Re: lactulose experience-beware of human volcano!!

[Guest guest]

, there are so many things in life that are trial and error. For sure,

everyone does not react the same way with any drug or treatment, and I believe

that there are more different results within one patient than between all of

them put together. Let me explain... with myself, there are times I experience

constipation with what seems like a gallon of *lacto-fun*  and extreme gas

built up behind it. This is one of my arguments to the court as to why I can't

work. I couldn't expect my employer to tolerate the  hour and a half bathroom

visits that are a normal part of lactulose therapy. Sometimes it does not work

at all, and then I am in big big trouble, because if it doesn't work at some

point, you become a ticking time bomb, literally, a human volcano, for real.  I

rode the handicapped bus to see my cousin north of here by 20 miles, and began

squirming in my seat 10 miles in to the trip, and by the time I got there, was

desperate, and nearly out

of brakes! I ran to my cousins door, and to my horror, he wasn't home, having

stepped out to take his wife to work. I ran to the nearby woods, and was so so

lucky that there were woods nearby for me to find privacy and that it was so

early in the morning.  I now carry the following items with me in my back pack

where ever I go:

*One large trash bag,

*extra underwear,

*baby wipes

*camping toilet paper (it comes in a roll with out the cardboard paper tube, so

that it is compact, and an entire roll of paper is only an inch  or so thick)

*disinfectant hand wipes or hand sanitizer.

Sorry for the graffic nature of this but it is true and a part of life now.

, I am sorry you had such a bad time. I do understand, because 1 out of 5

times I take lactulose I get super nauseated. I NO LONGER EAT ANY FOOD AT ALL

ONE HOUR PRIOR TO AND ONE AND A HALF HOURS AFTER TAKING LACTULOSE. This seems to

help a lot. I believe that mixing solid food with lactulose can cause gastric

dumping syndrome, where food empties from the stomach too soon, and irritates

the intestines causing a horrific belly ache and nausea.

Love, Bobby

 

________________________________

To: livercirrhosissupport

Sent: Sunday, June 24, 2012 9:25 PM

Subject: Re: lactulose experience

 

BOBBY, THAT WHAT HAPPEN TO ME I HAVE ACID REFLEX, AND EACH TIME I TOOK

LACTULOSE, I NEARLY DIED, MAN I COULDNT WALK, DIDNT WANT TO GET OUT OF

BED, SICK TO MY STOMACH AND GUESS WHAT IT DIDNT DO IT JOB, I TOLD MY

DOCTOR ABOUT CONSTIPACTION AND THAT WHAT HIS SORRY ASS GAVE ME.... YES

I WENT THROUGH HELL WITH THIS DRUG, I WILL NEVER TAKE IT AGAIN.

SO THERE IS MY STORY.... TOMMIE

lactulose experience

 

I am interested in this drug. How do must of you (who take it) do it?

Put it in juice? How much do you use?

Thanks, Jackie

[Guest guest]

bob if any one knows about going through hell, its you, i am so glad

to have you around for questioning...lol.....us men hate to say

anything.. for some reason we will not be open like women on this panel

.. i have one bad day and 2 good days, so i am not completely

finish.... it just seem that doctors dont understand what.. the shut da

door we are going through..... so thanks again to you and my

family......love ya

lactulose experience

 

I am interested in this drug. How do must of you (who take it) do it?

Put it in juice? How much do you use?

Thanks, Jackie

[Guest guest]

Bobby - what a colorful picture you painted for us!!  LOL

For whatever misunderstanding, I thought that Lactalose was for constipation and

removing the ammonia.  It sure hasn't worked as a laxative for me.  So, I'm

adding a gentle laxative to help.  Shortly after drinking the Lacta, my belly

begins to blow a bit more and becomes rock hard.  I couldn't force food down at

that point.  Also, it's really hard to time the Lacta around other medications

etc.  I'm going to have to have my calendar send me posts on the monitor to

remind me when I can take it.

However, it has to help get through these short term memory losses.  Some days

I just want to cry, because what I could do in my sleep before, takes me hours

and hours now.  I can't retain a thought for hardly a minute if I'm doing

anything for my work.  Glad that will be over soon.

What a life huh??  Who would have thought that any of us would be talking about

our bowels with each other.  But, it's the only place that I think I'm getting

the straight goods.

Gloria

________________________________

 

bob if any one knows about going through hell, its you, i am so glad

to have you around for questioning...lol.....us men hate to say

anything.. for some reason we will not be open like women on this panel

.. i have one bad day and 2 good days, so i am not completely

finish.... it just seem that doctors dont understand what.. the shut da

door we are going through..... so thanks again to you and my

family......love ya

 

, there are so many things in life that are trial and error. For

sure, everyone does not react the same way with any drug or treatment,

and I believe that there are more different results within one patient

than between all of them put together. Let me explain... with myself,

there are times I experience constipation with what seems like a gallon

of *lacto-fun*  and extreme gas built up behind it. This is one of my

arguments to the court as to why I can't work. I couldn't expect my

employer to tolerate the  hour and a half bathroom visits that are a

normal part of lactulose therapy. Sometimes it does not work at all,

and then I am in big big trouble, because if it doesn't work at some

point, you become a ticking time bomb, literally, a human volcano, for

real.  I rode the handicapped bus to see my cousin north of here by 20

miles, and began squirming in my seat 10 miles in to the trip, and by

the time I got there, was desperate, and nearly out

of brakes! I ran to my cousins door, and to my horror, he wasn't home,

having stepped out to take his wife to work. I ran to the nearby woods,

and was so so lucky that there were woods nearby for me to find privacy

and that it was so early in the morning.  I now carry the following

items with me in my back pack where ever I go:

*One large trash bag,

*extra underwear,

*baby wipes

*camping toilet paper (it comes in a roll with out the cardboard paper

tube, so that it is compact, and an entire roll of paper is only an

inch  or so thick)

*disinfectant hand wipes or hand sanitizer.

Sorry for the graffic nature of this but it is true and a part of life

now. , I am sorry you had such a bad time. I do understand,

because 1 out of 5 times I take lactulose I get super nauseated. I NO

LONGER EAT ANY FOOD AT ALL ONE HOUR PRIOR TO AND ONE AND A HALF HOURS

AFTER TAKING LACTULOSE. This seems to help a lot. I believe that mixing

solid food with lactulose can cause gastric dumping syndrome, where

food empties from the stomach too soon, and irritates the intestines

causing a horrific belly ache and nausea.

Love, Bobby

 

________________________________

From: Dtdaven7398 & lt;DTDaven7398@... & gt;

To: livercirrhosissupport

Sent: Sunday, June 24, 2012 9:25 PM

Subject: Re: lactulose experience

 

BOBBY, THAT WHAT HAPPEN TO ME I HAVE ACID REFLEX, AND EACH TIME I TOOK

LACTULOSE, I NEARLY DIED, MAN I COULDNT WALK, DIDNT WANT TO GET OUT OF

BED, SICK TO MY STOMACH AND GUESS WHAT IT DIDNT DO IT JOB, I TOLD MY

DOCTOR ABOUT CONSTIPACTION AND THAT WHAT HIS SORRY ASS GAVE ME.... YES

I WENT THROUGH HELL WITH THIS DRUG, I WILL NEVER TAKE IT AGAIN.

SO THERE IS MY STORY.... TOMMIE

lactulose experience

 

I am interested in this drug. How do must of you (who take it) do it?

Put it in juice? How much do you use?

Thanks, Jackie

[Guest guest]

Bobby, loved your colorful picture. Many older people have the same

problem as people taking lactolose, so here it is a fairly common

topic of conversation.

I have been wondering how far you are from the fires. The first house

my brother had in Colorado Springs, a few miles east of Garden of the

Gods went, and so did the Garden. My brother was in Alaska when I

talked to him but said their present house should be safe. I know

their old house was not on the edge of town, so can't imagine how many

houses have gone. Hope you are safe. Jan

> Bobby - what a colorful picture you painted for us!!  LOL

>

> For whatever misunderstanding, I thought that Lactalose was for constipation

and removing the ammonia.  It sure hasn't worked as a laxative for me.  So, I'm

adding a gentle laxative to help.  Shortly after drinking the Lacta, my belly

begins to blow a bit more and becomes rock hard.  I couldn't force food down at

that point.  Also, it's really hard to time the Lacta around other medications

etc.  I'm going to have to have my calendar send me posts on the monitor to

remind me when I can take it.

>

> However, it has to help get through these short term memory losses.  Some days

I just want to cry, because what I could do in my sleep before, takes me hours

and hours now.  I can't retain a thought for hardly a minute if I'm doing

anything for my work.  Glad that will be over soon.

>

> What a life huh??  Who would have thought that any of us would be talking

about our bowels with each other.  But, it's the only place that I think I'm

getting the straight goods.

