Re: lactulose experience

[Guest guest]

Pineapple juice.

________________________________

To: livercirrhosissupport

Sent: Sunday, June 17, 2012 11:33 AM

Subject: lactulose experience

 

I am interested in this drug. How do must of you (who take it) do it? Put it

in juice? How much do you use?

Thanks, Jackie

[Guest guest]

Thank you Lyncia. Good idea.

Jackie

lactulose experience

I am interested in this drug. How do must of you (who take it) do it? Put it

in juice? How much do you use?

Thanks, Jackie

[Guest guest]

Thank you all who have answered my question. Fred is not on it yet, but I have

been interested in it.

Jackie

lactulose experience

I am interested in this drug. How do must of you (who take it) do it? Put it

in juice? How much do you use?

Thanks, Jackie

[Guest guest]

Dear Jackie,

I have been taking lactulose for persistant encephalopathy

 for 6 years. In the beginning, it came as a flavorless syrup, and could either

be taken alone or added to juice or water, but around three years ago the

company which made a generic form called " Enulose " went out of business. This

left only the brand name Lactulose for us to take. Lactulose has a banana

flavoring which is so putrid that I routinely get a severe stomach ache when I

try to take it. I also have a prescription for the powdered form, called

" crystalose " which s much much less offensive. I take either one  three times a

day in 6 oz. of juice. You should check with the doctor or pharmacist for any

inquiry regarding questons about this drug and your husband. Please use caution

when using lactulose. It has acquired a rather false reputation as a harmless

substance, but can cause some severe complications especially  if taken

excessively, or outside of a doctors guidance. all prescription drugs should be

taken as prescribed. 

In Japan, and other countries, lactulose is an OTC (over the counter drug)

leading to speculation that it is harmless, but I was hospitalized in serious

condition with air bubbles in the lining of my large intestine from lactulose.

My team at the CU transplant center was completely stumped because there had

been no known cases of this condition before. Soon after, a peer reviewed

medical article was published about several cases of the condition known as

pnumatosis coli. Good luck to you 

Love, Bobby

________________________________

To: livercirrhosissupport

Sent: Sunday, June 17, 2012 10:33 AM

Subject: lactulose experience

 

I am interested in this drug. How do must of you (who take it) do it? Put it

in juice? How much do you use?

Thanks, Jackie

[Guest guest]

I also read this morning that you need to cut down on protein. This is what

they would do in a hospital.. Too much protein can be the cause of

encephalopathy.

Z

Sent from my iPad

Dear Jackie,

I have been taking lactulose for persistant encephalopathy

for 6 years. In the beginning, it came as a flavorless syrup, and could either

be taken alone or added to juice or water, but around three years ago the

company which made a generic form called " Enulose " went out of business. This

left only the brand name Lactulose for us to take. Lactulose has a banana

flavoring which is so putrid that I routinely get a severe stomach ache when I

try to take it. I also have a prescription for the powdered form, called

" crystalose " which s much much less offensive. I take either one three times a

day in 6 oz. of juice. You should check with the doctor or pharmacist for any

inquiry regarding questons about this drug and your husband. Please use caution

when using lactulose. It has acquired a rather false reputation as a harmless

substance, but can cause some severe complications especially if taken

excessively, or outside of a doctors guidance. all prescription drugs should be

taken as prescribed.

In Japan, and other countries, lactulose is an OTC (over the counter drug)

leading to speculation that it is harmless, but I was hospitalized in serious

condition with air bubbles in the lining of my large intestine from lactulose.

My team at the CU transplant center was completely stumped because there had

been no known cases of this condition before. Soon after, a peer reviewed

medical article was published about several cases of the condition known as

pnumatosis coli. Good luck to you

Love, Bobby

________________________________

To: livercirrhosissupport

Sent: Sunday, June 17, 2012 10:33 AM

Subject: lactulose experience

I am interested in this drug. How do must of you (who take it) do it? Put it in

juice? How much do you use?

