Subject: meld scores

>

> My husband is said by his doctor to have the meld score of 11. Where can I

find info on meld scores? I think that must mean that he is doing pretty well.

> Jackie

>

>

[Guest guest]

Dear , I wanted to let you know that several of us here on this forum have

chronic pain, especially from the liver and enlarged spleen etc, and take pain

medicine regularly. You see, back in the 70's the government wanted to make pain

medicine more available yet they wanted to make it less desireable to abuse, so

they poisoned it . Yes, that's right , I said thay poisoned it! You see, pain

medicines made from poppies are non toxic. The are not posionous to any organ or

body tissue. Tylenol was added to hydrocodone to make a drug called vicodin,

lortab, norco, etc, but the Tylenol is only in the drug to make it less

desirable to abuse, because when drugs are abused, larger amounts are needed wih

every dose, and the larger dose of Tylenol is supposed to eventually harm you,

and therefor stop you from taking a large dose. Did you know that for a pain

patient taking morphine there is no upward limit of drug? That is because

morphine is non toxic in

reasonable amounts. We who take non poisoned pain medicines have to seek a pain

medicine doctor to get them, but a good pain doctor will treat you from a whole

body aproach, not just write a prescription for you. If you have any more

questions about this, just let me know,k? Suffering in pain is not a normal

accepted part of liver disease, and pain is a disease all of it's own that can

wreck your health by affecting your blood pressure, blood sugar, cortisol

levels, etc.etc.etc.. Love, Bobby

 

________________________________

To: " livercirrhosissupport "

<livercirrhosissupport >

Sent: Thursday, May 17, 2012 5:55 PM

Subject: Re: MELD score and have a question for you

all...,.

 

I got an antihistimine today and nothing.still itching from head to toe. as for

the heat, it's unavoidable. i live in az. 105 today. i use an free and clear

laundry soap as i have for years because i always thought i was allergic to the

soap before i found out about my liver issues, and i always put it on a second

rinse.the itching is really making me super irritable and hard to take a nap or

sleep at night when i'm clawing my skin off. its one of the most frustrating

symptoms besides the fatigue. cold showers help but only while i'm in the

shower. as soon as i dry off it's like i never took a shower. just as itchy as

before. sigh.....this all sucks! you scratch for a second and have the scars for

a week. i try so hard not to scratch but sometimes its almost involuntary. i

take so many medications i finally bought a morning, noon, eavning, night weekly

pill box. sometimes i wonder if i'm on too many meds, are they all really

necessary? who knows. i

voluntarily choose not to take any pain medications since non of them are good

for my liver. so i just put up with the pain from my liver, carpal tunnel, knee

and back problems hoping it's helping a little to preven liver failer. i want to

be around as long as i can for my kids withour being a burden on them.

________________________________

To: " livercirrhosissupport "

<livercirrhosissupport >

Sent: Tuesday, May 15, 2012 9:55 AM

Subject: Re: MELD score and have a question for you

all...,.

 

Hi

Gloria uses an anti histamine for the itch. Turmeric is also useful for that.

Then staying cool helps. Heat makes it worse. The kinds of material in your

clothes can also cause itch. I usually find something soft to wear. If you

wash with laundry detergent the detergent stays in your clothes and can cause

problems. I use something called Laundry Pure which is a device that attaches

to the washer and it puts oxygen into the water to form peroxides which washes

out dirt.

Hope any of this is helpful.

Z

Sent from my iPad

Gloria,

Yes I have help with my two boys. My boyfriend's sister watches my youngest

while I go to work mon-sat. My oldest son lives with his dad in California due

to the fact that it is so hard for me to have both of them. I just don't have

the energy to devote as much attention as they each deserve to have both of

them. That was one of the hardest decisions I have ever had to make. I am very

lucky his dad is an amazing father. I get my oldest for the whole summer and any

holiday's I want. It's a three hour drive to meet his dad halfway from where I

live in Arizona to Yuma.

The past two days I have been super itchy! any advise? It's driving me nuts.

________________________________

To: " livercirrhosissupport "

<livercirrhosissupport >

Sent: Friday, May 11, 2012 7:41 PM

Subject: Re: MELD score and have a question for you

all...,.

I'm so sorry that this has happened while you still have a lot of life to live

yet!!

Honestly, I think that any of us that have a hepatic liver, for whatever the

cause, had our party days. But, we just didn't know and in my case, I'm not

sure that it would have stopped me at your age. It took me another 6 yrs to

finally put a plug in the jug and then another 15 yrs to find out about the Hep

C.

I'm not really popular by saying this; but, your story is one of the reasons

that I've never been interested in having a transplant. I'm on the other side

of 60 and don't have little ones around. In fact, my one and only child hasn't

even reproduced yet and is not very interested in doing so. LOL Instead, after

having a liver resection and the cancer coming back in 15 months, I have totally

accepted my future. I am not having the least problem with it.

Do you have help at home with your boys? I know that it can't be easy at all.

Gloria

________________________________

Hi my names , I'm 29 MELD score of 7, it has to be 10 for me to get on the

transplant list I guess. So I would say 11 isn't exactly good but I have heard

of as high as 17 before. It's a combination of results of his bloodwork. Look up

meld score and it will say what results in his blood work you have to add up to

come up with the meld score. I believe its the combination of three things.

I have stage 4 cirrhosis of my liver, not even diagnosed a year ago. Also have

autoimmune hepatitis which is the cause of my cirrhosis. I never knew my whole

life so 29 years of not knowing I have done some damage to my liver during my

partying days. I have two little boys 2 and 6 years old and am so tired

everyday. I haven't really posted on this site before but I read everyone elses

posts. I take lactulose and all of you on it know...... it's no fun. I take

potassium, spiralactalone, milk thistle, anti depressants and my platlets are at

33. Life isn't so fun right now. lol. I am currently in the hospital for

pneumonia and It's hard to treat me because my liver is so bad. Been in the

hospital for a week now.... I'm wondering if any of you have any advise on

hepatatic encephaly, I get it a lot even with the lactulose, confused,

disoriented, forgettfully " foggy brained " .....

I also am a Medical Assistant and a Caregiver so it is hard for me to be a

patient. lol. Anyways, I hope I helped you in answering your question a little

bit....

________________________________

To: livercirrhosissupport

Sent: Wednesday, May 9, 2012 8:27 AM

Subject: meld scores

My husband is said by his doctor to have the meld score of 11. Where can I find

info on meld scores? I think that must mean that he is doing pretty well.

Jackie

[Guest guest]

I don't usually respond to these, but the information I have gotten from them

has been very helpful.

Ihavenever had liver pain,but having a diffcult Time with dehydration, I lose

nutrents to the point I need I'V fusions and hospital visits more then I care to

think about , was wondering if anyone had any solutions for this.

Thanks for listening.

W

Sent from my iPad

On May 19, 2012, at 7:33 AM, Bob Aragon w

[Guest guest]

I do not have dehydration; but, do you drink lots of water or one of those

drinks that have nutrients?

________________________________

 

I don't usually respond to these, but the information I have gotten from them

has been very helpful.

Ihavenever had liver pain,but having a diffcult Time with dehydration, I lose

nutrents to the point I need I'V fusions and hospital visits more then I care to

think about , was wondering if anyone had any solutions for this.

Thanks for listening.

W

Sent from my iPad

On May 19, 2012, at 7:33 AM, Bob Aragon w