Transplant eval on Monday - nervous!

[Guest guest]

Hi all,

I'm going in for my transplant evaluation at MassGeneral on Monday. It's all I

can think about! I feel so anxious about it. I've been told I'm a very good

candidate for transplant, but I have this persistent worry that there'll be some

reason they'll deny me. Maybe silly and irrational, but much of my life does not

feel very rational right now.

I'm 24 and acquired cirrhosis through years of undiagnosed autoimmune hepatitis.

My MELD was 17 when I was diagnosed in November; I'm not sure whether it's

changed.

I've also been warned that I may have to wait a long time for a transplant,

which I'm also nervous about. I already feel so sick of being sick! I'm on such

a host of medications to control complications of one kind or another. I keep

feeling like I just want to get this over with and get back to my life! I'm sure

you all can sympathize...

A living donor might be a possibility for me; my whole family (mom, dad, and

brother) has stepped up and offered to undergo evaluation. Does anyone know more

about that part of the process, and what they look for? I've already read

everything I can about living donor liver transplants, but there's nothing like

firsthand experience. They're all in excellent health, and if I remember my

biology correctly, our blood types should all be compatible; we're all either

Type B or Type O.

That's all for now. Wish me luck?

--

[Guest guest]

Hi there:  My name is Jackie Ellermann.  I live in town, PA.  My

husband, underwent a successful liver transplant on May 26, 2010.  I am

excited to hear that you are a good candidate for evaluation and I hope and pray

that you have a good outcome like my husband did.  We learned alot about the

whole process during our navigation thru the medical community.  I have written

a book about our experience.  It's called " The Mustard Seed. "   If you would

like to contact me personally, you can do that on my personal e-mail at

jckellermann@...  Keeping you and your family in prayer and would love to

hear from you.  Jackie E

________________________________

To: livercirrhosissupport

Sent: Wednesday, February 29, 2012 10:09 AM

Subject: Transplant eval on Monday - nervous!

 

Hi all,

I'm going in for my transplant evaluation at MassGeneral on Monday. It's all I

can think about! I feel so anxious about it. I've been told I'm a very good

candidate for transplant, but I have this persistent worry that there'll be some

reason they'll deny me. Maybe silly and irrational, but much of my life does not

feel very rational right now.

I'm 24 and acquired cirrhosis through years of undiagnosed autoimmune hepatitis.

My MELD was 17 when I was diagnosed in November; I'm not sure whether it's

changed.

I've also been warned that I may have to wait a long time for a transplant,

which I'm also nervous about. I already feel so sick of being sick! I'm on such

a host of medications to control complications of one kind or another. I keep

feeling like I just want to get this over with and get back to my life! I'm sure

you all can sympathize...

A living donor might be a possibility for me; my whole family (mom, dad, and

brother) has stepped up and offered to undergo evaluation. Does anyone know more

about that part of the process, and what they look for? I've already read

everything I can about living donor liver transplants, but there's nothing like

firsthand experience. They're all in excellent health, and if I remember my

biology correctly, our blood types should all be compatible; we're all either

Type B or Type O.

That's all for now. Wish me luck?

--

[Guest guest]

Hi ,

I went through an evaluation and it wasn't so bad. The only way you

would be rejected is if you have something major wrong with you

besides the liver. Cancer for example. You should be fine! Be sure

and take someone with you and take lots of notes. When I went for

mine, I was impressed with the staff and how nice and caring they all

were. I wish the best for you!

Rhonda

> Hi all,

>

> I'm going in for my transplant evaluation at MassGeneral on Monday.

> It's all I can think about! I feel so anxious about it. I've been

> told I'm a very good candidate for transplant, but I have this

> persistent worry that there'll be some reason they'll deny me. Maybe

> silly and irrational, but much of my life does not feel very

> rational right now.

>

> I'm 24 and acquired cirrhosis through years of undiagnosed

> autoimmune hepatitis. My MELD was 17 when I was diagnosed in

> November; I'm not sure whether it's changed.

>

> I've also been warned that I may have to wait a long time for a

> transplant, which I'm also nervous about. I already feel so sick of

> being sick! I'm on such a host of medications to control

> complications of one kind or another. I keep feeling like I just

> want to get this over with and get back to my life! I'm sure you all

> can sympathize...