>

> Gloria

>

>

>

> ________________________________

>

>

>

>

> bob if any one knows about going through hell, its you,  i am so glad

> to have you around for questioning...lol.....us men hate to say

> anything.. for some reason we will not be open like women on this panel

> .  i have one bad day and 2 good days, so i am not completely

> finish.... it just seem that doctors dont understand what.. the shut da

> door we are going through..... so thanks again to you and my

> family......love ya

>

>

>

> , there are so many things in life that are trial and error. For

> sure, everyone does not react the same way with any drug or treatment,

> and I believe that there are more different results within one patient

> than between all of them put together. Let me explain... with myself,

> there are times I experience constipation with what seems like a gallon

> of *lacto-fun*  and extreme gas built up behind it. This is one of my

> arguments to the court as to why I can't work. I couldn't expect my

> employer to tolerate the  hour and a half bathroom visits that are a

> normal part of lactulose therapy. Sometimes it does not work at all,

> and then I am in big big trouble, because if it doesn't work at some

> point, you become a ticking time bomb, literally, a human volcano, for

> real.  I rode the handicapped bus to see my cousin north of here by 20

> miles, and began squirming in my seat 10 miles in to the trip, and by

> the time I got there, was desperate, and nearly out

> of brakes! I ran to my cousins door, and to my horror, he wasn't home,

> having stepped out to take his wife to work. I ran to the nearby woods,

> and was so so lucky that there were woods nearby for me to find privacy

> and that it was so early in the morning.  I now carry the following

> items with me in my back pack where ever I go:

> *One large trash bag,

> *extra underwear,

> *baby wipes

> *camping toilet paper (it comes in a roll with out the cardboard paper

> tube, so that it is compact, and an entire roll of paper is only an

> inch  or so thick)

> *disinfectant hand wipes or hand sanitizer.

>

> Sorry for the graffic nature of this but it is true and a part of life

> now. , I am sorry you had such a bad time. I do understand,

> because 1 out of 5 times I take lactulose I get super nauseated. I NO

> LONGER EAT ANY FOOD AT ALL ONE HOUR PRIOR TO AND ONE AND A HALF HOURS

> AFTER TAKING LACTULOSE. This seems to help a lot. I believe that mixing

> solid food with lactulose can cause gastric dumping syndrome, where

> food empties from the stomach too soon, and irritates the intestines

> causing a horrific belly ache and nausea.

> Love, Bobby

>

>

>

> ________________________________

> From: Dtdaven7398 & lt;DTDaven7398@... & gt;

> To: livercirrhosissupport

> Sent: Sunday, June 24, 2012 9:25 PM

> Subject: Re: lactulose experience

>

>

>

> BOBBY, THAT WHAT HAPPEN TO ME I HAVE ACID REFLEX, AND EACH TIME I TOOK

> LACTULOSE, I NEARLY DIED, MAN I COULDNT WALK, DIDNT WANT TO GET OUT OF

> BED,  SICK TO MY STOMACH AND GUESS WHAT IT DIDNT DO IT JOB, I TOLD MY

> DOCTOR ABOUT CONSTIPACTION AND THAT WHAT HIS SORRY ASS GAVE ME.... YES

> I WENT THROUGH HELL WITH THIS DRUG,  I WILL NEVER TAKE IT AGAIN.

>

> SO THERE IS MY STORY.... TOMMIE

>

> lactulose experience

>

>

> I am interested in this drug.  How do must of you (who take it) do it?

> Put it in juice?  How much do you use?

> Thanks, Jackie

>

>

[Guest guest]

Dear Jan, sorry to hear about the house. I assume that you lived in it, but you

dont own it? Dont answer unless the answer is yes, you still owned it.

Sharon and I are far from all of the fires, as we live way east of Denver, out

by the old Stapleton international airport property. In fact, we live 500 yards

from the north runway.  We woke to lots of smoke several days, which was

suprising. But, we are safe and putting along. Love, Bobby

 

________________________________

To: livercirrhosissupport

Sent: Friday, June 29, 2012 1:45 AM

Subject: Re: lactulose experience-beware of human

volcano!!

 

Bobby, loved your colorful picture. Many older people have the same

problem as people taking lactolose, so here it is a fairly common

topic of conversation.

I have been wondering how far you are from the fires. The first house

my brother had in Colorado Springs, a few miles east of Garden of the

Gods went, and so did the Garden. My brother was in Alaska when I

talked to him but said their present house should be safe. I know

their old house was not on the edge of town, so can't imagine how many

houses have gone. Hope you are safe. Jan

> Bobby - what a colorful picture you painted for us!!  LOL

>

> For whatever misunderstanding, I thought that Lactalose was for constipation

and removing the ammonia.  It sure hasn't worked as a laxative for me.  So,

I'm adding a gentle laxative to help.  Shortly after drinking the Lacta, my

belly begins to blow a bit more and becomes rock hard.  I couldn't force food

down at that point.  Also, it's really hard to time the Lacta around other

medications etc.  I'm going to have to have my calendar send me posts on the

monitor to remind me when I can take it.

>

> However, it has to help get through these short term memory losses.  Some

days I just want to cry, because what I could do in my sleep before, takes me

hours and hours now.  I can't retain a thought for hardly a minute if I'm doing

anything for my work.  Glad that will be over soon.

>

> What a life huh??  Who would have thought that any of us would be talking

about our bowels with each other.  But, it's the only place that I think I'm

getting the straight goods.

>

> Gloria

>

>

>

> ________________________________

>

>

>

>

> bob if any one knows about going through hell, its you,  i am so glad

> to have you around for questioning...lol.....us men hate to say

> anything.. for some reason we will not be open like women on this panel

> .  i have one bad day and 2 good days, so i am not completely

> finish.... it just seem that doctors dont understand what.. the shut da

> door we are going through..... so thanks again to you and my

> family......love ya

>

>

>

> , there are so many things in life that are trial and error. For

> sure, everyone does not react the same way with any drug or treatment,

> and I believe that there are more different results within one patient

> than between all of them put together. Let me explain... with myself,

> there are times I experience constipation with what seems like a gallon

> of *lacto-fun*  and extreme gas built up behind it. This is one of my

> arguments to the court as to why I can't work. I couldn't expect my

> employer to tolerate the  hour and a half bathroom visits that are a

> normal part of lactulose therapy. Sometimes it does not work at all,

> and then I am in big big trouble, because if it doesn't work at some

> point, you become a ticking time bomb, literally, a human volcano, for

> real.  I rode the handicapped bus to see my cousin north of here by 20

> miles, and began squirming in my seat 10 miles in to the trip, and by

> the time I got there, was desperate, and nearly out

> of brakes! I ran to my cousins door, and to my horror, he wasn't home,

> having stepped out to take his wife to work. I ran to the nearby woods,

> and was so so lucky that there were woods nearby for me to find privacy

> and that it was so early in the morning.  I now carry the following

> items with me in my back pack where ever I go:

> *One large trash bag,

> *extra underwear,

> *baby wipes

> *camping toilet paper (it comes in a roll with out the cardboard paper

> tube, so that it is compact, and an entire roll of paper is only an

> inch  or so thick)

> *disinfectant hand wipes or hand sanitizer.

>

> Sorry for the graffic nature of this but it is true and a part of life

> now. , I am sorry you had such a bad time. I do understand,

> because 1 out of 5 times I take lactulose I get super nauseated. I NO

> LONGER EAT ANY FOOD AT ALL ONE HOUR PRIOR TO AND ONE AND A HALF HOURS

> AFTER TAKING LACTULOSE. This seems to help a lot. I believe that mixing

> solid food with lactulose can cause gastric dumping syndrome, where

> food empties from the stomach too soon, and irritates the intestines

> causing a horrific belly ache and nausea.

> Love, Bobby

>

>

>

> ________________________________

> From: Dtdaven7398 & lt;DTDaven7398@... & gt;

> To: livercirrhosissupport

> Sent: Sunday, June 24, 2012 9:25 PM

> Subject: Re: lactulose experience

>

>

>

> BOBBY, THAT WHAT HAPPEN TO ME I HAVE ACID REFLEX, AND EACH TIME I TOOK

> LACTULOSE, I NEARLY DIED, MAN I COULDNT WALK, DIDNT WANT TO GET OUT OF

> BED,  SICK TO MY STOMACH AND GUESS WHAT IT DIDNT DO IT JOB, I TOLD MY

> DOCTOR ABOUT CONSTIPACTION AND THAT WHAT HIS SORRY ASS GAVE ME.... YES

> I WENT THROUGH HELL WITH THIS DRUG,  I WILL NEVER TAKE IT AGAIN.

>

> SO THERE IS MY STORY.... TOMMIE

>

> lactulose experience

>

>

> I am interested in this drug.  How do must of you (who take it) do it?

> Put it in juice?  How much do you use?

> Thanks, Jackie

>

>

[Guest guest]

There is something to be said, for sure, that out west here (Canada), our summer

didn't get started until 2 days ago.  I'm definitely not good in the sun; but,

even I was getting irritable about all the rain.  Last night I was looking to

see if British Columbia had any current fires and thankfully, there were not any

that were not containable. 

One of the problems that I believe causes a lot of the fires, is that a pine

beetle had devastated much of the forests.  Therefore, those trees are just

poles standing up and of course, very flammable.  It was just a little while

ago that one of our northern towns suffered greatly from fire.  It burned at

least 1/3 of that town.

