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Foggy Brain

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Hi all

My wife was diagnosed with auto-immune hepatitis at age 16 (she's now 34).

Was on liver-transplant list, but since moving to mycophenylate, condition has

stabilised, though she still has end-stage liver disease.

Two years ago her spleen was removed so they could remove an aneurysm.

The thing I have found since then is that she is increasingly paranoid and

doesn't seem to think logically, and very forgetful.

Any experience of this amongst you.

Cheers

Mike

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My husband had some issues with that, we were told it was " hepatic

encephalopathy " ...a condition in which the increased toxins/amonia levels in the

brain cause changes in mental states...things like paranoia, confusion. My

husband would repeatedly ask the same questions or make the same

statements...forgetting he had already asked or said it. He was slow to get

things he would have normal gotten very quickly. His moods changed with the

increased toxins.

If your wife takes Lactulose, that can help. It makes the body make extra bowel

movements, so that the body can rid the toxins, and reduce the HE. Hope this

helps.

Kim

>

> Hi all

>

> My wife was diagnosed with auto-immune hepatitis at age 16 (she's now 34).

>

> Was on liver-transplant list, but since moving to mycophenylate, condition has

stabilised, though she still has end-stage liver disease.

>

> Two years ago her spleen was removed so they could remove an aneurysm.

>

> The thing I have found since then is that she is increasingly paranoid and

doesn't seem to think logically, and very forgetful.

>

> Any experience of this amongst you.

>

> Cheers

>

> Mike

>

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Mike

First of all - welcome to the group.  The circumstances are sad; but, glad to

have you.  As if your wife didn't have enough to cope with, an aneurysm thrown

in for excitement.  I had a lot of stuff happen in the space of 3 yrs and there

were many days that I looked up and asked " do you really think you have the

right person " or " who said I wanted to be stronger? "

Please go and learn all you can about Hepatic Encephalopathy.  I know that in

my case, I believe that I have days that are close to my Dad's Alzheimers. 

Only he's 86!!  I'm still trying to work in order to fulfill my obligations and

it's not always a good thing.  I am a bookkeeper and had about 14 small

businesses to look after.  I am trying to give it all away; but, that logical

thinking really can get me and becomes a definite disability.  If I worked a

little in an evening, I'd get up and get started the next day and right away I'd

ask " what idiot posted this crap? "   The only idiot that will answer is ME.

Forgetful is really really bad.  I used to pride myself on my memory for all

kinds of things.  Now I have to constantly have reminders around that will

actually remind me.  Especially on my computer.

By the way - I have end-stage with cancer tumors.  I'm just hoping that I can

hang on for another few weeks to put all my work to bed.  So far, I've been

given 8 months since the diagnosis and I couldn't begin to tell you how grateful

I am for every day!!

Lots of folks in here will tell you their experience with the memory etc.  That

is - if they remember to come.  LOL

Keep in touch 

Gloria

________________________________

 

Hi all

My wife was diagnosed with auto-immune hepatitis at age 16 (she's now 34).

Was on liver-transplant list, but since moving to mycophenylate, condition has

stabilised, though she still has end-stage liver disease.

Two years ago her spleen was removed so they could remove an aneurysm.

The thing I have found since then is that she is increasingly paranoid and

doesn't seem to think logically, and very forgetful.

Any experience of this amongst you.

Cheers

Mike

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Dear Mike, welcome to our group. I am sorry about your wife. I am 49, and

recovering alcoholic with ESLD> I lost my best friend to ESLD from alcoholism in

06, and have been sober since then.  I am familiar with your wife's

condition...on a daily basis.  This support group is a great bunch of very

knowledgeable people. I hope we are able to help. Bobby Aragon -group moderator

________________________________

To: " livercirrhosissupport "

<livercirrhosissupport >

Sent: Monday, April 16, 2012 11:36 PM

Subject: Re: Foggy Brain

 

Mike

First of all - welcome to the group.  The circumstances are sad; but, glad to

have you.  As if your wife didn't have enough to cope with, an aneurysm thrown

in for excitement.  I had a lot of stuff happen in the space of 3 yrs and there

were many days that I looked up and asked " do you really think you have the

right person " or " who said I wanted to be stronger? "

Please go and learn all you can about Hepatic Encephalopathy.  I know that in

my case, I believe that I have days that are close to my Dad's Alzheimers. 

Only he's 86!!  I'm still trying to work in order to fulfill my obligations and

it's not always a good thing.  I am a bookkeeper and had about 14 small

businesses to look after.  I am trying to give it all away; but, that logical

thinking really can get me and becomes a definite disability.  If I worked a

little in an evening, I'd get up and get started the next day and right away I'd

ask " what idiot posted this crap? "   The only idiot that will answer is ME.

Forgetful is really really bad.  I used to pride myself on my memory for all

kinds of things.  Now I have to constantly have reminders around that will

actually remind me.  Especially on my computer.

By the way - I have end-stage with cancer tumors.  I'm just hoping that I can

hang on for another few weeks to put all my work to bed.  So far, I've been

given 8 months since the diagnosis and I couldn't begin to tell you how grateful

I am for every day!!

Lots of folks in here will tell you their experience with the memory etc.  That

is - if they remember to come.  LOL

Keep in touch 

Gloria

________________________________

 

Hi all

My wife was diagnosed with auto-immune hepatitis at age 16 (she's now 34).

Was on liver-transplant list, but since moving to mycophenylate, condition has

stabilised, though she still has end-stage liver disease.

Two years ago her spleen was removed so they could remove an aneurysm.

The thing I have found since then is that she is increasingly paranoid and

doesn't seem to think logically, and very forgetful.

Any experience of this amongst you.

Cheers

Mike

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