>

> A living donor might be a possibility for me; my whole family (mom,

> dad, and brother) has stepped up and offered to undergo evaluation.

> Does anyone know more about that part of the process, and what they

> look for? I've already read everything I can about living donor

> liver transplants, but there's nothing like firsthand experience.

> They're all in excellent health, and if I remember my biology

> correctly, our blood types should all be compatible; we're all

> either Type B or Type O.

>

> That's all for now. Wish me luck?

>

> --

>

>

[Guest guest]

,

All I can say is CONGRATS!!!! I am so happy that you are even being evaluated

for the transplant list! That is such great news! I wish you all the best and

every ounce of luck imaginable!

I haven't dealt with an eval. But i am willing to bet this is an awesome sign.

Again...so happy for you and your loved ones.

Kim

>

> Hi all,

>

> I'm going in for my transplant evaluation at MassGeneral on Monday. It's all I

can think about! I feel so anxious about it. I've been told I'm a very good

candidate for transplant, but I have this persistent worry that there'll be some

reason they'll deny me. Maybe silly and irrational, but much of my life does not

feel very rational right now.

>

> I'm 24 and acquired cirrhosis through years of undiagnosed autoimmune

hepatitis. My MELD was 17 when I was diagnosed in November; I'm not sure whether

it's changed.

>

> I've also been warned that I may have to wait a long time for a transplant,

which I'm also nervous about. I already feel so sick of being sick! I'm on such

a host of medications to control complications of one kind or another. I keep

feeling like I just want to get this over with and get back to my life! I'm sure

you all can sympathize...

>

> A living donor might be a possibility for me; my whole family (mom, dad, and

brother) has stepped up and offered to undergo evaluation. Does anyone know more

about that part of the process, and what they look for? I've already read

everything I can about living donor liver transplants, but there's nothing like

firsthand experience. They're all in excellent health, and if I remember my

biology correctly, our blood types should all be compatible; we're all either

Type B or Type O.

>

> That's all for now. Wish me luck?

>

> --

>

[Guest guest]

Thanks! I guess I was vaguely suspicious of things I read about possible reasons

for rejection, like, " lack of support " or " inability to comply with doctor's

instructions, " because who knows how *they* will see things?

In the past I've been a little bull-headed about following doctor's orders

exactly, but obviously in this case I'd do whatever it takes to get the

transplant! And I have support through my roommates, who are all amazing and who

happen to have dealt with major surgeries and life-altering conditions

themselves-- one even spent a year in a wheelchair and had to re-learn how to

walk. (Compared to that, I feel like I got off easy.)

My parents will be driving up to be with me that day. My hepatologist told me to

have them there.

>

> > Hi all,

> >

> > I'm going in for my transplant evaluation at MassGeneral on Monday.

> > It's all I can think about! I feel so anxious about it. I've been

> > told I'm a very good candidate for transplant, but I have this

> > persistent worry that there'll be some reason they'll deny me. Maybe

> > silly and irrational, but much of my life does not feel very

> > rational right now.

> >

> > I'm 24 and acquired cirrhosis through years of undiagnosed

> > autoimmune hepatitis. My MELD was 17 when I was diagnosed in

> > November; I'm not sure whether it's changed.

> >

> > I've also been warned that I may have to wait a long time for a

> > transplant, which I'm also nervous about. I already feel so sick of

> > being sick! I'm on such a host of medications to control

> > complications of one kind or another. I keep feeling like I just

> > want to get this over with and get back to my life! I'm sure you all

> > can sympathize...

> >

> > A living donor might be a possibility for me; my whole family (mom,

> > dad, and brother) has stepped up and offered to undergo evaluation.

> > Does anyone know more about that part of the process, and what they

> > look for? I've already read everything I can about living donor

> > liver transplants, but there's nothing like firsthand experience.

> > They're all in excellent health, and if I remember my biology

> > correctly, our blood types should all be compatible; we're all

> > either Type B or Type O.

> >

> > That's all for now. Wish me luck?

> >

> > --

> >

> >

>

>

>

>