Here on the island in the west, we don't have and likely won't get that

destructible beetle.  Still, from one end to the other, that forest has to be

watched carefully.  It wouldn't take much to burn like the fires in the US,

when everything dries up now.  Doesn't take long before everyone that is over

here to vacation etc. will learn that not even camping fires are allowed.  I'm

told that the big one that got that northern town was actually an arsonist. 

Unfortunately, we've had a number of insane people start an arson fire that

raged through much of the forests.

Bobby, the fire that raged in the interior of our province a few years ago - we

could smell that smoke all the way over here.  One evening I was coming back

into town and I swear that I saw smoke hanging over this valley.  Well it

was.  But, it came from the interior.

Horrible!!!

________________________________

 

Dear Jan, sorry to hear about the house. I assume that you lived in it, but you

dont own it? Dont answer unless the answer is yes, you still owned it.

Sharon and I are far from all of the fires, as we live way east of Denver, out

by the old Stapleton international airport property. In fact, we live 500 yards

from the north runway.  We woke to lots of smoke several days, which was

suprising. But, we are safe and putting along. Love, Bobby

 

________________________________

To: livercirrhosissupport

Sent: Friday, June 29, 2012 1:45 AM

Subject: Re: lactulose experience-beware of human

volcano!!

 

Bobby, loved your colorful picture. Many older people have the same

problem as people taking lactolose, so here it is a fairly common

topic of conversation.

I have been wondering how far you are from the fires. The first house

my brother had in Colorado Springs, a few miles east of Garden of the

Gods went, and so did the Garden. My brother was in Alaska when I

talked to him but said their present house should be safe. I know

their old house was not on the edge of town, so can't imagine how many

houses have gone. Hope you are safe. Jan

> Bobby - what a colorful picture you painted for us!!  LOL

>

> For whatever misunderstanding, I thought that Lactalose was for constipation

and removing the ammonia.  It sure hasn't worked as a laxative for me.  So,

I'm adding a gentle laxative to help.  Shortly after drinking the Lacta, my

belly begins to blow a bit more and becomes rock hard.  I couldn't force food

down at that point.  Also, it's really hard to time the Lacta around other

medications etc.  I'm going to have to have my calendar send me posts on the

monitor to remind me when I can take it.

>

> However, it has to help get through these short term memory losses.  Some

days I just want to cry, because what I could do in my sleep before, takes me

hours and hours now.  I can't retain a thought for hardly a minute if I'm doing

anything for my work.  Glad that will be over soon.

>

> What a life huh??  Who would have thought that any of us would be talking

about our bowels with each other.  But, it's the only place that I think I'm

getting the straight goods.

>

> Gloria

>

>

>

> ________________________________

>

>

>

>

> bob if any one knows about going through hell, its you,  i am so glad

> to have you around for questioning...lol.....us men hate to say

> anything.. for some reason we will not be open like women on this panel

> .  i have one bad day and 2 good days, so i am not completely

> finish.... it just seem that doctors dont understand what.. the shut da

> door we are going through..... so thanks again to you and my

> family......love ya

>

>

>

> , there are so many things in life that are trial and error. For

> sure, everyone does not react the same way with any drug or treatment,

> and I believe that there are more different results within one patient

> than between all of them put together. Let me explain... with myself,

> there are times I experience constipation with what seems like a gallon

> of *lacto-fun*  and extreme gas built up behind it. This is one of my

> arguments to the court as to why I can't work. I couldn't expect my

> employer to tolerate the  hour and a half bathroom visits that are a

> normal part of lactulose therapy. Sometimes it does not work at all,

> and then I am in big big trouble, because if it doesn't work at some

> point, you become a ticking time bomb, literally, a human volcano, for

> real.  I rode the handicapped bus to see my cousin north of here by 20

> miles, and began squirming in my seat 10 miles in to the trip, and by

> the time I got there, was desperate, and nearly out

> of brakes! I ran to my cousins door, and to my horror, he wasn't home,

> having stepped out to take his wife to work. I ran to the nearby woods,

> and was so so lucky that there were woods nearby for me to find privacy

> and that it was so early in the morning.  I now carry the following

> items with me in my back pack where ever I go:

> *One large trash bag,

> *extra underwear,

> *baby wipes

> *camping toilet paper (it comes in a roll with out the cardboard paper

> tube, so that it is compact, and an entire roll of paper is only an

> inch  or so thick)

> *disinfectant hand wipes or hand sanitizer.

>

> Sorry for the graffic nature of this but it is true and a part of life

> now. , I am sorry you had such a bad time. I do understand,

> because 1 out of 5 times I take lactulose I get super nauseated. I NO

> LONGER EAT ANY FOOD AT ALL ONE HOUR PRIOR TO AND ONE AND A HALF HOURS

> AFTER TAKING LACTULOSE. This seems to help a lot. I believe that mixing

> solid food with lactulose can cause gastric dumping syndrome, where

> food empties from the stomach too soon, and irritates the intestines

> causing a horrific belly ache and nausea.

> Love, Bobby

>

>

>

> ________________________________

> From: Dtdaven7398 & lt;DTDaven7398@... & gt;

> To: livercirrhosissupport

> Sent: Sunday, June 24, 2012 9:25 PM

> Subject: Re: lactulose experience

>

>

>

> BOBBY, THAT WHAT HAPPEN TO ME I HAVE ACID REFLEX, AND EACH TIME I TOOK

> LACTULOSE, I NEARLY DIED, MAN I COULDNT WALK, DIDNT WANT TO GET OUT OF

> BED,  SICK TO MY STOMACH AND GUESS WHAT IT DIDNT DO IT JOB, I TOLD MY

> DOCTOR ABOUT CONSTIPACTION AND THAT WHAT HIS SORRY ASS GAVE ME.... YES

> I WENT THROUGH HELL WITH THIS DRUG,  I WILL NEVER TAKE IT AGAIN.

>

> SO THERE IS MY STORY.... TOMMIE

>

> lactulose experience

>

>

> I am interested in this drug.  How do must of you (who take it) do it?

> Put it in juice?  How much do you use?

> Thanks, Jackie

>

>

[Guest guest]

We have had some much needed rain this week and it was actually cooler yesterday

and low humidity.  That was nice.  Went to Winnipeg and spent part of the day

driving with the top down.

 

________________________________

To: " livercirrhosissupport "

<livercirrhosissupport >

Sent: Thursday, July 5, 2012 6:39:11 PM

Subject: Re: lactulose experience-beware of human

volcano!!

 

There is something to be said, for sure, that out west here (Canada), our summer

didn't get started until 2 days ago.  I'm definitely not good in the sun; but,

even I was getting irritable about all the rain.  Last night I was looking to

see if British Columbia had any current fires and thankfully, there were not any

that were not containable. 

One of the problems that I believe causes a lot of the fires, is that a pine

beetle had devastated much of the forests.  Therefore, those trees are just

poles standing up and of course, very flammable.  It was just a little while

ago that one of our northern towns suffered greatly from fire.  It burned at

least 1/3 of that town.

Here on the island in the west, we don't have and likely won't get that

destructible beetle.  Still, from one end to the other, that forest has to be

watched carefully.  It wouldn't take much to burn like the fires in the US,

when everything dries up now.  Doesn't take long before everyone that is over

here to vacation etc. will learn that not even camping fires are allowed.  I'm

told that the big one that got that northern town was actually an arsonist. 

Unfortunately, we've had a number of insane people start an arson fire that

raged through much of the forests.

Bobby, the fire that raged in the interior of our province a few years ago - we

could smell that smoke all the way over here.  One evening I was coming back

into town and I swear that I saw smoke hanging over this valley.  Well it

was.  But, it came from the interior.

Horrible!!!

________________________________

 

Dear Jan, sorry to hear about the house. I assume that you lived in it, but you

dont own it? Dont answer unless the answer is yes, you still owned it.

Sharon and I are far from all of the fires, as we live way east of Denver, out

by the old Stapleton international airport property. In fact, we live 500 yards

from the north runway.  We woke to lots of smoke several days, which was

suprising. But, we are safe and putting along. Love, Bobby

 

________________________________

To: livercirrhosissupport

Sent: Friday, June 29, 2012 1:45 AM

Subject: Re: lactulose experience-beware of human

volcano!!

 

Bobby, loved your colorful picture. Many older people have the same

problem as people taking lactolose, so here it is a fairly common

topic of conversation.

I have been wondering how far you are from the fires. The first house

my brother had in Colorado Springs, a few miles east of Garden of the

Gods went, and so did the Garden. My brother was in Alaska when I

talked to him but said their present house should be safe. I know

their old house was not on the edge of town, so can't imagine how many

houses have gone. Hope you are safe. Jan

> Bobby - what a colorful picture you painted for us!!  LOL

>

> For whatever misunderstanding, I thought that Lactalose was for constipation

and removing the ammonia.  It sure hasn't worked as a laxative for me.  So,

I'm adding a gentle laxative to help.  Shortly after drinking the Lacta, my

belly begins to blow a bit more and becomes rock hard.  I couldn't force food

down at that point.  Also, it's really hard to time the Lacta around other

medications etc.  I'm going to have to have my calendar send me posts on the

monitor to remind me when I can take it.