Thanks, Jackie

[Guest guest]

In Canada, it's an OTC as well.  I'm so glad to see this conversation; because,

I didn't know if I was somehow not taking it right.  Nothing was happening. 

Then, it really let go and who would know that any 1 person could be carrying

that much crap in the body??   Also, I've been mixing it with a small glass of

flavored water and it goes down really easy. 

Bobby, I agree with you of course; but folks should not take more than the

recommended dose of anything.

Gloria

________________________________

 

Dear Jackie,

I have been taking lactulose for persistant encephalopathy

 for 6 years. In the beginning, it came as a flavorless syrup, and could either

be taken alone or added to juice or water, but around three years ago the

company which made a generic form called " Enulose " went out of business. This

left only the brand name Lactulose for us to take. Lactulose has a banana

flavoring which is so putrid that I routinely get a severe stomach ache when I

try to take it. I also have a prescription for the powdered form, called

" crystalose " which s much much less offensive. I take either one  three times a

day in 6 oz. of juice. You should check with the doctor or pharmacist for any

inquiry regarding questons about this drug and your husband. Please use caution

when using lactulose. It has acquired a rather false reputation as a harmless

substance, but can cause some severe complications especially  if taken

excessively, or outside of a doctors guidance. all prescription drugs should be

taken as prescribed. 

In Japan, and other countries, lactulose is an OTC (over the counter drug)

leading to speculation that it is harmless, but I was hospitalized in serious

condition with air bubbles in the lining of my large intestine from lactulose.

My team at the CU transplant center was completely stumped because there had

been no known cases of this condition before. Soon after, a peer reviewed

medical article was published about several cases of the condition known as

pnumatosis coli. Good luck to you 

Love, Bobby

________________________________

To: livercirrhosissupport

Sent: Sunday, June 17, 2012 10:33 AM

Subject: lactulose experience

 

I am interested in this drug. How do must of you (who take it) do it? Put it

in juice? How much do you use?

Thanks, Jackie

[Guest guest]

My husband takes lactlose 4 tablespoons 4 times a day 4 days a week and 3

tablespoons 3 times a day to help with high ammonia levels.  3 times a week due

to dialysis. Even this much he still gets high ammonia levels.

He was in the hospital 3 times less than 2 weeks for ammonia levels. It took 12

hrs before the ammonia levels started to drop and he knew what was going on.

Does anyone else care for anyone with ammonia levels getting high and do you

keep them at home or go to the hospital. All the Drs can do is give him

lactulose but I worry about him going into a coma if I kept him home. levels

have been  140, 206 ,225

Sincerely,

 

Bonnie Randklev

McCormick Realty

2673 Steamship Drive

Bullhead City, Az 86429

Office: 1-

Fax:

Cell:

http://www.northforkatlaughlinranch.com/

[Guest guest]

Hi Bobby:  Interesting comment about the air bubbles in the intestine.  About

6 months after my husband's liver transplant we had an appointment to see the

kidney dr at the transplant center.  While we were in his office I got a call

from the liver transplant coordinator telling me to take him to the er because

his potassium was elevated.  They admitted him to the hospital and gave him 3

doses of a horrible gritty tasting thick liquid called kayexolate to bring his

potassium down.  It worked like a charm, the same way that lactulose works if

you get my drift, and the next morning he was fine.  I asked the drs, since we

were already there, could he have the scheduled scans he was supposed to have so

we wouldn't have to make another trip back next week.  They were very

accomodating, too accomodating I might add.  They took him down for the scan

but didn't wait for the kayexolate to get out of his system, came back very

puzzled with a team of

colorectal surgeons along for the ride, and told us that he had air in his

abdominal area which indicated dead colon.  They wanted to remove part of his

colon and fit him with a colostomy bag.  His liver dr had a fit!  Then they

thought 'well, maybe it's CMV' so they sent him off to the ICU where he spent

the night and I camped out in the ICU waiting room.  All night long I looked up

stuff on the internet and prayed to God that he wouldn't have anything seriously

wrong.  Another scan was scheduled for 5AM.  After the scan came back normal

the drs came in looking very puzzled.  I told them I had been up all night

looking up stuff on the internet and I knew what the problem was.  " It's a

fart! "   I told them.  The one dr burst out laughing and the other one looked

at me puzzled and said " but a fart would be inside the colon.  This was on the

outside. "   " It's a run-away fart! "   I told him, " Now get us out of this cootie

