Fwd: I need some information and help

May 9, 2004

In a message dated 5/9/04 8:46:19 AM Eastern Daylight Time,

Matsumura_Clan@... writes:

> Jacquie, I would recommend traveling for a consultation to get your

> diagnoses sorted out. I'm not sure if that's possible for you, but you

> have so many serious issues that I think the most important step is to

> make sure you have the correct diagnoses. From there, the right

> decisions about treatment can be made.

> I had two lamenectomies L4-L5, L5-S1. I was told by my PCP that there is a

type of test to either confirm this diagnosis ( of descitis)or rule it out. He

sent me an email but I do not know what type of test it is, He also recommended

that I see an orthopedic and a neurologist at the same time, according to him

they can surgically implant a port? and have a nurse come to the house and

give me antibiotics, traction is another possibilty.I will let you know what

this is next week.

I was so totally depressed to see the amount of degenerative changes in my

back, my husband's DDD is in worse shape since he was a mason all of his life.

Also I told my rheumy (who I do not have a real deal of confidence in since she

has quit twice and then reopened her office and does not seem too

knowledgeable, heard me talking to him about his recent joint pain and since her

husband

was his orthopedic she has known Jim for years. She looked at the thickening

skins on his hands and since he is in a high risk group because he was a mason,

she wants to run some tests and suspects Scleroderma> The worst fear I have

is that our 3 year old has a 50% of getting an autoimmune disease.

Thank you so much for your generosity and kindness, and all your information.

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