>

> However, it has to help get through these short term memory losses.  Some

days I just want to cry, because what I could do in my sleep before, takes me

hours and hours now.  I can't retain a thought for hardly a minute if I'm doing

anything for my work.  Glad that will be over soon.

>

> What a life huh??  Who would have thought that any of us would be talking

about our bowels with each other.  But, it's the only place that I think I'm

getting the straight goods.

>

> Gloria

>

>

>

> ________________________________

>

>

>

>

> bob if any one knows about going through hell, its you,  i am so glad

> to have you around for questioning...lol.....us men hate to say

> anything.. for some reason we will not be open like women on this panel

> .  i have one bad day and 2 good days, so i am not completely

> finish.... it just seem that doctors dont understand what.. the shut da

> door we are going through..... so thanks again to you and my

> family......love ya

>

>

>

> , there are so many things in life that are trial and error. For

> sure, everyone does not react the same way with any drug or treatment,

> and I believe that there are more different results within one patient

> than between all of them put together. Let me explain... with myself,

> there are times I experience constipation with what seems like a gallon

> of *lacto-fun*  and extreme gas built up behind it. This is one of my

> arguments to the court as to why I can't work. I couldn't expect my

> employer to tolerate the  hour and a half bathroom visits that are a

> normal part of lactulose therapy. Sometimes it does not work at all,

> and then I am in big big trouble, because if it doesn't work at some

> point, you become a ticking time bomb, literally, a human volcano, for

> real.  I rode the handicapped bus to see my cousin north of here by 20

> miles, and began squirming in my seat 10 miles in to the trip, and by

> the time I got there, was desperate, and nearly out

> of brakes! I ran to my cousins door, and to my horror, he wasn't home,

> having stepped out to take his wife to work. I ran to the nearby woods,

> and was so so lucky that there were woods nearby for me to find privacy

> and that it was so early in the morning.  I now carry the following

> items with me in my back pack where ever I go:

> *One large trash bag,

> *extra underwear,

> *baby wipes

> *camping toilet paper (it comes in a roll with out the cardboard paper

> tube, so that it is compact, and an entire roll of paper is only an

> inch  or so thick)

> *disinfectant hand wipes or hand sanitizer.

>

> Sorry for the graffic nature of this but it is true and a part of life

> now. , I am sorry you had such a bad time. I do understand,

> because 1 out of 5 times I take lactulose I get super nauseated. I NO

> LONGER EAT ANY FOOD AT ALL ONE HOUR PRIOR TO AND ONE AND A HALF HOURS

> AFTER TAKING LACTULOSE. This seems to help a lot. I believe that mixing

> solid food with lactulose can cause gastric dumping syndrome, where

> food empties from the stomach too soon, and irritates the intestines

> causing a horrific belly ache and nausea.

> Love, Bobby

>

>

>

> ________________________________

> From: Dtdaven7398 & lt;DTDaven7398@... & gt;

> To: livercirrhosissupport

> Sent: Sunday, June 24, 2012 9:25 PM

> Subject: Re: lactulose experience

>

>

>

> BOBBY, THAT WHAT HAPPEN TO ME I HAVE ACID REFLEX, AND EACH TIME I TOOK

> LACTULOSE, I NEARLY DIED, MAN I COULDNT WALK, DIDNT WANT TO GET OUT OF

> BED,  SICK TO MY STOMACH AND GUESS WHAT IT DIDNT DO IT JOB, I TOLD MY

> DOCTOR ABOUT CONSTIPACTION AND THAT WHAT HIS SORRY ASS GAVE ME.... YES

> I WENT THROUGH HELL WITH THIS DRUG,  I WILL NEVER TAKE IT AGAIN.

>

> SO THERE IS MY STORY.... TOMMIE

>

> lactulose experience

>

>

> I am interested in this drug.  How do must of you (who take it) do it?

> Put it in juice?  How much do you use?

> Thanks, Jackie

>

>

[Guest guest]

Bobby, not sure which house you are referring to. I did not live in

the house which burned. I live in an apt in Arizona. But today, the

house which I had been told I didn't get because the owner wouldn't

accept my final offer went into escrow because they changed their mind

last Saturday. So, I will be owning a house, and the house I wanted,

just as I had seen it in my mind when thinking of buying one. Will

have to do a few things like get a new dishwasherand water softener

and maybe a micro, and change the step on the back door, and get used

to the very light green color of the carpeting throughout the house.

And the drapes are a darker varied color green. Will have to go quick

as soon as I can find something else. Hope I can find a buyer for

them as they may be practically new. Anyone want a house full of

green drapes? At least 7 windows of full drapes, not all exactly the

same, and more with just the top part, can't think of the name now.

And there is also a shower curtain and liner of the same color. If

you like green, I have it. And it can be yours around the 1st of next

month.

To bring you up to date on me health wise. I am sure I have mentioned

before that I have been fighting anemia for a few years without much

success, just managed to keep it about the same with accepted

treatment. I have lately been having some internal bleeding, had an

endo a couple of months ago and they cauterized a bunch of bleeders

and it got some better, and then started bleeding again. So, I am

going to be having an endo and a colonoscopy again sometime in the

near future. Anyway, Thursday I went in for my EPO shot and iron

infusion. They took blood to see what my levels were, said nothing

about the results, not all in by the time I left so I didn't get a

copy. But they promised to send it on right away to the two drs I was

seeing after leaving there. Went out to eat and then went to the see

the hemotologist who ordered the shots and infusion and he said

nothing about it, bawled me out for not taking a medicine he said he

gave me, but I don't remember getting it, think they called in to

pharmacy and never got, supposed to stop bleeding. Got a copy of the

blood results from him. Went to see my kidney dr. who had referred me

to the first doctor for a bone marrow test which hasn't gotten done.

He saw the hemoglobin, 6.9 and said I was to go to the er immediately,

that I could faint, collapse at any minute, (not me, too stubborn) So,

I went, showed them the paper and that Dr. Zhao had sent me over, and

they took more blood work to check it out and at same time did a type

and cross match. Came back at 7.2 was admitted for two units which

took until 5:30 Friday morning to finish more blood drawn, 9.6 came

back at 8 am. Higher than it has been for years. Then I had to wait

until 4 pm for the hospitalist to release me. That part doesn't make

sense to me. I was probably charged for another day in the hospital,

and they were very busy so probably could have used the room, but he

couldn't go out of his routine to look at a sheet of paper and release

me. Even after he got to my floor it was a couple of hours before he

got to me. So, that is my latest story. The saga will continue I am

sure. Jan

> Dear Jan, sorry to hear about the house. I assume that you lived in it, but

you dont own it? Dont answer unless the answer is yes, you still owned it.

> Sharon and I are far from all of the fires, as we live way east of Denver, out

by the old Stapleton international airport property. In fact, we live 500 yards

from the north runway. We woke to lots of smoke several days, which was

suprising. But, we are safe and putting along. Love, Bobby

>

>

>

> ________________________________

>

> To: livercirrhosissupport

> Sent: Friday, June 29, 2012 1:45 AM

> Subject: Re: lactulose experience-beware of human

volcano!!

>

>

>

> Bobby, loved your colorful picture. Many older people have the same

> problem as people taking lactolose, so here it is a fairly common

> topic of conversation.

>

> I have been wondering how far you are from the fires. The first house

> my brother had in Colorado Springs, a few miles east of Garden of the

> Gods went, and so did the Garden. My brother was in Alaska when I

> talked to him but said their present house should be safe. I know

> their old house was not on the edge of town, so can't imagine how many

> houses have gone. Hope you are safe. Jan

>

>

>> Bobby - what a colorful picture you painted for us!! LOL

>>

>> For whatever misunderstanding, I thought that Lactalose was for constipation

and removing the ammonia. It sure hasn't worked as a laxative for me. So, I'm

adding a gentle laxative to help. Shortly after drinking the Lacta, my belly

begins to blow a bit more and becomes rock hard. I couldn't force food down at

that point. Also, it's really hard to time the Lacta around other medications

etc. I'm going to have to have my calendar send me posts on the monitor to

remind me when I can take it.

>>

>> However, it has to help get through these short term memory losses. Some

days I just want to cry, because what I could do in my sleep before, takes me

hours and hours now. I can't retain a thought for hardly a minute if I'm doing

anything for my work. Glad that will be over soon.

>>

>> What a life huh?? Who would have thought that any of us would be talking

about our bowels with each other. But, it's the only place that I think I'm

getting the straight goods.