factory.  This is no

place for a person with a compromised immune system! "   We lovingly call it to

this day the " Much Ado About Nothing " episode.  So how you doing?  Did you

finish reading my book yet?  Have a good day.  Love, Jackie

________________________________

To: " livercirrhosissupport "

<livercirrhosissupport >

Sent: Monday, June 18, 2012 12:43 PM

Subject: Re: lactulose experience

 

Dear Jackie,

I have been taking lactulose for persistant encephalopathy

 for 6 years. In the beginning, it came as a flavorless syrup, and could either

be taken alone or added to juice or water, but around three years ago the

company which made a generic form called " Enulose " went out of business. This

left only the brand name Lactulose for us to take. Lactulose has a banana

flavoring which is so putrid that I routinely get a severe stomach ache when I

try to take it. I also have a prescription for the powdered form, called

" crystalose " which s much much less offensive. I take either one  three times a

day in 6 oz. of juice. You should check with the doctor or pharmacist for any

inquiry regarding questons about this drug and your husband. Please use caution

when using lactulose. It has acquired a rather false reputation as a harmless

substance, but can cause some severe complications especially  if taken

excessively, or outside of a doctors guidance. all prescription drugs should be

taken as prescribed. 

In Japan, and other countries, lactulose is an OTC (over the counter drug)

leading to speculation that it is harmless, but I was hospitalized in serious

condition with air bubbles in the lining of my large intestine from lactulose.

My team at the CU transplant center was completely stumped because there had

been no known cases of this condition before. Soon after, a peer reviewed

medical article was published about several cases of the condition known as

pnumatosis coli. Good luck to you 

Love, Bobby

________________________________

From: son <mailto:fredjacqueline%40bellsouth.net>

To: mailto:livercirrhosissupport%40yahoogroups.com

Sent: Sunday, June 17, 2012 10:33 AM

Subject: lactulose experience

 

I am interested in this drug. How do must of you (who take it) do it? Put it

in juice? How much do you use?

Thanks, Jackie

[Guest guest]

jackie,

i take lactoluse 3 times aday 30ml i am so use to it i just drank it out of the

bottle.the dr said i came adjust the dose if i need to.

hope this helps.

bev tx

________________________________

To: livercirrhosissupport

Sent: Monday, June 18, 2012 10:28 AM

Subject: Re: lactulose experience

 

Thank you Lyncia. Good idea.

Jackie

lactulose experience

I am interested in this drug. How do must of you (who take it) do it? Put it in

juice? How much do you use?

Thanks, Jackie

[Guest guest]

Oh Thanks for such a laugh in the middle of the day!!  I know it wasn't funny

when it was happening; but, the way you have described it, is hilarious.

