Re: something I have noticed about getting Hey MIKE

[Guest guest]

a little story about that- my hubby and I both go to the VA hospital on Fris.

He goes in the morns.I go afternoons we pass each other traveling. One day I

stopped at a McDs for a bottle of water. I had to call his cell and have him

stop to open it. I had to buy different drink glasses becuz some are too heavy

and some are shaped bad. I use a straw more cuz my wrist does not always allow

tipping a glass for me to sip. Ah the strange " little things "

- In , mike nelson <winchester19572004@y...> wrote:

> any jars or pop bottles i have to ask my wife to open for me. becuse i don't

have the grip to open them any more. it's hell to be limited . and just to think

it will only get worse is depressing . makes you just want to sit down and cry.

but we got to keep on pushing on. mike

>

> dreamer_plus <dreamer_plus@w...> wrote:my mom told me I should be embarrassed

to ask my kids to help me comb my hair. My friend with MS says gosh why use a

scooter? I told my mom well thekids would be MORE embarrassed if I ran around

ungroomed just cuz it is too hard for me to do it alone- and I told my friend

gosh I do not want to always stay home- I am too young! I still LIKE to go

places- the scooter lets me. My kids are not embarassed by my scoooetr, they

LOVE it! My little guy hangs on the back, and the older ones load me down to

carry everything, LOL. SOmeone actually told me gosh if you really are sick

STAY home. I was like HUH? gosh there is just too much living I want to do- so

wwhat I am slow. SO what I now wear pull over my head dresses or dresses that

snap up the front for ease- or I plop silly hats on my head cuz it is easier

than trying to reach my hair or holding a comb- hey I get to go all kinds of

places again with my scooter!

>

>

>

> - In , " Tawny " <tawnyokc@s...> wrote:

> > Hi Mike,

> >

> > I know what you mean, I get really tired of explaining to people

> > about my RA, and my limitations. Their like, you don't look sick, so

> > I guess they think I'm faking when I limp.

> > Then the handicap parking, oh I dread it everytime I go to the store,

> > isn't that terrible that we have to feel that way?

> > I wrote to the newspaper about trying to educate the people here in

> > Oklahoma City, because some people have no clue to what rheumatoid

> > arthritis, except it's a old person's disease. I have not had a

> > reply yet, probably won't.

> > As for my husband, he doesn't have very much sympathy for me. I just

> > deal with it on my own, I get so depressed about it. I am not the

> > same anymore, and so I get tired of trying to be. It's like I'm

> > tired of trying to keep up with everyone, cause I'm getting slower.

> > He comes home all hyper, and thinks I should be OK, and I'm not.

> > Thanks so much for your understanding, I need it, Tawny

> >

> >

> >

> >

> >

> >

> >

> >

> > > > > > The docs where I live are not at all aggressive in ordering

> > > tests

> > > > > for people. M frind lost an eye to cancer, she has MS and for

> > 4

> > > > > years the docs blamed her vision complaints on MS. FINALLY she

> > > got

> > > > > an ultrasound on her eye and they found very advanced eye

> > > cancer.

> > > > > (she is in early 30s) - they had to remove her eye. My son was

> > > > > exposed to meds that can cause spina bifida during my pregnncy

> > > with

> > > > > him- my husband also is documented Agent Orange exposed- heavy

> > > > > exposure- which also can cause spina bifida, - he was 2 months

> > > > > preemie, and his labor was especially long with him in fetal

> > > distress-

> > > > > BUT even when he could not toilet train, even with an in home

> > > > > behavior modification PHD coming to our house daily- even with

> > > him

> > > > > not being able to lern to ride a bike, even with him toe

> > walking-

> > >

> > > > > and having a hemangioma (classic signs of spina bifida) we

> > could

> > > not

> > > > > get any of the local pediatricians to check him out. (we wound

> > > up

> > > > > referring ourself to SHriners and THEY found brain damage and

> > > seizure

> > > > > disorders)

> > > > > > I cannot even tell you how many times I was in clinic, docs

> > > office

> > > > > and ER with RA symptoms, and what would they say? You are

> > > bipolar,

> > > > > are you upset? DId you hit something? Did you fall? Did you

> > > jump

> > > > > from somewhere and hurt yourself, causing this?

> > > > > > A friend of mines child died when our ER refused to examine

> > > their

> > > > > child, he had a twisted bowel that ruptured upon discharge from

> > > ER.

> > > > > My husband had a motorcycle accident, ambulance too him in from

> > > the

> > > > > scene. Local hospital discharged him, I called an ambulance

> > that

> > > > > took him to a VA hospital and they kept him a MONTH.

> > > > > >

> > > > > > Now I am wondering- gosh- do I even have RA? Everything I

> > read

> > > > > tells me this is correct- BUT------ gosh- there are not that

> > many

> > > > > rheumys around- and already I travel with my osn 6 hours round

> > > trip

> > > > > to take HIM to a teaching hospital- and I travel 3 hours each

> > way

> > > to

> > > > > take my bipolar daughter to a teaching hospital, and I travel

> > 90

> > > mins

> > > > > each way for my husband VA healthcare----am I going to have to

> > > also

> > > > > go to the city for MY healthcare? Is anyone else having a hard

> > > time

> > > > > getting treatment? Tests? I guess I assumed RA was pretty

> > much

> > > > > concrete, cut and dried for dx and treatment. AM I wrong?

> > >

> > >

> > >

> > >

[Guest guest]

It sure earned him good points with the women I went to see at the VA- and then

they told their husbands and it earned him lots of good natured teasing from the

men at VA next time he went, LOL. I did think it was very sweet. I called it

one of those things you do that show how much you love someone. :-)

YES - cell phones are awesome! One day I was coming home from school- before dx

and all- and my knee swelled on my way home (it was the beginning of a truly

intense flare)- I had a stick shift car (I miss that car os much) and I had to

pull over and call home and he had to come get me cuz no way with that knee

could I drive that car. without the cell phone I am not sure where I would have

called him from, by that point, I also could not WALK! (i did not realize THAT

until he got there to get me)

Talk about an ego blow for 5 years HE was catatonic from combat PTSD and I ran

the house and family alone, and now here I am calling him on a cell phone to

open water? LOL

- In , Birdijo@a... wrote:

> In a message dated 02/05/2004 10:00:11 Central Standard Time,

> dreamer_plus@w... writes:

>

>

> > I had to call his cell and have him stop to open it.

>

> Thank goodness for cell phones, huh? I know how frustrating it is to be

> unable to open things, I have the same problem. But for some reason, the

thought

> of you and your husband passing each other in opposite directions and him

> pulling over to open your bottle struck me funny! Cary

>

>

>

[Guest guest]

:-) :-) :-)

I think it made me fall in love all over again. I was SO touched. :-)

- In , Birdijo@a... wrote:

> In a message dated 02/05/2004 23:22:49 Central Standard Time,

> dreamer_plus@w... writes:

>

>

> > Talk about an ego blow for 5 years HE was catatonic from combat PTSD and I

> > ran the house and family alone, and now here I am calling him on a cell

phone

> > to open water? LOL

> >

> >

>

> the beautiful give and take of a good marriage, huh? :>) Cary

>

>

>