>>

>> Gloria

>>

>>

>>

>> ________________________________

>>

>>

>>

>>

>> bob if any one knows about going through hell, its you, i am so glad

>> to have you around for questioning...lol.....us men hate to say

>> anything.. for some reason we will not be open like women on this panel

>> . i have one bad day and 2 good days, so i am not completely

>> finish.... it just seem that doctors dont understand what.. the shut da

>> door we are going through..... so thanks again to you and my

>> family......love ya

>>

>>

>>

>> , there are so many things in life that are trial and error. For

>> sure, everyone does not react the same way with any drug or treatment,

>> and I believe that there are more different results within one patient

>> than between all of them put together. Let me explain... with myself,

>> there are times I experience constipation with what seems like a gallon

>> of *lacto-fun* and extreme gas built up behind it. This is one of my

>> arguments to the court as to why I can't work. I couldn't expect my

>> employer to tolerate the hour and a half bathroom visits that are a

>> normal part of lactulose therapy. Sometimes it does not work at all,

>> and then I am in big big trouble, because if it doesn't work at some

>> point, you become a ticking time bomb, literally, a human volcano, for

>> real. I rode the handicapped bus to see my cousin north of here by 20

>> miles, and began squirming in my seat 10 miles in to the trip, and by

>> the time I got there, was desperate, and nearly out

>> of brakes! I ran to my cousins door, and to my horror, he wasn't home,

>> having stepped out to take his wife to work. I ran to the nearby woods,

>> and was so so lucky that there were woods nearby for me to find privacy

>> and that it was so early in the morning. I now carry the following

>> items with me in my back pack where ever I go:

>> *One large trash bag,

>> *extra underwear,

>> *baby wipes

>> *camping toilet paper (it comes in a roll with out the cardboard paper

>> tube, so that it is compact, and an entire roll of paper is only an

>> inch or so thick)

>> *disinfectant hand wipes or hand sanitizer.

>>

>> Sorry for the graffic nature of this but it is true and a part of life

>> now. , I am sorry you had such a bad time. I do understand,

>> because 1 out of 5 times I take lactulose I get super nauseated. I NO

>> LONGER EAT ANY FOOD AT ALL ONE HOUR PRIOR TO AND ONE AND A HALF HOURS

>> AFTER TAKING LACTULOSE. This seems to help a lot. I believe that mixing

>> solid food with lactulose can cause gastric dumping syndrome, where

>> food empties from the stomach too soon, and irritates the intestines

>> causing a horrific belly ache and nausea.

>> Love, Bobby

>>

>>

>>

>> ________________________________

>>

>> To: livercirrhosissupport

>> Sent: Sunday, June 24, 2012 9:25 PM

>> Subject: Re: lactulose experience

>>

>>

>>

>> BOBBY, THAT WHAT HAPPEN TO ME I HAVE ACID REFLEX, AND EACH TIME I TOOK

>> LACTULOSE, I NEARLY DIED, MAN I COULDNT WALK, DIDNT WANT TO GET OUT OF

>> BED, SICK TO MY STOMACH AND GUESS WHAT IT DIDNT DO IT JOB, I TOLD MY

>> DOCTOR ABOUT CONSTIPACTION AND THAT WHAT HIS SORRY ASS GAVE ME.... YES

>> I WENT THROUGH HELL WITH THIS DRUG, I WILL NEVER TAKE IT AGAIN.

>>

>> SO THERE IS MY STORY.... TOMMIE

>>

>> lactulose experience

>>

>>

>> I am interested in this drug. How do must of you (who take it) do it?

>> Put it in juice? How much do you use?

>> Thanks, Jackie

>>

>>

[Guest guest]

You have a convertible??  I'm definitely jealous.  My tongue was hanging out

when a Convertible beemer went by and then just a couple of cars later, there

goes another one.  My car does not have a working AC anymore and the drivers

window won't open for lack of a motor.  Don't think I'm going to leave here any

time soon.

________________________________

 

We have had some much needed rain this week and it was actually cooler yesterday

and low humidity.  That was nice.  Went to Winnipeg and spent part of the day

driving with the top down.

 

________________________________

To: " livercirrhosissupport "

<livercirrhosissupport >

Sent: Thursday, July 5, 2012 6:39:11 PM

Subject: Re: lactulose experience-beware of human

volcano!!

 

There is something to be said, for sure, that out west here (Canada), our summer

didn't get started until 2 days ago.  I'm definitely not good in the sun; but,

even I was getting irritable about all the rain.  Last night I was looking to

see if British Columbia had any current fires and thankfully, there were not any

that were not containable. 

One of the problems that I believe causes a lot of the fires, is that a pine

beetle had devastated much of the forests.  Therefore, those trees are just

poles standing up and of course, very flammable.  It was just a little while

ago that one of our northern towns suffered greatly from fire.  It burned at

least 1/3 of that town.

Here on the island in the west, we don't have and likely won't get that

destructible beetle.  Still, from one end to the other, that forest has to be

watched carefully.  It wouldn't take much to burn like the fires in the US,

when everything dries up now.  Doesn't take long before everyone that is over

here to vacation etc. will learn that not even camping fires are allowed.  I'm

told that the big one that got that northern town was actually an arsonist. 

Unfortunately, we've had a number of insane people start an arson fire that

raged through much of the forests.

Bobby, the fire that raged in the interior of our province a few years ago - we

could smell that smoke all the way over here.  One evening I was coming back

into town and I swear that I saw smoke hanging over this valley.  Well it

was.  But, it came from the interior.

Horrible!!!

________________________________

 

Dear Jan, sorry to hear about the house. I assume that you lived in it, but you

dont own it? Dont answer unless the answer is yes, you still owned it.

Sharon and I are far from all of the fires, as we live way east of Denver, out

by the old Stapleton international airport property. In fact, we live 500 yards

from the north runway.  We woke to lots of smoke several days, which was

suprising. But, we are safe and putting along. Love, Bobby

 

________________________________

To: livercirrhosissupport

Sent: Friday, June 29, 2012 1:45 AM

Subject: Re: lactulose experience-beware of human

volcano!!

 

Bobby, loved your colorful picture. Many older people have the same

problem as people taking lactolose, so here it is a fairly common

topic of conversation.

I have been wondering how far you are from the fires. The first house

my brother had in Colorado Springs, a few miles east of Garden of the

Gods went, and so did the Garden. My brother was in Alaska when I

talked to him but said their present house should be safe. I know

their old house was not on the edge of town, so can't imagine how many

houses have gone. Hope you are safe. Jan

> Bobby - what a colorful picture you painted for us!!  LOL

>

> For whatever misunderstanding, I thought that Lactalose was for constipation

and removing the ammonia.  It sure hasn't worked as a laxative for me.  So,

I'm adding a gentle laxative to help.  Shortly after drinking the Lacta, my

belly begins to blow a bit more and becomes rock hard.  I couldn't force food

down at that point.  Also, it's really hard to time the Lacta around other

medications etc.  I'm going to have to have my calendar send me posts on the

monitor to remind me when I can take it.

>

> However, it has to help get through these short term memory losses.  Some

days I just want to cry, because what I could do in my sleep before, takes me

hours and hours now.  I can't retain a thought for hardly a minute if I'm doing

anything for my work.  Glad that will be over soon.

>

> What a life huh??  Who would have thought that any of us would be talking

about our bowels with each other.  But, it's the only place that I think I'm

getting the straight goods.

>

> Gloria

>

>

>

> ________________________________

>

>

>

>

> bob if any one knows about going through hell, its you,  i am so glad

> to have you around for questioning...lol.....us men hate to say

> anything.. for some reason we will not be open like women on this panel

> .  i have one bad day and 2 good days, so i am not completely

> finish.... it just seem that doctors dont understand what.. the shut da

> door we are going through..... so thanks again to you and my

> family......love ya

>

>

>

> , there are so many things in life that are trial and error. For

> sure, everyone does not react the same way with any drug or treatment,

> and I believe that there are more different results within one patient

> than between all of them put together. Let me explain... with myself,

> there are times I experience constipation with what seems like a gallon

> of *lacto-fun*  and extreme gas built up behind it. This is one of my

> arguments to the court as to why I can't work. I couldn't expect my

> employer to tolerate the  hour and a half bathroom visits that are a

> normal part of lactulose therapy. Sometimes it does not work at all,

> and then I am in big big trouble, because if it doesn't work at some

> point, you become a ticking time bomb, literally, a human volcano, for

> real.  I rode the handicapped bus to see my cousin north of here by 20

> miles, and began squirming in my seat 10 miles in to the trip, and by

> the time I got there, was desperate, and nearly out

> of brakes! I ran to my cousins door, and to my horror, he wasn't home,

> having stepped out to take his wife to work. I ran to the nearby woods,

> and was so so lucky that there were woods nearby for me to find privacy

> and that it was so early in the morning.  I now carry the following

> items with me in my back pack where ever I go:

> *One large trash bag,

> *extra underwear,

> *baby wipes

> *camping toilet paper (it comes in a roll with out the cardboard paper

> tube, so that it is compact, and an entire roll of paper is only an

> inch  or so thick)

> *disinfectant hand wipes or hand sanitizer.

>

> Sorry for the graffic nature of this but it is true and a part of life

> now. , I am sorry you had such a bad time. I do understand,

> because 1 out of 5 times I take lactulose I get super nauseated. I NO

> LONGER EAT ANY FOOD AT ALL ONE HOUR PRIOR TO AND ONE AND A HALF HOURS

> AFTER TAKING LACTULOSE. This seems to help a lot. I believe that mixing

> solid food with lactulose can cause gastric dumping syndrome, where

> food empties from the stomach too soon, and irritates the intestines

> causing a horrific belly ache and nausea.