________________________________

Hi Bobby:  Interesting comment about the air bubbles in the intestine.  About

6 months after my husband's liver transplant we had an appointment to see the

kidney dr at the transplant center.  While we were in his office I got a call

from the liver transplant coordinator telling me to take him to the er because

his potassium was elevated.  They admitted him to the hospital and gave him 3

doses of a horrible gritty tasting thick liquid called kayexolate to bring his

potassium down.  It worked like a charm, the same way that lactulose works if

you get my drift, and the next morning he was fine.  I asked the drs, since we

were already there, could he have the scheduled scans he was supposed to have so

we wouldn't have to make another trip back next week.  They were very

accomodating, too accomodating I might add.  They took him down for the scan

but didn't wait for the kayexolate to get out of his system, came back very

puzzled with a team of

colorectal surgeons along for the ride, and told us that he had air in his

abdominal area which indicated dead colon.  They wanted to remove part of his

colon and fit him with a colostomy bag.  His liver dr had a fit!  Then they

thought 'well, maybe it's CMV' so they sent him off to the ICU where he spent

the night and I camped out in the ICU waiting room.  All night long I looked up

stuff on the internet and prayed to God that he wouldn't have anything seriously

wrong.  Another scan was scheduled for 5AM.  After the scan came back normal

the drs came in looking very puzzled.  I told them I had been up all night

looking up stuff on the internet and I knew what the problem was.  " It's a

fart! "   I told them.  The one dr burst out laughing and the other one looked

at me puzzled and said " but a fart would be inside the colon.  This was on the

outside. "   " It's a run-away fart! "   I told him, " Now get us out of this cootie

factory.  This is no

place for a person with a compromised immune system! "   We lovingly call it to

this day the " Much Ado About Nothing " episode.  So how you doing?  Did you

finish reading my book yet?  Have a good day.  Love, Jackie

________________________________

To: " livercirrhosissupport "

<livercirrhosissupport >

Sent: Monday, June 18, 2012 12:43 PM

Subject: Re: lactulose experience

 

Dear Jackie,

I have been taking lactulose for persistant encephalopathy

 for 6 years. In the beginning, it came as a flavorless syrup, and could either

be taken alone or added to juice or water, but around three years ago the

company which made a generic form called " Enulose " went out of business. This

left only the brand name Lactulose for us to take. Lactulose has a banana

flavoring which is so putrid that I routinely get a severe stomach ache when I

try to take it. I also have a prescription for the powdered form, called

" crystalose " which s much much less offensive. I take either one  three times a

day in 6 oz. of juice. You should check with the doctor or pharmacist for any

inquiry regarding questons about this drug and your husband. Please use caution

when using lactulose. It has acquired a rather false reputation as a harmless

substance, but can cause some severe complications especially  if taken

excessively, or outside of a doctors guidance. all prescription drugs should be

taken as prescribed. 

In Japan, and other countries, lactulose is an OTC (over the counter drug)

leading to speculation that it is harmless, but I was hospitalized in serious

condition with air bubbles in the lining of my large intestine from lactulose.

My team at the CU transplant center was completely stumped because there had

been no known cases of this condition before. Soon after, a peer reviewed

medical article was published about several cases of the condition known as

pnumatosis coli. Good luck to you 

Love, Bobby

________________________________

From: son <mailto:fredjacqueline%40bellsouth.net>

To: mailto:livercirrhosissupport%40yahoogroups.com

Sent: Sunday, June 17, 2012 10:33 AM

Subject: lactulose experience

 

I am interested in this drug. How do must of you (who take it) do it? Put it

in juice? How much do you use?

Thanks, Jackie

[Guest guest]

I take 30 mL, 4 times a day. I use a small medical measuring cup (sort of like a

smaller shot glass) and thow it down like a couple of shots of whiskey. I used

to hate it, then got to the point where i knew i needed it and not whine, and

now I just take it and don't really think about it. It saves my life, so no

complaints from me!

I've been taking it for 2--2.5 years along with Xifaxin, and never have those

episodes of shaking, loss of focus and memory, and confusion. It wasn't until I

added the Xifaxin that I started to feel normal again.

Lactulose serves as a laxative that attacks and removes E. Coli, abyproduct of

protein intake, from your intestines. E. Coli stays in your system and creates

ammonia, which in turn causes these episodes of confusion and mental fuzziness.

occasionally i have to use an OTC laxative to keep the intestines clear.

Good luck and God bless

Kip

kip via iPad

[Guest guest]

Amen to that!

love, Bobby

 

________________________________

To: " livercirrhosissupport "

<livercirrhosissupport >

Sent: Monday, June 18, 2012 6:18 PM

Subject: Re: lactulose experience

 

In Canada, it's an OTC as well.  I'm so glad to see this conversation; because,

I didn't know if I was somehow not taking it right.  Nothing was happening. 

