Re: On the transplant list!

[Guest guest]

My mother wanted the Drs know that she would be a living donor.  She's a lot

older than your parents, so there would be no way that I would allow that. 

However, I don't qualify for a transplant anyway.  In another group that I

attend, 2 fellas were suddenly called very close to each other and both received

their gift.  I was so shocked how little time either one of them stayed in the

hospital afterward.  It was like only 5 to 7 days.

A very good friend of mine, donated one of her kidneys to her son about 1-1/2

yrs ago.  The only thing that she has to be very careful about, is picking up a

virus etc of course.  Sill girl works in a daycare!!

I certainly don't know for sure; but, I'll bet that the living donor will get a

whole lot of information before a decision.  It's a wonderful thing for anyone

to do; but, it's not just as easy as that either.  Obviously, since you have

AIH, your brother will be put through every test possible.

You are a very loved lady!!  Also, what a wonderful family you grew up in.  

Your brother to be so willing to donate for his sister, is very heart

wrenching.  One of those acts of love that bring tears to the eyes.

Gloria

________________________________

 

I posted a month or so ago about going in for a transplant evaluation at

MassGeneral Hospital. (As a recap, I was diagnosed with AIH and cirrhosis last

November, at the age of 24. My MELD is currently 17.)

Today the committee officially informed me that they are adding me to the list.

I'm somehow feeling both relief and apprehension. But mostly relief.

My family has also expressed interest in becoming living donors, and apparently

my brother is already trying to get started on getting checkups and tests to see

if he'd be eligible. I admire his initiative on that, and I'm honored that he

loves me enough to even offer.

Both my parents are also offering-- they're near the cutoff age of 55, but

they're otherwise in excellent health.

There might be a lot of complications with the living donor process if one of

them is approved; they all live near DC, and if I had a living donor I might

have to end up getting the transplant down there so that one family member could

provide post-transplant care for both me and my donor... whereas if I had the

transplant here in Boston, where I live, my family say they'd be willing to take

shifts to act as a caregiver for the initial months after the transplant.

So I guess that's going to be difficult no matter how we slice it... and there's

a part of me that hates the idea of needing a caregiver or being a burden. But I

guess I'm going to have to accept that.

I would love to hear about others' stories about being on the waiting list or

the transplant/post-transplant process, and how they've coped.

--

[Guest guest]

Hello :  I am Jackie Ellermann.  My husband, had a liver

transplant on May 26, 2010 and is doing well today.  I was overjoyed when I

read your message that you have made the list!  You and your loving family are

on an exciting journey towards a second chance of life for you.  I have written

a book about our journey through the transplant process.  had his

transplant at Hershey Medical Center in Hershey, PA.  They have wonderful

doctors and nurses there.  The name of my book is called " The Mustard Seed " . 

You can look it up online and download it if you wish to for a kindle.  Just

type in the mustard seed by jackie ellermann.  I hope you and your family will

be encouraged and inspired by our story.  And as always, you are in our

prayers.  With love,  Jackie Ellermann

________________________________

To: livercirrhosissupport

Sent: Friday, March 30, 2012 11:09 PM

Subject: On the transplant list!

 

I posted a month or so ago about going in for a transplant evaluation at

MassGeneral Hospital. (As a recap, I was diagnosed with AIH and cirrhosis last

November, at the age of 24. My MELD is currently 17.)

Today the committee officially informed me that they are adding me to the list.

I'm somehow feeling both relief and apprehension. But mostly relief.

My family has also expressed interest in becoming living donors, and apparently

my brother is already trying to get started on getting checkups and tests to see

if he'd be eligible. I admire his initiative on that, and I'm honored that he

loves me enough to even offer.

Both my parents are also offering-- they're near the cutoff age of 55, but

they're otherwise in excellent health.

There might be a lot of complications with the living donor process if one of

them is approved; they all live near DC, and if I had a living donor I might

have to end up getting the transplant down there so that one family member could

provide post-transplant care for both me and my donor... whereas if I had the

transplant here in Boston, where I live, my family say they'd be willing to take

shifts to act as a caregiver for the initial months after the transplant.

So I guess that's going to be difficult no matter how we slice it... and there's

a part of me that hates the idea of needing a caregiver or being a burden. But I

guess I'm going to have to accept that.

I would love to hear about others' stories about being on the waiting list or

the transplant/post-transplant process, and how they've coped.

--

[Guest guest]

hi michelle, welcome to the group.my name is beverly hurlock .i was diagnosed

with alcohol indued cirrhosis in oct 2008. i was a very sick person dr's didnt

think i was going to make my meld was a 24 i had to stay sober for 1yr before

they would consider me for a transplant. i placed on the list i dec of 2009 with

a meld of 23.i am still on the list meld is 15 now but it changes all the

time.just wanted to say hang in there and it is alot of information out to

help.but it helps me to be able to have this group to help because know one else

knows how we feel tell they go thru it themselfs.will talk later good luck and

remember we are all going thru this togethwer.

 

beverly

tx.

________________________________

To: " livercirrhosissupport "

<livercirrhosissupport >

Sent: Saturday, March 31, 2012 6:35 AM

Subject: Re: On the transplant list!

 

Hello :  I am Jackie Ellermann.  My husband, had a liver

transplant on May 26, 2010 and is doing well today.  I was overjoyed when I

read your message that you have made the list!  You and your loving family are

on an exciting journey towards a second chance of life for you.  I have written

a book about our journey through the transplant process.  had his

transplant at Hershey Medical Center in Hershey, PA.  They have wonderful

doctors and nurses there.  The name of my book is called " The Mustard Seed " . 

You can look it up online and download it if you wish to for a kindle.  Just

type in the mustard seed by jackie ellermann.  I hope you and your family will

be encouraged and inspired by our story.  And as always, you are in our

prayers.  With love,  Jackie Ellermann

________________________________

To: livercirrhosissupport

Sent: Friday, March 30, 2012 11:09 PM

Subject: On the transplant list!

 

I posted a month or so ago about going in for a transplant evaluation at

MassGeneral Hospital. (As a recap, I was diagnosed with AIH and cirrhosis last

November, at the age of 24. My MELD is currently 17.)

Today the committee officially informed me that they are adding me to the list.

I'm somehow feeling both relief and apprehension. But mostly relief.

My family has also expressed interest in becoming living donors, and apparently

my brother is already trying to get started on getting checkups and tests to see

if he'd be eligible. I admire his initiative on that, and I'm honored that he

loves me enough to even offer.

Both my parents are also offering-- they're near the cutoff age of 55, but

they're otherwise in excellent health.

There might be a lot of complications with the living donor process if one of

them is approved; they all live near DC, and if I had a living donor I might

have to end up getting the transplant down there so that one family member could

provide post-transplant care for both me and my donor... whereas if I had the

transplant here in Boston, where I live, my family say they'd be willing to take

shifts to act as a caregiver for the initial months after the transplant.

So I guess that's going to be difficult no matter how we slice it... and there's

a part of me that hates the idea of needing a caregiver or being a burden. But I

guess I'm going to have to accept that.

I would love to hear about others' stories about being on the waiting list or

the transplant/post-transplant process, and how they've coped.

--