> Love, Bobby

>

>

>

> ________________________________

> From: Dtdaven7398 & lt;DTDaven7398@... & gt;

> To: livercirrhosissupport

> Sent: Sunday, June 24, 2012 9:25 PM

> Subject: Re: lactulose experience

>

>

>

> BOBBY, THAT WHAT HAPPEN TO ME I HAVE ACID REFLEX, AND EACH TIME I TOOK

> LACTULOSE, I NEARLY DIED, MAN I COULDNT WALK, DIDNT WANT TO GET OUT OF

> BED,  SICK TO MY STOMACH AND GUESS WHAT IT DIDNT DO IT JOB, I TOLD MY

> DOCTOR ABOUT CONSTIPACTION AND THAT WHAT HIS SORRY ASS GAVE ME.... YES

> I WENT THROUGH HELL WITH THIS DRUG,  I WILL NEVER TAKE IT AGAIN.

>

> SO THERE IS MY STORY.... TOMMIE

>

> lactulose experience

>

>

> I am interested in this drug.  How do must of you (who take it) do it?

> Put it in juice?  How much do you use?

> Thanks, Jackie

>

>

[Guest guest]

Hey Gloria is is a Fiat convertible.  Just a very small but fun car.  It gets

looks all the time.

________________________________

To: " livercirrhosissupport "

<livercirrhosissupport >

Sent: Friday, July 13, 2012 10:38:14 PM

Subject: Re: lactulose experience-beware of human

volcano!!

 

You have a convertible??  I'm definitely jealous.  My tongue was hanging out

when a Convertible beemer went by and then just a couple of cars later, there

goes another one.  My car does not have a working AC anymore and the drivers

window won't open for lack of a motor.  Don't think I'm going to leave here any

time soon.

________________________________

 

We have had some much needed rain this week and it was actually cooler yesterday

and low humidity.  That was nice.  Went to Winnipeg and spent part of the day

driving with the top down.

 

________________________________

To: " livercirrhosissupport "

<livercirrhosissupport >

Sent: Thursday, July 5, 2012 6:39:11 PM

Subject: Re: lactulose experience-beware of human

volcano!!

 

There is something to be said, for sure, that out west here (Canada), our summer

didn't get started until 2 days ago.  I'm definitely not good in the sun; but,

even I was getting irritable about all the rain.  Last night I was looking to

see if British Columbia had any current fires and thankfully, there were not any

that were not containable. 

One of the problems that I believe causes a lot of the fires, is that a pine

beetle had devastated much of the forests.  Therefore, those trees are just

poles standing up and of course, very flammable.  It was just a little while

ago that one of our northern towns suffered greatly from fire.  It burned at

least 1/3 of that town.

Here on the island in the west, we don't have and likely won't get that

destructible beetle.  Still, from one end to the other, that forest has to be

watched carefully.  It wouldn't take much to burn like the fires in the US,

when everything dries up now.  Doesn't take long before everyone that is over

here to vacation etc. will learn that not even camping fires are allowed.  I'm

told that the big one that got that northern town was actually an arsonist. 

Unfortunately, we've had a number of insane people start an arson fire that

raged through much of the forests.

Bobby, the fire that raged in the interior of our province a few years ago - we

could smell that smoke all the way over here.  One evening I was coming back

into town and I swear that I saw smoke hanging over this valley.  Well it

was.  But, it came from the interior.

Horrible!!!

________________________________

 

Dear Jan, sorry to hear about the house. I assume that you lived in it, but you

dont own it? Dont answer unless the answer is yes, you still owned it.

Sharon and I are far from all of the fires, as we live way east of Denver, out

by the old Stapleton international airport property. In fact, we live 500 yards

from the north runway.  We woke to lots of smoke several days, which was

suprising. But, we are safe and putting along. Love, Bobby

 

________________________________

To: livercirrhosissupport

Sent: Friday, June 29, 2012 1:45 AM

Subject: Re: lactulose experience-beware of human

volcano!!

 

Bobby, loved your colorful picture. Many older people have the same

problem as people taking lactolose, so here it is a fairly common

topic of conversation.

I have been wondering how far you are from the fires. The first house

my brother had in Colorado Springs, a few miles east of Garden of the

Gods went, and so did the Garden. My brother was in Alaska when I

talked to him but said their present house should be safe. I know

their old house was not on the edge of town, so can't imagine how many

houses have gone. Hope you are safe. Jan

> Bobby - what a colorful picture you painted for us!!  LOL

>

> For whatever misunderstanding, I thought that Lactalose was for constipation

and removing the ammonia.  It sure hasn't worked as a laxative for me.  So,

I'm adding a gentle laxative to help.  Shortly after drinking the Lacta, my

belly begins to blow a bit more and becomes rock hard.  I couldn't force food

down at that point.  Also, it's really hard to time the Lacta around other

medications etc.  I'm going to have to have my calendar send me posts on the

monitor to remind me when I can take it.

>

> However, it has to help get through these short term memory losses.  Some

days I just want to cry, because what I could do in my sleep before, takes me

hours and hours now.  I can't retain a thought for hardly a minute if I'm doing

anything for my work.  Glad that will be over soon.

>

> What a life huh??  Who would have thought that any of us would be talking

about our bowels with each other.  But, it's the only place that I think I'm

getting the straight goods.

>

> Gloria

>

>

>

> ________________________________

>

>

>

>

> bob if any one knows about going through hell, its you,  i am so glad

> to have you around for questioning...lol.....us men hate to say

> anything.. for some reason we will not be open like women on this panel

> .  i have one bad day and 2 good days, so i am not completely

> finish.... it just seem that doctors dont understand what.. the shut da

> door we are going through..... so thanks again to you and my

> family......love ya

>

>

>

> , there are so many things in life that are trial and error. For

> sure, everyone does not react the same way with any drug or treatment,

> and I believe that there are more different results within one patient

> than between all of them put together. Let me explain... with myself,

> there are times I experience constipation with what seems like a gallon

> of *lacto-fun*  and extreme gas built up behind it. This is one of my

> arguments to the court as to why I can't work. I couldn't expect my

> employer to tolerate the  hour and a half bathroom visits that are a

> normal part of lactulose therapy. Sometimes it does not work at all,

> and then I am in big big trouble, because if it doesn't work at some

> point, you become a ticking time bomb, literally, a human volcano, for

> real.  I rode the handicapped bus to see my cousin north of here by 20

> miles, and began squirming in my seat 10 miles in to the trip, and by

> the time I got there, was desperate, and nearly out

> of brakes! I ran to my cousins door, and to my horror, he wasn't home,

> having stepped out to take his wife to work. I ran to the nearby woods,

> and was so so lucky that there were woods nearby for me to find privacy

> and that it was so early in the morning.  I now carry the following

> items with me in my back pack where ever I go:

> *One large trash bag,

> *extra underwear,

> *baby wipes

> *camping toilet paper (it comes in a roll with out the cardboard paper

> tube, so that it is compact, and an entire roll of paper is only an

> inch  or so thick)

> *disinfectant hand wipes or hand sanitizer.

>

> Sorry for the graffic nature of this but it is true and a part of life

> now. , I am sorry you had such a bad time. I do understand,

> because 1 out of 5 times I take lactulose I get super nauseated. I NO

> LONGER EAT ANY FOOD AT ALL ONE HOUR PRIOR TO AND ONE AND A HALF HOURS

> AFTER TAKING LACTULOSE. This seems to help a lot. I believe that mixing

> solid food with lactulose can cause gastric dumping syndrome, where

> food empties from the stomach too soon, and irritates the intestines

> causing a horrific belly ache and nausea.

> Love, Bobby

>

>

>

> ________________________________

> From: Dtdaven7398 & lt;DTDaven7398@... & gt;

> To: livercirrhosissupport

> Sent: Sunday, June 24, 2012 9:25 PM

> Subject: Re: lactulose experience

>

>

>

> BOBBY, THAT WHAT HAPPEN TO ME I HAVE ACID REFLEX, AND EACH TIME I TOOK

> LACTULOSE, I NEARLY DIED, MAN I COULDNT WALK, DIDNT WANT TO GET OUT OF

> BED,  SICK TO MY STOMACH AND GUESS WHAT IT DIDNT DO IT JOB, I TOLD MY

> DOCTOR ABOUT CONSTIPACTION AND THAT WHAT HIS SORRY ASS GAVE ME.... YES

> I WENT THROUGH HELL WITH THIS DRUG,  I WILL NEVER TAKE IT AGAIN.

>

> SO THERE IS MY STORY.... TOMMIE

>

> lactulose experience

>

>

> I am interested in this drug.  How do must of you (who take it) do it?

> Put it in juice?  How much do you use?

> Thanks, Jackie

>

>

[Guest guest]

Probiotics Good Second Option for Preventing Recurrence of Hepatic

Encephalopathy

http://www.medscape.com/viewarticle/766986?src=mp & spon=38

Hi, This is the first time I've posted to this group but, I read the daily

digest and thought I would share this. Some of you may already be taking

probiotics. I would rather take probiotics any day over lactulose. Maybe we have

another option now.

God Bless,

> > Bobby - what a colorful picture you painted for us!!  LOL

> >

> > For whatever misunderstanding, I thought that Lactalose was for constipation

and removing the ammonia.  It sure hasn't worked as a laxative for me.  So,

I'm adding a gentle laxative to help.  Shortly after drinking the Lacta, my

belly begins to blow a bit more and becomes rock hard.  I couldn't force food

down at that point.  Also, it's really hard to time the Lacta around other

medications etc.  I'm going to have to have my calendar send me posts on the

monitor to remind me when I can take it.