Then, it really let go and who would know that any 1 person could be carrying

that much crap in the body??   Also, I've been mixing it with a small glass of

flavored water and it goes down really easy. 

Bobby, I agree with you of course; but folks should not take more than the

recommended dose of anything.

Gloria

________________________________

 

Dear Jackie,

I have been taking lactulose for persistant encephalopathy

 for 6 years. In the beginning, it came as a flavorless syrup, and could either

be taken alone or added to juice or water, but around three years ago the

company which made a generic form called " Enulose " went out of business. This

left only the brand name Lactulose for us to take. Lactulose has a banana

flavoring which is so putrid that I routinely get a severe stomach ache when I

try to take it. I also have a prescription for the powdered form, called

" crystalose " which s much much less offensive. I take either one  three times a

day in 6 oz. of juice. You should check with the doctor or pharmacist for any

inquiry regarding questons about this drug and your husband. Please use caution

when using lactulose. It has acquired a rather false reputation as a harmless

substance, but can cause some severe complications especially  if taken

excessively, or outside of a doctors guidance. all prescription drugs should be

taken as prescribed. 

In Japan, and other countries, lactulose is an OTC (over the counter drug)

leading to speculation that it is harmless, but I was hospitalized in serious

condition with air bubbles in the lining of my large intestine from lactulose.

My team at the CU transplant center was completely stumped because there had

been no known cases of this condition before. Soon after, a peer reviewed

medical article was published about several cases of the condition known as

pnumatosis coli. Good luck to you 

Love, Bobby

________________________________

To: livercirrhosissupport

Sent: Sunday, June 17, 2012 10:33 AM

Subject: lactulose experience

 

I am interested in this drug. How do must of you (who take it) do it? Put it

in juice? How much do you use?

Thanks, Jackie

[Guest guest]

If your doctor kept you there, tell him he needs to help justify your stay to

the insurance company. i have been turned down for stuff several times and i

complained. they will pay if you you persist.

kip martin

bassophonic@...

[Guest guest]

BOBBY, THAT WHAT HAPPEN TO ME I HAVE ACID REFLEX, AND EACH TIME I TOOK

LACTULOSE, I NEARLY DIED, MAN I COULDNT WALK, DIDNT WANT TO GET OUT OF

BED, SICK TO MY STOMACH AND GUESS WHAT IT DIDNT DO IT JOB, I TOLD MY

DOCTOR ABOUT CONSTIPACTION AND THAT WHAT HIS SORRY ASS GAVE ME.... YES

I WENT THROUGH HELL WITH THIS DRUG, I WILL NEVER TAKE IT AGAIN.

SO THERE IS MY STORY.... TOMMIE

lactulose experience

 

I am interested in this drug. How do must of you (who take it) do it?

Put it in juice? How much do you use?

Thanks, Jackie

[Guest guest]

Tommie

Have you ever tried drinking alkaline water for your acid reflux? You can make

it simply by putting lemon juice in water and drinking it that way. I used to

have alot of it but since doing this I have it very seldom now.

Z

Sent from my iPad

BOBBY, THAT WHAT HAPPEN TO ME I HAVE ACID REFLEX, AND EACH TIME I TOOK

LACTULOSE, I NEARLY DIED, MAN I COULDNT WALK, DIDNT WANT TO GET OUT OF

BED, SICK TO MY STOMACH AND GUESS WHAT IT DIDNT DO IT JOB, I TOLD MY

DOCTOR ABOUT CONSTIPACTION AND THAT WHAT HIS SORRY ASS GAVE ME.... YES

I WENT THROUGH HELL WITH THIS DRUG, I WILL NEVER TAKE IT AGAIN.

SO THERE IS MY STORY.... TOMMIE

lactulose experience

I am interested in this drug. How do must of you (who take it) do it?

Put it in juice? How much do you use?

Thanks, Jackie