(No subject)

[Guest guest]

my father passed at the young age of 41 of the same condition, I know there is

nothing anyone person can say to make this hopeless feeling go away. I can

almost verify that the pain he is having does come from the liver. I do not

know many of the doctors terms. but do know once the bleeding begins- get him to

the hospital once my fathers began " his was beyond help within 3 days he slipped

into a coma...but do keep this in mind no two cases are the same and med.

practices have changed since his passing. never give up hope or faith.

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> WELL I'M NEW TO THE GROUP AND NOT SURE WHERE TO START. MY HUSBAND HAS CIRCUSIS

OF THE LIVER. IT STARTED OUT (KNOW I'M GONNA MISPELL THIS BUT MAYBE YOU CAN

FIGURE IT OUT.) HEMACROMATOSIS AND THEN WE WERE TOLD HE HAD CIRCUSIS. HES GONE

THOUGHT THE TRANSPLANT TEST BUT WAS TOLD THAT UNTILL HE STARTS PASSING BLOOD HE

WOULDN'T BE PUT ON ANY LIST. I WORRY THAT BY THEN IT WILL BE TOO LATE. HES

ALREADY BEEN IN HOSIPTAL SEVERAL TIMES FOR HIS AMMONI BEING TOO HIGH, LAST TIME

THEY SAID IT WAS OFF THE CHARTS. BEEN IN HOSIPTAL TO HAVE FLUID REMOVED.HE GETS

VERY CONFUSED AND SAYS HES IN ALOT OF PAIN.I DON'T KNOW IF THE PAIN IS FROM HIS

LIVER OR BEAUSE HE HAD AN ACCIDENT IN 2002.I GET SO SCARED AND DON'T KNOW WHAT

TO DO OR WHATS GONNA HAPPEN NEXT. MY DAUGHTER HELPS ALOT BUT I HATE LEANING ON

HER SO MUCH. I JUST WAS HOPING THERE WERE OTHER PEOPLE OUT THERE. DON'T TAKE ME

WRONG I DON'T WISH THIS ON ANYONE. BUT IT SURE WOULD HELP TO BEABLE TO TALK TO

SOMEONE THAT KNOWS WHAT I'M GOING THOUGHT. SO WITH THAT SAID I'LL STOP HERE.

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