Re: Hepatopulmonary Syndrome Anyone? Yes, unfortunately.

[Guest guest]

Hi, Lynda. My name is Bobby. I am a group moderator on here. I was diagnosed

with end stage liver disease from alcoholism in November 2006. The following

spring I was having shortness of breath and then caught a bad cold, and had a

chest Xray, which came back  abnormal, and they suggested I see a

pulmonologist. I went through the whole battery of pulmonology tests and was

confirmed to have a 15 to 20 shunt in my lungs due to hepatopulmonary syndrome.

I still have good oxygen sats, but use oxygen at night because my sats drop in

to the 80's. My HPS is mild, but I do have a positive diagnosis. If you really

want to know all that I have learned, follow this link and download this very

informative power point presentation by a very prominent doctor. I'll be glad to

answer any questions as well. Love, Bobby

http://f1.grp.yahoofs.com/v1/4A-xTzifamQUR0FUDbOPR2KdfByrgGAYypLVN1AGdmxZ3x78ZBp\

xLsT1wHhyJL7SMm2YLKlyXY6QlmYjSnWI/The%20Hepatopulmonary%20syndrome-%20Alaa%20Has\

sib.ppt

 

________________________________

To: livercirrhosissupport

Sent: Friday, May 11, 2012 11:51 AM

Subject: Hepatopulmonary Syndrome Anyone?

 

When I was first diagnosed 2 years ago, I was an uncompensated 17 meld score.

After the first 8 months, I dropped down to a 10 meld and compensated, which

I've been very happy with. My GI doctor said if I maintained I might not need a

liver transplant. But then I opened my big mouth and mentioned my nails had

started curving downward. Last week after what seemed like a ton of tests, it

was confirmed I have hepatopulmonary syndrome. I don't see my GI doctor again

till next month, so we will figure out where to go from there. Does anyone else

have experience with HPS?

~Lynda