> >

> > However, it has to help get through these short term memory losses.  Some

days I just want to cry, because what I could do in my sleep before, takes me

hours and hours now.  I can't retain a thought for hardly a minute if I'm doing

anything for my work.  Glad that will be over soon.

> >

> > What a life huh??  Who would have thought that any of us would be talking

about our bowels with each other.  But, it's the only place that I think I'm

getting the straight goods.

> >

> > Gloria

> >

> >

> >

> > ________________________________

> >

> >

> >

> >

> > bob if any one knows about going through hell, its you,  i am so glad

> > to have you around for questioning...lol.....us men hate to say

> > anything.. for some reason we will not be open like women on this panel

> > .  i have one bad day and 2 good days, so i am not completely

> > finish.... it just seem that doctors dont understand what.. the shut da

> > door we are going through..... so thanks again to you and my

> > family......love ya

> >

> >

> >

> > , there are so many things in life that are trial and error. For

> > sure, everyone does not react the same way with any drug or treatment,

> > and I believe that there are more different results within one patient

> > than between all of them put together. Let me explain... with myself,

> > there are times I experience constipation with what seems like a gallon

> > of *lacto-fun*  and extreme gas built up behind it. This is one of my

> > arguments to the court as to why I can't work. I couldn't expect my

> > employer to tolerate the  hour and a half bathroom visits that are a

> > normal part of lactulose therapy. Sometimes it does not work at all,

> > and then I am in big big trouble, because if it doesn't work at some

> > point, you become a ticking time bomb, literally, a human volcano, for

> > real.  I rode the handicapped bus to see my cousin north of here by 20

> > miles, and began squirming in my seat 10 miles in to the trip, and by

> > the time I got there, was desperate, and nearly out

> > of brakes! I ran to my cousins door, and to my horror, he wasn't home,

> > having stepped out to take his wife to work. I ran to the nearby woods,

> > and was so so lucky that there were woods nearby for me to find privacy

> > and that it was so early in the morning.  I now carry the following

> > items with me in my back pack where ever I go:

> > *One large trash bag,

> > *extra underwear,

> > *baby wipes

> > *camping toilet paper (it comes in a roll with out the cardboard paper

> > tube, so that it is compact, and an entire roll of paper is only an

> > inch  or so thick)

> > *disinfectant hand wipes or hand sanitizer.

> >

> > Sorry for the graffic nature of this but it is true and a part of life

> > now. , I am sorry you had such a bad time. I do understand,

> > because 1 out of 5 times I take lactulose I get super nauseated. I NO

> > LONGER EAT ANY FOOD AT ALL ONE HOUR PRIOR TO AND ONE AND A HALF HOURS

> > AFTER TAKING LACTULOSE. This seems to help a lot. I believe that mixing

> > solid food with lactulose can cause gastric dumping syndrome, where

> > food empties from the stomach too soon, and irritates the intestines

> > causing a horrific belly ache and nausea.

> > Love, Bobby

> >

> >

> >

> > ________________________________

> > From: Dtdaven7398 DTDaven7398@...

> > To: livercirrhosissupport

> > Sent: Sunday, June 24, 2012 9:25 PM

> > Subject: Re: lactulose experience

> >

> >

> >

> > BOBBY, THAT WHAT HAPPEN TO ME I HAVE ACID REFLEX, AND EACH TIME I TOOK

> > LACTULOSE, I NEARLY DIED, MAN I COULDNT WALK, DIDNT WANT TO GET OUT OF

> > BED,  SICK TO MY STOMACH AND GUESS WHAT IT DIDNT DO IT JOB, I TOLD MY

> > DOCTOR ABOUT CONSTIPACTION AND THAT WHAT HIS SORRY ASS GAVE ME.... YES

> > I WENT THROUGH HELL WITH THIS DRUG,  I WILL NEVER TAKE IT AGAIN.

> >

> > SO THERE IS MY STORY.... TOMMIE

> >

> > lactulose experience

> >

> >

> > I am interested in this drug.  How do must of you (who take it) do it?

> > Put it in juice?  How much do you use?

> > Thanks, Jackie

> >

> >

[Guest guest]

Susi, what probiotics do you take?

Jackie

lactulose experience

> >

> >

> > I am interested in this drug. Â How do must of you (who take it) do it?

> > Put it in juice? Â How much do you use?

> > Thanks, Jackie

> >

> >

[Guest guest]

Thank you for that link.  It's funny (sort of) that a couple of days ago, there

was no food that seemed appetizing to be.  Isn't it bad when even chewing seems

like a lot of work?  Anyway, I did buy 2 buckets of yogurt already.  Glad to

know that it could help with any HE.

________________________________

Probiotics Good Second Option for Preventing Recurrence of Hepatic

Encephalopathy

http://www.medscape.com/viewarticle/766986?src=mp & spon=38

Hi, This is the first time I've posted to this group but, I read the daily

digest and thought I would share this. Some of you may already be taking

probiotics. I would rather take probiotics any day over lactulose. Maybe we have

another option now.

God Bless,

> > Bobby - what a colorful picture you painted for us!!  LOL

> >

> > For whatever misunderstanding, I thought that Lactalose was for constipation

and removing the ammonia.  It sure hasn't worked as a laxative for me. 

So, I'm adding a gentle laxative to help.  Shortly after drinking the Lacta,

my belly begins to blow a bit more and becomes rock hard.  I couldn't force

food down at that point.  Also, it's really hard to time the Lacta around

other medications etc.  I'm going to have to have my calendar send me posts

on the monitor to remind me when I can take it.

> >

> > However, it has to help get through these short term memory losses.  Some

days I just want to cry, because what I could do in my sleep before, takes me

hours and hours now.  I can't retain a thought for hardly a minute if I'm

doing anything for my work.  Glad that will be over soon.

> >

> > What a life huh??  Who would have thought that any of us would be talking

about our bowels with each other.  But, it's the only place that I think I'm

getting the straight goods.

> >

> > Gloria

> >

> >

> >

> > ________________________________

> >

> >

> >

> >

> > bob if any one knows about going through hell, its you,  i am so glad

> > to have you around for questioning...lol.....us men hate to say

> > anything.. for some reason we will not be open like women on this panel

> > .  i have one bad day and 2 good days, so i am not completely

> > finish.... it just seem that doctors dont understand what.. the shut da

> > door we are going through..... so thanks again to you and my

> > family......love ya

> >

> >

> >

> > , there are so many things in life that are trial and error. For

> > sure, everyone does not react the same way with any drug or treatment,

> > and I believe that there are more different results within one patient

> > than between all of them put together. Let me explain... with myself,

> > there are times I experience constipation with what seems like a gallon

> > of *lacto-fun*  and extreme gas built up behind it. This is one of my

> > arguments to the court as to why I can't work. I couldn't expect my

> > employer to tolerate the  hour and a half bathroom visits that are a

> > normal part of lactulose therapy. Sometimes it does not work at all,

> > and then I am in big big trouble, because if it doesn't work at some

> > point, you become a ticking time bomb, literally, a human volcano, for

> > real.  I rode the handicapped bus to see my cousin north of here by 20

> > miles, and began squirming in my seat 10 miles in to the trip, and by

> > the time I got there, was desperate, and nearly out

> > of brakes! I ran to my cousins door, and to my horror, he wasn't home,

> > having stepped out to take his wife to work. I ran to the nearby woods,

> > and was so so lucky that there were woods nearby for me to find privacy

> > and that it was so early in the morning.  I now carry the following

> > items with me in my back pack where ever I go:

> > *One large trash bag,

> > *extra underwear,

> > *baby wipes

> > *camping toilet paper (it comes in a roll with out the cardboard paper

> > tube, so that it is compact, and an entire roll of paper is only an

> > inch  or so thick)

> > *disinfectant hand wipes or hand sanitizer.

> >

> > Sorry for the graffic nature of this but it is true and a part of life

> > now. , I am sorry you had such a bad time. I do understand,

> > because 1 out of 5 times I take lactulose I get super nauseated. I NO

> > LONGER EAT ANY FOOD AT ALL ONE HOUR PRIOR TO AND ONE AND A HALF HOURS

> > AFTER TAKING LACTULOSE. This seems to help a lot. I believe that mixing

> > solid food with lactulose can cause gastric dumping syndrome, where

> > food empties from the stomach too soon, and irritates the intestines

> > causing a horrific belly ache and nausea.

> > Love, Bobby

> >

> >

> >

> > ________________________________

> > From: Dtdaven7398 DTDaven7398@...

> > To: livercirrhosissupport

> > Sent: Sunday, June 24, 2012 9:25 PM

> > Subject: Re: lactulose experience

> >

> >

> >

> > BOBBY, THAT WHAT HAPPEN TO ME I HAVE ACID REFLEX, AND EACH TIME I TOOK

> > LACTULOSE, I NEARLY DIED, MAN I COULDNT WALK, DIDNT WANT TO GET OUT OF

> > BED,  SICK TO MY STOMACH AND GUESS WHAT IT DIDNT DO IT JOB, I TOLD MY

> > DOCTOR ABOUT CONSTIPACTION AND THAT WHAT HIS SORRY ASS GAVE ME.... YES

> > I WENT THROUGH HELL WITH THIS DRUG,  I WILL NEVER TAKE IT AGAIN.

