Guest guest Posted March 30, 2012 Report Share Posted March 30, 2012 I posted a month or so ago about going in for a transplant evaluation at MassGeneral Hospital. (As a recap, I was diagnosed with AIH and cirrhosis last November, at the age of 24. My MELD is currently 17.) Today the committee officially informed me that they are adding me to the list. I'm somehow feeling both relief and apprehension. But mostly relief. My family has also expressed interest in becoming living donors, and apparently my brother is already trying to get started on getting checkups and tests to see if he'd be eligible. I admire his initiative on that, and I'm honored that he loves me enough to even offer. Both my parents are also offering-- they're near the cutoff age of 55, but they're otherwise in excellent health. There might be a lot of complications with the living donor process if one of them is approved; they all live near DC, and if I had a living donor I might have to end up getting the transplant down there so that one family member could provide post-transplant care for both me and my donor... whereas if I had the transplant here in Boston, where I live, my family say they'd be willing to take shifts to act as a caregiver for the initial months after the transplant. So I guess that's going to be difficult no matter how we slice it... and there's a part of me that hates the idea of needing a caregiver or being a burden. But I guess I'm going to have to accept that. I would love to hear about others' stories about being on the waiting list or the transplant/post-transplant process, and how they've coped. -- Quote Link to comment Share on other sites More sharing options...
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