Guest guest Posted April 16, 2012 Report Share Posted April 16, 2012 Hi all My wife was diagnosed with auto-immune hepatitis at age 16 (she's now 34). Was on liver-transplant list, but since moving to mycophenylate, condition has stabilised, though she still has end-stage liver disease. Two years ago her spleen was removed so they could remove an aneurysm. The thing I have found since then is that she is increasingly paranoid and doesn't seem to think logically, and very forgetful. Any experience of this amongst you. Cheers Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2012 Report Share Posted April 16, 2012 My husband had some issues with that, we were told it was " hepatic encephalopathy " ...a condition in which the increased toxins/amonia levels in the brain cause changes in mental states...things like paranoia, confusion. My husband would repeatedly ask the same questions or make the same statements...forgetting he had already asked or said it. He was slow to get things he would have normal gotten very quickly. His moods changed with the increased toxins. If your wife takes Lactulose, that can help. It makes the body make extra bowel movements, so that the body can rid the toxins, and reduce the HE. Hope this helps. Kim > > Hi all > > My wife was diagnosed with auto-immune hepatitis at age 16 (she's now 34). > > Was on liver-transplant list, but since moving to mycophenylate, condition has stabilised, though she still has end-stage liver disease. > > Two years ago her spleen was removed so they could remove an aneurysm. > > The thing I have found since then is that she is increasingly paranoid and doesn't seem to think logically, and very forgetful. > > Any experience of this amongst you. > > Cheers > > Mike > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2012 Report Share Posted April 16, 2012 Mike First of all - welcome to the group. The circumstances are sad; but, glad to have you. As if your wife didn't have enough to cope with, an aneurysm thrown in for excitement. I had a lot of stuff happen in the space of 3 yrs and there were many days that I looked up and asked " do you really think you have the right person " or " who said I wanted to be stronger? " Please go and learn all you can about Hepatic Encephalopathy. I know that in my case, I believe that I have days that are close to my Dad's Alzheimers. Only he's 86!! I'm still trying to work in order to fulfill my obligations and it's not always a good thing. I am a bookkeeper and had about 14 small businesses to look after. I am trying to give it all away; but, that logical thinking really can get me and becomes a definite disability. If I worked a little in an evening, I'd get up and get started the next day and right away I'd ask " what idiot posted this crap? "  The only idiot that will answer is ME. Forgetful is really really bad. I used to pride myself on my memory for all kinds of things. Now I have to constantly have reminders around that will actually remind me. Especially on my computer. By the way - I have end-stage with cancer tumors. I'm just hoping that I can hang on for another few weeks to put all my work to bed. So far, I've been given 8 months since the diagnosis and I couldn't begin to tell you how grateful I am for every day!! Lots of folks in here will tell you their experience with the memory etc. That is - if they remember to come. LOL Keep in touch Gloria ________________________________  Hi all My wife was diagnosed with auto-immune hepatitis at age 16 (she's now 34). Was on liver-transplant list, but since moving to mycophenylate, condition has stabilised, though she still has end-stage liver disease. Two years ago her spleen was removed so they could remove an aneurysm. The thing I have found since then is that she is increasingly paranoid and doesn't seem to think logically, and very forgetful. Any experience of this amongst you. Cheers Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2012 Report Share Posted April 19, 2012 Dear Mike, welcome to our group. I am sorry about your wife. I am 49, and recovering alcoholic with ESLD> I lost my best friend to ESLD from alcoholism in 06, and have been sober since then. I am familiar with your wife's condition...on a daily basis. This support group is a great bunch of very knowledgeable people. I hope we are able to help. Bobby Aragon -group moderator ________________________________ To: " livercirrhosissupport " <livercirrhosissupport > Sent: Monday, April 16, 2012 11:36 PM Subject: Re: Foggy Brain  Mike First of all - welcome to the group. The circumstances are sad; but, glad to have you. As if your wife didn't have enough to cope with, an aneurysm thrown in for excitement. I had a lot of stuff happen in the space of 3 yrs and there were many days that I looked up and asked " do you really think you have the right person " or " who said I wanted to be stronger? " Please go and learn all you can about Hepatic Encephalopathy. I know that in my case, I believe that I have days that are close to my Dad's Alzheimers. Only he's 86!! I'm still trying to work in order to fulfill my obligations and it's not always a good thing. I am a bookkeeper and had about 14 small businesses to look after. I am trying to give it all away; but, that logical thinking really can get me and becomes a definite disability. If I worked a little in an evening, I'd get up and get started the next day and right away I'd ask " what idiot posted this crap? "  The only idiot that will answer is ME. Forgetful is really really bad. I used to pride myself on my memory for all kinds of things. Now I have to constantly have reminders around that will actually remind me. Especially on my computer. By the way - I have end-stage with cancer tumors. I'm just hoping that I can hang on for another few weeks to put all my work to bed. So far, I've been given 8 months since the diagnosis and I couldn't begin to tell you how grateful I am for every day!! Lots of folks in here will tell you their experience with the memory etc. That is - if they remember to come. LOL Keep in touch Gloria ________________________________  Hi all My wife was diagnosed with auto-immune hepatitis at age 16 (she's now 34). Was on liver-transplant list, but since moving to mycophenylate, condition has stabilised, though she still has end-stage liver disease. Two years ago her spleen was removed so they could remove an aneurysm. The thing I have found since then is that she is increasingly paranoid and doesn't seem to think logically, and very forgetful. Any experience of this amongst you. Cheers Mike Quote Link to comment Share on other sites More sharing options...
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