> >

> > SO THERE IS MY STORY.... TOMMIE

> >

> > lactulose experience

> >

> >

> > I am interested in this drug.  How do must of you (who take it) do it?

> > Put it in juice?  How much do you use?

> > Thanks, Jackie

> >

> >

[Guest guest]

Well Jan,

Congrats on the house! And  hang in there with the fight. You are and  have

always been an inspiration, and you might be stubborn, but you are

brave too! Love, Bobby

________________________________

To: livercirrhosissupport

Sent: Monday, July 9, 2012 6:57 PM

Subject: Re: lactulose experience-beware of human

volcano!!

 

Bobby, not sure which house you are referring to. I did not live in

the house which burned. I live in an apt in Arizona. But today, the

house which I had been told I didn't get because the owner wouldn't

accept my final offer went into escrow because they changed their mind

last Saturday. So, I will be owning a house, and the house I wanted,

just as I had seen it in my mind when thinking of buying one. Will

have to do a few things like get a new dishwasherand water softener

and maybe a micro, and change the step on the back door, and get used

to the very light green color of the carpeting throughout the house.

And the drapes are a darker varied color green. Will have to go quick

as soon as I can find something else. Hope I can find a buyer for

them as they may be practically new. Anyone want a house full of

green drapes? At least 7 windows of full drapes, not all exactly the

same, and more with just the top part, can't think of the name now.

And there is also a shower curtain and liner of the same color. If

you like green, I have it. And it can be yours around the 1st of next

month.

To bring you up to date on me health wise. I am sure I have mentioned

before that I have been fighting anemia for a few years without much

success, just managed to keep it about the same with accepted

treatment. I have lately been having some internal bleeding, had an

endo a couple of months ago and they cauterized a bunch of bleeders

and it got some better, and then started bleeding again. So, I am

going to be having an endo and a colonoscopy again sometime in the

near future. Anyway, Thursday I went in for my EPO shot and iron

infusion. They took blood to see what my levels were, said nothing

about the results, not all in by the time I left so I didn't get a

copy. But they promised to send it on right away to the two drs I was

seeing after leaving there. Went out to eat and then went to the see

the hemotologist who ordered the shots and infusion and he said

nothing about it, bawled me out for not taking a medicine he said he

gave me, but I don't remember getting it, think they called in to

pharmacy and never got, supposed to stop bleeding. Got a copy of the

blood results from him. Went to see my kidney dr. who had referred me

to the first doctor for a bone marrow test which hasn't gotten done.

He saw the hemoglobin, 6.9 and said I was to go to the er immediately,

that I could faint, collapse at any minute, (not me, too stubborn) So,

I went, showed them the paper and that Dr. Zhao had sent me over, and

they took more blood work to check it out and at same time did a type

and cross match. Came back at 7.2 was admitted for two units which

took until 5:30 Friday morning to finish more blood drawn, 9.6 came

back at 8 am. Higher than it has been for years. Then I had to wait

until 4 pm for the hospitalist to release me. That part doesn't make

sense to me. I was probably charged for another day in the hospital,

and they were very busy so probably could have used the room, but he

couldn't go out of his routine to look at a sheet of paper and release

me. Even after he got to my floor it was a couple of hours before he

got to me. So, that is my latest story. The saga will continue I am

sure. Jan

> Dear Jan, sorry to hear about the house. I assume that you lived in it, but

you dont own it? Dont answer unless the answer is yes, you still owned it.

> Sharon and I are far from all of the fires, as we live way east of Denver, out

by the old Stapleton international airport property. In fact, we live 500 yards

from the north runway. We woke to lots of smoke several days, which was

suprising. But, we are safe and putting along. Love, Bobby

>

>

>

> ________________________________

>

> To: livercirrhosissupport

> Sent: Friday, June 29, 2012 1:45 AM

> Subject: Re: lactulose experience-beware of human

volcano!!

>

>

>

> Bobby, loved your colorful picture. Many older people have the same

> problem as people taking lactolose, so here it is a fairly common

> topic of conversation.

>

> I have been wondering how far you are from the fires. The first house

> my brother had in Colorado Springs, a few miles east of Garden of the

> Gods went, and so did the Garden. My brother was in Alaska when I

> talked to him but said their present house should be safe. I know

> their old house was not on the edge of town, so can't imagine how many

> houses have gone. Hope you are safe. Jan

>

>

>> Bobby - what a colorful picture you painted for us!! LOL

>>

>> For whatever misunderstanding, I thought that Lactalose was for constipation

and removing the ammonia. It sure hasn't worked as a laxative for me. So, I'm

adding a gentle laxative to help. Shortly after drinking the Lacta, my belly

begins to blow a bit more and becomes rock hard. I couldn't force food down at

that point. Also, it's really hard to time the Lacta around other medications

etc. I'm going to have to have my calendar send me posts on the monitor to

remind me when I can take it.

>>

>> However, it has to help get through these short term memory losses. Some

days I just want to cry, because what I could do in my sleep before, takes me

hours and hours now. I can't retain a thought for hardly a minute if I'm doing

anything for my work. Glad that will be over soon.

>>

>> What a life huh?? Who would have thought that any of us would be talking

about our bowels with each other. But, it's the only place that I think I'm

getting the straight goods.

>>

>> Gloria

>>

>>

>>

>> ________________________________

>>

>>

>>

>>

>> bob if any one knows about going through hell, its you, i am so glad

>> to have you around for questioning...lol.....us men hate to say

>> anything.. for some reason we will not be open like women on this panel

>> . i have one bad day and 2 good days, so i am not completely

>> finish.... it just seem that doctors dont understand what.. the shut da

>> door we are going through..... so thanks again to you and my

>> family......love ya

>>

>>

>>

>> , there are so many things in life that are trial and error. For

>> sure, everyone does not react the same way with any drug or treatment,

>> and I believe that there are more different results within one patient

>> than between all of them put together. Let me explain... with myself,

>> there are times I experience constipation with what seems like a gallon

>> of *lacto-fun* and extreme gas built up behind it. This is one of my

>> arguments to the court as to why I can't work. I couldn't expect my

>> employer to tolerate the hour and a half bathroom visits that are a

>> normal part of lactulose therapy. Sometimes it does not work at all,

>> and then I am in big big trouble, because if it doesn't work at some

>> point, you become a ticking time bomb, literally, a human volcano, for

>> real. I rode the handicapped bus to see my cousin north of here by 20

>> miles, and began squirming in my seat 10 miles in to the trip, and by

>> the time I got there, was desperate, and nearly out

>> of brakes! I ran to my cousins door, and to my horror, he wasn't home,

>> having stepped out to take his wife to work. I ran to the nearby woods,

>> and was so so lucky that there were woods nearby for me to find privacy

>> and that it was so early in the morning. I now carry the following

>> items with me in my back pack where ever I go:

>> *One large trash bag,

>> *extra underwear,

>> *baby wipes

>> *camping toilet paper (it comes in a roll with out the cardboard paper

>> tube, so that it is compact, and an entire roll of paper is only an

>> inch or so thick)

>> *disinfectant hand wipes or hand sanitizer.

>>

>> Sorry for the graffic nature of this but it is true and a part of life

>> now. , I am sorry you had such a bad time. I do understand,

>> because 1 out of 5 times I take lactulose I get super nauseated. I NO

>> LONGER EAT ANY FOOD AT ALL ONE HOUR PRIOR TO AND ONE AND A HALF HOURS

>> AFTER TAKING LACTULOSE. This seems to help a lot. I believe that mixing

>> solid food with lactulose can cause gastric dumping syndrome, where

>> food empties from the stomach too soon, and irritates the intestines

>> causing a horrific belly ache and nausea.

>> Love, Bobby

>>

>>

>>

>> ________________________________

>>

>> To: livercirrhosissupport

>> Sent: Sunday, June 24, 2012 9:25 PM

>> Subject: Re: lactulose experience

>>

>>

>>

>> BOBBY, THAT WHAT HAPPEN TO ME I HAVE ACID REFLEX, AND EACH TIME I TOOK

>> LACTULOSE, I NEARLY DIED, MAN I COULDNT WALK, DIDNT WANT TO GET OUT OF

>> BED, SICK TO MY STOMACH AND GUESS WHAT IT DIDNT DO IT JOB, I TOLD MY

>> DOCTOR ABOUT CONSTIPACTION AND THAT WHAT HIS SORRY ASS GAVE ME.... YES

>> I WENT THROUGH HELL WITH THIS DRUG, I WILL NEVER TAKE IT AGAIN.

>>

>> SO THERE IS MY STORY.... TOMMIE

>>

>> lactulose experience

>>

>>

>> I am interested in this drug. How do must of you (who take it) do it?

>> Put it in juice? How much do you use?

>> Thanks, Jackie

>>

>>